jmgoyder

wings and things

Itchy hands

For a couple of days now my hands have been painfully itchy (apparently there is a myth that this means I am coming into some unexpected money – ha!)

I noticed that on the sides of each of my fingers there are several miniature blisters so I thought I’d google the condition and here is what I found:

http://www.pompholyx.co.uk/your_experiences.html

Yes, it would seem that I have pompholyx which of course I have never heard of before. It’s a form of eczema apparently, and the causes include everything from humidity to stress (both of which fit my situation). I’m a little alarmed to find that it may get worse but I’m also relieved that it may simply go away of its own accord. As diseases go, it certainly isn’t serious, but the itchiness is driving me slightly crazy because I want to scratch my hands to bits.

Changing the subject: I wrote a post about Ming yesterday but I trashed it soon after because it seemed a bit disloyal to a son who is, after all, only 10% evil haha! But I realize it will already have been seen by some so, just to reassure you, he and I are once again on the same page, and my new nickname for him is “90%”.

Another update: even though I briefly sighted a couple of the peahens the other day, I haven’t seen them again and five are still missing. Nesting season is well and truly over so I think I will have to assume that they have either flown away (to get away from the peacocks’ attention), or have been killed by foxes. I am hoping it’s the former but I will never know. My peacock-knowledgeable friend, Mike, came over to see us yesterday because Anthony was home for the day and I asked him if the males would be okay without their ‘wives’ and he reassured me that they would, but it is still sad to have lost the girls. I guess, you never know, they might come back. That’s the risk with free-range but I never wanted to pen them in.

I’m off soon to go into the nursing home for the afternoon. It is only one street away from the beach so much cooler than here on the farm. Pompholyx is not contagious so that’s okay; I just hope he doesn’t notice that I have taken my wedding and engagement rings off because there were a couple of blisters underneath them. My ring finger feels really naked as, except to clean the rings, I have never taken them off.

Here are some photos of the peahens (much more pleasant than a photo of my blistered hands):

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42 Comments »

Good news!

Yesterday, after wearing a head-to-hip spinal brace for three months, my niece was allowed to take it off for good. When I heard the news I couldn’t stop laughing and leaping crazily around the house! She was the last of the five children to be given the green light, so things are definitely looking up.

Here is a photo of her next to her brother last year. And yes that is Gutsy9 (as a baby) on her shoulder. Bravo, my lovely niece!

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“Totally and utterly stupid.”

Yesterday morning Ming and I went to our third appointment with the lawyer and were told that the first court appearance next week will simply be a reading of the charges and an adjournment until the end of February. We were also given the video of the police interview conducted the night of the accident. Ming has been told to watch it with a notebook in hand in case he wants to change or retract anything he said.

We were going to watch it together but after he went to bed last night, I decided to watch it by myself just in case I had an emotional reaction. The interview began after midnight, the night of the accident, and went for 80 minutes and was conducted while I was waiting with my friends in the foyer of the police station. My mother was with me for the first part of the night but when my friends arrived I told her to go to the hospital which she did. By that time I had stopped sobbing more or less and Ming was finally released at 3am.

During all of those hours I had no idea how the children were and I had no idea what was happening with Ming. These were very dark hours. After the police station, Ming and I went straight to the hospital to see the children and families (except for one nephew who had been flown, with my brother, to Perth from the scene of the accident).

Well now I do know what was happening with Ming during those earlier hours. Two policemen sat on either side of him at a round table and he was questioned about every detail of the accident. Every now and then Ming’s voice caught on a sob as if he had been crying previous to the interview. He answered all of the questions honestly and politely and if he didn’t know, or couldn’t remember, that, too, was noted.

When asked to talk about each of the children, his voice went soft with emotion and a couple of times he sighed before he was able to go on with a steady voice. At no point did he attempt to make any excuses or defend his actions and when asked to state his own opinion of himself and what he had done he said, with no hesitation:

“Totally and utterly stupid.”

I am glad I watched this without Ming because of course it brought back the horror of that night and of course I cried a lot. But now I will be able to watch it with him calmly and help him make notes, although I didn’t hear him say anything but the truth so I don’t really think there is any need to add anything.

He has been charged with five counts of dangerous driving causing bodily harm and obviously he will plead guilty. We found out last week that the car insurance will not pay which is understandable but still a blow. I haven’t told Anthony this; in fact I told him the exact opposite because he sold some very precious shares that he has had for decades in order to buy Ming the ute on his last birthday.

And to top things off, the lawyer said that the barrister he has obtained for Ming charges $4,000 per day! I nearly fell off my chair at this almost incomprehensible amount of money and I have no idea how we are going to manage except that tomorrow I turn 55 and can access my superannuation so in that sense we are very lucky. I would have been panicking otherwise. Now I am just a bit shell-shocked!

