jmgoyder

wings and things

Doggone!

For the last few days we have been babysitting two extraordinary little shih-tzu/godzilla crossed dogs for my beloved nephew.

In the two pictures below you can see that Missy (the littlest of the shih-tzu/godzilla crossed dogs) is an intimidating force. Jack, our Irish terrier, is going to need therapy for bewilderment. Can you see his expression in right corner of the second photo? Poor sweet boofhead!

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Blaze, on the other hand (our 10-year-old miniature dachshund) seems to have fallen in love for the first time in his life – with BOTH Missy and Fergie!

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But he is a bit overwhelmed.

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And a bit tactless.

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The bigger of the two shih-zhu/godzillas is named Fergie and, without any reference to the royal family, I have to say that she does exhibit a lack of inhibition in the way she continually interrupts the flirtation between Missy and Blaze. She may need some jealousy therapy, poor girl.I will also have to speak sternly to Blaze about monogamy!

Oh yes and Missy and Fergie disappeared the other day but that is another story!

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No sweat!

In order for this post to make sense I need to remind people that last summer I developed a condition called ‘pompholyx’. It initially announced itself on the sides of each of my fingers in the form of tiny blisters that, due to their itchiness, I scratched, so for weeks, then months, I battled with blistered and/or scabbed hands (and, oh yeah, my left foot).

It nearly drove me mad and none of the various cortisone or anti-fungal creams worked very well. I researched my condition and found lots of gross photos and horror stories of frustration posted by other sufferers, all of which I showed my doctor. One common denominator, in terms of cause, was excessive perspiration: hyperhidrosis.

During the Australian summer, temperatures often reach/exceed 40 degrees C which means that for several months of the year people tend to look rather moist, including me. Then, last summer, my perspiration went into overdrive and my hands, head and face became rivers of volcanic overflow so much so that, if I shook my head the way a dog does everyone near me would be sweat-splattered. The worst thing, though, was my blistery hands; the little blisters would become huge blisters and, yeah, they leaked too. I felt as if I had been catapulted into some sort of science-fiction parallel universe where the sweaty people were excluded. In other words it is a very embarrassing condition.

When winter arrived (autumn is almost unnoticeable here) the relief was enormous for me. As the rain poured and poured, I stopped pouring and my hands nearly healed. But then (a couple of months ago) summer came back and so did the hyperhidrosis and pompholyx.

Interestingly, this second bout has seen a worsening of the HH but a diminishing of the PX. But I went to my doctor regarding both and he is going to research how we can stop this embarrassing, excessive perspiration. Good.

I then went to a podiatrist who looked at my left foot (the sores resemble burns) and she recommended an over-the-counter antiperspirant called ‘SweatStop’. Well, I couldn’t find that exact brand but I did find a few products containing the active ingredient aluminium chlorohydrate so I bought them.

Well, it WORKS! Once applied to the affected areas, it stops the sweat glands somehow. It’s a bit uncomfortable and has made my previously sweaty hair dry and brittle and my hands dry and scaly but it’s a hell of a lot better than dripping my way into every single day.

The most hilarious thing about this is that Anthony’s Parkinsonism has affected his internal thermostat so severely that he is ALWAYS freezing, even in the middle of summer! The first thing I do when I visit him is to turn the air conditioner off, put a jacket on him and then a rug on his knees, by which time I would ordinarily be oceanic with perspiration. Now I’m just a little bit drippy!

No sweat!

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The end of an era

Well today I said goodbye to the last of our geese, and the duck, Zaruma (pictured above). The first photos (below) are from 2011 when all except Godfrey were little. The latter photos show them all grown up. The reason? Too many casualties via foxes and the dogs who lately have been able to get out of their yard by hook or by crook and they attacked my beloved Zaruma the other day (that was my turning point).

So I was having to pen the birds 24/7 plus the dogs versus birds argument was becoming a regular source of conflict between Ming and me. So Ming advertised them on the internet and an animal loving couple came to pick them up at 1pm yesterday.

I was dreading it and didn’t even want to be here at the time but Ming was at work so I had to be. I didn’t want to see Woody, Seli, Ola, Diamond, Zaruma, and even grumpy old Godfrey, traumatised.

