wings and things


on June 3, 2013

I am finding it very difficult to talk/write about this without crumbling into a teary mess of memories. Hopefully, it will be okay if I just post short glimpses of how Anthony’s Parkinsonism revealed itself. It’s not all tragic, of course, and we continue to have many comic moments.

My first memory of something being amiss with my macho-machine husband was when he couldn’t open the Vegemite jar for our morning toast. I even remember teasing Anthony which, in retrospect, seems cruel, but we had a buoyantly bantery relationship, a beautiful little son, and I was adept at opening jars of Vegemite for Ming.

Little did we know then that Parkinsonism had moved into the spare room.

37 responses to “Parkinsonism

  1. tersiaburger says:

    My dear friend – hindsight is always an exact science…. hugs

  2. paulaacton says:

    Sometimes it is only by laughing at the darkness we find a light to guide us through it xx

  3. Don’t beat yourself over memories that now in hindsight have a different context. Try to enjoy them for what they were in the moment. I know that it is easy for me to say and extremely hard for you to do but if it could help for even a minute. My heart is with you and I’m sending hugs OOO

  4. FlaHam says:

    Julie, While the revelations maybe painful, the memories that bring are filled with love and joy and all the other aspects that are wonderful. You sharing these moments may in fact help someone else cope, help someone else understand, or help someone be less angry. I know it is difficult for you, but I thank you for sharing these moments. – Take care, Bill

  5. adinparadise says:

    Funny the things that stick in our memory, Julie.

  6. lucewriter says:

    How long did it take from that first event to diagnosis, if you don’t mind me asking.

  7. How could you know…from previous posts I have seen the banter between you and Anthony and I think it’s awesome!

  8. Terry says:

    Good morning my friend. I wish for you a good day

  9. Robyn Lee says:

    Julie – short glimpses is a wonderful idea — do what serves you and keeps you sane. We love you. ~ x R

  10. I “liked” this because I can’t say how much I appreciate you sharing your story. And how much I admire your love. In my field of work I’ve actually seen those who “stop loving” when this happens to them.

  11. mimijk says:

    Ah Julie, little glimpses are undoubtedly better than trying to absorb this painful, ever-changing, evolving vista. It hurts the heart too much, clouds the eyes and is arguably impossible for anyone who has not lived through it to understand it. You write as you are able, and we are here – with much love.

  12. janeslog says:

    Is there a way you can contact me as I have good knowledge of this condition.

  13. It is difficult, the grieving process, however it grabs you. Nothing easy about it. Holding you in my heart, that the difficult moments are balanced with whatever you need to help you. And, Anthony and Ming.

  14. Moved in like an unwelcome relative.

  15. I know it is hard but I would love to learn more about how this horrable disease showed its self

  16. It seems unbelievable that such a seemingly small incident, as difficulty in opening a Vegemite jar, could be the beginning of such a debilitating disease.

  17. Lynda says:

    I don’t think anyone would have been able to see that one coming, Julie. It was the additional symptoms that built up over time that gave you a clue. Write as you are able, share what you are able. We are listening and send our love. xo

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