jmgoyder

wings and things

Early to bed, early to rise!

Obviously it is much easier to get up early in the spring than it is in the winter so today I was able to get a lot more jobs done (just the usual domestic duties of washing and folding and tidying and cleaning that overwhelmed me a bit a couple of months ago) before going into the nursing home.

Today I arrived at 11am and found Anthony sitting outside in the sun. I managed to get him into a wheelchair and we went for a walk down to the beach. I tried this the other day but it was too windy and he feels the cold terribly, so we turned back prematurely. Today we went a bit further so, halfway back (which is uphill), I had to stop and take a rest.

Ants: Do you want me to take over?
Me: And how, exactly, will that work?
Ants: I can help you push me.

Yeah, right – grrr!

Sometimes Anthony sort of disembodies himself and will kiss his own hand, thinking it’s mine, or else turn to the left to speak to me, when I am sitting on the right. His room has a view of a lovely lawn and garden and he will often point out, proudly, that Ming is doing a great job with the calves.

I find it fascinating, and admirable of course, that Anthony keeps wanting to climb out of his illness, and incapacity, in order to help. Once we’d returned to his room from our walk today – him shivering with cold and me drenched in perspiration – one of the nurses came in to give Anthony a pill and had a bit of a rant about the staff she was working with.

Nurse: They’re so useless!
Anthony: We can help you (trying to get up).

Now that I am a volunteer, I have a bit more insight into ‘how it is’ for both residents and staff. Anthony is in the ‘high care’ section for people with mobility problems. In the ‘dementia’ section, where I help out with various activities on the weekends, most of the ten female residents are extremely mobile (we go for walks around the grounds!) but terribly confused. I have taken a liking to all of the women but especially Beatrice who is, at nearly 90, physically fit, beautifully groomed and who carries her handbag with her always. Before I volunteered, I would exchange greetings with these women and the carers and Beatrice seemed the happiest. But now that I know her better, I realize that her bright smile is due to the fact that soon her husband will be picking her up and she is always ready and, unfortunately, always extremely anxious. Her husband must have died years ago.

I am, of course, drawn, emotionally, to this nursing home where Anthony is, but I have also become involved in other residents’ lives, so much so that we have become friends. Even with dementia, where you have to introduce yourself over and over again, the friendship-feeling is solid and ongoing.

I’m extremely grateful to be able to do this volunteering at Anthony’s nursing home because it allows me to come and go from his room as if I were just going to hang out the washing, or cook tea, or make coffee – again, a simulation of sorts.

It is now six weeks since I began volunteering and a further six weeks (I think – will have to check) since bring Ants home. If, indeed, it has been this long since I brought Anthony home, then hopefully he will no longer pine for home and beg to come home – a situation that forces me to become stern and admit to him that I can no longer lift/manage him at home. His response is usually dignified but occasionally he accuses me of being unfair.

For the last couple of days I have been feeling a bit exhausted (not because of Anthony!) and I hate this feeling so maybe getting up earlier is the answer to that – yes! I have to tomorrow anyway so I can meet Dr Nathalie Collins (see previous post) for breakfast!

All of those years that Anthony got up before 5am to milk the cows, like so many dairy farmers still do – my hat is off to them – heroes in so many ways!

As for me, 6am is okay – zzzzzzzzzzzzzzz!

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Our white-haired boy’s new role

As many of you know, Ming had his second spinal surgery just before Christmas last year at which time he was advised by the surgeon not to resume his job as a dairy hand for our neighbours, or to do any manual job, ever. That was a hard pill to swallow but he swallowed it and, since recovering from the surgery, he has spent the last few months throwing himself into acting auditions (most of which have required him to travel the 200 kms to Perth by train or bus, and vice versa).

He scored many bit-parts: a music video, a ‘student’ in a university advertisement, a couple of paid roles; he has also created a portfolio and is now listed on a website for aspiring actors. In fact, Ming has done so much acting-related stuff in the last few months that I have had trouble keeping up. With no vehicle, and no driving licence, he learned how to use public transport, stay in youth hostels, but he also relied on friends and family for accommodation and transport. It has all been enormous fun and a huge learning curve in so many ways and Ming has become a better net-worker than I have ever been and Anthony’s gregariousness shines out of him.

None of this, however, has proved to be lucrative yet, so Ming started to apply for jobs at restaurants and yesterday he was told that the restaurant, where he has only done a few casual shifts, want him full-time now. I am so elated for him and proud! But he and I are also grateful for the fact that a relative of a friend of one of the owners of this restaurant put in a good word for him. (I haven’t included names here, in order protect the innocent, just in case Ming drops a tray or something haha!)

