wings and things

The Parkinson’s disease that nobody seems to know about

on June 2, 2013

Okay, of course the medical professionals know a bit about the type of Parkinson’s disease that Anthony has lived with for nearly a decade, but his official diagnosis is Parkinsonism. Anthony doesn’t have the Michael J Fox variety of Parkinson’s disease; for example, he has no tremors. If he’d had the characteristic tremors, we may have found out earlier.

Anthony’s Parkinsonism is best described as a list of losses in movement. If I look back in time, my first memory of a change in Anthony was his face. It was a big, huge face with a receding hairline and a deeply grooved forehead, twinkling blue eyes, large, but refined nose, sunburned cheeks, large, laughing mouth with good, straight teeth, and a strong jaw.

To be be continued….

26 responses to “The Parkinson’s disease that nobody seems to know about

  1. I didn’t know there was more than one type. You are teaching me a lot. Sorry that you have to do that, though.

  2. I am understanding more and more about the disease–my dad had it and we did not understand it–that was a quarter century ago
    I am so sorry that this has affected you so thoroughly–so hard to watch the love of your life no longer be the person you knew ((((hugs)))

  3. The way you described Anthony’s face made me go back to the pictures that you posted of Anthony and Ming when Ming was a baby and your description is spot on, right down to the twinkling eyes. :

  4. cecilia says:

    Morning darling, I hope there are till some lovely bright moments in your day. Take good care.. c

  5. Terry says:

    how are you doing today my friend………

  6. My aunt had a form of Parkinson’s that resulted in gradual loss of movement.
    My uncle had many heart-breaking years of watching her slow decline. It was very hard.
    Thinking of you Julie.

  7. I am interested to learn more – I had no idea that there are variations of Parkinson’s

  8. I did not know that there are different varieties of the disease.

  9. 😦 Horrible disease. My uncle had the tremors, but my dad did not. But he lost equilibrium and progressively other functions, even intestinal, which was a big surprise to me. It is hard to watch loved ones suffer.

  10. viveka says:

    I’m just now sitting beside my sick mums bed for 3 days now … and I feel so hopeless – I understand how you feel. Terrible to be bystander.

  11. FlaHam says:

    Julie, thank you for starting this series, it is quite important to and for you. And being honest I am quite interested in finding out as mush as your willing to share. Please take care, Bill

  12. janechese says:

    Missing you and understand that you need space . Sending hugs and awaiting your return.Much Love, Jane

  13. janeslog says:

    Yes it does exist. The doctors do a test to check your reflexes. They check the reflexes in your legs and arms.

    Can you send me a private email and I will discuss it with you?

  14. Colline says:

    Some of my family members suffered from the Parkinson’s Michael J.Fox has. I did not realize there was another type.

  15. lucewriter says:

    What? When?

  16. I so want to read more………………….I could tell from your posts that Anthony didn’t have the commonly known type of Parkinson’s

  17. camsgranny says:

    That’s one of the problems with PD, there are so many variations and different types of just PD, not to even mention PDD, It seems every person affected with it, has a “different” type of it. Always remember though, YOU are not alone. It is a very grief stricken thing to watch, and deal with, but YOU are NEVER alone. I for one will always yank your chain.. 🙂 Love ya!

  18. Rhonda says:

    You okay? Reach out Jules when you need to…always here…xo

  19. Debbie says:

    Hello, Love, and happy you have returned. So glad your sabbatical was restful and spent well. Holding you up in my prayers and sending BIG ol Texas love across the waves…

  20. Thank you, Julie. Right here with you. Sending love.

  21. mimijk says:

    My dad had a form of Parkinson’s known as “lewy body” disease..and each and every form of this disease is impossibly hard to wrap one’s head around..

  22. adinparadise says:

    Great to see you back again, Julie. Hugs to you.

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