jmgoyder

wings and things

What a peculiar blog!

I have just looked back to discover that tomorrow will mark the third anniversary of this blog. The reason I was looking back was because I want to find, in amongst all of the bird stuff, everything I have written about Anthony and Parkinson’s disease and how he, Ming and I have coped. I thought it might be useful to compile these entries into one document and see if it works as a whole, maybe as a book. Apart from the wonder of all the friendships wrought via blogging, it has also been wonderful to find that I have a record of these past three years because I don’t think I would have remembered otherwise, except as a kind of blurry fog of joys and sorrows – mostly joys.

The birds, and the wings idea, have punctuated the last three years in real and metaphorical ways. Many have now been lost to fox attacks, I have given the emus away, and all three of the original caged birds have been set free. We now have a dozen peafowl, nine guinneafowl, five geese and one duck. The casualties have been heartbreaking and I have decided not to acquire any more due to their vulnerability to fox attacks. Gutsy9 is still thriving and one of the two peachicks hatched last year has survived and I think there will be more chicks soon. I have stopped interfering in the way natural selection works. All of the birds still take bread out of my hand and give me enormous joy (except Godfrey, the gander who likes to bite me!)

But everything changes and now that most of my daytime hours are spent in the nursing home, the birds and I don’t commune as much. Hence, when they hear my voice, they come running AT me with a mixture of love and greed (for wheat) that it is hilarious to watch. And even the birds who are gone continue to live on via Anthony’s hallucinations. Almost every day he points them out through his nursing home window. The outdoor tables and chairs become turkeys; the lawn is speckled with chooks and guinneafowl; and the flowerbeds are parrots. I can see them too.

It seems a rather peculiar blog in its higgledy-piggledyness and some of my entries make me cringe, but hopefully I will be able to draw out enough of the love story to compile a coherent record that might be helpful to others who live with Parkinson’s disease.

Here is a picture of the nearly grown up peachick, still very much attached to his mother (in foreground)!
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Simplicity

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One of the things that I most appreciate about life, now that I am spending most of my daytime hours in the nursing home, is simplicity. Today – in volunteer mode – I helped out with a luncheon for about 60 residents and I loved every single minute of the three hours of ‘waitressing’. Anthony wasn’t mobile enough to join the throng which actually made it easier for me to focus on who wanted tea and who wanted coffee, serving the abundance of food, filling water jugs, asking if such-and-such could have another wine or beer, cleaning up when it was over etc. If Anthony had been there I would have been distracted, so it worked out well. Hilariously, two of the residents asked, “Where’s your father?” I don’t correct this any more because it just embarrasses people; I just said, “He is being a sleepyhead today” which always elicits laughter. Plus I was able to dash up the hallway to his room to check on him from time to time and he was fine and kept telling me I should brush my hair!

There is something beautiful about the attitudes expressed by many elderly and infirm. Every single tea, coffee, sausage roll, prawn, mini-quiche and, eventually, banana splits, was accepted with the kind of gratitude and graciousness that seems to accompany the dignity of age. My left hand was patted a lot and I found myself putting my right hand on people’s shoulders, asking people’s names if I didn’t already know, and smiling back at all of the smiles I was getting.

The simplicity of this event, its easy goodwill, and the incredible courage of so many people battling the various demons of age and disease but still able to smile, and to eat, drink and be merry, made me realize how, as a younger-than-old person, I could re-see every single day as a gift instead of worrying about all of the yesterdays.

So today I choose to say goodbye to everything that has turned a rotten yesterday into a rotten tomorrow. It is an enormous relief to discover the simplicity of today! And to look forward to the long legs of tomorrow!

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What a wonderful day!

