jmgoyder

wings and things

I am so cool!

I feel the heat terribly and, as some of my friends may remember, a couple of summers ago, I developed a condition called “pompholyx“.

(Warning: if you click on the above link you might be grossed out by the pictures, just as I was by the condition).

Anyway, since one of the triggers is excessive perspiration, which I vividly remember my dad having and now it’s obviously my turn, I made a big decision. Air conditioning!

I pretty much live in my writing room, which used to be Gar’s bedroom (Anthony’s mother). Anyway, her 1970s air conditioner died last year, so last week I made the call and the aircon. guys and the electrician installed it this morning. It’s not a particularly hot day (only in the mid-20s C), but as I waved my saviours goodbye, I was already dripping, despite wearing a sweatband.

And now? Ahhh, the bliss of being so cool and the comfort of knowing that when the temperature hits 40 degrees (any time soon as summer approaches), I will have a safe haven! Okay so, in the big scheme of things, pompholyx may not seem like such a serious condition but it drove me quite mad for months a couple of years ago.

I was reminding our doctor the other day and he immediately looked at my hands where, during a funny little heatwave last week, the blisters had begun to appear.

Me: You can’t see them now – I scratched them off and it wasn’t that bad.

Doctor: Mmmmm.

Me: But I can feel them coming back – the blisters. So I think I might need botox to stop me sweating? I read about that possibility.

Doctor: No. I’ll order some blood tests; it could be hormonal.

Me: Yes, of course, but I don’t think it’s just menopausalish because I perspire a hell of a lot more than any of my equally menopausal friends!

Doctor: Mmmmm.

Me: And remember how we discussed cranio-facial hyper-hydrosis, or whatever you call it, last year? That’s me! It’s just my face, head and hands – the rest of me sweats normally.

Doctor: Mmmmm.

Okay so the doctor doesn’t do the mmmmmm thing loudly but it’s definitely a component of our conversations, with a chuckle here and there. I much prefer the mmmmm.

Anyway, as the young aircon. guys were leaving, I apologised for the peacock noise (it’s spring, so they are yaaaaawking constantly). One of the guys said ‘They are so cool!’

I agree and here are a couple of shots of Prince minus his back view!
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As this beautiful white peacock does his twirling, fanning, wonderful dance, his feathers muscle their way into the breeze and sing:

I am so cool!

49 Comments »

The suffering conundrum

I just don’t get it. Why does one person cop multiple illnesses? And why does this seem to happen to the beautiful people?

Later this week I will be travelling to Perth to meet my friend at the airport, after which we will spend two luxurious nights at a resort. During the days, I will take my friend to her medical appointments; in the evenings we will sip wine, eat pizza, and reminisce.

She was the first kid to say hello to me on the bus to school after my family moved from PNG to Australia. Since then, we have had years of little contact due to busyness, geography etc. but, more recently, have reconnected.

‘How is it possible for you to still laugh?’ I asked her on the phone tonight, to which she replied with her laugh.

My friend suffers severe eye conditions and an unhealed broken foot and yet she can still maintain laughter within her suffering. How does she do this?

I haven’t mentioned her name because she is very private but I so wish I could salute her publicly because she is amazingly philosophical and pragmatic.

And maybe she and I will make a bit of sense out of the suffering conundrum when we see each other in a couple of days. I can’t wait!

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Sorry about that image. Prince always seems to want to give me the back view. Here is a better view.

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Cycling!

I have discovered a route around this countryside that is hopefully truck-free; I have bought a new bicycle pump; I have dusted the cobwebs of my bicycle; I have made myself determined ….

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Argh!

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Full of Beans 2

Well, I am so delighted that I am almost speechless. In a mere 24 hours ….

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I have to admit that I found myself a bit shy of the tall, red-haired man who performed a bit of a miracle so energetically. I came in and out of the house, met his lovely wife and youngest (part of his team), made them a cup of tea but not much else.

Now it will be up to me.

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Full of beans!

A long lost dream is coming true via a tall man with red hair, named Dan, whose business is called Full of Beans. Thanks to him, my vegetable garden is being created! If it weren’t for being invited to join the gardening group I would never have known about him, so I am very grateful. Ironically, I can’t attend tomorrow’s get-together because Dan is coming back to do the planting and I want to learn.

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One of the things that really appeals to me about Full of Beans is that it provides an ongoing maintenance service for gardening novices like me.

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Okay, so gardening friends far and wide may see this as a kind of cheating on my part (employing someone to make me a vegetable garden) but oh well. I am already crazy about what Dan has begun to create and can hardly contain my excitement.

