jmgoyder

wings and things

Predicting unpredictability

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In advanced Parkinson’s disease, it is difficult to predict how any one day will unfold. PD is the kind of disease whereby the timing of medications is almost as important as the medications themselves.

Over the many years since Anthony’s diagnosis, the medications have been changed repeatedly to ‘keep up’ with the progression of the disease. The various timings have also been altered here and there because it’s so difficult to get it right.

In some ways, I quite like the idea of unpredictability – unexpected visitors, for example. In other ways, I don’t like unpredictability -unexpected visitors, for example (ha!)

With PD (especially when it includes a bit of fresh dementia), the unexpected visitors come in the form of constant unpredctability. Today, for instance, I visited Ants at the nursing lodge just after lunch. I predicted that he would have the usual post-meal droopiness but instead he was lively, lucid and he made me laugh.

This was just as unpredicted as the arrival of four wild galahs who seem to have made this place their home recently. So I guess there really isn’t much point attempting to predict the unpredictable, and I am going to stop trying, happily!

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Goofy guinnea fowl

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Anthony was wheelchair-taxied home for the afternoon yesterday and I was excited about showing him what Ming and I have just discovered – a nest of guinnea fowl eggs behind the wash house, with a mother in attendance.

When Ants arrived he managed to walk unassisted from the taxi to the front veranda after Ming and I helped him out of the wheelchair. But 15 minutes later, when he had to go to the loo, he couldn’t move without my help and it was another 15 minutes before he and I were sitting down again. I knew then that there was no point trying to get him around to the back of the house to see the nest. Oh well, maybe next time.

The guinneas were the first birds we ever got and Ants loves them. If all goes well, we will have another flock soon!

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Where is Mum?

I got a bit of a shock yesterday when Anthony asked if I knew where his mum was.

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