jmgoyder

wings and things

Unchopped wood

Here is a typical little scene of when Anthony/Husband comes home for the day:

I hear yelling outside as I am preparing lunch. I hear the slow chopchop of the axe. More yelling – Son to Anthony. I hold a grrrr tight in my chest.

Then, like a constant re-run of an old episode ….

Son (running into the house in a panic): Mum – Dad is trying to chop the wood again! He won’t stop!

Me (stirring the fish mornay for lunch): Is he okay?

Son: Yes, but what if he chops his leg off?

Me: If he chops his leg off we will deal with it. Just stop yelling at him. Let him do it – please – let him do it.

Son: Well do I supervise or what?

Me: Only if you don’t yell at him.

Son: Grrr!

Anthony usually manages to chop enough wood to start a fire in the fireplace before exhausting himself. Before he moved to the nursing lodge we would have a fire going 24/7 because he feels the cold so badly. But, when he isn’t here, Son and I don’t bother because, until next February, when Son’s spine is totally healed from the operation, he is not allowed to do things like chop wood, lift heavy objects, ride his motorbike.

So, except for when Anthony is home, that pile of wood remains unchopped and the fireplace unlit.

The warmth of Anthony’s presence is much more than metaphorical!

38 Comments »

Pondering 2

Some people say that love never runs out but I think this might be a lot of crap (and I don’t mind debating this), because it does run out. It runs out all the time in all sorts of different situations. Sometimes it dries up from the heat of exhaustion; sometimes it trickles into other ponds; sometimes it kangaroos away; sometimes it smothers itself with toomuchness; and sometimes it simply evaporates.

Some people say that the opposite of love is not hatred but indifference and, to some extent, I understand this theory but not entirely; I have been the recipient of both and the perpetrator of both. I hate Anthony’s disease(s) and I hate those who have hurt him and both of these hatreds will never become indifference while he is alive.

Son’s attitude has altered from hatred (of Anthony’s disease, of Anthony himself, of life and circumstances in general) to indifference (again, supposedly the opposite of ‘love’). This has only happened recently and, to begin with, I was upset because, as Anthony’s wife and Son’s mother, I wanted Son to keep on loving his father, but the fact is, quite simply, he doesn’t because he can’t. And that is perfectly all right because he is only 18 and has helped me in the caring role for many years now and he deserves to soar ahead of us.

Last night on the phone to Anthony I told him that Son had a problem coping with the situation, and with him, and Anthony, always pragmatic, just said, “Give the kid a break, Jules! I love him and he loves me and we both love you more than anyone in the world.”

Some people say that love never runs out and I agree. It just gets a bit whispery.

66 Comments »

Inviolable

I love this word so much.

It signifies strength, fortitude, courage and it means you can step off the metaphorical mountain and freefall into the water and easily – very easily – swim to the shore.

Inviolable.

If I had had a daughter I would have called her Viola!

35 Comments »

When the status quo shifts

When we first got Okami and Uluru we didn’t know that, underneath all that wool, they were quite little!

Once they had been shorn (earlier this year), we got rather a shock and had to retrain our brains to see them the way they are now instead of the way they were.

I don’t like to be overtly symbolic but this is very similar to the way Husband/Anthony, Son and I have had to retrain our brains in order to tune into the ‘now’ of Anthony’s Parkinson’s disease and its associated dementia.

In many ways, this creeping dementia is okay but in other ways its evidence always gives me an alpaca-shock!

“You were pretty crazy on the phone last night,” I say to Anthony. “Are you normal again?”

“Jules, I was at this party at Kingley Park.”

“Okay, so where are you now?”

“I’m at this place, you know, the old age home. When are you coming in?”

“Tomorrow morning – is that okay?”

“Bring me some of that chocolate I like, you know the one?”

“Yes. I’ll ring you to say goodnight.”

“Well don’t make it too late because I might be in bed.”

…………………………………………………………………………………………….

There is something extremely comforting about these phone conversations, but also discomforting (or is the word ‘discomfiting’?). On the one hand Anthony seems comfortable and content, though lonely. On the other hand, he often sounds confused but when I see him (every couple of days now), he is always perfectly lucid and the friends and relatives who visit him say the same.

I am about to go out and feed Okami and Uluru so I will ask them. Their huge eyes are always full of gentle wisdom.

42 Comments »

Time travelling

I am an easily confused person in that I often forget that I am not a teenager anymore, and if I read a novel where there is a character in her 50s, I automatically thing how old before I remember I am too (not old, but in my 50s – ha!).

When I began to write Anthony’s and my love story on this blog, little post by little post, I found it comforting that the difficulties of ‘the now’ (his illness, the nursing lodge etc.) somehow became more palatable via the memories of our past – especially the good bits.

Then I started to get a bit mixed up with where I was up to with the love story, so I plonked it into its own blog and, in many ways, that has alleviated my confusion.

