jmgoyder

wings and things

Party fizzog

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Oh well!

Due to a combination of things (Ants is having digestive issues, the nursing lodge is experiencing a mild flu outbreak, and it is another extremely hot day), I spent most of the morning ringing the people I’d invited to say the party was off. After all that last-minute planning and stressing, I have to admit I was rather relieved – ha!

Instead, Ming and I went in see Ants. We we will get him home tomorrow, which is his actual birthday.

It was still a good day and we took some photos of Ming’s new ute!

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Parkinson’s paradoxes

When most people hear the term ‘Parkinson’s Disease’, they tend to think of Michael J Fox and the Parkinson’s that make you shake, move haphazardly or suffer debilitating tremors. Anthony’s type of PD is not like that and is often termed ‘Parkinsonism’. His symptoms have included a dramatic loss of movement. In many ways this is a kinder PD because of the lack of tremors but on the other hand the crippling immobility of brain/body has been a long, slow series of gradual shocks. First his hands couldn’t do things like open a jar of vegemite, steer a car, operate a chainsaw; then his face stopped ‘working’ in the sense that he no longer smiled and he stopped blinking, so that his eyes took on a blank look. I have already written about some of these things in previous posts so I won’t repeat myself.

One of the most noticeable things about Anthony’s PD is his stillness. Before the nursing lodge he would sit for hours on the front verandah in complete stillness. Sometimes he would be so still that the blue wrens would alight on his lap not realizing he was a human. Sometimes he would be so still I would think he’d died. Sometimes he would be so still he would drop his cup of tea.

Well, today I took Gutsy9, the baby peacock, in again to see Ants at the nursing lodge and guess who loved Anthony’s stillness?

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Love story 115 – Sedation

Before I became a lecturer in literature and writing, I worked as a nurse in nursing homes and I used to be disturbed by the amount of sedation given to people with dementia. Now I understand much more clearly why.

This evening the nursing lodge staff rang me so that I could speak to Anthony and he was, once again, agitated, confused and mumbling conspiracy theories about what ‘they’ were doing to him. Again, he didn’t know where he was so I tried to reassure him, spoke to the evening nurse (I now call her ’24/7′) who was by his side, then to him again, then got off the phone stunned at the rapidity of his descent into dementia.

Earlier in the day I had rung the morning nurse to discuss the evening confusion problem and she said they were going to get a urine sample because Anthony might have a urinary tract infection. I had wondered this myself as I already knew that these kinds of infections can send someone who already has a brain disease into crazyland.

But tonight, after the jumbled conversation with Ants, I waited until I had calmed down a bit, then  I rang ’24/7′ back to have a private chat and she told me the urine test came back clear.

This means that Anthony does not have a urinary tract infection.

This means that we are now facing what I already knew was coming (but Anthony didn’t), the dementia of Stage 5 Parkinson’s Disease. It has been lurking there for some time but now its jaws are wide, its fangs are sharp and it is out to get him.

’24/7′ told me he had refused his dinner, had become belligerent and was difficult to calm down.

We need sedation.

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Lost awards and false teeth

I know, I know – I have been terribly remiss in responding to blog award nominations and explaining why I don’t want awards and now I am frantically trying to trace back to those beautiful commenters on my blog who nominated me and for whom I had already created the Hot Potato Award (some people have received this previously).

I guess I will just have to admit that I have lost the award trail/plot and cannot remember who to thank  – very sorry! I will get to it eventually.

It reminds me of my first job in a nursing home as a young girl. I collected all of the false teeth from every patient in the ward where I was working because I had been told by the very stern matron to wash them all thoroughly. I was so intent on making a good impression that I filled a sink with soapy water and then tipped all of the false teeth into the sink.

That was a mistake. It took a week for everyone to get their own teeth back – argh!

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