Well I needn’t have worried. Belinda and Tom arrived with a trailer and a few big cages, water containers, and when she saw my eyes fill, she gave me a big bear hug and told me to go inside while they caught “the gang”. So I did and wrote all their names on a piece of paper then made myself go back outside immediately to oversee things.

AMAZINGLY, Tom had simply gone up to Godfrey and picked him up, carried him to their station wagon and put him in a cage in the back without the slightest fuss from Godfrey! For those who don’t know, Godfrey is the gang boss and has been so protective of the others since they were little that he turned aggressive, and he BITES! But he didn’t even attempt to bite Tom.

Even though the rest are so tame I could easily have picked them up and put them in the other cage, I just couldn’t do it because I was so sad. So Belinda and Tom did it and talked softly to them to calm the more panicky ones (Woody – oh my poor heart!) and it only took around 10 minutes – smooth and gentle and I felt incredibly relieved!

Belinda and Tom live two hours away but they are better equipped, with huge yards for all of their poultry, big swimming ‘pools’ etc. so it’s wonderful to know they are going to a great place and will be there by now. We have exchanged email addresses so she can send me some reassuring photos, so I feel great about it all now.

But after they left, I cried like a baby. I will miss them and the amazing peace they brought me in the months before Anthony went into the nursing home.

      

Thank you, Belinda and Tom.
Goodbye, Gang.

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Anthony book 1: Three years

January 9, 2015

This week marks the third year that Anthony was admitted into the nursing home for respite and never came home again.

Except to visit. The shock of it.

This is what I wrote in my blog at the time:

Jan 11 2012 Breaking

Yesterday, Son and I broke the news to Husband that his two weeks in the nursing home lodge might need to be extended, might even be indefinite and that this has been recommended by three of his doctors. Son reinforced this by starting a verbal sparring match:
Son: We can’t look after you anymore, Dad!
Husband: Well, you’re not much of a son, are you!
Me: C’mon, guys, give it a rest.
Son: Dad, can’t you see you need nursing care?
Husband: I’ll get better – wait and see. Don’t give up on me. Where’s my wife?
Son: Her name is Julie, Dad, and she’s crying in the bathroom as usual.
Husband: What the hell is she doing that for?
Me: Sorry, just had to go to the loo.
Husband: Are you okay? You look terrible. You really need a haircut.
Me: I know.
Son: Argh – I’ll meet you out in the car, Mum. Bye, Dad.
Husband: Wait – give me a hug.
Me: He’s okay; he’s a teenager.
Husband: Why is he so ….?
Me: He’s angry.
Husband: I love you two more than life.
Me: Us too.
Husband: You better go.
Me: Yeah, the brat’s waiting – give me a hug.
Husband: See you tomorrow?
Me: See you tomorrow.
Breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking, breaking…. br

Perhaps it is this strange anniversary of almost unbearable emotional pain that has rendered me numbly bleak (bleakly numb?) over the last few days.

Lately, the shiny wonder of having discovered different ways of happily being in the nursing home for so many hours per day with Anthony has begun to show its first lace-like signs of rust.

I AM SO BORED!

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Up hill and down dale

One of the things I do during my afternoon shifts at the nursing home is to take wheelchair-bound residents for a ‘stroll’ around the grounds or, if it’s too hot, through the facility, or both. Until I got this job, and before volunteering, I wasn’t familiar with the layout but now I am; there are four ‘houses’ each with its own name, but all almost identical in design (kitchen and dining room in the centre, living rooms x 2, patio area and garden, and bedrooms all private and each with an ensuite, at the opposite ends of a hallway.)

Anthony is in the ‘high care’ section at the centre of the facility and this is more hospital-like in terms of design.

The ‘Dementia house’ (obviously not called that, and named after a significant person, but, for the sake of privacy, let’s call it ‘The Lodge’) has ten permanent residents, all women, most of whom are mobile but three of whom require wheelchairs to go any distance. I absolutely LOVE going for a walk with these beautiful women up and around the curves and corners and small hills of this facility, inside and outside, down hallways, through gardens, into other ‘houses’ to visit.