Today, Ming was working there, so a friend and I went for lunch and it was so weird to watch him in action. The place was very busy and apparently, once he goes full-time, he will be jack-of-all-trades. It was great to watch the way he interacted with customers – he is a natural!

Tonight, he’s gone up to Perth (for the last time for awhile, due to getting full-time work) to play the part of a character in his friend’s university film assignment. He auditioned and got the part last week and here is the irony: he was picked as the character of a son who struggles with his father’s dementia, despite nobody in the film crew knowing his background. I am still a bit gobsmacked.

Anyway, of course I am rejoicing at all of this good news for the white-haired boy (despite no longer being a natural blonde); he will no longer go slightly insane in the nursing home and resort to playing on Anthony’s walker!
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So happy and proud of Ming!

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Simulating home

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As you can see we are still experiencing a wintry spring after its false start last week. The weather alerts for Western Australia are a bit alarming with winds of up to 100 kph so I came home a bit early from the nursing home yesterday.

I have begun to arrive at the nursing home by 11am most days now because, with the volunteering, I need plenty of time to wear both ‘hats’. It is working out so well but more about that in another post.

Over the two and a half years since Anthony entered the nursing home, his room has become as close as I can get it to our real home: freshly picked flowers (although I never did this when Anthony lived at home – he did!); daily food treats on plates and a cutting board I keep there; familiar shows on television via the DVD; a well-stocked bar and our own glassware and so on.

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And (my latest idea!) Ming’s 2.5 kg weights. I didn’t expect Anthony to be quite so enthusiastic about this but I was wrong – he did around 20 for each arm with me cheering him on and cracking up laughing at the same time!

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Despite my intention to take Jack, our Irish terrier, in to see Ants, I couldn’t find either his leash or collar that day so I will probably take Blaze instead for the time being.

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Even I am beginning to feel more at home at the nursing home than I am at home, which is really weird! Well, at the moment, it is a lot warmer there.

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Blogging update

I’m gradually (and unguiltily!) getting back to reading, and commenting on, other people’s blogs, and re-subscribing to those I have lost touch with. Like many other bloggers, I feel such gratitude for the community of friends I’ve connected with over the last three years. The fact that I can’t consistently keep up with everyone’s posts no longer bothers me and it is quite a relief to dip in and read when I can, comment if I want to, and not read any blogs if the day is too busy. Having said that, I am very appreciative of those friends who continue to give me their support and friendship. It has been an extremely difficult year for my family, but things are finally returning to normal, whatever that is.

Perhaps my blog-reading will, from now on, resemble the unpredictability of Ming hanging out the washing!

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The expression on Ming’s face here is exactly the same as when he sees his name in one of my blog posts – ha!

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Always check the weather forecast before waxing lyrical about the sunrise!

This morning I was awoken at 5 by my alarm and the sound of pouring rain and ferocious wind. I peeked out the window into the misty grey but couldn’t see any sign of the sunrise. So I went back to bed!

Today is Father’s Day so Ming and I went into the nursing home before lunch with our presents. Mine was a dozen oysters (which I picked up from the markets on the way in) and the DVD cooking series, Two Fat Ladies, which Anthony, Ming and I used to love watching. Ming’s gift was the English series, Doc Martin, and a bottle of champagne.

The oysters were a great hit:

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Anthony finished the whole lot in about two minutes!

My mother came in after church and helped us snack on crackers and some special cheeses I’d bought, with olives, cherry tomatoes and baby cucumber, then Ming arrived and gave Anthony the presents which were also a hit. A bit later, we played some of the DVDs and cracked the champagne but Ants only had a couple of sips before falling asleep in his chair. My mother had gone home by then and eventually Ming left.

After that, I tidied and washed up the various plates and cutlery I keep in one of Anthony’s cupboards, then sat down to watch another episode of Two Fat Ladies with him, but he continued to sleep and, all of a sudden, I felt terribly flat and just wanted to come home to Ming, so I did. But Ming has now retired to his shed for the night and I am coming to terms with the fact that I am somewhat redundant in his life – perfectly normal of course but still hard.

When Anthony wakes up will he wonder where I am after the frivolity of this morning? I told his favourite nurse, Denise, that this is the first time I have left without saying goodbye but I didn’t want to wake him as he looked so peaceful, so she said she would tell him.

All of a sudden, even though he has been on my mind all day, I am consumed by the remembered agony of losing my father suddenly to a heart attack when I was nineteen and my younger brothers were seventeen and fifteen. Those brothers have become the most amazing dads to their children (five each!) I bet they think, with my mother, of our Dad today. He was a generous, beautiful gentleman.

