jmgoyder

wings and things

The long and short of it

I am well aware that my posts have become rather sloppily sentimental and even solipistic lately (and I hate solipsism!) I’m also very, very aware that Husband, Son and I are extremely fortunate in so many ways and that our recent troubles are nothing compared to many other people’s situations. I have wanted to say that for some time.

Son’s scoliosis surgery took over seven hours today and tonight he is the intensive care unit attached to a multitude of tubes. As soon as I was allowed to, I went to see him, but he was too groggy to really know I was there, although when I touched one of his hands, he grabbed it and, with his eyes still closed, and with great difficulty (as if my hand were a boulder), raised it to his lips and kissed it.

One of the things the nurses were doing was measuring his height and joking about how tall he would be now. This was a pre-operative joke too which didn’t really resonate with me until today when I remembered how extremely tall Son used to be. He was over 6 feet when the scoliosis went mad and shrunk him; previous to this he had always been ‘the tall kid’. Here he is pictured with two of his cousins who are both four years older than him. Son is on the left.

Okay, moving on now … tomorrow I will see Son, then go home to the birds. One of the funniest phonecalls I made from this hotel room was to my beautiful mother last night.

Me: I’m really worried.

Mother: Of course you are – this is huge surgery.

Me: No, I’m worried about the birds while I’m away. I left heaps of food and water but….

There was a bit of a pause!

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Applause please….

It’s difficult not to draw comparisons between some of our birds and Son, when it comes to performance and ‘look at me’ behaviour. And yet, paradoxically, this behaviour is both selfconscious and utterly unselfconscious at the same time.

Yesterday afternoon, I left Son in what the hospital calls ‘the transit lounge’ (where you wait until your bed is ready) and drove to my hotel to check in. A bit later I walked back to the hospital and, on impulse, bought Son a huge teddy bear and three chocolate hearts at the hospital’s gift shop. When I finally found his room, the teddy bear elicited gales of laughter from the other three guys in his room, one of whom said, “And we thought he was a macho machine!” A nurse came in and asked what teddy’s name was and I said, “Mummy”, so she then labelled him with a sticker. More hilarity.

I was then allowed to take Son out for dinner which surprised me as his head was adorned with electrodes in readiness for today’s surgery. I know I already posted this photo last night but it’s worth another look:

So we took a taxi from the hospital to Leederville where we were meeting friends. In his usual, gregarious way (just like Husband!), Son struck up a conversation with the taxi driver who told us he wasn’t allowed to go home until much later or his wife (“the captain”) would send him right back out there. Son then told him why he had electrodes glued to his head and the taxi driver grinned and said, “That’s good, I thought you were one of those hooligan types.”

Once out of the taxi, Son and I found the burger joint where we were meeting our friends but, since we were early, we went across the road to a pub where we shared a pint of lager. Son’s head elicited a few startled glances but, as there was some sort of street performance thing happening, he didn’t get as much attention as expected. “Don’t worry about these, mate,” Son said to the bartender, pointing to his head, “I’m having an operation tomorrow.” The bartender just smiled as if to say, ‘Yeah, ‘right’.

Wake up soon, my little peacock! I applaud you….

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Growing a spine

You know those sayings: ‘he’s got spine’ or ‘she’s spineless’ or ‘grow a spine’? Yeah, well, tomorrow, Son will literally be growing a spine. Here is an animated version of what is going to be done during his scoliosis surgery (don’t worry, there’s no blood!)

http://www.youtube.com/watch?v=WBIf4AQj5s0

This morning we left home at around 9am to get to the hospital by 11.30am for Son to see the neurologist, who glued electrodes to his head (these will be connected before his surgery tomorrow in order to monitor how his spinal cord is doing during the op.) The electrodes are multi-coloured so he looks very reggae-ish!