It is nearly 6.30pm and Ming and I are home from the birthday boat cruise for Meg’s 80th. It was relaxing, so much fun and everything we hoped it would be: champagne at G’ma’s this morning, after Ashtyn, Gordon and Ming decorated the boat with balloons and stuff; then the cruise itself up the river with a buffet lunch and licenced bar. Ash did the toast and officially announced that she and Gordon are going to have a baby (her first official announcement now that she is 3 months pregnant), Meg read out the storybook after telling all of the ‘children’ to sit on the floor – so funny! Zillions of photos were taken by several people, my oldest brother read one of our mother’s funny stories and, after the cruise, we all retired to a nearby park to kick the football, reminisce, be together, and Ro and Lauren went to pick up baby Neve who, of course, stole the show! My book for Mother was a bit of an unexpected hit, especially with my first nephew’s partner who I hadn’t met before. Absent people were acknowledged (one from each of the three families – unable to come along for one reason or another); their absence a stark reminder that life is not always easily lived and parties are not for everyone. For example, it was hard not to have Anthony there because once upon a time he would have been the life of the party! Anyway, here are some photos of today’s celebration of Mother’s 80th!

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Birthday girl!

Okay so today is my mother’s 80th birthday and nobody can believe she is that great age because she looks so young. We met up at the nursing home at 11am so that Anthony and I could give her ‘the book’ together and (sigh of relief) Meg loved it, despite its falling apart with messy fullness! Then we went out for lunch with a sprinkling of special people with the surprise star being Meg’s first great-grandchild who has just turned 1.

On Saturday we have the party, a 2-hour boat cruise which is just family because, if we had to include friends, it would have entailed a ship!

All of the grandchildren wrote something for Grandma to be included in the birthday book and here is what I did with Ashtyn’s words:

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Ashtyn is Meg’s first grandchild, my fantastic first niece, my god-daughter, Ming’s godmother and, in so many other ways, the star of the family. She and Meg are very much alike in that their presence at any occasion elicits a lot of attention because they are both so beautiful!

So, Mama, you are now 80 +
Weird
wondrous
YOU!

Note: I will CHANGE the subject tomorrow!

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Colouring in!

It was my blog friend, Trisha, who introduced me to the idea of Zentangle drawing. I am hopelessly trying to find her exact post but in the meantime here is the link to her blog:

http://trishapearson.wordpress.com/

Anyway, I got a bit into it because (a) I’m not a bit keen on artsy/crafty stuff so I thought it might be good for me; and (b) I needed something to do with Ants in the nursing home, other than watching television.

So, a few weeks ago, I started to do this drawing thing and LOVED IT! Anthony was a bit patronizing though – “Yes, I used to do this when I was 5” (he is so good at sarcasm!), but I ignored his characteristic bumpetyness and drew another circle.

The colouring in is a bit of a buzz, especially now that I have gone to a proper art shop and bought good quality colored pens. I have now done two pictures for Ants which, if you put them on the far wall, and squint your eyes a bit, look a tiny bit like art.

Obviously this colouring in tendency has leaked into my mother’s 80th birthday book so I hope she won’t be too appalled!

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Statistics

Statistics have never been my forte, however, in the process of putting together a photo-book for my mother’s 80th birthday, I have had to become a bit statsy:

For example, in sifting through hundreds of photos, with the simple quest of finding each of the eleven grandchildren conveniently posed next to Grandma, I have found 1500 of Ashtyn, but only one or two of the other ten. So now I am terrified that one or other of my mother’s grandchildren will be upset not to to be featured as much as their peers.

Not to worry: I have now made a list of all of the grandchildren who have been printed out: with Grandma, without Grandma, upside-down, looking gorgeous, looking like the ink ran out, tolerating the fact that their baby photo has the wrong name on it. I think it will be a lovely gift anyway as soon as my mother reimburses me for 15 ink cartridges, post-glue-stress syndrome, and helps me clear up the mess of my previously tidy writing room!

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STATISTICS!

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Un-blogged….

There are several reasons that I have become somewhat disconnected from the blogosphere lately:

1. I have made Anthony’s nursing home room a simulation of our home;
2. I’ve become addicted to the Danish series, The Killing;
3. I’m preoccupied with crafting a present for my mother’s soon-to-be 80th birthday;
4. I have given up on trying to tempt Ming with my ox-tail stew;
5. My volunteering in the dementia ward on the weekends is a gift to me because, years ago, when I worked as a nurse in various nursing homes, there was never any time to actually chat with patients; now it is actually something that is scheduled!