But the strange thing is that this blog seems to be kind of missing the love story blog and the wide stretch of time between the anecdotes in each sometimes seems vast and rather empty. Each post in the love story blog tiptoes closer and closer to this blog in that temporal sense and I think this hesitancy, on my part, is because I don’t want them to get back together.

Sometimes I  want to stay in the love story blog and not come to this one, simply because of an aversion to now even though now is all there is.

I want to go back in time.

Sort of!

View across Anthony’s farm. Photo courtesy of Shaam Burley

40 Comments »

Laughter

Anthony has always had such a wonderful sense of humour and a way of being firmly planted, accepting of all contingencies, and light-hearted. I used to think these attributes were rather superficial and that he didn’t have depth (whatever the hell ‘depth’ means!) but I have, over our nearly 20 years of marriage, learned to do what he does, which is to laugh his way into and around various situations and then dismiss them as unimportant.

Well, no, I haven’t actually learned to do that exactly, but I am trying and I have Anthony’s verbal handbook by my side just in case I forget. He could run around paddocks and round cattle up without a murmer of exhaustion; he could climb onto the roof of this house during a cyclone and stop it; he could nurture a rejected calf and bring it up (and, until a few years ago, before ‘Reject’ died, this calf-come-steer would actually leap into Anthony’s arms and give him a hug.)

“Am I like you, or Dad?” Son asks me and I hide my anxiety behind a chuckle that reminds me of Anthony’s attitude.

“You are you, kid!” I say.

“Yes, but I think I might be more like you, Mum – serious and sad….”

I take a deep breath and say, “No, you are much more like Dad because of your sense of humour!”

“You know the way you laugh, Mum, in that loud way – could you try to do that a bit more often?”

“Okay.”

Anthony hasn’t laughed for a couple of years now. He used to have this raucous guffaw and his whole face would crinkle up in mirth and it was absolutely contagious and Son and I would be swept into this wonderful hilarity – always.

Anthony can’t even smile anymore and, the other day, when I said to him, “I wish you would just smile at me,” he said, “Jules, I have Parkinson’s – remember?”

“Yes,” I said, “but can’t you just try to smile?”

Anthony tried and failed and then looked at me (I was smiling hyena-ishly, trying to get him to do the same), and said, “Jules, you really are quite thick, aren’t you!”

And we both smiled….

44 Comments »

Anthony’s farm

39 Comments »

Resorting to words

I was rather enjoying using pictures instead of words, so today I had a few more, but they wouldn’t upload (grrrr!) so I guess I now have to use words again – alas!

My own words were beginning to trip me up (which is nothing new – ask one of my previous students!) And my grief over my husband, Anthony’s deterioration was beginning to curdle a healthy sense of humour, and clog the blog with a smog of miserable mixed metaphors – hehe!

The last few days have entailed a 3-way battle of wits in our little family – Husband, Son and me. It all culminated in a discussion the other day, when I had brought Anthony home, in which he again asked to stay the night and Son yelled, “Mum, tell him the truth!” and stomped back to his room, and I finally said to this husband, who I have loved for most of my life, that staying the night was impossible because he is a 2-nurse ‘job’ in the nights and I couldn’t do it any more.

“Ever?” Anthony asked.

“Ever,” I said, crying.

“So I can never sleep here again?”

“Never,” I said, folding myself into his arms, in the cusp of the armchair.

Once we got over all that emotional crap, and Son and I had helped Anthony into the car to go back to the nursing lodge, I said to Anthony, “And if you keep on making me feel guilty when I am doing my best, I will never make you scrambled eggs again.”

“Those were good scrambled eggs,” he said, adding, “a bit of bacon would have made them perfect.”

“You are such a bastard,” I said, starting the car.

Son gave Anthony a nose-smooch through the window, then he went back into the house.

“He’s a great boy, but you can be a real bitch,” Anthony said, chuckling now.

We held hands all the way back.

54 Comments »

“Actually, my dear, I think you may have forgotten who was really here first!”

20 Comments »

Cramps

I have, from time to time over the years, had leg cramps during the night and I must have inherited this from my grandmother because I remember that, when we all went to the beach, she wouldn’t go into deep water in case she got a cramp. If your legs cramp while you are swimming in deep water, you can easily drown.

If you have never had a leg cramp in the night, you are lucky, but, if you have, you will know that, in order to alleviate the pain, you have to jump out of bed and walk around until it goes away. You take some magnesium, or a bit of salt, and you are okay.

One of Anthony’s medications has a cramp side-effect. He told me the other day, with a bit of a chuckle, because he remembered my leaping out of bed to walk/run the cramp away. It used to make us both laugh because my antics were rather slapstick.

I still get the leg cramps at night and now, so does Anthony. But the difference is that he cannot leap out of his bed and I wonder how many other elderly people in nursing homes across the world, and over time, have experienced the excruciating pain of leg cramps and had to suffer silently.

Luckily, my loud, vociferous Anthony has begun to ring the bell for the nurses. A lot! Good on him.

41 Comments »