jmgoyder

wings and things

Dementia dialogues

I was writing these snippets on Facebook but, now that I’m having a break from Facebook (because I keep getting confused about what I have written where!) I’m just writing them here.

As I was trying to reposition Ants in his armchair the other day, this was our conversation:

Anthony: You’re such a great big thing aren’t you.

Me: What? How dare you!

Anthony: Well you are!

Me: That’s only because you’ve become a tiny little dandelion!

Anthony: Yes, but I have power.

Me: Oh you do, do you?

Anthony: You still love me.

Well, he does have a valid point!

 

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Shenanigans

I remember the day, decades ago, when I discovered an enormous spider in the kitchen of Anthony’s house. Anthony was milking the cows and his mother, who we all called ‘Gar’, was having her afternoon nap, and I was trying to get the lumps out the white sauce I was trying to make on the Aga, to mix with the tinned salmon. I was nineteen and, even though I’d lived in Papua New Guinea for three years and I wasn’t afraid of spiders, I thought it best if I killed this particular giant.

So I found the fly spray and used almost the whole can to crumple the spider onto the kitchen floor. It died simultaneously with the white sauce which I only just rescued the Aga from (another story).

When Anthony came in from milking, I told him about my heroics proudly. He was aghast.

Anthony: You killed Martha?

Me: What do you mean?

Anthony: Martha is our pet spider, Jules.

Me: Oh no, I’m so sorry.

Anthony: Mum will be devastated.

Me: But you didn’t tell me you had a pet spider. Why didn’t you tell me?

Anthony: Where is she?

Me: Your mum? She’s resting.

Anthony: No – where is Martha?

Me: I’m so sorry but I put her into the outside rubbish bin. (I begin to cry).

Anthony: Jules – I am kidding!

Okay, so over 35 years later, I am sitting next to Anthony in the nursing home and he is boringly slumbery, so I put my face up close – nose to nose – and shout “Wake up!” His eyes open but he doesn’t focus. I keep my face close to his and all of a sudden he launches up in his armchair with an unexpectedly loud “BOO!”and nearly head-butts me.

Me: You scared the hell out of me, Ants!

Anthony: That was the desired effect, my dear.

 

 

 

 

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Trickery

Ming has a new job at a different restaurant but has been called in so often over the last few days that he hasn’t had time to wash the one white shirt and blue apron he was given.

He is not just fiercely independent, he is ferociously independent, so all of my offers to wash these items have been rejected.

But this morning he has gone to Perth by train to pick up a second-hand ute (truck) we’ve bought to replace our old unregistered one. He will be back by noon.

So I have a window of time in which to secretly wash and dry the shirt and the apron (separately of course). The shirt is now nearly dry and the apron is in the washing machine.

Once both items are clean and dry, I will have to fling them onto the chair where Ming left them last night, so that he won’t suspect.

Wish me luck!

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Elton John

Elton John made a guest appearance on one of those daytime shows  yesterday and so I put the volume of Anthony’s television up. As soon as Elton starting performing, Anthony began to wave his arms and tap his knees.

Me: You should be a conductor!

Anthony: Yes, I’ve been told that before.

I love these moments of hilarity!

 

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Once upon a time 6

During the many years in which the dairy farmer kept the young girl at arm’s length with brotherly bear-hugs, she somehow managed to finish her nursing studies and then an arts degree.

She had lots of adventures, jobs, friends – even boyfriends – all of which she would tell the dairy farmer about, much to his amusement. She would turn up at the dairy farm unexpectedly and be greeted by his yell of welcome … “JULES!”

The dairy farmer had been swept into a convenient relationship with a woman more his age, a situation that frequently broke the young girl’s platonic stance into slivers of absolute misery. Twice she bumped into the dairy farmer’s ‘girlfriend’ as the ‘girlfriend’ was leaving to go back to the city. These awkward situations were tempered by the guffaws the young girl and the dairy farmer shared in the wake of the departure of the ‘girlfriend’.

It was at about the time the young girl embarked on her postgraduate studies that the dairy farmer finally realised that she was now a young woman; that the age difference was now diminished by time. He let the ‘girlfriend’ go and rang the young woman, asking for a date.

 

 

 

 

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Anthony’s hilarious sarcasm!

Yesterday, when my mother visited us at the nursing home, she asked me how one of her friends was; her friend is in the dementia cottage where I worked for awhile last year. So I said, “Let’s go and visit her!” So we did. I love going there to see the wonderful women (residents and staff).

I told Ants we’d be back soon as the dementia cottage is just around the corner from where he is – in the high care section.