Then, because I was parked (twice!) in one hour parking zones, I left Son at the hospital to be admitted and drove to my hotel to check in. As it’s only walking distance from the hospital, I’ll set out in a minute to go back. He’s allowed to go out for dinner so we are meeting our friend, Nathalie at 6pm for a burger. Nat is the one who got me into blogging in the first place. She set me up (in a good way I mean!)

http://theinfinitegame.org/

I just found out I’m not allowed to see Son before his surgery at 8am tomorrow because he’ll be getting prepped much earlier in the morning. Son is okay with this, but I’m not – I just wanted to see him off. Apparently he won’t be ‘see-able’ until around 5pm tomorrow so it’s going to be a long, waiting day in Perth for me.

Son is very up and very positive. That kid has a lot of (metaphorical) spine! He didn’t even baulk when he found out he would have around four surgeons, two anaesthetists, and multiple other specialists involved in the surgery – yikes!

My beautiful, spineful boy!

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Scary!

Around the time we saw the first scary x-ray of Son’s scoliosis, he wanted to audition for a scary movie that was being directed and produced by a guy whose acting classes he’d attended during various Summer holidays.

“No problem,” I said, when Son told me excitedly that he’d been invited to come up to the movie ‘shoot’ (is that what you call it?) to be an ‘extra’.

So, on the designated day, we set off for the Perth Hills and, for the usual two hours it takes to get to the city, Son and I were happily listening to music, discussing his inevitable fame and fortune, and munching corn chips.

It wasn’t until I got past Perth, had to stop the car to read the map, and discovered that the setting for this movie was a lot farther than anticipated, that things became somewhat tense between Son and me. I will spare you the details of our conversation as I drove up and up and around curves and into forests and valleys and FINALLY, found the campsite where the movie was being filmed. It was, indeed, a very scary site.

One of the directors was very interested in seeing Son’s x-ray, because he thought it might be useful for advertising the movie. I guess that should have given me an inkling into the genre of the movie but I just blithely agreed to bring the x-ray with us. But after we arrived, this director said the producer wasn’t so keen on using real horror to promote fictional horror. And that’s when I understood what kind of movie this was – whoops!

In the hours and hours and hours of waiting for Son, and various other aspiring actors, to do the ‘extra’ thing – like running through the bush, running through the bush and running through the bush, I got VERY bored so, eventually, I went up to the parking lot (a fair way from the movie set, where you’re not allowed to even whisper, let alone talk) and chatted to two guys who I assumed were actors in the movie because they looked like psychos.

“So what’s the movie about?” I asked one of them.

“Not supposed to talk about it,” he said, his greenish teeth catching the sunlight.

“It’s a full-on horror movie about kids in a camp who are locked in cages and tortured. It’s R-rated,” said the other guy, biting into his sandwich nonchalantly.

“WHAT?” I said as calmly as I could. “So are you two the guards in the movie, or the prisoners?”

Greenteeth smiled and said, “We’re not in the movie – we’re just here to cook the food for everyone.”

“Oh,” I said, wondering if I had entered a parallel universe.

HOURS later, Son and I made the loooong journey home, with his x-ray safely in the back seat.

I can’t believe he is an extra in a movie I will never let him see. R-rated! Arghh! But when we were nearly home, he said this:

“That was one of the best days of my life, Mum – thanks!”

SCARY!

http://www.smh.com.au/entertainment/movies/spooky-stuff-on-the-set-of-ledgers-first-feature-20100512-uxuh.html

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Yesterday

Yesterday, a friend said we had made a good decision in ensuring Husband’s permanency in the nursing lodge.

Yesterday, a friend said we had made a terrible mistake ‘putting’ Husband into a ‘nursing home’.

Yesterday, a friend said Son’s spinal operation was the best thing we could possibly do, and our only option.

Yesterday, a friend said spinal surgery was a bad idea, that Son might become paralysed and that, at the very least, he would lose flexibility.

Yesterday, a friend said that everything would be all right.

Yesterday, a friend said that things would be very difficult.

Yesterday, I wanted it to be Today.

So I went outside to see Pearl … because she doesn’t say anything.

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Son’s surgery

Son used to be a mighty football player and, at one time, he had dreams of playing professionally. The following photos were taken by one of the dads around four years ago.

