jmgoyder

wings and things

Arthur

I found out this morning that Arthur died yesterday and am so terribly sad. Arthur worked for Anthony’s family as a dairy hand for decades and lived in the worker’s hut. He first came here when he was a teenager (well before my time). Less than two years ago, when Anthony had already begun living in the nursing home, Arthur began to seem very frail and ill and the hut was falling down, so I helped to arrange his transition to a nursing home (not the same one as Anthony’s). It was a heartbreaking decision because Arthur loved it here. After the dairy folded, he simply lived here, did a few odd jobs and, in latter years, just loved to sit on his veranda and watch the birds.

But Arthur thrived in the nursing home, to begin with. He had company, friends, and he was popular with the staff because he was such an unusual character. Ming and I visited him as often as we could, and just two weeks ago I took Anthony to visit, but we could see that Arthur was very ill.

When I rang to tell Anthony this morning, I was hit with such a wave of sorrow and nostalgia that I wept clumsily into the phone and, once again, Anthony had to comfort me. Arthur was part of the fabric of this place, this farm, our lives, for so long. He watched Ming grow up, he kissed me gently on the cheek last time we visited, and he and Anthony shook each others’ frail hands.

054

61 Comments »

Listen to me!

It is over ten years since I completed my PhD in cultural studies; my thesis focused on the importance of listening to the storying of people with Alzheimer’s Disease. It was not a scientific thesis (and at the time I had no idea what the difference between qualitative and quantitative research was); it was more of an exploratory study of the art and gift of listening.

My interest in how listening might help/give comfort was inspired by the various patients in the nursing home in which I worked at the time – in particular a guy who I called ‘Joe’ who seemed to think I was his long-deceased fiancee.

After I graduated, I rewrote the thesis as a book and it was published – We’ll be married in Fremantle. This is not a plug for the book, as it was published way back in 2001, and not a best seller by any means, although it was shortlisted for various prizes for nonfiction.

I remember Anthony being so proud of me, for the PhD and then the book (Ming was a little kid then and Anthony was in good health), but I also remember, after all those years of academic study, how the simple art of listening would always be important to me.

Listening isn’t as easy as it sounds because sometimes it is difficult to shut up, refrain from giving advice etc. I make this mistake all the time with Ants and Ming (for different reasons, obviously), but now I am re-learning my own advice – to just listen.

Tonight, Ming said, “Mum, just listen to me!” and I did, and I shut my mouth, and I learned more about my open-hearted son than I have for ages.

Okay, before I get too sentimental, we are getting some ducklings tomorrow to keep our only duck company – I am so excited!

44 Comments »

Thank you, Brian

This morning Ming and I had an appointment with the prison chaplain, a beautiful man who is the Anglican priest who, coincidentally, helped enable Anthony’s admission into the nursing home two years ago, and a good friend of my mother’s.

We met in his home and he did a wonderful job of demystifying prison (just in case Ming has to go there), and allayed many of our fears and concerns about things like violence, drugs, rape (obviously my worst fear). He told us that if the worst scenario (prison) eventuated, when Ming is finally sentenced, he will be in no danger as long as he doesn’t get involved with various unsavoury activities (drugs, alcohol etc.) If a prison sentence happens, Ming would undoubtedly be put in the low security section, and given a job of some sort (kitchen or gardening etc.)

While the three of us talked about the improbable possibility of a prison sentence, the prison chaplain must have wondered a bit about the difference between Ming’s reaction to this information (curious) and mine (tears – just a few; I got hold of myself), but he took it all in his stride and spoke calmly and wisely to us.

It was a bit terrifying for me to hear about the prison situation, but now I am no longer so afraid, thanks to this wonderful, wonderful man/priest. Ming’s reaction to our meeting took hours to happen. He was calm when he handed in his resume for a job at a restaurant, calm having lunch with me, calm during a Centrelink appointment, calm during a visit to Anthony while I did some errands.

But then, on the way home, we had one of those horrible yelling-at-each-other arguments (been having a few lately) but, once home, we decided to talk it through and we did this for over an hour until we sorted it out:

Me: So what is your main problem with me at the moment?
Ming: Your geese poop on my shed doorstep and your peacocks poop on the car!
Me: So you are more upset about the birds than the possibility of prison?
Ming: No, yes, no!

