We didn’t know that
everything would get so hard.
Our smiles would falter
We always knew that
our marriage was forever.
In sickness and health.
We didn’t know that
he’d have to have surgery
on his twisted back
We didn’t know that
everything would get so hard.
Our smiles would falter
We always knew that
our marriage was forever.
In sickness and health.
We didn’t know that
he’d have to have surgery
on his twisted back
Ming was nearly 12 months old when he experienced his first Christmas. Anthony and I had bought him a big toy truck and one of those small, plastic ride-on cars. Both our families had followed the pillow-case tradition so, after Ming was asleep, I carefully wrapped the two big presents, then, with some difficulty, stuffed them into a pillowcase and put this at the end of his cot.
Then, underneath the Christmas tree, Anthony and I put our presents to each other and lots of little things for Ming. The final touch was to fill a red stocking with chocolates for Ming and sticky-tape it to the mantle-piece, near the tree.
I was so excited that I couldn’t fall asleep until around 2am, then I woke up at 4am, still excited! So, by the time Ming and Anthony woke up, after 8am, I was almost delirious with anticipation and exhaustion. I couldn’t wait for Ming to see the pillow-case but, when he finally did get up, he didn’t even notice it – and I had to point it out to him.
We all clambered onto the big bed and emptied the pillow-case out. Ming looked at the two enormous wrapped presents and then gave us his wise-owl look, as if to say, What the hell is going on?
“Father Christmas has left you two presents, Ming,” I said, excitedly but he still didn’t respond. He just sucked on his dummy and watched us grin at him, probably thinking we’d gone slightly mad. I suppose I’d expected him to just magically absorb the Christmas presents thing and, I have to admit, I was a bit disappointed by his lack of spirit. Even when I showed him a picture of Santa with a big sack of gifts on his back, he remained impassive.
“Open one of them for him,” Anthony whispered, so I began to gently tear the wrapping paper off the toy truck to expose one of its wheels.
Well that was the only trigger needed. As soon as Ming saw that wheel, he spat his dummy out and his bewildered expression transformed instantaneously into an enormous grin. “TWUCK!” he repeated over and over, tearing at the wrapping paper ecstatically. Even if I’d been able to anticipate that moment and had a camera ready it would have been impossible to capture Ming’s glee when the truck was finally exposed in all its glory.
Once Ming had opened that first present, he very quickly cottoned onto the idea and went crazy for more and his continued delight was contagious.
We most certainly set a precedent that first Christmas. Its magic permeated Ming’s psyche so effectively that when, the following year, I once again woke up at 4am, it wasn’t my excitement, it was Ming’s that woke me. He was standing next to the bed, patting my cheek with one hand and holding a very full pillowcase with his other hand. His little face seemed to glow in the dim light of dawn.
“Mummy,” he whispered seriously, “Fava Quistmust happinded again!”
Son haiku
You’re a total brat,
but you have your angel side.
I love you too much.
Unreliability haiku
I didn’t turn up.
“And why am I not surprised?”
my friend says to me.
Hearty haiku
Edges of my heart
are broken, frayed and scabby
I don’t pick the scabs.
Joyful haiku
I watch all the birds,
and the rain blurs my vision,
but they fly freely.
Flower haiku
The roses suffer.
The camellias grow huge.
I want sunflowers.
Friendship haiku
I am a good friend
to those who forgive me all.
Those people have wings.
Blogging haiku
The blog world is weird
and magically scented.
Unexpected bliss.
Husband haiku
You were once my world
and now this world has collapsed.
Parkinson’s disease.
My husband, Anthony, was in hospital having his kidney removed. Cancer. I was back at the farm with our two-year-old son, Ming, waiting for a baby-sitter I’d never met. Ming was having his second asthma attack. The first had happened in the hospital, when Anthony was admitted.
Now I was grappling with the nebulizer, a distressed child and my husband’s predicament, the shock trapped in my throat.
I returned from the hospital that evening and paid the baby-sitter. Ming was asleep. Out on the front verandah, I sat down. It was the first time I’d ever been home without Anthony.
A little later, Ming toddled out, rubbing his eyes. He looked up at the half moon and said, seriously, “Moon bwoken.” Then he brushed his soft little face against mine. “Daddy can fixded it”’ he asked. I nodded and hugged him.
