jmgoyder

wings and things

Love story 108 – Ming’s tail

From the ages of about two to four, Ming wore a tail. At first it was a skipping rope with one handle missing. I’d get him dressed and tuck one end into the back of his shorts and off he’d go. The rest of the rope would drag on the ground as he walked, ran and played. The tail became so much a part of Ming’s identity that if we couldn’t find it there would be a frantic search.

Anthony I got used to shouting desperately, from opposite ends of the house, “Have you seen Ming’s tail?” This became our morning routine!

During this period, even though he didn’t always wear it at home, there was absolutely no way Ming would leave the house without his tail attached. “Where’s my tail?” he would wail. Once, when we couldn’t find it, and then I remembered it was soaking in the laundry sink, I had to ring the pre-school teacher to say he’d be late because his tail wasn’t dry yet. This happened a few times so that even she began to see this as a perfectly normal excuse for being late. She told me once that she’d had to speak to the whole class about not touching Ming’s tail after it had been pulled out once too often and he’d dissolved into furious tears.

Inevitably, the skipping rope split and we had to find another tail, before the trauma of not having one left long-term psychological damage. Not to Ming – to me! I just couldn’t imagine him without his tail.

Ming was surprisingly mature about the disintegration of his old tail after I said that, of course, we’d get him a new one. “I’m sad but I’m okay, Mummy,” he said stoically. “I’m gwowing up, so I jus’ need a black furry one now,” he reassured me.

This happened on a Saturday, so I left Ming home with Anthony (well Ming wouldn’t come to town tail-less anyway). I searched the toyshops all morning in vain. Each time I asked, “Do you stock tails?” I’d get a bewildered response. I could have bought another skipping rope or any sort of rope, but Ming had graduated to black and furry and I respected that.

I rang Anthony who told me that Ming had been weird all day – not himself at all, quite moody, in fact. “He says he doesn’t feel good without his tail,” Ants said, laughing quietly.

We made the quick decision to give him a black woollen tie of Anthony’s that he had only worn once before anyway. “You’ll have to run out to the car when I get home so he thinks I found one in town,” I said. And that’s what we did. When I got home, Anthony and Ming raced to the car but Anthony won and secretly tucked the tie into my bag while we both told Ming to close his eyes and open his hands.

I put the tie into Ming’s hot little hands and he opened his eyes. He stared at it for what seemed like ages before he looked up at me, tucked the narrow end into the back of his pants solemnly and said, with serious joy, “It’s sooo wicked; look, Andony. Isn’t Mummy awfulsome!”

What a relief, and I took all the credit even though it should have gone to Anthony.

I wish Ming remembered these days.

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Simplicity

I watched two of Ming’s favourite television shows with him tonight, we ate pizza, and we laughed together.

What a wonderfully simple way to reconcile our differences and rebond. I haven’t watched television for months and now I am addicted to two shows  – take a guess which ones!

Due to our circumstances, I think the three of us – Ants, Ming and me – have made our love for each other too complicated, too intense, too anxious.

We need to lighten up and get back to the simplicity of watching television together.

Okay, I will tell you what the first show is: Home and Away. I am not giving away what the second show is/was.

Television is quite relaxing isn’t it!

Simplicity rocks!

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Who let the dogs out?

Remember this song?  http://www.youtube.com/watch?v=He82NBjJqf8&noredirect=1

For some time now we have had a dogs versus birds dilemma and this has been a source of contention between Ming and me. I have tended to lock the dogs in their yard and let the birds free range and Ming has wanted this arrangement reversed, so we have now come to a compromise. The dogs get to run free all morning, then get put back into their yard, then the poultry get to free range all afternoon until we put them away, then the dogs get another run. So far this is working very well.

The reason we can’t let them all frolic together is because the dogs want to kill everything. Blaze is a miniature dachschund and Jack is an Irish terrier so, despite our attempts to train them not to kill (using electric collar things briefly which I didn’t like, and a dog trainer) both breeds have been bred to hunt and kill.