We are both fine again now, having sorted a lot of things out and I am so thankful for the fact that he and I can be honest with each other and get over/through these wrangles but it is so exhausting!

I think I might need to visit that wonderful priest again – soon. His name is Brian and he is a legend!

54 Comments »

Surreal

I saw Anthony this afternoon at the nursing home, and I showed him my blistered, peeling, bleeding hands and feet and told him that I had seen a doctor who had prescribed cortisone cream.

The doctor was more fascinated than concerned, when I told him I thought I had ‘pompholyx’. So, while I scratched away at my itchy hands and feet, he looked it up and confirmed my self-diagnosis. I just wish he hadn’t insisted on looking at my always-dirty-from-the-chook-yard feet – oh well.

Anyway, as I was telling Anthony all of this in my usual dramatic way, he pointed to his own hands and said he had the same thing. Well of course he didn’t have the same thing – it was just skin cancers on his old hands but I appreciated his empathy.

But then he whispered to me that it might be Parkinson’s disease and this is how our conversation unfolded:

Anthony: There is a doctor here who knows about it.
Me: About what?
Anthony: Your hands, this – he has black hair, young guy.
Me: Is he the doctor replacing the one on holidays?
Anthony: I don’t know, but don’t trust him, Jules.
Me: Why?
Anthony: He wants all of the Parkinson’s people in an experiment.
Me: Oh Ants it’s probably just a student doing a survey – is he asking you questions?
Anthony: Yes, personal. Don’t tell him anything, Jules.
Me: Ants, do you think you might be imagining or hallucinating some of this?
Anthony: I don’t know, maybe – oh and the family came this morning to take this place over.
Me: The Goyders?
Anthony: Yes – there’s a lot of money – be careful.
Me: I’ll check it out if you check out that whole doctor thing.
Anthony: One of them has red hair.
Me: That’s the priest isn’t it?
Anthony: No, the doctor – another one….
Me: I have to go now, Ants but I’ll be back tomorrow.
Anthony: Why do you have to go?
Me: It’s getting late, I have to get groceries, go to the chemist and look after Mingy.
Anthony: But where do you live now?
Me: I live at Bythorne, silly, on the farm!
Anthony: Do I still have a corner room there?
Me: Yes, but I can’t look after you overnight now because you are too heavy.
Anthony: But it’s still my farm.
Me: Your beautiful, beautiful farm, Ants, and Ming and I are taking care of it.

After this conversation, we hugged and kissed and I came home to Anthony’s resounding absence.

44 Comments »

Sundown

Ever since the peachicks entered our lives, over a week ago, everybird has become very attentive at sundown, including this young couple (the peahen is the second one to finally return although without chicks).
IMG_3081
Prince is also quite interested in how Queenie gets the chicks to bed (notice how he has lost all of his long tail feathers – all the peacocks have now).
IMG_3082
Gutsy9 is a bit jealous and is always right next to me. If I crouch down, she offers her neck to be stroked.
IMG_3084
While Queenie is stirring the chicks up, preparing them for their bedtime transition to the avocado tree, I put the geese, duck and turkey into their yard for the night. I have been trying to flood their pen in order to create a kind of pond for them and it is working.
IMG_3087
Queenie and the peachicks take ages to get ready for bed.
IMG_3107
So I take a photo of the fig tree while I wait.
IMG_3117
The younger peahen flies into the yard to encourage Queenie.
IMG_3119
King (undoubtedly the father) also flies into the yard and takes a protective stance.
IMG_3126
And then the magic begins. The bigger chick actually leads the way!
IMG_3127
Queenie has to help the smaller chick.
IMG_3128
But it comes back down again to say goodnight to me.
IMG_3129

This is around the same time (7.30-8pm) that Anthony often suffers ‘Sundowner syndrome’ so, once I leave the birds and go into the house, I always ring the nursing home to say goodnight to him. As he almost never answers the phone himself I usually have to get the nurse-in-charge to enable a conversation. Lately Ants has been okay, delusional but not upset. He often thinks he is either at boarding school, a hospital, a party, or a pub.

I tell him about the birds, and say goodnight, with a sense of tentative peace, which is probably how Queenie feels at the top of that avocado tree (can you spot her?)
IMG_3138

22 Comments »

The magic of nature!

Okay so here is how the Queenie, the peahen, and her two chicks go to bed every night.