Two weeks later, Anthony was home. Ming wanted to wrestle him, so I swung our little boy onto my hip and took him outside. It was a dark night and there was a full moon.
Ming looked up and I felt his heartbeat quicken against mine. “Daddy fixded the moon, Mummy. Look!”
We went back inside and Ming climbed onto Anthony’s lap.
“Fankyou, Daddy”’ he said, “You’re a good boy.”
Hi to any bloggers I subscribe to. I am not getting your blog posts via email for some reason, so, if I usually comment and haven’t done, that’s why. Perhaps the wordpress happiness engineers are doing something exciting? I will probably be excommunicated for saying that. Hopefully the glitch will be fixed soon so I can keep better contact. On the other hand it has been rather relaxing not reading all those blogs – ha! Julie
Ming’s musical tastes are varied. Here is his latest favourite. Bring it on, Xavier Rudd!
http://www.youtube.com/watch?v=TmxSxKxBbQE&feature=related
[Note: I am not receiving any notifications from any of the blogs I follow, so will try to catch up as soon as this glitch is fixed]
One of the worst things about Parkinson’s disease, especially in its final stages, is that no matter how diligent you, and other carers, and the sufferer, are with the timing of the medications (which is vital), what works well one day might not work the next day, or hour, or minute.
When I arranged for Anthony to be taxied to and from a restaurant the other day, in a wheelchair taxi, it was a great success except about an hour too long. He became exhausted.
Today I arranged for Anthony to be taxied to and from the farm but made sure it was less hours than the previous time. So he arrived at 11.30am and he and Ming sat out the front in the sunshine and it was great hearing them chat. Then I served a lunch of scrambled eggs (Anthony’s favourite except for fish mornay!) Then he got too hot in the sun so I got him back into the wheelchair and pushed it into the shade.
By this time (about an hour into the visit) Anthony had become very slumped and silent and our conversation was limited to my chatter with little response; he just wasn’t ‘with it’ and looked awful, you know, really sick. So, I rang the taxi people and asked for the wheelchair taxi to come earlier, then I rang the nursing lodge to tell them and that was fine.
Well, as soon as I had done that, he came good (‘come good’ is an Australianism for rallying I think). He got off the wheelchair and used his walking stick to shuffle around the garden a bit, went to the loo without needing much help and walked outside the front again, sat down and was suddenly in the mood for conversation. By this time it was around 2pm and I was wishing I hadn’t asked the taxi to come early because Ants would have lasted until the original time of 3pm
So when the taxi arrived, Anthony said, “Not already?” and looked so crestfallen that I could hardly bear it and kept saying to him, as I was wheelchairing him to the taxi, “I’m sorry – I’m sorry, you were all slumped – how was I supposed to know you would suddenly come good?”
After Ming I and I waved him off, I cried for my bad timing and Ming said, “When will you learn, Mum? It’s not your fault.”
By now, Ants will be back at the nursing lodge. And, until I get the taxi vouchers next Monday, this ‘genius’ taxi idea has so far cost over $200 and what for? The sadness far exceeded the joy today. Arghh!
Oh yeah, and the stupid geese didn’t do any frolicking while Anthony was here, and I didn’t get the roses pruned and I just tried to ring Ants and his phone is off again. On the other hand, weather-wise, it has been an extraordinarily beautiful sunny day, the phone hasn’t rung (I am not phoney), and Ming just went off to milk the cows happily.
But my main point is that the unpredictability of Parkinson’s disease can do your head in – whether you are the sufferer or the carer – and it is, therefore extremely difficult to ‘go with the flow’. I know I’ve posted the photo below before; this is Anthony nearly two years ago. He doesn’t look like this any more.
The only one of our geese whose gender I know for sure is Godfrey, which makes him a gander of course. As for Pearl, Ola, Woodroffe, Seli and Diamond, I have no idea, except that Ola and Pearl seem smaller, friendlier and more polite than the others so I am assuming they are girls. This is Pearl who may or may not be wondering what s/he is too!
Lately there has been a great deal of flirtatious behaviour happening between the gang, which I have prudishly been turning a blind eye too. But today, with Anthony’s help (he is being taxied out for the day, and is much less prudish), I have decided to watch this flirtatious behaviour so I will know which of the gang members are female. That way I will be able to keep an eye on any possible eggs etc.
Watching gender games between geese is not for the faint-hearted.