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Anyway, back to the sunrise fiasco – I am just going to check the weather forecast for tomorrow ….

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Reunion

I have decided that it is way too long since I have met up with someone who I used to be closer to, but have lost touch with. This is entirely my fault, as she is always there, no matter what.

Tomorrow, my plan is to surprise her; my alarm is set for 5am so that I can catch a few moments with her before she goes on her daily journey. I hope she will remember me and the good times we used to have. I hope she will say yes to me when I ask if we can be friends again.

Her name is sunrise.

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“Just around the corner….”

Lately, Anthony has been asking me more and more frequently where his mother is, and sometimes he asks me to ring her. Mostly I evade the question or just say that she is busy cooking, but the other day I ventured, “She’s gone, remember?” This truth made him sad and quiet for some time and then he was a bit embarrassed for having forgotten.

One of the best things about this nursing home is its meals. Lunch is often a roast served up in much the same way as many of the elderly residents remember their mother’s offerings. The photo below shows Anthony’s meal the other day before he demolished it – roast beef, potatoes and pumpkin, with cauliflower gratin, peas and gravy.

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Last week, my mother, brother, niece, Ming and I attended the funeral of one of our oldest and most special friends, V, a woman who first taught me to drink from a straw when I was little, and for whom Anthony had a lovely affinity. My funniest memory is of V staying here on the farm one night and 4-year-old Ming (who used to sleepwalk) clambering into bed with her in the early hours and cuddling her nose into the wall. I remember getting up and not being able to find him until I discovered him fast asleep with his little body curved around V who looked a little alarmed! To V’s sons, siblings and family, your mother was a legend.

Yesterday, I attended the annual memorial service at Anthony’s nursing home. I dumped my bag in Anthony’s room, gave him a quick kiss and explained that I was going into the next section to pay my respects and volunteer as helper in the serving of tea and coffee, cleaning up etc. He wanted to come with me until I told him it would be like a church service! Once I was seated and reading through the list of people who had died, I was shocked to find that there were 18 because I only knew of two, J and A. J was in the room next door to Anthony’s for over a year, and A was a beautiful, tiny woman who used to get great pleasure from holding the dolls that look like real babies. The fact that 16 other people had died in different sections of the nursing home during the past year jolted me and, looking around the room, I spotted J’s wife and her tear-filled eyes blinked at mine, anticipating the hug that we would share later.

After the service (in volunteer mode), I helped Ev (my volunteer ‘boss’), to rearrange the room into a cafe whilst, out on the lawn, the people who had lost someone released balloons filled with wattle seeds and helium. On the small crowd’s return, on walkers, in wheelchairs, on foot, I served tea and coffee, made friends with a few residents and volunteers I’d never met before, gave hugs where it seemed acceptable, and pinpointed T, J’s widow, to give her my sympathy. After all, she and I had been visiting our husbands at around the same time every day for a year. But her red-rimmed eyes eventually dismissed me and I moved away to help Ev with the clearing up of cups and saucers, tables and chairs. Once all of that was done, Ev thanked me and said I could go back to Anthony, so I did.

But, just seconds later, I was told by the nurse-in-charge that M, a 91-year-old man two rooms down from Anthony’s, had died in the night. Two days previous, I had hugged R, M’s wife, when she told me that M had pneumonia and I had just begun to, shyly, befriend the many members of this family and learn all of their names. Now that M is gone, I may never see R and the family again and yesterday afternoon, when they all came to clear out M’s room, I was very careful to keep a distance, to just speak to one of M’s daughters before withdrawing into Anthony’s room, closing the door and crying in his bathroom.

A bit later, Anthony hugged my grief away enough for me to be normal, even jovial, but the experience of losing this many people I cared about in such a relatively short space of time is difficult.

I remember so well the day that Anthony’s mother, ‘Gar’, died because I was with her, in the hospital, 33 years ago. She and my father died within less than a year of each other and, at the time, my teenage heart didn’t cope very well with losing two such enormously important mentors and the grief was unbearable.

But now, with the benefit of an additional 30ish years of hindsight, insight and love, I think that next time Anthony asks where his mother is I will say, “Just around the corner, Ants.”

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Dementia and deception

For several weeks now, I have been leaving the nursing home at around 5.30pm after helping Ants with his dinner. I turn the television to the ABC news, draw the curtains, make sure the air conditioner is on to the heat setting, rearrange the blankets on his legs, and give him a hug and a kiss and say,

“I just have to do some grocery shopping, but I’ll be back later, Ants, okay? Do you want me to get some chocolate? Yes? See you soon then. I love you.”

