jmgoyder

wings and things

“How is Anthony?”

I am home after a day with cousins and Anthony and our next-door-neighbour drops in with a freshly cooked meal. I am gobsmacked at her kindness. She doesn’t ask about Anthony because she already knows and cares more than any neighbour I have ever had. Every morsel of her meal is a gift.

I am at the local shop getting milk and bread etc. and I am trying to be flippily quick but the woman serving me catches me eye’s heart and asks, “How is Anthony?” And I dissolve into tears in the middle of the shop, and she hugs me across the counter and, beyond embarrassed, I hug her back. She doesn’t even know Anthony but she must see him in my clumsy stance, inside my bones; it’s probably the limp I’ve developed to counteract the impotence of my sorrow.

How is Anthony?

Not good.

I am helping the wheelchair taxi driver to get Anthony into the taxi and he is sullen and sad and I am bereft and all of a sudden his brother turns up unannounced and shakes Anthony’s hand as if everything is normal – as if this is normal. As the taxi drives off, this brother says, “He looks well, doesn’t he.”

A lot of people say that these days, and these words are either inane, naive or just plain stupid.

How is Anthony?

Not good.

I am home after a day with cousins and Anthony and our neighbour drops in with a freshly cooked meal. I am gobsmacked at her kindness. She doesn’t ask about Anthony because she already knows and cares more than any next-door-neighbour I have ever had. Every morsel of her meal is a gift.

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MAGIC!

Yesterday was a magical day. My cousin and her daughter are visiting from Sydney and staying with my mother so they all came over with lunch. I haven’t seen my cousin for 15 years and it was wonderful! Ming and my cousin’s daughter are the same age and already friends on FB but there’s nothing like face to face. My mother made the lunch and served everyone which gave me more time with the cousins . It was fantastic and I am still tasting the joy of yesterday and looking forward to seeing them again tomorrow before they go back.

After lunch my mother took them to a magical little corner of our countryside called Gnomesville. I stayed home with Ants.

I had had Anthony wheelchair- taxied home for the event but he was mostly withdrawn and became sullen when he had to go back which always upsets me no matter how much I steel myself for it. His withdrawal isn’t intentional; it’s because he can’t focus on more than one thing at a time, so five people conversing excitedly is impossible. I remember when he was being assessed by a Parkinson’s Disease specialist in a Perth hospital, a kind lady who also had PD, befriended Ants and told him about this inability to focus on more than one thing and both Anthony and I realized how true this was for him too. For me it explained why he had become so silent and for him it was reassuring to know he wasn’t the only one to be confused by crowded conversations.

He is getting more and more shark-eyed. You can kind of see it in the photo below which is from ages ago. Now his eyes are often half closed and he looks at me with what seems an expression of malevolence but is really him trying to focus cognitively (well that’s what I think anyway!) He doesn’t know he’s doing it. Ming, on the other hand, appears to know exactly what he is doing with his eyes in an expression of unadulterated sarcasm! The only resemblance between these two sets of eyes is that they are blue.

[Oh, see that little spot next to Anthony’s left eye? That is now the massive skin cancer I was talking about the other day and, yeeha, we finally have an appointment with the surgeon tomorrow morning!]

Speaking of blue eyes, my photos of Woodroffe’s and Ola’s blue eyes yesterday intrigued a few people one of whom was Susan at http://susandanielseden.wordpress.com/

She is a talented poet and I can’t always keep up with her blog because she is so prolific. I suggested she might write a poem to go with the blue-eyed geese and within what seemed like minutes, she wrote this:

blue topaz eyes
chipped ice set in softness–
unexpected jewels

MAGIC!

So I decided to try and find a few more photos of the blue eyes!

And then I found this one. I had forgotten that the geese have an ability to change their eye colour if prompted.

MAGIC!

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Blue eyes

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This wrinkled soul

This soul has developed crinkles like the white linen shirts I used to wear but gave away because I hate ironing.

This soul has developed wrinkles – frown wrinkles – not very becoming at all.

This soul is like a boiled egg – perfect until you crack the shell, peel it off and mush the egg for a sandwich.

A splintered windscreen.

An improbable jigsaw.

This soul has also become argumentative and I am getting really sick of the way it nags, nags, nags; no wonder it has wrinkles.

No wonder it has crinkles.

I know I should probably try to iron out its crinkly wrinkles.

But that would be as stupid as ironing a Sebastopol goose.

I’ll try to make friends with this soul on my way into see Anthony in the nursing lodge.

His soul is much better behaved!

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Apology

I decided to edit out the following sentence from my ‘rage’ post of yesterday: “Of course none of those professionals really care, do they.”

That was a dreadful overgeneralization for which I apologize.  The focus of my rage was on the doctor who did not return my calls for three weeks and who took just as long to even refer Anthony to the surgeon.

Now Anthony is on the urgent list for cancellations. It’s a public holiday today so tomorrow I will ring the surgeon’s office and ask if there are any cancellations and then I will just keep ringing until it happens.

I  will not panic. It is not an emergency so the hospital idea is out.

Most of the professionals who have looked after Anthony, and continue to look after him, are wonderful, caring people.

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