Even though we knew Son had a scoliosis, it had only ever been visible via X-ray, and not to the naked eye. He was undergoing various treatments for it, and intensive personal training to prevent it from getting worse, so, one day, after a football game, when he took his shirt off, I got a nasty shock to see his crookedness. With a shirt on, you see, it was unnoticeable. A subsequent X-ray revealed that the scoliosis had increased dramatically in just a few months to a 73% ‘S’ curve. Thereafter we proceeded with every therapy possible while we awaited his first appointment with a spinal surgeon to discuss options.

We were not prepared for the strict advice given. “You will require surgery and will need to quit football immediately – you will never be able to play again,” said the doctor. “This is your spine,” he continued, showing Son the latest X-ray which I hadn’t had the guts to show him myself. After that, the doctor left the room briefly to allow us some space to absorb this verdict. My heart cracked as Son sobbed and sobbed and I wanted to kill the doctor for his abruptness, only realizing later that there was probably no other way of saying it.

This is the latest MRI of Son’s spine. Its curve had increased to nearly 75% in just a few months. I took the photos against the veranda window, so they’re not works of art!

Husband, Son and I have all come full circle in the sense that, instead of resisting the idea of surgery, we now embrace it and Son cannot wait! After all, now that his spine is causing him discomfort (pain and no stamina) and is squishing one lung and one kidney, we have come to accept that there is no choice any more. And we are so lucky to be living in a country where this surgery is available, with one of the best surgeons in Australia.

I am grateful, fearful and excited. Son will be okay. He even said, “Mum, just drop me off at the hospital and go home again; I’ll be fine.”

No way! I am going to have two nights in a luxury motel near the hospital so I can come and go and be close by.

Roll on next Tuesday – how weird that Son’s day of surgery is Valentine’s Day – good omen, I reckon!

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“You care more about the birds than us!”

Guilty as charged.

When Son accused me of this a few months ago, I explained to him that (a) the birds were to cheer Husband up; (b) to keep me sane; and (c) to keep us happy….

“And to drive me crazy!” Son growled.

Point taken!

The real point is – and this has now been extensively discussed with Husband, who is totally supportive – Son is now THE priority with his scoliosis surgery happening next week. I should be able to stay in Perth for two nights with my good friend, Colleen, looking after the birds for us. And Husband is safe in the nursing lodge, so all is well.

I feel awful that Son thinks that I care more about the birds than I care about him and Husband, but I understand how he may have gotten this impression.

Son hasn’t really changed that much in his 18 years, has he? He still has a relentless determination to be a STAR!

And he is!

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Free and easy

This afternoon, Son went for a motorbike ride with his mates. They usually go on the bush trails around here, so it’s not roadbike stuff. On the other hand, this is not the wisest thing to do before having surgery on your back! Oh well – when I’m not intensely anxiety-ridden, I’m a free and easy mum.

Free and easy isn’t necessarily a popular stance, especially when it comes to parenting (and, now, bird-raising!) But I absolutely love it. Let me recap:

In the Christmas of 2010, Husband and I surprised Son with the motorbike of his dreams. Son had no idea, so when he got to the bottom of his pillowcase presents, he was shocked to open a tiny package containing the motorbike key. We had hidden the actual motorbike in the old dairy, so it took ages for Son to find it.

It was joy-at-first-sight – the best moment of spoiled-brattishness ever. Son was so overcome, he cried.

In free and easy mode, I let him go on the ride today, despite the impending surgery to his back. Perhaps I’m an idiot, perhaps not; I want him to be feisty, not feeble; courageous, not cowardly; free, not frightened; resiliant, not (sorry, can’t think of an ‘r’ word!)

Needless to say, but I’m going to say it anyway, this kid is the light of our lives – Husband’s life, my life and, well, Son seems to also be the light of his own life.

He LOVES himself!!

Free and easily yours….

