jmgoyder

wings and things

Good news!

A beautiful little girl who everyone has been praying for has, after so many long months, finally been declared cancer-free.

The friend who had the car accident, and has been in a coma, has opened his eyes.

Arthur (the old man who lived in the old hut at the back of our farm) has recovered from a stint in hospital and has been accepted permanently in a nursing home where he is adored.

Ming and I have accomplished a lot of housy/farmy tasks together with very little strife.

Anthony answered the phone.

A beautiful little girl who everyone has been praying for has, after so many long months, finally been declared cancer-free.

The friend who had the car accident, and has been in a coma, has opened his eyes.

[Note: I have repeated the most important good news items].

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A wonderful idea!

This idea has been brewing for awhile now and I have dismissed it a few times, mulled it over a few times, and now, once again, I am seriously thinking it might actually be a very good idea, maybe even a wonderful idea!

I will get a job at Anthony’s nursing lodge.

I’ve only told a few people about this idea and have had very mixed responses. One friend said she couldn’t think of a worse idea; one family member thought it was a strange idea but interesting and Ming said I must truly have gone stark raving mad.

You see, I have recently  (June 30) resigned from my job as a lecturer at the local university. I had worked there, mostly part-time, for over 18 years but over the last two years had been on leave except for supervising two PhD students. This had enabled me to care for Anthony full time.

So now I need a job. And why not work where Anthony is? My enrolled nurse qualifications lapsed some years ago but I could work as a carer or domestic and, even if I didn’t work in Anthony’s section, I could see him in my lunch breaks.

Well, today being the first day of a brand new month, and with all sorts of resolutions unfolding like teamwork with Ming and so on, I just rang the nursing manager at the lodge and asked if this might be possible or would there be some sort of conflict of interest. There was a slight pause but then she said she couldn’t see a problem in the idea and she would leave an application at the front desk for me to fill out tomorrow.

Yeeha – another new beginning!

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Priority

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Enough

Ming (18-year-old son): We need to talk.

Me: Yes.

Ming: I’ve had enough!

Me: Yes.

Ming: Your life is consumed by Anthony.

Me: Yes, sorry – I’m just trying to….

Ming: Mum, what do you want in life – what do you want in life now?

Me: Good question.

Ming: I know what I want right now, Mum and it’s got nothing to do with my ambitions.

Me: What do you mean?

Ming: I just want you to be happy again.

Me: Oh, that is a wonderful suggestion and how exactly do you plan to do it?

Ming: If you just listen ….

Me: What? Listen to you tell me off for every time I put too much water into the chook pen? Listen to you tell me off for ringing you on your mobile when you’re late? Listen to you tell me off because I’ve run out of weetbix? Listen to you tell me how to do every bloody thing as if I were born yesterday?

Ming: Please, Mum!

Me: Yes, what is it, oh fount of all wisdom? Have you found a magic potion for Dad?

Ming: That’s what I mean – it’s all Anthony, Anthony, Anthony.

Me: So you are saying I neglect you?

Ming: No! You are the best mother, I had the best childhood with you guys but now is sort of hell and sometimes I want to go away.

Me: So do I.

Ming: Why can’t we be a team – do the farm jobs together?

Me: I’m not very good at teamwork.

Ming: Why won’t you talk to me like we used to?

Me: I don’t want you to share the misery.

Ming: I already do, Mum! You have to let go of Dad emotionally – you have to trust the nursing home to look after him. He is fine!

Me: So how did you let go?

Ming: I just did – ages ago – so I could survive.

Me: Are you saying that my own misery is leaking into your life now?

Ming: Yes. Can you please stop it?

Me: What – the grief?

Ming: Yes, because I’m still here and you’re still here and the farm is beautiful and we are going to make it better.

Me: And why would that happen?

Ming: Because I love you.

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Around and around we go….

This morning the peafowl are doing something I haven’t seen before. They are playing some sort of chasing game around and around the house – almost like ‘tag’ in its old-fashioned sense. Mostly they are sprinting but, whenever one gets close to another, the one ‘tagged’ will fly up onto the roof, scramble across and jump down on the other side, and the chase begins again. To begin with I thought it was some sort of flirting game with the peacocks chasing the peahens but I have been watching, enthralled, for some time now and both males and females are chasing each other. They are doing this anti-clockwise around the house, over and over, and I cannot stop laughing.

My argument with Anthony in the nursing lodge yesterday has made me realize that I need to rethink a few things when it comes to explaining to him that coming home for good is out of the question. Of course this has been said before, but always a little evasively, with averted eyes and falsely hopeful half-phrases like, maybe tomorrow, let’s see if you’re up to it on the weekend, the restaurant on the beach possibly, not sure but I could get someone to help me lift you etc. Yesterday, I reminded Anthony that he had willingly signed into the nursing lodge as a permanent resident months ago, that it had become increasingly difficult to bring him home due to his deterioration with Parkinson’s Disease and this is how the conversation went. It was just after lunch, my mother had left and I closed the door to Anthony’s room so we could argue in relative privacy.

Anthony: So I’m here forever until I die am I?

