jmgoyder

wings and things

To my son, Ming

I have never loved anybody as much as I love you.

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Banishing grey

This afternoon I ventured outside to catch a glimpse of something, anything, to free myself from the grey hopelessness of exile.

Earlier in the day, I had been to the local shop (in this little country town we have one shop, a butcher’s, a pub, a garage and a post office). For the last few weeks I have been reluctant to go to any of these places for fear that someone will ask me about Ming’s car accident, for fear that I will stumble into defensiveness, for fear that I will cry in public. So far, I have braved the shop twice. Today was my third time and I thought I would be okay, but when the shopkeeper looked at me knowingly and asked how I was, I started to say fine then, without warning, my eyes filled with tears and, when she reached over the counter to hug me, I was undone. Thankfully there were no other customers and I recovered myself quickly, making a quick escape to home – to my hiding place.

Yesterday someone asked me how Ming was coping with the fact that his ute (truck) was wrecked and the question almost felt like an assault. “He doesn’t care in the least about his ute; he only cares about the children injured. The ute doesn’t matter to any of us,” I said, my heartbeat thundering.

This afternoon I ventured outside to catch a glimpse of something, anything, that wasn’t grey. Each photo I took reminded me of how important hope is, and of how important every single member of my family is to me.

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The hand-shake

Yesterday, I was in Anthony’s room in the nursing lodge when a family member of his popped in to visit. To begin with, this family member and I were somewhat awkward with each other, which wasn’t helped by the fact that Anthony was having what Ming and I have always called ‘a wobbly’ where he can’t properly talk etc.

So I had to kind of ‘broker’ the conversation between the family member and Ants, which was so hard for me because, despite making myself willing to forgive several weeks ago, I still felt a residue of rage against this family member for having hurt Ants/us in the past.

But, as he went to leave, and shook Anthony’s hand, I suddenly, involuntarily, reached out my own hand to his and we exchanged a hand-shake. Clumsy words were exchanged but that doesn’t matter because that hand-shake meant that finally I have forgiven and can move forward now and, perhaps, the enmity might now be resolved.

Of course nothing is perfect but the fact that my hand-shake happened in front of Anthony is like a gift to both of us. Apart from Ming, this family member and I are probably Anthony’s favourite people historically – I don’t know. Many other family members and friends have made much more effort to visit or take Ants out etc. This particular guy is probably afraid, just as I am, that he is soon to lose someone he loves.

The hand-shake is a very useful gesture in situations of conflict, confusion, anxiety and despair – and happiness of course!

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A strange incident at the nursing home

The week before last there was a Melbourne cup luncheon at the nursing home (the Melbourne cup is Australia’s annual horse race – ‘the race that stops the nation’). I have mixed feelings about this race but that is beside the point of this post.

Anyway, when Anthony still lived at home, he organized sweeps with family, friends and farm workers and he loved doing this and was very good at it. Horses were picked, money was collected and lists were made; it was great fun. Obviously he can’t do this now so I did a small sweep with just Ming, Ants and me, but it felt kind of false and feeble compared to the efforts Anthony made over the years. Oh well.

On the phone that morning, he said he had reserved me a seat at the nursing home luncheon so I hurried in to be there in time for the televised race at noon. On entering the very crowded ‘events’ room, one of the staff pointed to where Anthony was sitting. There was no chair for me beside him and I noticed there were no other family members which surprised me a bit, so I squeezed in next to him and sat on his walker. Around sixty residents were sitting around three long tables but there were only a few from Anthony’s ‘high care’ section. Each resident had either a glass of wine or beer and plates of nibbles were placed here and there so people could help themselves. I filled Anthony’s plate and helped another man too and then the race began on the television. Staff lined the walls just as excited as residents and once the race was over, the woman in charge of handing out the winnings did so with humour and I broke it to Anthony that we hadn’t won anything which he took in his stride.

At that moment, Anthony said, “Here, Jules, have some of this – I can’t eat it all.” So I spotted a spare spoon and scooped up a bit of potato salad which was delicious. “Have some more,” he said, delighted, but as I went to do so, someone tapped me on the shoulder. I looked up and saw that it was the nursing home manager.

“Julie, can I have a word with you?” she said, beckoning me to follow her into an adjacent room.
“Am I in trouble?” I said, jokingly, following her.
She turned around and frowned. “I cannot have you eating the food. I have already turned away two families because we can’t cater for family members on this kind of occasion.”
I felt shocked and humiliated and apologized profusely, so she said, “You can stay but don’t eat the food.”
“Anthony said I was invited,” I said.
“No,” she said.