Firstly, she looks around anxiously from the pen (in these photos both peachicks are underneath her).
IMG_3061
IMG_3057

Then she starts to sort of purr at the chicks, almost as if she is saying ‘follow me’. She begins this restless ritual at 6pm.
IMG_3065

She stirs the chicks up a bit and they begin cheeping loudly. At 6.30pm she flies over the fence into the adjacent yard. This photo is just before she launches herself over and away from the chicks.
IMG_3062

The two peachicks go into panic mode and try repeatedly to fly after her while, from the other side of the fence, Queenie purrs encouragement. Eventually, one by one, they fly/climb the fence until they reach an opening they can fit through and plop onto the ground on the other side. The smaller peachick takes at least fifteen minutes longer than the other one but once it’s through the fence, they all have a bit of a hug. By this time it is 7pm.

Queenie then flies out of the second pen straight into the avocado tree, then down to the ground to once again beckon the chicks through the second fence. This photo is an old one but it shows the two pens with the avocado tree on the left. It is a long journey for the chicks.
IMG_0225

Eventually the chicks get through and arrive at the base of the avocado tree. These two photos don’t include the chicks themselves because they were quickly climbing the trunk to reach their mother. But as you can see it is a well-chosen tree and easier to climb than any of the others.

IMG_3066
IMG_3071

Queenie then flies up to perch in the avocado tree and purrs at the chicks to follow.
IMG_3075

By this time the chicks are cheeping so loudly that it is almost deafening. They try repeatedly to fly/climb the tree only to plop down to the ground again and again. Queenie remains in the tree, purring encouragement, until finally they succeed. It is difficult to spot the chick in the first photo!
IMG_3069
IMG_3070

Finally, all is quiet. Here is Queenie curled up on her branch with the chicks underneath her wings. It’s 8pm.
IMG_3073

The most amazing thing about all of this is that each morning they are all back in the safety of the yard again!

55 Comments »

Our marriage

For better or worse ….

When Anthony and I were married, we agreed to the usual vows including ‘for better or worse’. At the time, I was unconcerned that he was 23 years older. He, on the other hand, was very concerned, and worried that I might end up looking after an old man. At the time, we both laughed this off because we didn’t anticipate illness.

It seems unfair that my beautiful Anthony was inflicted with kidney cancer, diabetes, liver disease, prostate cancer, then (by far the worst), Parkinson’s disease – all within the first ten years of our marriage. For Ming to never have known this gorgeous, energetic, life-of-the-party person I fell in love with is a bit heartbreaking for me. I can only show Ming photos of when Anthony cuddled him, lifted him over fences to feed calves, taught him how to wash the car, strollered him into the dairy, slept with him crooked inside his shoulder space, toilet-trained him in about two hours when I was away at a conference, loved him with the energy of a new father, rejoiced in every single breath, sound, word, movement that Ming made.

Now, with the encroaching dementia that comes with advanced Parkinson’s disease, and Anthony’s deterioration in mobility, his wild hallucinations that he has been kidnapped, his outings with me fraught with bizarre stories of what I know couldn’t possibly have happened (eg. removal of a foetus from Ants), I sometimes cry.

Tonight, the nurse enabled a phone-call to Ants and, as soon as I heard his voice (usually it is soft now, but tonight it was loud and confident), my pent up tears broke.

Anthony: Jules -please don’t cry!

Me: It’s all just so hard, Ants – sorry.

Anthony: Jules, it is going to be okay.

In sickness and in health ….

The term ‘marriage’ implies commitment, loyalty, empathy, forgiveness, flexibility, and the ability to carry on, no matter what. In this sense, I am actually ‘married’ to a lot of people and this makes me feel on top of the world!

61 Comments »

Another little blog break

One of the unexpected bonuses of blogging for me has been the very real friendships formed, the mutual support, the shared humour, the shared grief. The lessons of life that I have learned through other people’s stories, and interactions, have taught me how to better do empathy and sympathy, and forced me to feel the difference.

Thanks so much for those of you who have commented, ‘liked’, and given me your friendships. For those of you who are bloggers, I am struggling at the moment to keep up with your writings, so please forgive me for that. For Facebook friends, same thing really!

Ming goes to court in three days. Apparently he and I simply appear, his charges will be read out, and the case will be adjourned by our lawyer until the end of February. So I really need to concentrate on all of this at least until the beginning of February, and blogging will go on the back burner for the time being.