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Anthony was an avid gardener, despite not having much time, with milking the cows and looking after his mother. Nevertheless almost everything he planted, over 50 years ago, still survives. But he was never the least bit interested in growing vegetables. A couple of years into our marriage, I asked for a vegetable garden but he said there was no room. I argued that there was plenty of room (5 acres around the house!) to no avail.

And, as Ming grew up into an adolescent, he formed the same opinion. It was just a small dream of mine but neither of them would have a bar of it. That’s okay; they just weren’t interested and maybe didn’t realise how much I wanted the vegetable garden. I couldn’t do it by myself so one year my brother came out and dug me a patch and every single gigantic zucchini gave me a thrill. But that went by the wayside in the face of Anthony’s mysterious deterioration in health (we didn’t know about his Parkinson’s then) and the fact that I was working full-time that year.

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Now that Anthony is no longer cognisant of our shared reality; now that Ming is in a fantastic relationship; now that I am learning how to be completely alone, a vegetable garden seems profound.

A long lost dream is coming true via a tall man with red hair, named Dan, whose business is called Full of Beans.

http://www.fullofbeans.com.au

44 Comments »

An argument about Anthony’s smile

You know how I’ve been saying how wonderful it is to see Anthony smiling again, and that I’ve been crediting myself with having made a huge effort to get that smile back? Well, Ming disagrees.

Today was a day off work for Ming so he went to see Anthony and I had a day at home. When he got back he told me that he had Anthony laughing!

Ming: Mum, Dad never lost his smile!

Me: You don’t see him as much so you don’t know – anyway you can always make him smile because you’re Ming!

Ming: So can you and so can anybody!

We left it at that; after all there is no point having an argument about a smile. Nevertheless our brief argument got me thinking about Anthony’s Parkinson’s ‘mask’ (the blank, unblinking, slack-jawed expression on his face, typical of PD). And I realised that the only reason I see this more than anyone else does is probably because, when I visit, I am there for hours so I see the fluctuations.

For example, when staff come into Anthony’s room and banter or flirt with him, he smiles; when friends and relatives visit, he smiles; when Ming and I visit, he smiles. So perhaps I should adjust my thinking to the possibility that it has become easier to conjure/coerce that smile? Maybe Anthony’s smile, and even his laugh, was always there, always ready to be there.

Maybe it was my own smile that went missing for so long.

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‘Doggone!’

I’m sure Blaze was calmer last time I took him into the nursing home to see Anthony. This time, instead of following me in, he ran across the road to a block of flats and wouldn’t come back until I sat down in the parking lot and pretended I had food in my handbag.

Once I’d grabbed him, I carried him into the nursing home to see Ants. I had envisioned a cosy afternoon watching television with Blaze on Anthony’s lap, snoozing. But Anthony was in the dining room and, despite staff being able to get him to shuffle, using his walker, nearly all the way to his room, both a wheelchair and the hoist were eventually required to plonk him into his armchair. In the meantime Blaze and I went out into the back garden area, then visited a couple of the residents, then sat in the foyer.

When Ants was settled, I carried Blaze in and shut the door wishing I’d persevered in trying to find his leash. He was too excited to stay on Ants’ lap for long and kept wandering around curiously and trying to get out. He’d been patted and admired by staff and residents so I guess he wanted a bit more action. I accidentally shot a whole lot of little videos when I was actually trying to take a photo. The following is the only one that doesn’t include my expletive-ridden “Why won’t this camera work?”

Giving up on the camera, I took about 50 photos with my phone, which all look exactly like this one.

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Fake caption: Man’s best friend.
Real caption: Jules, take this bloody dog away!

In light of this remark, and, after Blaze had done several hundred laps of Anthony’s room and bathroom, refused to relax on Anthony’s knees, turned his nose up at the water in the water bowl I’d brought in, I decided it might be time to go.

It was at this point that I realised there was a power failure because I couldn’t get Anthony’s television to cooperate. Then I got a text from my mother asking me if I were coming to my brother’s barbecue. I answered saying I thought the barbecue was the next day and I had Blaze so might only be able to drop in for a quick drink.

Unfortunately, my departure from the nursing home was delayed when I couldn’t find my car keys. It was suggested by several Blaze-loving staff that I could re-trace my steps. So I shut Blaze and Ants into Anthony’s room and went back to the flats where Blaze had first run away. No keys. I then went back to my car and looked underneath. No keys. Back inside the nursing home, I went back to all of the residents I’d visited. No keys. I went outside to the garden. No keys. I went back to Ants’ room to find them both nonplussed as I emptied my handbag of all its contents. No keys. I rang my mother and said, “No keys”.