ME: Ants, we’re just going to visit some of the neighbours.
ANTHONY: What about me?
ME: I’ll be back really soon, okay. You stay here.
ANTHONY: I suppose I’ll see you in two or three weeks then.

He has a gift for sarcasm – always has!

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Bright eyes!

I feel compelled to record these updates on Anthony’s health, so that I will remember in the future. The unpredictability of his daily condition is just that – unpredictable. After days of silence and sleepiness, today his eyes were wide open (one of the many symptoms of PD is not blinking, so this makes his eyes very wide!)

Me: You look like an owl!
Anthony: I …
Me: Clear your throat – c’mon, cough!
Anthony: Coughing.
Me: So what did you want to say?
Anthony: Where is your mother?

Okay, so a little background information for those who don’t know. My mother is 81 and fighting fit despite numerous health challenges (cancer, broken hip, pelvis, wrist). She lives independently in a town not far from here and she is the epitome of maternal/grand-maternal etc.

The fact that she visits Ants so often – around twice each week and more if I need a break – is testament to her amazing love for me, her only daughter.

Today, she and I joked with Ants, and his eyes lit up several times, with mirth and affection and, of course, confusion.

Thanks, Mama!

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Once upon a time 4

The young woman was employed as a ‘nanny’ to two angelic-looking monsters, aged 2 and 3. She had thought her London job would be somehow exotic but, instead, she found herself dealing with a young, professional couple of parents who, despite having produced two children, didn’t have a clue what to do with them. The mother’s passionate advice to the nanny was “Don’t ever use the word ‘no’. I don’t want them to know about ‘no'”. The father, on coming home from work to find his two boys climbing the ceilings with an abundance of no ‘no’ energy, would weep freely into the reluctant shoulder of the nanny.

You would think, wouldn’t you, that this situation would distract the young woman from her love for the dairy farmer. Instead, it had the opposite affect and she became intensely homesick for Australia, for her mother and brothers, for the dairy farmer (of course!) and for the dairy farmer’s brother’s family.

That Christmas, the dairy farmer’s tall, shy sister-in-law decided to leave a cassette tape recorder on so that the young woman/nanny could share, in retrospect, the buzz of that day. When the young woman/nanny received this tape recording she was in the midst of preventing and/or throwing the angelic looking monsters out of her attic window. But when she pressed ‘play’ it all changed, as she and her two charges listened intently to the voices of gleeful children opening presents, messages from each of the white-haired children, the kindness in the tall, shy woman’s voice, the gruff affection in her husband’s. And then there was his voice – just four words: “Hi Jules, happy Christmas!”

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Auto/biographical risks

I was very fortunate to have once been a student of Elizabeth Jolley. She wrote fiction that was heavily laced with fact; she changed names to protect the guilty; she took risks.

The primary reason that I have hesitated over the years (decades actually!) to write what I think is a rather spectacular love story, is due to the yucky bits of the story – the betrayals, conflicts, mysteries and agonies in and amongst its success.

By writing increments of this “Once upon a time” story, I face the challenge of writing about how Anthony and I dealt with the disapproval of our relationship from both sides – from both families – and from well-meaning friends.

Over the last few weeks I have blogged outside the “Once upon a time” story, with tidbits of information about a recent event that traumatised me, and reminded me of some of the yucky stuff from the past. These posts, some now deleted, or edited, are, privately, an avenue into the complicated past of my relationship with Anthony.

When I say rather dramatic things like ‘spectacular love story’ I only mean that it was against all odds – a 41-year-old and an 18-year-old (the beginning), and now (the ending?), a nearly 57-year-old girl/woman sitting in a nursing home with her hands hugged by his nearly 80-year-old fingers.

My recent truthful tidbits have earned me the angst of one family member and, conversely, the support of many others.

I remember, years ago, Elizabeth Jolly speaking to me about one of my short stories:

EJ: This is far too painful, dear. Rewrite it.

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Once upon a time 3

At some point in time (I think she was 22) the young woman decided to put some geographical distance between the dairy farmer and herself.

Ironically, it was he who picked her up from her mother’s house, and drove her to the airport. She had dressed up and put make-up on; the photograph her mother took shows a very handsome couple with too-wide smiles.

In the plane, on the way to London, the young woman tried over and over and over again to drop her burden of love into the various oceans, islands, and even into the black of night. But it was such a massive bubble, this wonderful love, that it lost its footing during a particularly difficult gravity experiment.

It (the love thing) floated easily up into the sky-clouds and had a bit of a rest.

The dairy farmer drove back from the airport to the farm.
The young woman began her ‘nanny’ job in London.

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