jmgoyder

wings and things

Food, glorious food

One of the things I often say to Anthony, when I am leaving him to come home, is that I am going grocery shopping. As he was, and still is, a great lover of food, our grocery conversations often flow like this:

Me: I need to go to the butcher shop before they close. Do you want me to get some steak?

Anthony: Yes but not, not ….

Me: Not T-Bone?

Anthony: Fillet.

Me: But I love T-Bone! Why do you always insist on fillet?

Anthony: Better value.

Way back when Ants was home and still fit, his method of cooking steak on the barbecue was absolutely brilliant. He had it down to a fine art and wouldn’t let anyone help. The steak was always absolutely mouthwateringly delicious (as were my accompanying salads of course!) Apart from our many merry guests over the years, the only additional accoutrement was hot English mustard; wine and beer were a given.

Oh how I miss those days!

Anthony’s dementia means he is spared from the kind of nostalgia I feel because ‘those days’ are still here somehow and this afternoon he happily sent me off to the butcher’s for tonight’s steak.

He doesn’t know that, while one of the wonderful carers is feeding him his dinner right now, I am home, steak-less but smiling with these very happy food memories….

And eating yesterday’s popcorn!

 

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The outings

It became impossible a long time ago for me to take Anthony home, or out for a drive etc. because he is just too immobile. But one of his many nephews, Michael, makes a point of coming down from Perth regularly and actually enabling such an outing.

Michael always liaises with me about what time of day, and we make a tentative plan. So, a few days ago, Michael arrived promptly at 10am and, with the help of one of the nurses, we got Ants into Michael’s car and drove down to the Dome cafe.

Over the years, this has been a regular occurrence and I love it because, without physical assistance, I can’t get Ants out and about but Michael makes this easy. It is a fantastic gesture and each of those mornings in Michael’s car, with all of us sipping coffee and Anthony gobbling his own, and Michael’s cake or biscuit has left an imprint.

Thank you, Michael.

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Dementia dialogues

I was writing these snippets on Facebook but, now that I’m having a break from Facebook (because I keep getting confused about what I have written where!) I’m just writing them here.

As I was trying to reposition Ants in his armchair the other day, this was our conversation:

Anthony: You’re such a great big thing aren’t you.

Me: What? How dare you!

Anthony: Well you are!

Me: That’s only because you’ve become a tiny little dandelion!

Anthony: Yes, but I have power.

Me: Oh you do, do you?

Anthony: You still love me.

Well, he does have a valid point!

 

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Shenanigans

I remember the day, decades ago, when I discovered an enormous spider in the kitchen of Anthony’s house. Anthony was milking the cows and his mother, who we all called ‘Gar’, was having her afternoon nap, and I was trying to get the lumps out the white sauce I was trying to make on the Aga, to mix with the tinned salmon. I was nineteen and, even though I’d lived in Papua New Guinea for three years and I wasn’t afraid of spiders, I thought it best if I killed this particular giant.

So I found the fly spray and used almost the whole can to crumple the spider onto the kitchen floor. It died simultaneously with the white sauce which I only just rescued the Aga from (another story).

When Anthony came in from milking, I told him about my heroics proudly. He was aghast.

Anthony: You killed Martha?

Me: What do you mean?

Anthony: Martha is our pet spider, Jules.

Me: Oh no, I’m so sorry.

Anthony: Mum will be devastated.

Me: But you didn’t tell me you had a pet spider. Why didn’t you tell me?

Anthony: Where is she?

Me: Your mum? She’s resting.

Anthony: No – where is Martha?

Me: I’m so sorry but I put her into the outside rubbish bin. (I begin to cry).

Anthony: Jules – I am kidding!

Okay, so over 35 years later, I am sitting next to Anthony in the nursing home and he is boringly slumbery, so I put my face up close – nose to nose – and shout “Wake up!” His eyes open but he doesn’t focus. I keep my face close to his and all of a sudden he launches up in his armchair with an unexpectedly loud “BOO!”and nearly head-butts me.

Me: You scared the hell out of me, Ants!

Anthony: That was the desired effect, my dear.

 

 

 

 

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Trickery

Ming has a new job at a different restaurant but has been called in so often over the last few days that he hasn’t had time to wash the one white shirt and blue apron he was given.

He is not just fiercely independent, he is ferociously independent, so all of my offers to wash these items have been rejected.

But this morning he has gone to Perth by train to pick up a second-hand ute (truck) we’ve bought to replace our old unregistered one. He will be back by noon.

So I have a window of time in which to secretly wash and dry the shirt and the apron (separately of course). The shirt is now nearly dry and the apron is in the washing machine.

Once both items are clean and dry, I will have to fling them onto the chair where Ming left them last night, so that he won’t suspect.

Wish me luck!

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Elton John

Elton John made a guest appearance on one of those daytime shows  yesterday and so I put the volume of Anthony’s television up. As soon as Elton starting performing, Anthony began to wave his arms and tap his knees.

Me: You should be a conductor!