I wanted to cry, I wanted to rant, I wanted to know who she’d turned away but I knew, as soon as I re-entered the events room because I immediately noticed the misery on Natalie’s face (Natalie is a resident in high care and is usually robust and full of laughter; her daughter and son visit every day so we have become friends. Their absence and Nat’s uncharacteristically long face told me what must have happened. I patted her on the shoulder but she hardly responded).

I then resumed my seat on Anthony’s walker, my face flushed with a mixture of embarrassment and rage. Once again, Anthony offered me some food from his plate but I whispered, “I’m not allowed to – have just been reprimanded.” He shook his head, disgusted, as I nervously helped him manage to feed himself. Suddenly plates of dessert came out and one of the staff serving said, “Hey, Jules, do you want some cheesecake?” I shook my head and said, “I’m not allowed.”

Later that week I bumped into Nat’s daughter who was looking glum. Like her mother, she is usually full of smiles. When I asked her what was wrong she told me she had been kicked out of the Melbourne cup luncheon and her mother had been miserable ever since. We had a brief, whispered conversation in which we both decided that it wouldn’t be tactical to complain.

I understand – of course I do – that having to cater for every resident’s family members for a big lunch would pose logistical problems but the fact is that in the nearly two years since Anthony has been a resident at this nursing home, I have only ever met a handful of family members who visit their loved ones, so it’s not like there would have been a crowd.

After the lunch was over that day, I went to the nursing manager’s office to once again apologize and tell her that I hadn’t known the rules. I guess she could see I was nearly in tears so she suddenly turned her usually unsmiling face into a half-smile and said, “It’s okay, Julie, you didn’t know.”

For the first time in ages, I cried all the way home.

Note: I have stopped calling it a nursing lodge and am calling it what it is – a nursing home.

The photos are of times gone by.

A Goyders Dardanup

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Self-pity is not a crime

I am not just talking about my own self-pity – I am talking about anybody’s/everybody’s. Self-pity is a normal emotional response to horrible events, situations and dilemmas and, as such, it deserves respect, not criticism, advice or platitudes.

I reckon that if you feel sorry for yourself, go for it. Self-pity isn’t a crime and is probably a necessary emotion preceding acceptance, ‘moving on’ or whatever the psychologists call it.

But for many of us, there is no moving on; the grief is static, unending and ever-present because there IS no hope of improvement, of resurrecting the life of a child lost to illness or accident, of rewriting history.

If it weren’t for self-pity, I don’t think empathy would be possible because how can you possibly understand what someone else is feeling unless you have felt it yourself?

Self-pity is not a crime.

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Calm before the storm?

Today Ming was charged with a crime (related to the car accident four weeks ago) and the case will be dealt with in court in the next month or so. After the police station, he and I went to the criminal lawyer recommended and we were given some very good advice. It has been a day full of expected shocks and unexpected shocks, like the possibility of jail, but Ming is okay with whatever punishment he receives for this stupid mistake in judgement. He is more concerned for the children who were injured in the accident and so am I.

It doesn’t bode well for Ming but neither of us care about that because it is nothing compared to the mix of relief and anxiety about all of the children’s recoveries and healing, especially my girl still in hospital, and my boy having to bend his leg for the first time tomorrow, and for the friend whose broken arm got infected, and to my two girls who are still in neck braces.

The fact that none of the families have laid blame on Ming has been a wonderful thing but that is irrelevant to the case and to our concern for the kids. I already loved those children but, until now, I didn’t know how much and it is up to the sky and beyond.

I hope that this temporary calm will make the inevitable storm more manageable for all of my family and us but obviously we will have to all wait and see in different ways.

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What’s more important – to love, or to be loved?

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Yesterday, after doing hours of paperwork and three related appointments, I finally got to Anthony’s lodge at 5pm and something in his face lit up. “My beautiful girl!” he said (now that I am 54, being called a girl always works a charm on me). We gave each other the usual hugs and kisses and then I sat down to tell him the latest about my nieces and nephews, my Centrelink adventure and other things, and poured him a small whisky. I knew I couldn’t stay long as I had to get groceries before the shops shut, so he got a bit upset when I had to go. I managed to jolly him out of that somehow and left reluctantly.