I only do a few short shifts per week (3-6pm) and the job description is “Lifestyle assistant” so am still learning how to be more creative with activities, games (not my forte!) But what an absolutely WONDERFUL job! To be able to socialise, converse, have fun with people who have dementia. The thing I like to do most is going for a walk and sometimes this is hilariously rewarding like the time I took Suzie past Anthony’s room, and we waved (even after just a couple of weeks, Ants has come to expect this and waves back), and Suzie said to me, “Poor old bastard”.

I retorted: “That’s my husband, Suzie!”
“Oh sorry,” she said, chortling with mirth.

Okay, back to the up hill reference: Fiona is heavy and wheel-chair bound so I get a bit terrified now because the other day, as we were going UP the driveway, her wheelchair decided that DOWN might be better and I briefly lost control and we landed gently into a rosebush, unharmed. Fiona, who constantly hums a refrain of a hymn I am yet to recognise, giggled, sitting regally in her wheelchair while I struggled with thorns.

All names have been changed to protect the privacy of these people with the exception of my beautiful husband, Anthony, who, when I was wheeling someone past his room the other day and waving as we always do, called out, “You’re getting faster, Jules!”

But, by the time I am finished my shift and go back to Anthony, he is so confused and sleepy that saying goodbye isn’t difficult because it is now possible to comfort him with “I am just going up to the shop to get some bread.”

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The Anthony book

A few months ago a professor friend of mine – an historian, prolific writer and a colleague from my recent university days – suggested that I might write a book about Parkinson’s Disease framed around the blog and my experiences with Anthony. The professor said that he would be happy to read whatever I wrote and that he would give me feedback.

At the time of his visit, I was buoyant with the discovery that I now looked forward to, and enjoyed, my visits to the nursing home, and was able to spend many hours of the day there.

Since then I have begun to copy/paste various bits and pieces from posts I have written since November 2011 into a document that journals the various transitions Anthony, Ming and I have made since Anthony’s permanent admission to the nursing home in early 2012, nearly three years ago.

One of the most significant things I have discovered since perusing my blog is that I would never have remembered the sequence of events, the emotional turmoils, or the ways we coped, if not for the blog.

So now, on the brink of a brand new year, I’ve decided to write the book and report progress via the blog (as an incentive!) on a daily basis. Or something like that!

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Happy Christmas!

I have decided to take a prolonged break from blogging until after Christmas. In the meantime I wish everyone the very best for 2015!

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Applying for a job

As many of you know, I recently applied for a job at the nursing home where Anthony has now lived for nearly three years. The job is that of ‘lifestyle assistant’ in the dementia wing/house, a role I have been learning over the recent weeks of volunteering. It is a three-hour shift, between 3 and 6pm, often a time of restless agitation for people with dementia as the sun goes down (Sundowner’s syndrome).

It was such a strange experience to be interviewed on Tuesday by two women who I already know so well – the Manager and the Events coordinator – but I still said “lovely to meet you”, which made us all laugh my nervousness away – well, sort of! But then I answered some of the questions clumsily, ignorant of the fastidious rules that have come into play since I last worked in a nursing capacity over 20 years ago.

So I was pretty sure I muffed my interview up and almost felt a sense of relief, but I couldn’t help hoping. Anthony knew about my application and interview but was a bit unsure about what was going on (he is not in the dementia wing) so when the Events Coordinator came into his room today and asked if she and I could have a chat, I thought she was just going to tell me I didn’t get the job.

And that’s how she started:
Ev: Julie, about that interview the other day (pulling a looooong face)
Me: Yes? (trying to look nonchalant)

But this is how she ended:
Ev: You got the job.
Me: What?

After that I twirled around Anthony’s room in a state of glee and, because I know so many of the staff and residents anyway, it’s been a joy to whisper, ‘I got the job!’ and Ants said at one point, “You are wonderful, Jules”.

Note: This is first post since my computer died and my computer whiz guy has salvaged everything onto a usb thingy. In meantime I have bought myself a Macbook – brilliant!

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The new smile

For the love of smiling!

I took a photo of the avocado tree a few weeks ago and posted it on this blog, bragging about its amazing blossoms. A few days later, on climbing the tree to pick one last unreachable avocado, I got a bit tangled in the blossoms and, in untangling myself, realized they were actually the blossoms from an adjacent plum tree. I haven’t wanted to admit this until now because I am so embarrassed. I am quite sure all gardeningy people spotted my error but were kind enough not to say so. Anyway, it’s not my fault that the plum tree (or whatever it is) keeps throwing its pink-blossomed arms around the avocado tree!

