jmgoyder

wings and things

Perspective

Last week, Son and I bought a box of chocolates for a girl in his music class whose mother was very sick. I dropped him off at music school and he had the box of chocolates, a little note he’d written, and roses he’d picked. He put it all in a plastic bag because he didn’t want to embarrass her, or himself. He was going to wait for a private moment (not easy at a music school).

But she wasn’t there that day because her mother had died. When I found out, I wept for this daughter and mother who I don’t know, and my sorrow seemed somehow presumptuous.

The roses went into the rubbish and the chocolates into the refrigerator.

I just dropped Son off at music school so he can accompany the rest of the class to the funeral this morning.

Perspective.

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Olala!

Ola is the little gosling turning the ‘wrong’ way in the picture below – ha! If you have seen previous posts, you will know that Godfrey, our godfather gander has been trying, for nearly a year now, to whip these babies into shape. Ola not only defies him, she ignores him!

See! This Ola and her sister Seli (both pseudonymed afer Mandy’s first borns).

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For those interested in the ‘Love story’ posts, their continuation is in a different blog.

http://jmgromance.com/

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How to unfold a day

Anthony was home for most of today and, for a couple of hours, he was okay and mobile and trying to do some jobs, and he and Son got the Aga lit. Eventually! Teenagers (Son) and geriatrics (Husband/Anthony) don’t always agree on these things. And, it struck me, as I withdrew from their Aga-lighting tiff, how amazing that my two ‘boys’ – this father and son who look exactly like each other but who have an age difference of nearly 60 years – can communicate at all.

After a lunch of doner kebabs, which Anthony used to love but couldn’t manage because his hands don’t work so well any more, everything went a bit downhill and Son withdrew as Anthony became more and more crippled up. His morning drugs for Parkinson’s seem to work well, but by early afternoon it became a predictable downhill slide and by 4.30pm he was more than ready to go back to the nursing lodge.

None of the things I had planned eventuated. I wanted to show Anthony the latest blogposts, which he usually loves, but he said he was too busy for that even though he was just sitting in the armchair near me, drinking a cup of tea. He wanted to sweep some of the bird crap away from the back door, even though Son and I had already done this, so I walked him outside very slowly with his walking stick, saying ‘1,2,3’ which usually gets his legs working. Eventually I put the straw broom in his hands and told him that if he fell over I would kill him, and left him out there to try. And while I watched through the window, he did a little bit of a sweep and then froze, head down, unable to move; this is Parkinson’s.

On the way back to the nursing lodge, Anthony was a bit incoherent and seemed to be having another ‘turn’ but then he suddenly said, “Jules, when you bring me home tomorrow, can’t I stay the night?” and I had to, once again, say it was too hard, he was too heavy etc. He accepted this and my guts twirled with how horribly humiliating for this man who used to be such a macho machine to have to ask me if he could sleep in his own home.

So, tonight, having rung Anthony to say goodnight, and having fed Son who is now milking cows again for the beautiful neighbours, I am unpleating the day and wondering if I could have done it better, wondering if I should be crying, wondering and wondering and wondering….

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Love story 25

The dynamics had shifted during my time away. I was grief-stricken over my father’s sudden death, worried about my mother, Inna was frailer and her ill-health made her frustrated and grouchy, and Husband-to-be was aloof and moody and seemed to avoid me.

Instead of pedalling fast to the farm, I pedalled slowly on my bicycle and my sense of anticipation diminished daily. I didn’t understand why Husband-to-be was sometimes so cold towards me, despite the incident under the clothesline which we had laughed about the very next day.

But that laughter was short-lived. He seemed not to want to meet my eyes.

And then one of Husband-to-be’s best mates told me that there was a girlfriend – someone they had both met at a local agricultural show while I was away at the Bible college.

I had lost my heart to Husband-to-be.

The idea that he had a girlfriend shocked me and that’s when I lost heart altogether.

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His name is Anthony

Until now, I have referred to my husband as “Husband” in this blog because I wanted to keep things a bit anonymous and private. But today, after two visits to the nursing lodge, and one little drive with Son, I realized that in not naming Husband – who supports this blog and me, who wants desperately to come home and be ‘us’ again – I might have dishonoured him.

His name is Anthony and he is the best Anthony you will ever meet.

His name is Anthony and he is the best husband and father Son and I could ever want.

His name is Anthony and he has battled kidney cancer, prostate cancer, diabetes, spinal problems and now – the worst disease of all, Parkinson’s disease – all with a huge grin and the kind of resilience I will never have. His sorrow at being in the nursing lodge is a daily grief for all of us.