Me: Don’t you remember? You were here for respite because we had to find somewhere for you to stay when Ming had his operation, then this room became available for you permanently and we had to make a decision or miss out and be put on a waiting list and we both decided, together, that this was a good idea.

Anthony: I just want to be home with you and Ming.

Me: I know, I know, but it’s impossible. You are high maintenance – you need nursing care. I did it for four years, Ants, and took leave from work for two years. I got exhausted from the night shifts with you and ended up in hospital myself – twice!

Anthony: But why can’t we just give it another try?

Me: Give what a try?

Anthony: Me coming home for the night.

Me: We’ve tried that – a few weeks after Ming’s surgery, I brought you home for the night and it was a disaster, and then we tried it again a few times and you were too heavy for me and then we decided to just do the day thing.

Anthony: But I can improve.

Me: How? You have Parkinson’s Disease and it’s getting worse. It’s not your fault and you can’t make yourself any better.

Anthony: So I’m going to die here.

Me: But I see you most days, talk to you several times a day on the phone, and bring you home once a week – why can’t that be enough?

Anthony: I just want to be home, Jules.

Me: Okay, listen to me. You want to be home. I want you to be home. We don’t always get what we want do we. I didn’t want a sick husband, I didn’t want to be alone – you think you are the only one alone? You are surrounded day and night by people who care for you – I’m the one alone.

Anthony: You have Ming.

Me: Ming is 18 – he’s out most of the time and good on him.

Anthony: Well make him stay home.

Me: No! I’m not going to trap him too!

Anthony: But you said you were lonely.

Me: I’m not lonely in general, you idiot – I’m lonely for you.

Anthony: That’s why I want to come home.

Me: Okay, this is what happens when I bring you home. You hardly speak on the way home; it takes me at least half an hour to get you from the car into the house and comfortable; you eat whatever I have prepared for lunch but leave most of it; it takes another half an hour to get you to the loo and out and back into an armchair; you fall asleep for a couple of hours; it takes half an hour to get you back into the car to go back to the lodge; it takes help from staff to get you out of the car and into the lodge and your room; and when I say goodbye you ask why I am always in a hurry and you make me feel guilty.

Anthony: Yes, but I love being at home anyway and I didn’t know I was going to be here forever.

Me: You did know! This is permanent Ants, you have to accept it – please. I am beginning to dread visiting you because you do this every single time and I can’t stand it. You can’t see beyond you, you, you, can you! What about me – why don’t you care about me? I am going to wreck my back, if you keep making me take you home.

Anthony: Jules, please don’t cry. I’m sorry.

Me: You are so selfish! I’m going to use your bathroom and then I am going home to a freezing cold house with no husband in it.

Anthony: Please, Jules, I’m sorry – I love you.

Me: I’ve got my sunglasses on now, in case I bump into any staff.

Anthony: Let me walk you out to the car. Just help me go to the loo first.

Me: I want to go home now – not in an hour.

Anthony: Okay, just give me a kiss, Jules – I’m so sorry.

Me: Here is your kiss. I have to go, Ants – sorry – I love you so much but you have to stop doing this to me, please …. I’ll ring you later. Oh, and another thing: sometimes when I ring you don’t know where the hell you are anyway.

And that was yesterday: give me today anytime because watching peafowl running in circles beats the hell out of yesterday.

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Having an argument in a nursing home is a bit awkward!

Yeah, I know I keep calling the place where Anthony now lives a ‘nursing lodge’ but that’s only because it sounds a bit nicer than ‘nursing home’. Also it is called a lodge by its owners and I like that because it is so different to what I imagined a nursing home might entail. Anthony is in the ‘high care’ section, but he has his own room, his own bathroom, a view to the garden and it is all quite spacious, a bit like a motel room for one person. If he makes the slightest murmur, someone comes to help, the meals are delicious and the staff are beautiful – not just the nursing/caring staff but also the domestic and kitchen staff. Everyone seems very fond of Anthony, who they call Tony, which is what most people have always called him anyway, and everyone knows my name too which I find remarkable and lovely.

Today I went in at noon and so did my fantastic mother, and the three of us had lunch together in Anthony’s room. His meal was good, the sun was shining through the window, and I hesitantly brought in two more pictures from home to hang on Anthony’s wall. I had already brought in a jarrah/cast iron mirror one of my brothers made us a few years back, a huge clock I bought the other day, and a poem written by one of his best mates for his 75th that we had framed when Ants was still home on the farm.

I took in an original painting of cattle that I had commissioned for Anthony’s birthday years ago and a photo of Ming as a baby. Anthony didn’t like the fact that I had brought yet more home things into the nursing lodge and became glum and, yes, we had an argument and I had to close his door so that the staff wouldn’t hear my desperate pleadings to him to please, please, stop ruining all of my visits to him. At the end of that, as I was leaving, he still asked:

Anthony: So when am I coming home?

I cried all the way home, not with grief but with a kind of new rage.