At the doorway to his room, I paused, as always, and said to him, “I love you so much, Ants” and he said, “When you go I won’t have anyone to love.” So then of course I ran back to him for one more hug and he was okay, knowing he would see me tomorrow (which is now today).

After getting groceries, I headed for home with his words resonating and I realized, for the millionth time, what an amazing person he is to want to give love more than to receive love.

Ming, at 19, doesn’t really understand why I go into the nursing lodge, take Ants out for cake and coffee, and/or on my errands, or home on weekends.

Me: Because he is my husband!
Ming: But how can you stand it, with Dad like he is? It’s no fun for you and the psychologist said you’re supposed to be having a bit of fun in your life.
Me: Because I love him and I can make it fun now I’ve stopped succumbing to the sadness so much. Anyway, I like going to cafes and so does Ants.
Ming (bewildered): Okay, whatever.

One day, when Ming is married to someone (who I hope will be amazing!) he will understand something about love that I didn’t really ‘get’ until now: that the gift of love is found inside every moment that you give it and not in how much you receive it. I certainly didn’t see it this way when I was his age so why should he?

So to both my beautiful boys: I love you.

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Note to blog friends


Thanks for all of your support. I am gradually resubscribing to the many blogs I have missed over the last months of various troubles. The last few weeks have been hell for my whole family, since the car accident, and with one niece still in hospital, the anxiety is high so obviously blogging isn’t on my priority list at the moment. I so appreciate all the good wishes, prayers and thoughts sent to my family, particularly to my nieces and nephew – thank you.
Juliex

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I found out today that Anthony and I are ‘illness separated’.

photo credit to Jane Terren

Ming and I were at Centrelink (Australia’s social security service) this morning to pursue job possibilities for him now that he is not supposed to do manual labour. He is still working for our neighbours as a dairyhand but only for three days a fortnight, and with no lifting allowed. As many of you know, this is because Ming tried to lift something really heavy in our shed a few months ago and actually fractured some of the titanium in his ‘new’ back. He will be scheduled for further surgery in the next couple of months, after which he will obviously have to quit milking the cows for good.

So we were at Centrelink with a the doctor’s certificates and other paperwork that might help Ming claim some sort of interim allowance before and after the next surgery, when (whilst waiting for her computer to reboot) the beautiful woman serving us chatted with me about this and that and she took an interest in my own circumstances. As I had previously received a carer’s allowance when Anthony still lived at home, I was on the system, but she could easily see that I have had no income of any sort for nearly 18 months and haven’t been able to claim any social security help due to living on a farm (asset). She asked me about Anthony and, when I told her he was now in a nursing home, she said, “Well that means you are separated.” I said, “No, no!” Then she said, “It’s okay, I just mean you fall into the Centrelink category of ‘illness separated’ and, as such, you could probably do with some financial assistance.”

She then said she would do anything she could to assist us in our Centrelink pursuits. I was so grateful I nearly got teary and then suddenly she realized that Ming (whose Scottish name is spelled Menzies) used to play football with her own son and, even though she and I had never known each other back then, I not-so-instantly recognized her!

I am feeling a bit uncomfortable about lodging a claim for financial assistance but, on the other hand, Anthony and I have, like so many, paid a fortune in taxes over the decades, so why not? It’s difficult for me to get another job at the moment because I spend a lot of hours with Anthony every week – either here or at the nursing lodge; and it’s difficult for Ming to commit to another job until he knows about surgery (next appointment with surgeon in two weeks).

One of the things I am so grateful for is the fact that my beautiful, now incapacitated, ‘illness-separated’ husband, has had enough savings to sustain us so far. And that we are living on his/our beautiful farm.

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Internet and phone problems continue

We live in an area of the southwest of Western Australia where (it would seem to me) all of the telephone wiring has rotted, the internet is intermittent and keeps dying, mobile phones don’t work unless you race outside to get a signal, despite paying a fortune for a new antenna, a new modem – oh don’t get me started!

The internet has suddenly, inexplicably, come to life again after four hours of absence when I was attempting to send messages to family and friends, reply to/comment on blog comments, write a new post etc.

Living on a road called Paradise Road definitely has its drawbacks. I will get the above problems fixed asap (maybe 2020!) So frustrating when I am trying to keep in touch with loved ones – argh – oh well at least there is the phone. Whoops – forgot that doesn’t work properly either.

Until these things are fixed this is my last post for time being – too hard!

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