And then I go home with my heart thudding LIAR!

So why am I lying? Because, now that Anthony is in the throes of PDD (Parkinson’s disease dementia), the lie that I am coming back soon, when I am actually going home, is much kinder than wrestling verbally, and emotionally, with him about why I can no longer bring him home.

If I say, “I’ll be back soon”, I don’t have to say, “You are too heavy for me to manage at home.” And I don’t have to see his eyes go sad. Instead, he smiles and hugs me and says “Don’t be long, Jules”.

Tonight I told the evening nurse-in-charge about my new method of leaving Ants and she gave me the thumbs up and said, “Sometimes, in cases of dementia, a white lie is kinder.”

“Yes, but when I say to him that I’ll be back and I don’t actually come back, does he get distressed and ask for me?”

“No”, she said, “we just put him to bed and he is fine.”

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The end of winter

Here in Australia we are two days away from spring after a very wet winter. Monday is the first day of spring and I am going to celebrate but I’m not sure how yet. Perhaps I will buy another camellia tree like this one from which I take flowers in to Anthony every second day.

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The other day I gave one each to the two women I play cards with during my volunteering hours. Gift-giving rules are very strict at the nursing home but I figure flowers can’t do anyone any harm, although Nat would prefer the chilli-garlic olives I used to bring in until reprimanded (risk of choking etc.)

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Ming and Fran

And here is Ming with his little second-hand car, ‘Fran’. He has named her ‘Fran’ after the character in the comedy series Black Books, one of our favourites. As it happens, I am about to take this series into the nursing home to play on Anthony’s new DVD player. I took The IT Crowd in a couple of weeks ago and, even though Anthony slept through some of the two episodes I played, he woke up with a bit of a smile every time I guffawed, which was often.

The strange phenomenon in which Anthony sometimes thinks that what is happening on the television screen is happening in his room comes and goes. I only discovered this by accident one evening months ago when I rang him and he asked me to pick him up from Burekup (a nearby town) from an Aboriginal ceremony. At first I thought this was him hallucinating (a Parkinson’s disease symptom) but then I heard the background noise of his television which turned out to be a documentary about an Aboriginal ceremony; I could even hear the chanting! Now that we are watching Midsomer Murders every weekday afternoon from 3.30 – 5pm (another one of Anthony’s favourites, mainly because of the English countryside, the classic cars and the big old houses – not the murders), I sometimes worry that he will get scared. But seeing as this is probably the most benign ever of murder shows, it never happens and anyway he can no longer follow plots. I have gotten into the habit of checking the television guide before I leave every night and leaving the television on a channel that isn’t going to be showing a horror movie, or something like that. Ironically, this is usually the ABC news station.

Well, I better get going!

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And on a lighter note!

Last week Ming got his driver’s licence back. He had to do a written and a practical driving test and the very next day we went up to Perth to collect the little second-hand Toyota Yaris (he has christened it “Fran”) that he had arranged to buy with his savings. Obviously our insurance claim on his ute/truck didn’t pay, but even if it had, Ming never wants another ute again so someone bought it for parts and towed it away earlier in the month. The sight of it out in the back yard, for all of these past months, is not something I will miss although it still has a kind of ghostly presence there, slowly fading.

Ming felt there was one last thing he had to do (to move on, I guess) and that was to go back to the site of the accident and remove his P-plate from the tree he’d crashed into. After the accident it had been stuck up high on the tree and we were never sure if the police or insurance people did this to mark the spot for further investigation, or if it was just someone being nasty. In any case, yesterday, Ming took our old ute and a ladder up there and removed the P-plate. He also found bits of debris from the crash so he removed those too and brought them home to be taken to the dump.

Having regained his independence, the angry Ming of the last few months seems to have disappeared and the angelic Ming has returned – haha! In a way I guess we have now come full circle in the sense that he was a newly licenced driver when the accident occurred and now he is again a newly licenced driver but with an older head on his shoulders. So that is that. Or is it?

Naively, I had thought that once Ming got a car and his independence back, there would somehow be a feeling of closure (for me, I mean), but I relapsed last week into some of the feelings described in the last two posts. The closest I can get to describing this is to liken it to waking up just before a nightmare has come to its conclusion, so you never get to “The End”, and you don’t get that phew of relief that it was only a nightmare. Perhaps the notion of closure is a myth we have invented in order to make things neat and tidy again after a traumatic experience. Perhaps it is living with and beyond the absence of closure that makes people stronger, wiser, even kinder. I don’t know.

What I do know, however, is that I have never seen anything as funny as big, tall Ming folding himself into little, tiny “Fran”!

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