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The dos and don’ts of when you run out of toilet paper and visitors are about to arrive

1. You do cut newspapers up into little squares just in case

2. You do quickly search the internet for innovative ideas with historical credence so that you can add a bit of knowledgable weight to just in case

2. You do not ring a friend who hasn’t been invited and ask to borrow toilet paper which of course you can’t possibly return anyway

3. You do not panic and berate yourself for being so disorganized and hopeless and disorganized and hopeless

4. You do decide not to give your visitors any sustenance whatsoever

4. You do not entertain the idea of suggesting to your visitors that they ‘go’ outside since they are all women and would find this distasteful

5. You do not contemplate the possibility that one of your visitors might be suffering from a gastric disturbance

6. You do meekly ask one of your visitors (when she rings to say she is on her way and can she bring anything) to please bring some toilet paper

7. You do restrain yourself from being too effusively grateful to the visitor who is bringing the toilet paper

8. You do begin to now wish there were a bit more sustenance in the house

9. You do hope that the car you can hear pulling up in the driveway belongs to the visitor who is bringing the toilet paper because you have to go

10. You do not panic when it is one of the other visitors

11. You do not, during the lovely visit with three of your best friends, continually punctuate the conversation with offers to use the toilet

12. You do wonder why the only person who needed to use the toilet, during the visit, was you.

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Tentative togetherness!

Now that the Emerys (emus) are big enough, we have been able to transfer them into a larger area to join Okami and Uluru, the alpacas. This is the first time I have ever seen the alpacas a little feisty. Today, whenever the Emerys ventured near to the alpacas, Okami, the biggest, would hiss and Uluru would copy him. This caused the timid Emerys to zigzag-sprint all over the place – hilarious!

Uluru: I don’t like this situation, Okami.

Okami: Just ignore them and they might go away.

Uluru: Yeah, but they’re too big to get through the fences now.

Okami: Good point. Okay, let’s just hope this is temporary.

Uluru: I’ve never heard you hiss before – it was amazing!

Okami: I’ve never heard me hiss before either, Uluru, but I never cease to amaze myself. Now keep eating; we don’t want them getting our food too.

Uluru: Would you like me to chase them again?

Okami: That’s a good idea; you chase and I’ll eat. Off you go.

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Do you want to be buried or cremated?

Do you prefer coffee or tea, jam or honey, steak or chicken, pavlova or apple pie, weetbix or cornflakes, roses or camellias, ducks or chickens, Hawaii or Vancouver?

I don’t need to ask my husband any of the above questions because I already know the answers, but I have no idea what his answer would be to the question that is the title of this post.

And I don’t care what anyone says, I am not asking him that question because he is already so anxious and homesick and probably really scared, so I have had to take a punt and make a guess.  I signed the rotten form and put it in a rotten envelope with my rotten letter of thanks and my rotten poem and gave it to rotten Ming to deliver today.

So my question to anybody reading this is not about whether you wish to be buried or cremated (although I am curious), but whether you would like this question filtered or unfiltered.

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Saying ‘I love you!’ to a stranger

Okay, I don’t do this all the time but today a woman behind a counter served me with a smile even though she could see the desperate, psycho look in my eyes.

“This is a mobile phone,” I began (which, in hindsight, seems a rather obvious thing to say as I was in a mobile phone shop).

She smiled, patiently and asked, “And….?”

“Well we bought it from you guys and it belongs to my husband who is in a nursing home and it’s supposed to be easy to operate but he can’t answer it before the five rings and I want the message thing eradicated and I have brought it back twice and rung all of those numbers and followed all of the prompts but I still can’t get the stupid thing to ring more than five times and all of his family and mine are going mad because nobody can get through to him and twice the stupid message my son put on my husband’s phone has been eradicated but it keeps returning like some sort of phone ghost and….”

“Would you like me to take a look at the phone?” she asked calmly.

“Yes, okay,” I said uncalmly, “but we have been here before and done this before and honestly I am really going insane and people are getting angry with me because they can’t get through to my husband even though I have changed all the settings and my brilliant son has altered all of the thingys and why won’t it work?” By now, Ming, having had a nice chat with someone he bumped into, was at my side whispering to me that I was getting a bit loud.

During my little rant (and I wasn’t really that loud), I had half noticed that the woman serving me was pressing buttons on her phone, our phone, a computer, another phone, and another computer, at such astonishing speed that for a moment I thought she had 50 fingers. And then she handed me the phone, demonstrated how it would now ring out before cutting into the stupid message bank thing, and my whole body wilted with relief that finally this ongoing problem was solved.

But, just before I decided to smile back at this woman who I now felt resembled an angel, I said, “But we’ve done this before and it reverted back to the same problem, so how do we know it’s going to work for sure this time?”

“Oh,” she said, “I have the code, so it’s quite simple. You won’t have any more problems with this,” she said, again handing me Anthony’s phone and glancing at Ming in a way that indicated that (a) she’d had enough of us, and (b) she admired him for coping with me (yes, I  really did see that kid-versus-parent-empathy, flick of the eye-lash exchange between them).

OMG – the phone was fixed? After all my struggles with it? A miracle.

“I LOVE YOU!” I whooped at the woman who had served me, and she smiled with the joy of her job and waved us goodbye and then I let out another whoop of joy as Ming and I left the shop to go and take the phone back to Anthony.

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