This has already been a very long and hard journey in terms of the initial shock, the injuries and slow recovery of the children, and finally now the court case which may go on a bit – I’m not sure.

For many in my family there have undoubtedly been days of utter hopelessness and waiting so long for various splints and casts and braces to come off has been a test of endurance, not just for the kids, who have been magnificently brave and stoic, but for their parents, siblings, my mother, Ming and me.

Now, for Ming and me, there is a different kind of waiting – for the eventual sentencing. I had thought this would all be much faster and I’ve been kind of holding my breath, waiting for it all to be over, for Ming to take his punishment, and for all of us to be able to move on into our various next chapters.

Totally and utterly stupid.

Because there is no point in holding my breath – and I have been doing this for too long now, both metaphorically and physically. Breathing will become the focus of every new day and breathing will get us through the next few months of whatever and, best of all, despite the accident, we are all still breathing.

And for this I thank God, the ambulance attendants, the hospital staff, my family, but most of all I thank the five children injured for their heroism, generosity of spirit, humour, and love to Ming, me and each other.

75 Comments »

Ming’s 20th birthday party

With around 70 guests (mostly 19-20 year-olds), a handful of parents, and a few of Ming’s older cousins, it was a resounding success. We did the lawns and madly tidied up beforehand:

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We set up Anthony’s ancient stereo system, which Ming has now figured out how to operate. It has the most amazing sound which some would call LOUD:

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We began to fill a cattle trough with ice and drinks as soon as it got a bit cooler (it was an extremely hot day):

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The first guests began to arrive and Ming was given some suitable adornments:

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More guests arrived:

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The pizzas arrived:

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I remained calm:

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Ming made a short speech dedicated to his favourite topic – himself:

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There was a bit of cigar debauchery but nothing else untoward happened …

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… Except for an unexpected pole dancer (my gorgeous, incorrigible niece):

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Here she is again, slightly more subdued, with her brother and husband.

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Thanks, Ash, for rocking the party up a few notches, for taking most of these photos, and for making Ming’s party the best ever!

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Like father like son!

Today was very interesting – and hot! Ming and I had to go into town to do last-minute jobs in preparation for his birthday party. We had to collect hire chairs, pay in advance for delivery of pizzas, buy a new cord for Anthony’s old stereo, and numerous other jobs.

I was the driver and we were using the old ute (truck), but I was also the lifter of anything heavy (like 24-packs of bottled water, coke, beer etc.) It must have seemed a bit odd that the young, robust-looking boy-man chatted happily with various store owners while the disheveled, perspiring mother did all the lifting and driving. Occasionally I would say, “He’s just had a back operation. I’m not usually his slave.”

Once we had done all of these jobs and were on our way to see Anthony, I told Ming how much he reminded me of Anthony when he was younger. Well the conversation didn’t start all that pleasantly:

Me: Why the hell did it take you 45 minutes to pay for the pizzas? Do you know how hot it is sitting out here in this crappy old ute in the full sun, waiting?

Ming: Oh! Sorry, Mum, I was just having a chat. It’s a family-owned business and they were great people. Both their kids work for them. I’m so glad we’re getting the pizzas from here and they gave me a fantastic discount and free delivery!

Me: Okay.

Ming: What’s wrong?

Me: Oh I cannot believe how much you are like Ants! Everywhere we ever went way back when he was young and fit, he would leave me in the car, go into a shop to buy something simple like a screwdriver and not come out for ages and ages. I would become absolutely furious with having to wait so long and would eventually stomp into the shop to find him talking up a storm with the proprietor, other staff, random customers, with everyone laughing and joking, with Anthony the loudest of all. He’d spot my scowling face and yell out, “Jules! Come and meet ….” and I would smooth my face back into a smile and join the ‘party’.

Ming: Do I do that?

Me: Well, yes. I mean you haven’t yet transformed a screwdriver purchase into a party but you certainly do know how to turn the mundane errands into social occasions. You also have a very loud presence.

Ming: So I’m like Dad was before I was born?

Me: Yes.

Ming: That’s great!

Finally, after all the jobs were done, and the ute was loaded up with chairs, drinks and other odds and ends, we went to the nursing home. I had asked Ming to help me explain to Ants that last night’s incident might be due to the paranoia which comes with Parkinson’s disease (he doesn’t know he has the dementia part). Our main task was to reassure Ants.

As we entered the nursing home there was a little flurry – the nursing manager pulled me aside and asked me about last night, a nurse going off duty told me she had tried to ring me this morning to say Ants was fine now, the nurse in charge for the afternoon and evening thought it might have been due to a new staff member last night. She even felt his antagonism might have been justified in some way and not just due to paranoia. Apparently Anthony had made the nursing home headlines in terms of drama!