Luckily the guinnea fowl and peafowl can fly up and away from dog danger, but none of the poultry can – not even Godfrey – so now we have a new system and everyone seems very happy – the gang, the dogs and Ming and me.

They look so innocent don’t they!

Don’t be fooled by their sweet demeanours; Ming let them out a bit early the other afternoon, before the roosters were roosting, and they killed Noname and Tina Turner almost instantaneously. Poor Ming tried to stop it but had to come and tell me. I cried my eyes out even though Tina and I had such a love/hate relationship. Noname was always a bit vulnerable and an easy target so I guess, for me, this was another lesson learned.

I’m not sure if getting accustomed to loss is a good or a bad thing.

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Being a mother

Until five years ago, when Anthony’s health began to deteriorate dramatically, I think I was a pretty good mother to Ming. I kicked the football with him, played games with him, listened to his young teenage philosophies, rescued him from a school he hated and attempted home-schooling, took him to a psychologist when he became depressed, watched Black Books and The IT Crowd with Ming and Ants so we could all laugh together. But at the same time, things got much worse in terms of Anthony’s health and Ming and I began to share the ‘night shift’ of helping Ants to the loo, sometimes 3-4 times per night. I only asked Ming to do this once a week but it still took its toll on him emotionally. For me it took its toll physically and I ended up in hospital for a week with a severe asthma flu caused, the drs said, from exhaustion and sleep deprivation. It was at this point that my job at the university began to curl away from my grasp because, as soon as I was well again, I had to become a fulltime carer for Ants and the rest is history.

Tonight, Ming and I had another horrible row and we talked around in circles until I finally hit the nail on the head by asking him if his anger and frustration might be because I had stopped being a mother. He hesitated before saying to me that it had all been Dad, Dad, Dad, for years.

Oh the heartache of realizing that this beautiful son of mine/ours stopped being a child at around 14 because I unwittingly stopped being his mother and, instead, kept asking for his help with Anthony. Of course he was never neglected or unfed or abandoned. Of course he was adored, appreciated and cared for, but my preoccupation with Anthony’s deteriorating health was all-consuming and, yes, Ming is right – it was all Dad, Dad, Dad, until tonight. From now on it is going to be Ming, Ming, Ming.

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Awry

I don’t think I have ever used the word ‘awry’ before so it looks a bit odd when I write it. When things go awry = when things go skewy, veer crookedly off the planned plan, transform pleasant into unpleasant. Awry is my new word for what is happening, unhappening and happening again.

This morning one of Anthony’s nieces and her husband travelled an hour and a half to come and see him. Initially, the plan was that I would order us all lunch at the nursing lodge and eat there, then I realized that there was a restaurant on the beach around a block away so I organized for Ants to be ready in a wheelchair and we would all walk down. So J and D arrived at the farm, we caught up with each other and had a coffee, then drove in to the nursing lodge.

On arrival at the nursing lodge, Ants was in a wheelchair ready but looking angry. Even though I had told him yesterday that D and J were coming and he said he’d like to go to the restaurant, he’d forgotten and was quite cross with me for not telling him. Nevertheless we set off with D pushing the wheelchair. The restaurant was pretty ordinary, nothing flash, and Ants immediately said to me in his new mumbly voice that it was pretty rough but we all ended up having a nice meal and yet Ants remained angry and kept having little conversations with me that I could hardly decipher except that his anger was potent.

I got a bit of a shock because Ants is never angry or rude or ungracious or cantankerous but today he was all of those things. On the walk back up a rather long hill to the nursing lodge he refused to be wheeled in the wheelchair and insisted on walking – very slowly – holding my hand. He somehow got to the top of the road panting a little and D, J and I finally convinced him to get back into the wheelchair. It has been months since I have seen him walk this far and it was obvious that he was trying to prove he could do it in front of J and D. Of course I realized this at the time and I would have had all the patience in the world if he hadn’t been so aggro.

