jmgoyder

wings and things

Red wine

I am a beer girl myself but Anthony prefers red wine. I remember when we’d go out to lunch or dinner, the waitress would always give him the beer and me the wine and a bit of laughter would be exchanged before we swapped drinks.

This afternoon, I decided to do something different and go see Ants at 5pm instead of earlier in the day. I rang him beforehand and he answered the phone (a miracle in itself!) and I said I was coming in to have a drink.

It was WONDERFUL! I now think this might be the best time to visit because the atmosphere is more mellow than the flurry of daytime. I took the bottle of wine into his room and poured him a glass and I opened my beer and we had a drink together, laughing and talking and then his dinner was brought in and I helped him with that a bit and then I had to go, and he was fine!

Thank you, red wine!

51 Comments »

The dreamchild

During the uncertain years before Anthony and I were engaged, I had a very strange certainty that twirled around in my mind, and whirled around in my stomach. So, one day, I sat down in my little bedsit and wrote about our son-to-be. I sent the poem to Anthony:

THE DREAMCHILD

He waits in a misted capsule

At the corner of my mind

And my thoughts scatter

Through him

Warming cooling him wrapped

A wisp

A fingerbreath of being peering through

Door ajar

A bloodlight outline here

Out of veiled velvet space

The colour of him blinked

Inked in jagged clear

An extension of you

Joined at this corner of misted mind

Seated crosslegged child

A particled preconception

Of something certain

And certain now he waits

For you

His strange cry smiles sunwashed

Into the beating

Beating silence marking time

Timeless

And silence like blue blue air

Sponged cool

His patience a single crimson flame

Poised

Dancing pivot

Of something certain

And certain he waits

Waiting now

We wait

For you

He waits at the corner for you

My child to be

And a few years late, the dreamchild turned into Ming!

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When life holds its breath

When life holds its breath

And the rubbish bin hasn’t been emptied yet

And the dishes haven’t been done again

And you hope for the unthinkable

That you will only be able to breathe again when he can’t

When your friends either overwhelm or discard you

When your family pities you and can do nothing to help, no matter how hard they try

You can always smash the lung balloon of life and make it breathe again

Or not

You can remember every single moment of your life with the person who is dying

Loud, boisterous parties in the kitchen with the stereo blasting

Discovering little bits of each others’ stories like drops of sweat or dew

A single perfect camellia

A cheeky half moon

A baby, now grown as upright as a karri tree

A child who doesn’t remember, but knows his father was not always as ill as now

A teenager who doesn’t remember our holidays, our joy, our frivolity

When life holds its breath

All you can do is wait for the inevitability of death

And hope the slow motion can be fast forwarded in order to skip the bad and boring bits

So that your own breath will come back

So that things will not be endlessly paused

A story with a definite resolution

A bird dead or alive but not dying, not dying

When life holds its breath

You have to tap it on the shoulder

Make it see what you see

Give it mouth-to-mouth

Kiss death, kiss life

Brandish humour like a sword

Overcome fear with love

Embrace the influx of crows

Stop wondering why

Stop crying and crying and crying

Take the white peacock feather from the ground and put it behind your ear

Wrestle the dreams of falling by becoming a giant

When life holds its breath

You have to make sure you can breathe for yourself

You have to hold the hand of your dying husband

You have to candle yourself into a glowing smile

You have to flap your wings like an angry gander with no tomorrow in mind

You have to remember and love all of the people you once knew who were dying and you did nothing

And understand the why of the fear of impending death

The loneliness of now and the absence of then

When life holds its breath

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‘The Happy Wife’

Today I met some friends for lunch at a place called The Happy Wife.

I have been there before and the name of this little restaurant is an interesting thing to discuss. It could be assumed, I suppose, that it means that a happy wife is one who is out to lunch rather than making lunch? I don’t know. Anyway, the place has taken off like a rocket ship and is very popular.

After lunch, I went to see Anthony and spent a couple of hours with him. He didn’t bring up the subject of coming home for the weekend, so I didn’t either, even though I was ready to say it is now impossible. He was more physically mobile but also a bit more confused (the hardest part of this confusion is he doesn’t think he’s seen me, or spoken to me for ages, so a whole lot of yesterdays have been vaccuumed into oblivion and I have to convince him otherwise).