Anthony: Yes, I’ve been told that before.

I love these moments of hilarity!

 

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Uncanny

Today I arrived at the nursing home in time to feed Ants his lunch after which he also consumed three chocolate bars – a Cherry Ripe, a Boost, and a Mars Bar (thanks, Mel!)

He chewed through all of this chocolate slowly – very slowly!

Me: Are you chewing every mouthful one hundred times?

Anthony: Yes, because I am enjoying it one hundred times.

But that’s not the point of this post. Even though Anthony’s previously loud voice has become such a whisper, this is what he said next:

Anthony: I can’t stop thinking about what X said yesterday.

Me: What? Was X here?

Anthony: Yes and he said “Where is Julie; we need Julie.”

And Ants actually repeated this a couple of times, and was adamant that X had said these positive words about me. So, whether Ants is deluded or not, I choose to believe it.

Good.

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Impasse

There is always a dilemma when you want to write a story that might hurt other people the way the story’s reality has hurt you.

Recently, I have wrestled with how to reconcile forgiveness with writing the truth of my decades-long relationship with Anthony, including all of the pitfalls.

The “love story” and “once upon a time” posts began to retell a story that has already happened. But, as soon as I ventured into writing the ugly bits of the story, I received some pretty nasty flak; some advice to be careful what I write;  and, paradoxically, some encouragement to keep writing the story; etc.

So, in order not to upset people, I’ve decided to continue writing this story on a different blog – an anonymous platform – from which I can divulge, in story-telling detail, the truth.

In the meantime, this blog will remain positive.

 

 

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Extraordinary!

Ever since I described Anthony as being in “good physical health” on my blog, which seems an hilariously ironic way of describing someone who has just turned 80, is living in a nursing home, with more diseases than I can count on one hand, Anthony has been remarkably fit!

It has been an extraordinary few days with Anthony walking (with his walker of course, and accompanied by carers), and talking with a bit more gusto, and smiling widely with the various staff who come and go from his room.

Today, my mother visited us in his room and it was such a delightful day. Even though Ants often refers to the mostly female staff as “those guys” he still gets a real buzz from the way many of these beautiful women flirt and banter with him.

Apparently Ants has been walking better and doing physiotherapy and occupational therapy better and he even demonstrated some arm exercises with the OT today in our room. It was hilarious and I am so grateful for these people who really do care about him!

Of course, he isn’t getting better. That would be, physiologically, impossible, but his extraordinary liveliness this week has been such a buzz. I know I’ve said this before, but Anthony is the most resilient person I have ever come across; he never complains even when I say no to his requests to come back to the farm (often his childhood farm, not this one). He accepts the status quo, accepts his health problems, accepts that when I leave to go grocery shopping and he says, “don’t be long, Jules”, I am not coming back until the next day. And this almost never comes back to bite me.

This afternoon, one of the OTs said Ants was, as always, invited to “Happy Hour” (a monthly event in the common room). His response was a perfect representation of how extraordinary and funny he is:

Anthony: Is that with all the old people?

Me: Yes, but it could be fun; we’ve done it before, remember?

Anthony: Do I have to?

Me: No, of course not!

Anthony: They’re all so old so no thanks.

And I am reminded again of the best gift Anthony gives me, not every day but often enough – laughter.

 

 

 

 

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Who am I?

No matter how prepared for it you are, it still comes as a shock when a person you love stops recognising you.

When Ming dropped in to see Anthony on his way home the other day (it was early evening), Ants didn’t know who he was but guessed that it might be S, his youngest nephew.

I told Ming not to take it personally and that lately Anthony sometimes disassociates me from Julie and will ask me where she is. This lack of recognition doesn’t hurt at all because I have been half expecting it anyway and it is very easy to convince Anthony that I am Julie. But of course Ming was, understandably, hurt and perturbed.

In this final phase of Parkinson’s disease dementia, Anthony is experiencing paranoia, delusions, hallucinations and extreme confusion. Now that he has so much trouble speaking (physiologically and cognitively), I am getting better at listening to his whispered fears.

Anthony: Watch out for those boys.

Me: They aren’t boys – they are the nurses looking after you, Ants!

Anthony: Are you sure?

Me: Yes!

Yesterday it was me, my mother, Ming, and multiple staff, popping in and out of his room, enabling his grin but, after individuals left, Anthony would ask, “Who was that?” – even about people he has seen daily for years.

It is quite possible that one day I will go in to see my husband and he won’t recognise me, but I have decided not to worry about that day. He is still in good physical health (well for an 80-year-old!)

And even if he doesn’t recognise us as us, he will still want Ming’s boisterous hugs, my double-handed hand holding, my mother’s silent knitting, and the banter of the staff at the nursing home.

Who am I?

I am the person who reassures Anthony that the farm is going well, that the money situation is fine, that the cows are being milked by an amazing team, that there is plenty of kerosene for the Aga, that his mother is fine, that I will buy a mango for tomorrow….

 

 

 

 

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