We got him back to his room and transferred him from the wheelchair to his armchair, had a bit of a chat but it just wasn’t working; he was still angry and when I sort of told him off in a flippant way he said it wasn’t J and D, it was me he was annoyed with. Oh great, I thought. So I explained we had to go but then he insisted on walking us all out. I tried to stop him because he was exhausted, but, as usual, I relented, fetched the walker and we all slowly made our way out. We all tried to stop him coming out of the front door but he wouldn’t stop. J and D said their goodbyes and walked up to the parking lot to wait for me. Once they had walked away, I burst into tears and said to Anthony, “Why? Why are you so angry with me? I organized this lunch for you with D and J who we haven’t seen for ages and you were just horrible, especially to me. Why?”

This anger thing is new. Oh great – what fun. Yesterday was total confusion and today anger. What next?

Yes, yes, I know it’s the Parkinson’s Disease Dementia crawling around in his brain – I know that and I am not complaining because I understand and empathize and his homesickness is like a constant haunting taunt for him and me, and I love him so much but he really hurt me today and maybe taking Anthony out, or home, is a bad idea – unsettling, disorientating, confusing. Maybe I will have to give up.

Awry.

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Love story 107 – Canny confusion

This afternoon, when I visited Anthony in the nursing lodge, he was confused in some ways and canny in other ways.

“You said you were coming earlier.” CANNY because I was a bit late.

“There was a wedding here this morning – awful people.” CONFUSED

“So who owns Bythorne now?” CONFUSED AND CANNY

“Is he trying to take it again?”CANNY because he remembers some of the horrible family stuff that happened when we got married.

“So where am I now?” CONFUSED

I haven’t seen Anthony this confused before. He even thought his beautiful older brothers, now deceased, were helping Ming and me out on the farm. But the thing that struck me most was his anxiety about another relative who had been such a bully that we had to banish him. That was the best thing we ever did, but the fact that Anthony is still worried about this and worried about me, and that his memories are so lucid about a situation that is long gone, disturbs me and breaks my heart.

As Anthony’s PDD (Parkinson’s Disease Dementia) progresses, will his memories of the bully dominate or will his memories of our blissful little family dominate? I don’t want him to be afraid and confused like this. I don’t want him to remember horrible stuff.

In my new Godzilla mode, I want to smash those horrible memories to pieces; they are now beginning to splinter into Anthony’s mind in such a disturbing way. Why else would he have asked the same questions again and again?

“So who owns Bythorne now?”

“Is he trying to take it again?”

My answers:

“You own Bythorne.”

“Not a chance in hell!”

Yes, I am a little angry.

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Control

I latched onto a couple of quotes from two articles that I found on Monday and, when I read them to Ming yesterday, he was blown away. The first comes from this source: http://www.psychologytoday.com/blog/healthy-connections/201007/help-my-controlling-behavior-is-ruining-relationships

“How does a person become controlling? It is basically a method of coping with the anxiety they feel beginning very early in life.  Some had parents who couldn’t quite fulfill their role as strong caregivers and seemed to be weak or incapable.

A child in this situation, as early as age 3, may begin to prop up their parents and become a little adult very early on.  If the stress continues, fear increases and the use of attempts to control what they can, becomes compulsive and unconscious. It is more likely to happen with children who are helpers, and/or leaders by nature, often first born boys or girls feel proud of themselves for helping and it is encouraged or reinforced by parents and other influential adults. They may also have a tendency toward anxiety, worry and perfectionism which will only make it worse.”

The second quote comes from this source: http://www.psychologytoday.com/blog/emotional-freedom/201010/how-deal-control-freak

“Controllers are often perfectionists. They may feel, ‘If you want something done right, you have to do it yourself.’ …. Controllers are also controlling with themselves. They may fanatically count carbs, become clean freaks or workaholics. Conventional psychiatry classifies extreme cases as Obsessive Compulsive Disorder–people are rigidly preoccupied with details, rules, lists, and dominating others at the expense of flexibility and openness.