Hard to believe now that when I began blogging it was all about the birds.

IMG_0362

75 Comments »

Itchy hands

For a couple of days now my hands have been painfully itchy (apparently there is a myth that this means I am coming into some unexpected money – ha!)

I noticed that on the sides of each of my fingers there are several miniature blisters so I thought I’d google the condition and here is what I found:

http://www.pompholyx.co.uk/your_experiences.html

Yes, it would seem that I have pompholyx which of course I have never heard of before. It’s a form of eczema apparently, and the causes include everything from humidity to stress (both of which fit my situation). I’m a little alarmed to find that it may get worse but I’m also relieved that it may simply go away of its own accord. As diseases go, it certainly isn’t serious, but the itchiness is driving me slightly crazy because I want to scratch my hands to bits.

Changing the subject: I wrote a post about Ming yesterday but I trashed it soon after because it seemed a bit disloyal to a son who is, after all, only 10% evil haha! But I realize it will already have been seen by some so, just to reassure you, he and I are once again on the same page, and my new nickname for him is “90%”.

Another update: even though I briefly sighted a couple of the peahens the other day, I haven’t seen them again and five are still missing. Nesting season is well and truly over so I think I will have to assume that they have either flown away (to get away from the peacocks’ attention), or have been killed by foxes. I am hoping it’s the former but I will never know. My peacock-knowledgeable friend, Mike, came over to see us yesterday because Anthony was home for the day and I asked him if the males would be okay without their ‘wives’ and he reassured me that they would, but it is still sad to have lost the girls. I guess, you never know, they might come back. That’s the risk with free-range but I never wanted to pen them in.

I’m off soon to go into the nursing home for the afternoon. It is only one street away from the beach so much cooler than here on the farm. Pompholyx is not contagious so that’s okay; I just hope he doesn’t notice that I have taken my wedding and engagement rings off because there were a couple of blisters underneath them. My ring finger feels really naked as, except to clean the rings, I have never taken them off.

Here are some photos of the peahens (much more pleasant than a photo of my blistered hands):

Queenie
IMG_0040

42 Comments »

Having fun!

At 8pm tonight, I rang Anthony’s mobile phone and it was answered by a nurse and handed over to him. I have tried 8pm many a time (my method is to let the phone ring 11 times, hang up before it goes to the message bank, then try two more times in the same way).

Anyway, tonight I got to talk to him just as the nurses were putting him to bed. He was articulate, lucid, content and said he looked forward to seeing me tomorrow. It was such a normal conversation, he wasn’t in the least demented or delusional or distressed and his voice was so clear!

I have no idea whether he had been given what I call ‘the emergency pill’ (a sedative) or not, but it was such a relief that he was okay because I had been feeling guilty all day for not seeing him today.

The main reason I didn’t go in today was because I had a migraine. This was partly due to the relief of hearing that my niece was out of her spinal brace (extreme relief seems to trigger migraines with me), but also because it was my birthday yesterday, I’d had a fantastic lunch with my ma and Mingy.

DSCN2206 (2)
DSCN2209
DSCN2208

Then, in the evening, a heap of friends came over and it’s quite possible that I may have over-indulged in champagne and stale pizza.

005
006
007
019
020
041
043

When it began to rain, we all came into the kitchen and, with the music, loud conversation, and drink-clinking, I was reminded of those long-ago days when I first met Anthony, the kitchen throbbing with life, the stereo blasting, the absolute sense of unrestricted fun.

And for a moment, I basked in the memory of my adventure into the heart of Anthony. His sense of fun was always contagious – absolutely – and now of course he can no longer be a part of this sort of frivolity because he is too sick, too incapacitated, too confused.

I think one of the main reasons I fell in love with him is because he transformed me from a shy, intense, introspective teenager into a person who had the capacity for fun! He didn’t even know it was my birthday yesterday and he thinks he has only been in the nursing home for a few weeks (it is nearly 2 years), and of course he doesn’t know we had the impromptu party last night.

More than anything in the world, I miss his loud laugh, his wild sense of fun, his gregariousness and life-of-the-partyness, his twinkling eyes when he glanced at my flustered face, his amazing hugs and huge strength of being, of character.

Anthony has given Ming and me a huge appreciation of having fun despite all of the odds, and, for this, I thank him to the sky.

Of course I also thank the fantastic friends who came over last night!

44 Comments »