Finally (an hour and a half after annoying everyone in my vicinity, especially Ants!) I remembered sitting in the foyer with Blaze. With hope hugging my heart, I shut Blaze in with Ants and ventured to the foyer and … there they were!

I said a (b)elated goodbye to all, gave Ants a big kiss, and came home, promising myself I would never take Blaze into the nursing home again without a leash; and never ever again lose my car keys.

Today, the latter has already happened!

33 Comments »

Ago

‘Ago’ is a word I have never thought about until this afternoon. Now, I miss ago.

Lately, I haven’t been able to find the right words to describe Anthony’s condition as it ebbs away. A few days ago, he was so incredibly, cheekily, the Ants from many years ago; the next day he was like someone comatosed; today, as I left, he asked me to get four pieces of steak for tea.

Physically, he and I both cope well. After all, at the moment, Ants has very little physical pain, and me being a young girl (ha!) of 56, driving from farm to town to see him is not a big deal.

One of the many lovely staff at the nursing home sent me this picture of Ants during an animal visit activity. Thank you so much Chloe!

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This has inspired me to take Blaze (mini-dachshund) in to see Ants tomorrow again. Blaze (son of Inky 2 and Doc 4) will remind us of once ago.

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ago.

20 Comments »

Swings and roundabouts 2

The two photos I put up in yesterday’s post had absolutely nothing to do with what I wrote and I only added them because, having been on the phone for nearly two hours, trying to get the internet back from its little holiday, I could! So here is my attempt to interpret what those two photos (and a few others) actually mean.

CAST OF CHARACTERS:

Prince – white peacock
Martha and Mary – the two white chooks
Whoopie – the new chook with the fancy hairdo

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Prince: What the hell?
Mary to Martha: Quick! Hide! There’s a huge creature on the other side of the fence!

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Martha to Mary: I think it’s okay. He just did this little purry thing in his throat. Anyway, we’re safe in this yard.
Mary: A purry thing! Martha, do you not realise that he is probably flirting with us?
Martha: Yeah, but you have to admit he is kind of cute.
Mary: Cut your beak off, Martha!

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Prince: I’m not sure whether these strange, short, ugly things are my cup of tea after all.
Mary: See, Martha, not only does he talk to himself, he’s insulting. Ignore him!

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Prince: Okay, so I’m not that good at introductions, but to be rejected so soon by these two whatever-they-ares is very disturbing.

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Prince: Indifference hurts.

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Whoopie: Is the coast clear yet?

Note 1: Whoopie was given to me by a friend who breeds beautiful poultry – thanks so much, Jane!

Note 2: When I first began writing this blog, Anthony was still at home, but ailing. We started to accumulate guinnea fowl and chooks because Ants remembered having these as a young boy/teenager and I wanted to cheer us all up. But then I got a teensy bit carried away with the whole bird thing (as past blog posts reveal ha!) It’s good, now, to begin again with just a few chooks…. even though this bewilders the peacocks!

13 Comments »

Dilemma

Last week I received the following email:

Dear Julie,
I am writing with regard to your book titled We’ll be Married in Fremantle. Given increasing warehouse costs, we have had to review the amount of stock that we are holding for a number of titles where sale numbers each year are low. Unfortunately this book is among those selected to be removed from stock. We would, however, like to offer you the opportunity to purchase as many of these copies as you choose at a price which will cover our costs of shipping and handling….
CEO of … Press

Initially I felt humiliated, then I realised that it is now a rather ‘old’ book, having been published in 2001. I also comforted myself by realising that most of the 5,000 books had sold and I could rescue the 300 or so remainders from being pulped at very little cost. I am still deciding what to do.

It’s not that I have any intention of on-selling the books; I certainly don’t want to have 300 or so copies of my own book on my bookcase to remind me that it wasn’t a bestseller; and this dilemma has nothing to do with ego.

During the time of writing my PhD, then re-writing it into a book (several years altogether), I remember being absolutely driven. I wanted passionately to write something that would change attitudes to people suffering from Alzheimer’s disease. And my thesis/argument was so simple: listen, and respond to, the stories, even when they don’t make sense.

So I have a few creative ideas of what to do with those 300 or so copies IF I decide to rescue them from obsolescence.

Prince and Princess don’t have to worry about these kinds of things – oh to be a bird!

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