Anthony.

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Love story 24

I remember feeling a terrible guilt over my glee at being able to go back to Inna’s house despite my father’s death.

My guilt was multi-faceted because I felt guilty about my joy at seeing Husband-to-be on a daily basis; I felt guilt every morning I rode my bicycle away from my mother’s house; I felt guilt that my father’s sudden death had made me temporarily popular; I felt guilt that my mother and brothers and I didn’t talk about our Dad-grief.

All of that young guilt eventually turned my ridiculously sweet nature into a bitter sourness and, one day, as I was hanging the clothes out for Inna and waiting for the hour when I would be able to go home to my mother, who mourned, but didn’t show it, Husband came over from the dairy and asked if I could stay the night with Inna because he wanted to go out.

Without any pre-warning, the biggest fury I have ever felt, grabbed me and I yelled, “YOU ARE A SELFISH PIG!” I then abandoned the washing, hopped on my bicycle and rode home, crying as hard as I could all the way so that, when I got home, I would be able to give my mother a smile.

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Dancing days

It’s Sunday here and in a couple of hours I will go into the nursing lodge to have lunch with Husband. I haven’t seen him for a few days because I have had the flu, but we have, as usual, spoken on the phone several times a day. He has missed me terribly but has coped. I haven’t missed him as much, which seems a terrible thing to say but there you are – I’ve said it.

We have talked about this disequilibrium of the missing-you thing.

Husband: I miss you now, I miss you all the time.

Me: I miss you then, I miss the way it was when you were well.

Husband: But I can be the way I was. I’m getting better.

Me: It’s not your fault – it’s the bloody Parkinson’s. You’re not getting better, you’re getting worse – that’s why you’re here so you get proper nursing care.

Husband: I don’t want nursing care. I want you.

Me: But I can’t lift you anymore, and I can’t make you walk, and I can’t manage you during the nights.

Husband: So I am never coming home for the night again?

Me: I don’t know. What’s wrong with coming home for the days?

Husband: It isn’t enough.

Me: I know.

Husband: And where’s the kid?

Me: At another party.

Husband: Just like I used to be.

Me: Just like you used to be.

Now I realize this all sounds very poignant and sad, but it always (well, almost always) ends up in a laugh about the dancing days.

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Wrong way. Go back.

In Western Australia we have big signs wherever roadworks are being done in case people go the wrong way. This can be useful, but it can also be a bit confusing.

It’s a little bit like that with blogging because you get really curious to go down a certain blog path, you like what you are reading/seeing, but you are also uncertain of where exactly you are and sometimes the historical context of where you are, in that person’s blog, takes quite a bit of time, quite a bit of deciphering.

With my own blog, Wings and things, it’s obviously the same experience for new readers or followers because, of course, the latest post is always the most recent and, unless people  have time to go back, they might not ‘get it’ that there are two different-but-same stories running parallel. The Love story is about the past but everything else is about the present.

As many of you already know, my husband has chronic Parkinson’s disease and terminal prostate cancer and is now in a nursing lodge close by. Our 18-year-old son recently had major spinal surgery. And me – I love birds!

I can’t keep up with the many blogs I am interested in, no matter how hard I try, but one thing I like to do is to go back and read the very beginnings of those blogs which is what I hope people will do with mine. It’s not that there is a wrong or a right way necessarily, but going back can be fantastic!

Oh yeah, and if you go back, you will find that I don’t usually do 4 posts in the day. I cheated today with the pics – hehe!

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Love story 23

I have to tell the days after my father’s death in point form:

  • I stayed with my grandparents in Sydney for two days until they could arrange a flight back to Perth
  • My mum, and my two brothers, picked me up from the airport and, during the two hour trip down south to home, we exchanged funny anecdotes about Dad
  • The next day it was felt best if I went to see Dad’s corpse in the morgue
  • I kissed his freezing cold cheek and got a shock
  • Husband-to-be took me for a long drive the day before the funeral
  • I couldn’t cry at the funeral service so I tried to make myself cry at the cemetery
  • It took two years for me to stop crying for Dad
  • My mother kept her own grief away from me
  • My brothers kept their own grief away from me
  • I went back to work for Inna
  • One afternoon, I went into Husband-to-be’s bedroom where he always had his 5-minute afternoon nap
  • “Could you give me a hug?” I asked
  • He sat up on the edge of his bed and patted the space next to him
  • I sat down, nervously, not wanting him to think I was an idiot
  • A beautiful, kind smile spread across his face
  • He gave me a big hug
  • My tears stopped falling

I felt my father’s palm against mine as this time I let myself fall in love.

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