jmgoyder

wings and things

The UFO

It’s been a busy week, punctuated by strange occurrences. For example, as I rode my bicycle home the other day (from my incredibly long 2 kilometre challenge), I took a short-cut across the front lawn and saw this:

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I assumed that it was a cowpat (you know, the stuff that comes out of a cow’s bottom, ordinarily called cowshit but I am being polite), but none of our neighbours’ cattle usually visit, so then I thought maybe the alpacas, Okami and Uluru, had had a pooing competition, but the pile of whatever-it-was was too big to fit either of these possible scenarios, and, even though geese and ducks produce a lot of this kind of thing, they tend to do it all over the place and not in one spot.

Later in the day I told Ming about it:

Me: There’s this huge pile of shxx on the front lawn – have you seen it?
Ming: No, it’s probably your stupid birds.
Me: No this is massive and it looks really weird, like a UFO or something.
Ming: Don’t worry about it!
Me: Would you mind coming out and having a look?
Ming: Grrr – okay.

So I showed Ming and he started to laugh hysterically.

Me: What’s so funny?
Ming: Remember that pea soup you made and forgot to put in the frig and asked me to throw out?
Me: Oh.

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Auditions, acting and anxiety

Well, the latter part of that title is me of course. In the last week or so Ming has been an extra in a couple of scenes in a yet-to-be-made movie and next week he’s auditioning for a ‘real’ role.

Oh dear, I got the last bit of the above wrong – Ming is auditioning for the ‘real’ role and he just told me he needs to recite a monologue.

“Can’t you just write me one, Mum?”

That question was amusing a couple of hours ago.

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Why do I need ID to get hay fever tablets?

So I go into the chemist’s with my eyes and nose running with hay fever, blinking and sneezing, and ask miserably for antihistamines, only to be told that I need ID to get those.

Oh! In my rush to take Ming to a job appointment, and pick Ants up, I had come unarmed with ID, just bringing a box of tissues with me.

The chemist, who knows me well (after a thousand years of collecting prescriptions for Anthony) offered me all sorts of hay fever remedies but I said none of them worked and I needed the heavy-duty stuff. Well, the rules must have tightened because, despite not needing a prescription for antihistamines, you need ID – argh!

It must be something to do with the drug problem I guess; there must be an evil ingredient in those antihistamines that is a druggy’s delight? I don’t know – I just want my nose to stop running! I will certainly not forget my ID tomorrow when we go into town.

On a lighter note, this morning, Ming and I rode our bikes together (not something he particularly wanted to do – ride with Mummy – but had agreed to do for my sake). Well, once we got off our road and into another, he began to falter because something kept going wrong with the gears and chain on his brand new, very expensive, birthday present road bike. I kept soaring past him on my electric bike (hahaha – evil laugh!) and coming back to see what was wrong, whilst heroically blowing my nose into my tissues). Eventually, Ming fixed the problem and we rode for an hour up a hill that didn’t look like a hill until we turned around and sped back down – exhilarating!

Once we got back home, Ming puffing and panting (his back surgery was only 5 months ago and still healing, so he is quite unfit and is supposed to be very careful until December), we both decided to do this every day from now on and I am thrilled! It won’t be embarrassing for him as we are in a quiet rural area so our road, and the road around the corner, has very little traffic.

It will be much better tomorrow, and we will probably ride further if I get the hay fever tablets.
Ahhhhchooooo!

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The delicious taste of laughter

If I were at a restaurant and was offered a choice of my favourite foods – oysters, fillet steak, pizza, Caesar salad, a cheese platter, a doner kebab, or laughter – I would choose the latter.

If I were at a pub and was offered a choice of my favourite drinks – beer, shiraz, a pink gin, or laughter – I would choose the latter.

If you were to ask me what I would rather do – go for a walk, sleep in, read a book, visit a friend, do a good day’s work, or five minutes of laughter – I would choose the latter.

And, if you were to ask me if I preferred love over laughter, I would have to say no.

Today Ming and I picked Anthony up at around 10am and then proceeded to do a few errands in town before getting burgers and fries and eating them at a park overlooking the beachfront. Ants was very wobbly so we had to eat in the car. I’d given him his 11am pill a bit late so he wasn’t able to eat very well and kept mistaking his fries for strawers (you know for a drink). In the end I had to pretty much feed him half of my burger, but he had a lot of trouble biting, chewing and swallowing, and was dribbling terribly (Parkinson’s disease often affects the swallowing reflex).

On the way home to the farm, as the pill kicked its magic in, Ants began to recover but everything he said was so incoherent, quiet or nonsensical, that Ming and I had to eventually just respond with ‘yes.’ Once home, Anthony became extremely mobile and walked around the farm with and without his walker and at one stage he somehow took his shirt off to get a bit of sun, before coming inside for a cup of tea. But, just as suddenly (about 2.30pm), he became totally immobile and it took me an age to get him from house to car, by which time he was panting from exhaustion (and so was I!)