He wants me to get our bentwood chairs fixed and even gave me someone’s name so I am going to do that and all of that made sense, but in the next breath he asked what had happened to all of our furniture, so our conversation was a mix of real and surreal. I asked if I could bring a couple of pictures in and a clock (the cuckoo clock I bought him for Christmas) and he said yes. A few weeks ago he wouldn’t agree to anything from home being brought in so I didn’t because I didn’t want to hurry the sensation of permanency for him and with good reason because today he said it again: “I didn’t think this was going to be permanent.”

I decided not to respond to that and instead said, “How come you are so good at grimacing these days but you can’t grin?” so we bantered a bit. Of course I didn’t tell him I had been out to lunch at The Happy Wife because it only hurts him to think I might be doing something unnecessary when I could be with him.

I was such a happy wife.

Note: Yes, yes, I need to get a scanner! On the other hand, a photo of a photo can make a handful of years look like aeons and that’s what it feels like sometimes. Look how happy we were.

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My hero

I have to break it to Ants that I can’t bring him home for the day any more because I can’t physically lift him. He is now requiring two nurses to assist him in every way. I will tell him tomorrrow; it is a hard thing to say and I am nearly beside myself with grief because he is my hero in so many ways  – hence my resorting to sentimental music like the following….

http://www.youtube.com/watch?v=0IA3ZvCkRkQ

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‘Shit happens’

Okay, firstly, I didn’t say that; it’s a popular quote and is a perfect descriptor of how life can pan out, regardless of hopes, prayers and …. well, we all know. In fact, it is a fact of life and it doesn’t necessarily come with any warning on the packet.

‘Shit happens’ http://en.wikipedia.org/wiki/Shit_happens

I’m not a huge wikipedia fan but sometimes it is handy, as in the above definition/history of the quote.

‘Shit happens’ is an existential type of concept in the sense that, despite trying to be a good person and trying to make your own life work out in the hope that you can control its meanderings and tame the hardships into something manageable, you can’t always do that. I don’t think you can manage fate when it comes to bite you at the end of a life (Anthony).

It is possible, however, that you can manage fate at the beginning of a life (Ming). I don’t know.

Ming playing at the gig the other night.

Shit doesn’t always happen?

Note: Apologies for offensive language, if you were offended!

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Wrong number!

I just got an awful shock when I realized why the scary man on the phone is so angry. Let me explain:

The scary man rang me the other day on the home phone and here is how the conversation unfolded:

Me: Hello?

Scary Man: Hello.

Me: Is that … ? Sorry, who am I speaking to?

Scary Man: No, love, I’d like to know who I’m speaking to.

Me: But you rang me.

Scary Man: You got that wrong – you have rung me and hung up around seven times now.

Me: Sorry, but I don’t know what you’re talking about.

Scary Man: You ring me in the night and hang up just as I’m answering the phone. What is your name!

Me: Julie!

Scary Man: Julie who?

Me: Come on – I hate this joke thing. Who is this?

Scary Man: Oh, you hate this joke thing – so why do you keep waking me up late at night?

Me: What are you talking about? Sorry, are you the builder from Boyanup?

Scary Man: I’m not a bloody builder. Where are you ringing from?

Me: Western Australia.

Scary Man: Well I’m in Queensland, girlie and if you keep on ringing me ….

Me: I’m not ringing you – I’m so sorry – we’ve had a severe storm recently so maybe it’s the telephone wires or something?

Then, a few days later, the scary man rang again and Ming answered and this time the guy was extremely aggressive on the phone and I could hear Ming apologizing and assuring the man we hadn’t rung him.

I couldn’t work out the conundrum until I found out that I had one digit wrong in my nephew’s phone number (who I’d been trying to ring for a few days), so I thought that must be it.

Until yesterday. Yesterday, I rang Anthony’s mobile number and guess who answered – yes, it was the scary man! His voice is deep and gravelly and totally recognizable. In terror I quickly said, ‘Oh, sorry, I have the wrong number,’ and quickly hung up.