So, I have decided to go for a job at the nursing home in the hope that my so-far volunteering reputation will help.

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Rowing the boat!

My mother’s 80th birthday is happening soon!
We are all going on a boat cruise lunchy thing in a few weeks.

Over twenty of us –
That’s my two brothers and me,
our spouses,
plus all of our kids,
plus my nephew’s wife,
and my niece’s husband,
one newish grandkid (very special),
the boys’ girlfriends, the girls’ boyfriends,
and,
hopefully,
someone who knows how to row the boat!

Idiotically (I am not the least bit art-and-crafty) I suggested putting together a book for ‘Grandma’. I solicited quotes and photos from all grandchildren, very successfully, and now I am covered in glue and ink, and know the difference between a portrait and a landscape photograph.

Ming came into my writing room tonight to find the recent neat-and-tidiness chaotic with the ‘casualty’ photos all over the floor.

Me: I love doing this, Ming! Grandma is going to be thrilled!

Ming (backing away cautiously): Mum, I’m on my way out, okay? I’m not interested in whatever you are doing here because it just looks like a mess to me. Bye!

Anyway, I am having a huge amount of fun with the Grandma book and it is comforting to know that if that boat-cruisy boat falters, Grandma will probably row us back to shore ….

Meg

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Anthony picking olives a few years ago

I have had a much more social week than usual with the arrival of my niece’s in-laws from Scotland: activities have included a beach barbecue, a day-long winery tour, a visit to our farm, my great-niece’s first birthday, and then a 21st last night. All delightful! Obviously, this altered the routine with Ants and the volunteering, but not hugely and I didn’t visit him at all on the winery day, hoping he wouldn’t notice.

This week is similarly social, with my best friend, Tony (the priest who married us), coming down for the night and a professor I worked with a couple of years ago, dropping in with his wife on his way back to Perth the next morning. This will slightly alter the routine with Ants once again but since it all worked out okay last week, I figure it should be okay this week too.

I think I blogged about the new routine awhile ago; it’s pretty simple really and was probably staring me in the face for several exhausting months, but I have always had rather slow reflexes – ha! The epiphany arrived at the doorstep of my heart one foggy morning and said two words: “Switch homes”.

It took me ages to understand what Epiph meant but then, bingo, the penny dropped. Instead of bringing Anthony home, either by wheelchair taxi, me, or Ming (visits that became increasingly gruelling, physically, mentally and emotionally, for all three of us), it was gently suggested that I simply make myself at home in the nursing home. Epiph is good like that; she recognizes my lack of pragmatism.

Since then, our marriage, Anthony’s illness, Ming growing up, and all the other bits and pieces of emotion and stuff….

have uncurled raised/dropped fists
have unfurled the residue of grief into a great wide flag of hope

The social stuff is good too because it provides me with conversation material for Ants. He loves it! I feel like I am learning something really important about dementia, or maybe love, not sure yet. A year ago I was struggling with how to cope with the impending boredom of the nursing home. Now, this is my attitude:

“Boredom is the feeling that everything is a waste of time; serenity, that nothing is.”
Thomas Szasz

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Gutsy 9 – my fantastic bird-in-hand

For those who don’t know, G9 is a peachick who, for some reason (maybe because she was half blue/half white) was abandoned by whoever hatched her. I caught her as she was scuttling, terrified, into the old dairy and pretty much raised her with the hands of Ants and Ming.

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Today, I decided that I would come home earlier than usual from the nursing home. I told Ants I had to go and feed the birds and dogs, and then said I would see him later.

Ants: You won’t come back.
Me: What do you mean? I always come back!
Ants: Not, yes, what car?
Me: Our car, silly!
Ants: How many calves? I need those people for the fireplace
Me: Only ten left to feed. Ming will do it. I know who you mean for the fireplace.
Ants: Are you sure?
Me: Yes, should we ring tomorrow?
Ants: You do it – something is wrong with me.

When I got home, I went straight out to find Gutsy and, as usual, she was waiting for me:

I’d like a word, Julie

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You’re always out and about and I feel ….

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Oh I think I’m going to cry – how embarrassing!

G9!

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