By then Ming had left us and gone to his shed to do a cleanup so I drove Ants over to say goodbye (it was now 3pm with next pill due at 4pm) and Ming was surprised.

Ming: Are you going already, Dad?”
Anthony: Yes, she just wants to get rid of me.
Me: I don’t know why I bother!

I was very hurt by Ants’ remark (especially by the fact that it was the first coherent thing he’d said all day), and I told him so on the way back to the nursing home. We put the car radio on to drown out the mutual misery until Ants actually whispered something in his new, soft voice. I turned the radio off.

Ants: I’m sorry, Jules.
Me: I can’t believe you said I wanted to get rid of you!
Ants (taking my hand and kissing it): I didn’t mean it.
Me: What do you and Ming want – my blood? I am doing my best!
Ants: I know, beautiful girl. I love you.
Me: I love you too so don’t ever think I want to get rid of you – please!
Ants: Glad I got a bit of work done today and Ming was a great help.
Me: Me too – thank you – I don’t know what I’d do without you, baby cheeks!

[He thought that he and Ming had done some jobs around the farm].

By this time we had reached the nursing home and Ants was totally incapable of walking so I raced in and grabbed a wheelchair and eventually got him into his room, then grabbed two nurses to help him into the toilet, and said a much quicker goodbye than usual.

Why didn’t I just respond to Anthony’s “she wants to get rid of me” comment with laughter? Why did I let myself be hurt? I am such an idiot! He and I have always bantered, so why didn’t I just turn his comment into an excuse for laughter? Well, I will next time, for sure, because these hurtful comments are becoming more regular, so I have to find a way of transforming these faltering conversations into some coherent laughter – yes!

Laughter is a gift that everyone is capable of doing, giving and receiving and it is my favourite thing in the world so, from now on, no matter what, laughter will be my/our medicine.

Delicious!

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“I just don’t understand you!”

Ming and I had a couple of altercations today that were impossible to resolve. This is so frustrating and painful and yet it points to the fact that we all think and feel differently and trying to match someone else’s way of doing both is impossible.

So what on earth do you do with irreconcilable differences? How does a 20-year-old son understand a 55-year-old mother who is trying to understand a 78-year-old husband? The only way, I think, is to accept the different points of view about everything, to accept each other (despite these differences), and to develop a capacity for sympathy. Empathy would be better, of course, but if the other person just cannot fit their great big size 13 feet (Ming) into your shoes, then agreeing to disagree is your best option.

I have always loved the concept of difference but I have never had it thrust in my face as much as the last few years, with Anthony’s declining health and Ming’s growing up. Neither of them understand that, at the center of this dynamic (in terms of age alone), I struggle sometimes to give them both what they need or want. And neither of them even think, unless I remind them (rather vociferously sometimes), that I might actually want to be considered too.

Perhaps love doesn’t require understanding? I am not complaining here (well maybe a bit!), or posing a feminist argument (hell, no – most of the misunderstandings I’ve experienced have been with women); I am just observing that sometimes you just have to accept the fact that you will never agree with the other person.

But you can still hug them and keep your “you are wrong!” thoughts to yourself. Ask Godfrey the gander!

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Easter Saturday, Parkinson’s disease and a picnic

Today, Ming and I picked up Anthony from the nursing home, took him out to my mother’s place, picked her up, then went down to the foreshore near her home for a picnic. It was a perfect day, sunny, but with a breeze, so we grabbed some takeaway (sushi and chicken rolls) and managed to find a gazebo right near the water. Now that Ming’s back has half healed from his second spinal surgery, he insisted on doing all of the maneuvering of Ants in and out of the car and the walker/wheelchair we recently bought, and, except for when we picked Ants up, he was pretty mobile – bonus!

After our main food, my mother and I went to the nearby shop and bought ice-creams for dessert, two banana paddlepops for Ming and me, a magnum for her and an ice-cream sandwich for Ants (he loves these). We were surrounded by seagulls of course and Ming, like a little boy, loved chasing them away.

Then we went for a long drive around the estuary until we got to a semi-hidden beach where Ants said he wanted to have a swim. Having never swum in his life, this was a funny request, so we simply drove back slowly, dropped my mother off at her house, then headed back to the nursing home.

On the way back, Anthony became even quieter than usual, knowing, I guess, that the outing was nearly over, so I turned the car radio up and the three of us bopped a bit, with Anthony tapping his leg and Ming complaining that the radio station was too mainstream and that Ants and I had no taste – brat!