I was overjoyed to spot a little peachick on the roof of the shed adjacent to the chookyard and I had a rather long conversation with it until I realized it was a twig!

I love to tell these embarrassing little funny stories to Anthony because it gets him smiling. Some time ago, it seemed that he would never smile again – not because he was sad but because the Parkinson’s has affected all of his muscles, including facial. But over time, I have learned how to elicit a different kind of smile; I use banter, loudness, crudeness and lots of vigorous hugs.

His loud, spontaneous, contagious laugh has gone and so has his loud voice as he now speaks in a kind of whispery way but I am ungentle and say things like:

Speak up, Anthony, clear your throat!
You look like a dead duck today!
Wake up!

Sometimes I catapult myself into his room, throw my arms around him and he gets such a shock and always says, “Jules, how did you know where to find me?”

Or, if he is having a bad day with forming words, I just get his beautiful new, slow-growing smile. And when Ming enters the room, Anthony’s smile gets a whole lot quicker!

Note: Avocado trees do not have pink blossoms!

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Catching up

After weeks of fighting a tenacious flu that kept coming back after each course of antibiotics, I finally got a chest x-ray which was clear (phew!) but my dr seems to think it was probably a case of pneumonia treated with the wrong antibiotics (I saw another dr to begin with because mine wasn’t on duty). So now I am on a fifth course of two different antibiotics and already feeling a lot better instead of a little bit better. It is such a relief because, despite being well enough for my mama’s 80th b’day and well enough to visit Ants most days and to do some volunteer work, it is only now that I am beginning to feel normal well ha!

As my role as ‘care-giver’ has become most of my identity now, I have a bit of a terror problem when I get sick because I am so needed by Anthony so to have been given the gift of a clear chest x-ray is like gold!

I’ve been trying to catch up and re-connect with blogger friends but have now decided to simply read blogs in a from-now-on mode rather than go back to see what I might’ve missed. It’s been a bit of a relief, too, to let go of the self-imposed feeling of obligation to blog every day if I just don’t have the time or inclination. Perhaps someone should write a book about blog psychology because I get the impression that other bloggers often suffer the same kind of ridiculous guilt. Interesting.

My volunteering at the nursing home, though interrupted by this flu, because you are not supposed to go in there if you are sick (paradoxically, this is probably where I first got infected), continues to delight me and I have now sent an ‘expression of interest’ email in response to last week’s advertisement for a “lifestyle assistant” in the dementia wing. This is a permanent part-time position from 3-6pm for someone to provide activities while the nursing staff conduct the evening showers. As I have already been volunteering in this wing from 3-4pm on the weekends, I am familiar with each of the ten residents and have developed a bit of a rapport. Tomorrow I will fill out the application form and hope for the best. I think this kind of arrangement would be a perfect match and hopefully there will be no perceived conflict of interest as Anthony is not in the dementia wing. I am quite excited about this job possibility and the money would be a relief!

Ming has a job he loves at a restaurant called ‘Corners on King’ so he is gradually becoming independent financially and in other ways. He hates for me to make him any food so my tactic has been to make him a smoothie every morning into which I pack a punch of secret ingredients (if you want to know the secret ingredients you will have to email me!) For those who don’t know, Ming has, from birth, had a rather extraordinary unhungryness – long story which I can’t be bothered telling now but my best illustration of this is the 40C degree day, when he was about one, in which Ants and I had to use a syringe to push a bit of milk into his ungreedy little mouth.

The last few years have been enormously challenging with me having to resign from my job as university lecturer; Anthony’s permanent admission to the nursing home; my mother’s horrifying injuries after falling from her bicycle; the car accident and court case and cousins’ heroic recoveries; Ming’s two scoliosis operations; some friendships rekindled and others on hold; peace, joy, guilt and wretchedness in equal amounts; Ming’s short-lived, but loved, dairy worker job abandoned due to his spine; finding out that you really love eggs on toast; and that if you don’t like what you look like, you need to stop looking at yourself and look away…..

Best-Wise-Famous-Quotes-335

…. and finding out that the width of hope is immeasurable!

Catchya later….

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