QUIZ: AM I IN A RELATIONSHIP WITH A CONTROLLER? (from Emotional Freedom)

  • Does this person keep claiming to know what’s best for you?
  • Do you typically have to do things his way?
  • Is he or she so domineering you feel suffocated?
  • Do you feel like you’re held prisoner to this person’s rigid sense of order?
  • Is this relationship no fun because it lacks spontaneity?

If you answer “yes” to 1-2 questions, it’s likely you’re dealing with a controller. Responding “yes” to 3 or more questions suggests that a controller is violating our emotional freedom.”

I wasn’t sure what to expect when I read these quoted excerpts to Ming so it was rather lovely when he listened without angst and it was very interesting to see his jaw drop in recognition of himself and me. I guess you could call it an epiphany.

It was during our first session with the counsellor last week that she suggested  we might have control issues, so it was the word ‘control’ that stuck in my head and is why, after things went haywire on Sunday, I googled ‘control issues’ and found the above two articles. What would we do without google – ha!

“So I’m a control freak,” Ming said with a certain amount of relief and a tinge of pride.

“Yes.”

“And it’s because I couldn’t control Dad’s sickness and your misery, and my back and all the shit?”

“Possibly.”

“So what do we do now?” Ming asked.

“Well, we’ve already taken the first step, kid.”

“What do you mean?”

“I am the one in control now so you can just freak off!”

His pealing laughter filled the house and my heart had a lovely little nap.

Sometimes I just want to go back in time!

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Gramophone glee

I finally took delivery of the gramophone I bought for Anthony a while ago so yesterday I met my mother and sister-in-law at the nursing lodge and we cranked it up. Anthony was invisibly thrilled – ha – but it was definitely a success. It just fits into the cupboard in his room so that’s good because now, whenever I go in, I can bring it out and put it on.

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It’s nearly yesterday!

In just a few minutes, Today will become Yesterday and Tomorrow will take over.

Good! I have fallen into the most beautiful friendship with Tomorrow because Tomorrow is so wise, patient and extraordinarily constant.

Today and Yesterday have been impossibly difficult, lately so I have reminded them that Tomorrow will always be my favourite day – always.

Gotta go – Tomorrow is just about to arrive. Yeeha!

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Despair

Despair came to visit today even though I had already told it to go way so many times and thought it had finally given up. It knocks on the door a lot and I ignore it and feel safe because the door is locked. But today, it picked the lock and broke in and, whammo, smashed me just as I was putting the kettle on. And when I fell down, it kicked me and kicked me until I begged it to stop, to please go away. It stopped kicking me but it didn’t go away.

So that was a few hours ago and I have since gotten up, washed the tears off my face and am now developing a plan of how to get rid of it because it’s sitting in the living room, waiting. Do I play the waiting game too and hope, in time, it will give up and go away? Or do I go into the living room and confront it. Despair has the advantage of course because it stopped me from doing all of the things I wanted to do today by snaking its way into my conversations with my son and non-conversations with my husband. It burned the kettle dry and whipped the wind up to blow all of the clean clothes off the line and into the dust of the driveway.

It’s pretty clever, this despair, because it has positioned itself in the middle of the house and created a sort of dividing line between my son’s room and my office, so every time he and I have tried to have a chat, it whips into the conversation and, with incredible skill, turns all the good words into corpses, turns our blue eyes black and laughs derisively when we both slam our doors and give up.

The trouble with banishing despair is that it might simply go somewhere else and inflict itself on someone else, so I have to figure out how to kill it. It has never been so presumptuous before, never made itself so at home before and, when I last sneaked a peek, it was dozing comfortably in the living room, waiting. Waiting for what though? Is it waiting for another mother/son argument, for another wife/husband disappointment, for another bird to be killed by the fox, for another glass of my tears?

How will I kill it before it kills me? I know it hates me laughing because once I saw it shrivel when I laughed. And I know it hates me loving because once I saw it vomit when I hugged Ming and Ants at the same time so maybe I can kill it with more laughter, with more love. But somehow I don’t think that will be enough. After all, this despair has already been able to permeate all of our laughter and love with little drops of dead fly poison.

I wish I had the solution to this predicament.

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