All of these rushed conversations happened out of Anthony’s earshot of course and, meanwhile, Ming had already gone into Anthony’s room. Once I entered, Ming said, “Okay, Mum close the door so we can have a family conference.” Then we all sat close to each other and, after I kissed Anthony’s bleak-looking face and saw the anger in his eyes, Ming and I began to explain about paranoia and that if it happens again to remember that is is part of PD. I was so proud of Ming.

Ming: Dad, if you get like that again, really scared, you have to trust us on the phone because we don’t lie to you. The nurses were just trying to put you to bed and give you a pill.

Me: Ants, you were shouting at everyone, even me, that we were bitches.

Anthony: Well you are.

Me: Why me?

Anthony: You should have come in to help me.

Me: No Ants – I am not going to come all the way in here from the farm late at night just because you didn’t see me that day. How do you NOT know how much I love you? I was so worried last night and you made me cry!

Ming: Shut up, Mum, he doesn’t need to hear that. Dad, listen to me – you can’t go around calling nurses bitches okay!

Anthony: Why not? They took me to another town and then wouldn’t help me and someone is trying to get my money.

Ming: Dad, you are imagining some of this stuff because of the Parkinson’s.

Me: You know how you get those hallucinations and if I tell you it’s because of the Parkinson’s, you can cope?

Anthony: Yes.

Me: Well, I’ve been doing some research and paranoia is also part of Parkinson’s so, late at night, when the nurses are putting you to bed, you might think they aren’t nurses. Is that what happens?

Anthony: Yes.

Ming: So, Dad, you need to always remember that they are nurses and they are looking after you. If they ring us and we talk to you at night, you HAVE to trust us, okay?

Anthony: What about the bitches?

Ming: I know – they’re everywhere.

Me: He’s kidding, Ants!

The conversation was much longer and more convoluted than this, but Ming and I ended up laughing when we were able to tease a half smile into Anthony’s face. This was after he whispered to his father to swear in his head and not with his mouth.

I think next time I get a phone-call from the nursing home like last night’s I will hand it over to Ming. They are so uncannily alike!

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I think one of the best things about our three-way relationship – father, mother, son – is the soft-slicing honesty with which we have always communicated with each other. In this we are very very fortunate.

Oh yes, and the other interesting thing is that Anthony’s own father died when Ants was around Ming’s age and I remember Anthony telling me about how his dad was a lot of hard work beforehand, and that they clashed a lot. Ming clashes with Ants a lot too but today he broke the record in terms of compassion and, even if we get another alarming phone-call from the nursing home tonight, we will all be okay – all three of us.

64 Comments »

How to apologize?

The reason I have added a question mark to the title of this post is because I don’t know the answer in general. I only know my own way of apologizing, which is pretty much to roll in the dirt, say I am sorry over and over, and kiss the toes of people I don’t particularly like or understand anymore, hoping for some sort of forgiveness or reconciliation.

But there is something fundamentally skewed about this kind of apology because it implies guilt (mine – i.e. it is all my fault) and it also gives the person apologized to a very good reason to keep hold of his/her grudge, whatever it is. Sometimes that grudge has nothing to do with the present but has everything to do with the past and, when the past has somehow become toxic, you know you have a problem.

Ming and I were talking about all of this philosophical stuff today, after a fantastic lunch out with Ants and Meg, and we came to the conclusion that there were three ways to apologize and forgive: (1) Blip it, move on, act normal and civil, forget the hurtful things said/felt; or (2) Talk it through, be honest even if it means tears and/or recriminations, and tell me what the hell I have done that has hurt you so much; or (3) Distance.

Give me distance any day!

Sometimes Anthony imagines or hallucinates about past family conflicts and I have to reassure him that everything is okay now. I hate that he remembers incidents that are best forgotten and I hate that he forgets all is well now.

I always want to talk through these kinds of relationship conflicts – always! I want to put it all on the table, so to speak, but I am usually on my own because nobody wants to get into the nitty gritty of what the hell is wrong here, and nobody seems to want to apologize back!

Why?

I am so sick of saying I am sorry!

55 Comments »

My uninhibited son!

Two and a half weeks ago, on the day of Ming’s second scoliosis operation, my oldest friend, Tony, came to visit us in the hospital. Ming was in one of those gowns they put you in before surgery and he was waiting in a very small room with several other gowned people. He had been told to remove his underwear but, as the gowns are so see-through, he hadn’t done so yet and his bright orange jocks were quite visible.

Well, just before Tony arrived, Ming, thinking he might be called at any moment, went to the bathroom and removed the jocks and handed them to me all scrunched up to put in my handbag. “It feels really weird, Mum!” he said to me/to the whole room (even when he speaks quietly his voice booms!) He had been given a premed. of some sort which had disinhibited his already uninhibited personality.

A few minutes later, Tony texted me to say he was in the hospital cafe so I went downstairs and brought him back to the little waiting room to see Ming. As soon as he saw Tony, he stood up and shook hands, then said, “My genitalia are exposed.”