Once we had delivered Ants back to the nursing home room, and got him comfy in his armchair, he was showing signs of fatigue, confusion and the kind of misery that sometimes hits him when we depart. He loves the way Ming and I banter, so when we leave him, despite turning the television on for him, I can see how the silence of our absence hits him. I can see it in his face when this happens because he raises his chin a bit, sort of defiantly, and gives us a glare that is a mixture of love and grit.

He knew that Ming and I were going to a barbecue tonight at a friend’s place and that it would be just as impossible to take him to this as it would be to have a swim in that beautiful ocean. Usually I don’t tell him about these social occasions, so that he doesn’t feel left out, but this time I had to in order to explain why we had to go.

If it weren’t for the various photos I’ve taken over the last few years, I probably wouldn’t see as clearly how much Anthony has deteriorated. The photo I’ve included here is from a bit over two years ago when we were still able to do the restaurant thing easily. Back then, he was more upright, more mobile, more able to eat using a knife and fork, more vocal, more himself. Now, going to restaurants or to people’s houses for a sit-down meal is very hard because, with PD, he is only able to focus on one thing at a time (one voice, one activity, one sound), so the picnic idea was much easier.

When we picked Anthony up this morning, the nurse-in-charge said he had become aggressive again, punching out at the carers, and swearing (totally out of character), so I promised to have a word with him and I explained to her that it is part of the dementia engulfing the PD. She nodded in understanding but when I mentioned it to Ants he just muttered that he had to fight because he is often kidnapped.

I am sad, yes, but no longer ‘tragified’ because what would be the point? This is only going to get worse, not better, so the four of us just have to accept this and do the best we can (I include my mother in this foursome because she is a rock and very much a part of our own little family dynamic).

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The maternal conundrum

Mothers

Sometimes we want them to get lost, stop interfering and giving advice, and to stop implying what we should do/be.
Other times, we limp, bruised and bloodied, into their laps, for the kind of hugs that nobody else can give.

On my bulletin board I still keep a note that Ming wrote some months ago – “Stop mothering me!” At the time, he was referring to my overbearing attitude to his diet, so I stepped back from this, finally willing to let him fend for himself.

But. tonight, it kind of went the other way because Ming was asking me why I had taken so long to be okay again, since the car accident. My response was sarcastic: “Not sure, Ming – might have something to do with the fact that five kids were injured?”

Ming: But, Mum, they are all okay now and I always knew they would be!

Me: Well I didn’t know for sure, so I was terribly worried.

Ming: So, Mum, please can you stop worrying now? They are all good!

Me: Okay. I am still reeling from the court case result and can’t quite believe it, Ming.

Ming: Just accept it, Mum – it’s over now. Stop (s)mothering me!

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Effervescence!

Ashtyn is my eldest niece and she has the gift of effervescence in spades. Recently, she, and her Scottish beau, were married in Edinburgh but have now returned to Australia to settle in Perth.

There is something so sparkling about Ashtyn that, no matter what anyone else is going through, she lightens it up with her smile, her positivity and her wisdom. As her aunt, I respect her and applaud her for all of her accomplishments and for her ability to love each individual in her ever-expanding family, not just with sentiment but with a roll-icky humour. She actually reminds me sometimes of my own father, “Dad” who died before ever seeing her. Dad was mostly pretty serious, but when he broke out into humour it was amazing.

Ashtyn’s humour is contagious; she has a way of making you feel good even when you are feeling bad and I now realise that she is the epitomy of effervescence.

Happy birthday, Ashtyn!

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Dancing

The following poem was written by my mother, Meg, before any of us knew the outcome of Ming’s court hearing on Monday. I thought she’d written it for Ming and that he was the gymnast, then I thought it might be for me because my hope was faltering; then I thought it might be for Anthony whose mobility is deteriorating; then I thought it might be for the various family members who have been affected by the car accident; then I thought it might be for all of us – everyone….

I now think Meg’s poem was all of those things, but it was mainly for our big, loud, dancing Ming!

Focus. Meg. April 14, 2014

A gymnast
On the balance board
Looks steadfastly
Towards that spot
Far in the distance
And his body
Perfectly in tune
Glides smoothly forward
Step by step
Unfaltering.

The tiniest distraction
Left or right
Behind ahead
Above beneath
He falls

Resolves next time he mounts the board
To fix his eyes
On One who beckons.

The board seems now so wide and safe
His toes spread out
His balance now regained
Secure.
A joyful happy jig.
The tightrope turned into a dance floor
Music
Laughter
Joy.

Thank you, Mother.

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PS. I think I need to get a new photo of Ming dancing because I am quite sure I have posted this one before; I also need to throw those obscene green shorts (that I bought Anthony for a joke over 20 years ago) in the trash. Why Ming insists on wearing them constantly is beyond my comprehension!

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Question: How many times do you begin again?

Answer: Every single day.

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Ming's Christmas present 2010 - 'Black beauty'

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Julie and Woody best

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EVERY
SINGLE
DAY

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