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The ‘quadruplets’

Our four emus are identical in every way. So I guess I was wise in giving them all the same name – Emery – which they all respond to. They are becoming more and more ‘at home’ here and, over the last week, I have been letting them free-range for longer and longer and, so far, they have not wandered too far. Also, it is easier now to get them back into their yard for the night. I have a little camp chair in there so, once they’re in, I usually sit and watch them eat their cabbage and lettuce (the afternoon treat) before leaving them to it.

As you can see below, they are very tame and, even though they like shiny things (I will have to stop wearing my watch out there because it always gets pecked!) they are never aggressive. I adore them.

Oh-oh! They’ve disappeared, so we are now going to a commercial break………..

………………………………………………………………………………………………………………………………………………………………………………………………………………….

Okay, it is now several hours since I began this post. Son and I had arrived home from Perth and immediately let the Emerys out and, for an hour or so, they contented themselves with eating grass outside my office and around the house and then – GONE!

Son (in incredible good humour – not) scouted around the house block on his motorbike without any luck and eventually found them on the road, going east. Long story short: they are back in their yard and I will never, ever leave them unsupervised again!

In an attempt to de-crease Son’s dramatic frown, I reminded him of his toddler days when he, too, would wander off to explore the boundaries and beyond. Unfortunately, my anecdotes didn’t trigger his usual lovely smile although he did try. I’m just glad I didn’t have quadruplets!

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Nurture

Last October it was my mother’s birthday (she is one year older than Husband) so my gift to her was a weekend with Son at the best, and most difficult, golf course in Western Australia. I knew I had to do this while Son was still young enough to want to do ‘Grandma stuff’ and my mother knew it too! Anyway, it was a great success as you can see from these pictures!

It was just after this golf weekend that Husband’s condition began to deteriorate rapidly. That’s what happens with Parkinson’s disease when someone has had it for nearly ten years; the disease becomes voracious – monstering and masking all the best efforts in terms of medication and doctors’ advice – obliterating the future.

No amount of filling these grey-black weeks with the birds, a cuckoo clock, and a beautiful Irish terrier, could compete with a disease that mocked us, a disease that disempowered us, a disease that swallowed Husband, Son and me into a Jonah’s whale vortex with no chance of escape.

Hence, for the first time in Son’s nearly 18 years, Christmas was a great big fizzog, with the usual joy supplanted by multiple weepings – Grandma, Son, Husband and me.

So, that evening, my mother and Son exchanged notes and this is what they said to each other. I wasn’t privy to these emails until a day or so later.

An excerpt from an email from my mother to Son 25 December 2011:

This has probably been the hardest Christmas you have ever had hasn’t it. Moving from childhood to adulthood is an ongoing transition anyway, but Christmas zeros right in to the heart of things, and for you, the childhood anticipation and wonder is having to be replaced so suddenly and harshly because it’s all tied up with your dad’s illness and the trauma the family is going through.

I am just so glad you had those beautiful gifts for your mum. She is so devoted to you and gosh, she wouldn’t be surviving this stuff without your strength and the love you have for each other.

I love and admire you more than you’ll ever know, and when I can’t be there to take care of my daughter, and I know she’s falling apart, it is such a comfort that I know she has a son like you, to help shoulder it all.  Years from now, you’ll look back on this time and know that this is what has formed your strength of character, and made you a man. But right now though, you are a boy/man and have a right to feel hurt and confused. I am always available if you need me. You know that don’t you. I love you so much Darling. Gma xxxxxxxxxxxxxxxxxxxxxxxxxxx

An excerpt from email sent from Son to my mother the same night:

Your the best Grandma and this is the best family / life anyone could ever imagine to have. I am indeed too lucky. In so many ways there’s a lot of good and some bad never 50/50 I grown to realise life gets harder but it also gets much better! There is always hard patches that seem to get worst over time but the that makes the good so much better! Therefore “Life really does get better and better!” I will always remember that saying you said years back “dark can never go into light – But light can shatter dark” & I thank you so much for your help. Todays a new day and I feel real good!

Thanks Grandma xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

I am very lucky, aren’t I, to have such a wonderful husband, son and mother!

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