Tony’s jaw dropped slightly but he is used to Ming’s idiosyncratic statements so he just said something like, “Thank you for that information,” and I cracked up laughing when I saw the other people in the room smiling at this odd exchange.

Yesterday, Ming and I had lunch with Tony in the town where we always meet, halfway between where we live and Perth, where Tony lives. It was wonderful – Tony can make me laugh like nobody else, and I love watching the way he and Ming banter. It actually struck me, at one point, that Tony is like a second father to Ming, especially when Ming jokingly said “Thanks, Dad” when Tony paid for our lunch!

Thanks, Tony – your friendship is a gift.

This is us yesterday.

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50 Comments »

Powerful!

I follow the blog of a wonderful woman, Nicole Cody, who writes with such positive, energetic wisdom that sometimes it takes my breath away. In her post today, she invites us to choose a “Power Word” for 2014 – see http://cauldronsandcupcakes.com/

Lots of possible words came to mind: gratitude, laughter, healing, energy, harmony … but then I suddenly realized that I wanted my own power word to be the word, power itself. Or, to be more exact, the word, powerful!

POWERFUL – yes, I like it!

For me, this word doesn’t mean that I want to stomp, Godzilla-like, on anybody or anything; instead, it signifies a transition from the flailing, exhausted, try-too-hard strength I already have to a more spiritual, muscle-bound ability to contend with all 2014’s challenges, and embrace all of 2014’s joys with the kind of gratitude that is loud and fierce and inviolable.

The weird thing is that as soon as I chose my power word, my limp became a leap, and my wrinkled heart grinned itself into a balloon.

Thank you, Nicole! This photo of Prince is for you.

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44 Comments »

The party animal is back!

Ming has taken the good car down south, with a best friend, to a New Year’s Eve party because he only has an automatic licence and our very old ute (truck) is manual, so guess who is driving that? Yes, me, and it is so ancient that just turning the steering wheel left and right etc., on even a short drive, is equivalent to a two-hour arm workout at the gym (not that I’ve ever done that).

We finally have a date for the court case – 22nd January – but until then Ming still has his driver’s licence, so he is making the most of it. Of course, since the car accident, I am very nervous about him driving but, except for the aberration in October, he is a careful driver and is not a drinker, so I hope they both have a great, safe time, but look forward to their return tomorrow.

Ming is off all of the strong painkillers now and just needs panadol occasionally; the bandages are off and he is definitely straighter again and the pre-op. pain has gone. It was a bit of a shock to see that the new scar is almost as long as the one from his original scoliosis operation (almost the whole length of his spine) so I guess they had to rummage around a bit to replace the two broken bits of titanium – yes two! and pack crushed bone from the bone bank all around the area to ensure it all knits back together.

I have probably posted these photos before, but I like them because they show his character. Yes, we have our arguments and conflicts, and we wrestle in different ways with the anxiety about the accident, the kids, the future, but we always talk things through. It is so good to see Ming bouncing back again.

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Happy New Year, Ming, my wonderful party animal son, and may all your dreams come true!

Note: Luckily he doesn’t read my blog any more because he would probably cringe at my sentimentality here – ha!

31 Comments »

My friend, Nicola

“Nicola” is a sort of pseudonym for one of my very best friends. The other night, Ming and I were invited to go to her place for drinks but the day got complicated with Anthony home again; unexpected visitors; food shopping; a dreadful hour back at the nursing home in the late afternoon when Ants was almost too paralyzed to get from car to his room despite my help; hurting my stupid back lifting him; Ming getting his bandages wet and me having to peel them off to see a much longer scar/wound than I’d expected, not being able to find the betadine, a rather nasty altercation with the beautiful brat, planning the exciting visit to see my youngest brother, wife and kids the next day and liaising with my mother about this; answering calls on my stupid, non-working, cutting-out phone; getting a headache; and forgetting to put beer in the fridge – argh!

But Nicola was expecting me so, by the time I’d done the bird feeding/watering/yarding, I was kind of ready to go but then Ming and I had another altercation and I ended up yelling at him because the same drugs that were making him all lovey-dovey are now making him monsterish – another argh!

So I rang Nicola and said we couldn’t come (I only told her a bit of the above which is already an abbreviated version of the hell of the day) and she said that it was okay.

I now think that the sentence, “It’s okay” is the best sentence ever invented because it says everything. When someone lets you off the hook of a commitment that you have broken by saying “It’s okay” your whole heart stops holding itself tight and starts beating out a beautiful soft song of gentle understanding and relief.

My reputation for letting people down at the last minute is something that I am not proud of but it stems from the days/years when I was looking after Anthony at home. I became reliably unreliable!

Thanks, Nicola, for your understanding and empathy and amazing friendship. You are a rock!

IT’S OKAY!

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