Okay, in a previous post, I described my method of ringing Anthony. Because he is slow to answer, I let the phone ring four times, hang up, then four times again and hang up and he sometimes answers on the third try. I do this around three times per day if I am not going in to visit.

I must have misdialled a few times and obviously the scary man’s phone number is similar to Anthony’s. I am now much more careful when I dial! And, since Queensland is two hours ahead of us, that explains the late night thing.

I am so glad the scary man lives in Queensland and not around the corner!

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Sometimes I get a bit freaked out

Tonight on the phone Anthony asked me when I would be coming to join him at the Captain Stirling for a beer.

The last time we were at this pub I was pregnant with Ming – 19 years ago.

Tomorrow, when I bring Ants home for the afternoon, I will ask him about this because who else can I ask? He is my confidante and likes me to talk to him about him – weird but good too, I think!

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Antidepressants?

I have now spoken to two of Anthony’s doctors about the possibility of him going on antidepressants or some sort of medication to lift his spirits. The trouble is, of course, that when asked, “Are you depressed?” he immediately says no, without the slightest hesitation. Despite his inability to smile or laugh in the ‘normal’ way anymore, he still has the most amazing ability to remain relatively stable emotionally (it is me who zigzags constantly from one mood to another!) However, it is becoming more and more obvious that not being home is making him constantly sad, and longing for us – Ming and me – is making him even sadder. His head is always bowed right down now (an effect of Parkinson’s and his spinal condition) so that when he stands he is almost bent double and I have to kneel down to look him in the eyes.

When I thought about telling Anthony about my weird dream (see previous post), I anticipated he would laugh his head off because I keep forgetting he can’t laugh at all. Every time I see him I get a shock all over again at how deteriorated he is – and how quiet, sometimes sullen. So this week I am going to organize an appointment to get some happy pills – after all, what harm can it do now? I realize this post may elicit mixed opinions and that’s probably a good thing. I don’t know what else to do.

I’ve been wondering why I continue to love Godfrey the gander, despite the way he bites me all the time (even when I am giving him bread!) and I think it’s because his confidence, his boisterousness and his strut all remind me of Anthony when he could stand up straight.

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Dreaming hallucinations

Until last night it has been difficult for me to imagine experiencing the kind of hallucinations which are part of Anthony’s Parkinson’s disease. He will often see people in empty chairs and even talk to them. Sometimes those people are us – Ming and me – but sometimes  they are strangers, often children. Sometimes he sees animals in the house or in his room at the nursing lodge – dogs and calves mostly.

Over the last few years some of the hallucinations repeated themselves and were frightening – men chopping down his favourite tree, the girl with the bleeding eye, trespassers taking over the dairy – but most have been tolerable and sometimes even comforting. Now, for instance, Anthony often thinks Ming is in the room with us even if he isn’t.

If, on the phone, Anthony says something that indicates he is hallucinating – in the evenings, for instance, he now almost always thinks he is at some sort of party in a mansion somewhere – I either go along with it or suggest he might be hallucinating. I only do the latter if he seems distressed.

Last night I had a vivid dream that has given me an insight into what hallucinations feel like and it was very frightening. In the dream, Anthony, Ming and I were all home and we had a lot of visitors. Anthony wasn’t ill and he was out chopping wood for a fire. I was the one who was ill and all the visitors kept saying I should go back to bed, but I wanted to be up and about. I was standing in the kitchen just as Anthony came in the front door with a big bundle of wood in his arms, then I turned towards the back door and there was another Anthony, in different clothes, with a bucket of wood. I turned around, confused, to see that the first Anthony was still in the hallway, then turned around to see that the second Anthony was now entering the back door. I kept telling the visitors that there were two Anthonys and they thought I was joking around. Finally, one of the visitors believed me and was alarmed and kept reassuring me that there was only one Anthony, but I could still see two – one to my left and one to my right. Neither of the Anthonys spoke, so I didn’t know which one was real.

The dream went on to another scene where I was at the doctor’s and he was about to tell me what was wrong with me – then I woke up. I can still feel the fear I felt in the dream – that I was losing my mind. I hope Anthony doesn’t feel as frightened as I did in the dream. I’m going to tell him and see what he thinks. Knowing him, he will probably laugh his head off!

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