jmgoyder

wings and things

Imagined conversation 33

Me: I have another little surprise for you.

Anthony: Kill me softly.

Me: You really need to see the sarcasm therapist again. Anyway, one of my blog friends is an artist and she’s agreed to work with me on a book of our dialogues.

Anthony: She must be mad!

Me: No, she is really sane and she ‘gets’ you. She has already sent me examples of how she might draw you. And me. Our interactions. Before and after. And it’s perfect.

Anthony: Before and after what?

Me: Your death. Oh and by the way can you please let Marion know that he would be great for the role but I need actors who are actually still living.

Anthony: Noted.

Me: I think I have entered a new phase.

Anthony: Surprise me.

Me: You are dead and I am just conjuring you with these imagined conversations.

Anthony: I’m still with you, Jules.

Me: In my memory, in my consciousness, yeah, but you’re also gone and I am so sick of feeling so sad.

Anthony: So don’t feel sad.

Me: How?

Anthony: Write.

 

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Imagined conversation 32

Me: Ants, guess what? I found out about this film writing competition yesterday that had a deadline of midnight last night so I worked all day on my submission – it only had to be a few pages of script, with a synopsis and….

Anthony: Steady on, Jules….

Me: I only had five pages to write the script of your life and death, our love story, and to convey what dementia is like.

Anthony: Let me guess. Am I your dementia figurine?

Me: Stop it! This is important. If I am successful I’ll get to work with professional scriptwriters and get flown to Sydney. It could be such a great opportunity to get my message out there.

Anthony: Your message?

Me: About how dementia doesn’t have to be this terrifying, tragic thing – that it is possible to have fun with dementia. Oh, I don’t know, Ants – I’m still figuring it out.

Anthony: Are you going to admit that you lied to me about me having it – dementia?

Me: I did NOT lie to you, Ants – I just didn’t tell you.

Anthony: Well I think that’s pertinent.

Me: Oh, okay, thanks!

Anthony [talking to someone else]: Yes, she gets like this sometimes.

Me: I heard that!

Anthony: Sorry, Jules, just having a chat with Saint Somebody about your script. She thinks it’s a very good start.

Me: You do realise that if I write a movie about you, I will actually be the main star as the patient, long-suffering, dedicated wife?

Anthony: As you wish.

Me: What? Don’t you mind not being the main star?

Anthony: Marion said he’d play my part.

Me: Marion? Who’s Marion?

Anthony: John Wayne. We’ve become friends. His mother wanted a girl; it’s complicated.

Me: And I thought it was me going crazy – it’s you!

Anthony: Jules?

Me: Ants?

Anthony: Write the script – write the movie. You are on the right track.

 

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Imagined conversation 31

Me: I haven’t wanted to talk to you lately.

Anthony: I noticed.

Me: Ever since talking to the headstone people I just kind of wanted to run away from the situation.

Anthony: What situation?

Me: Your death.

Anthony: Oh, that – yes.

Me: I’ve gone past the nursing home a few times now, on my motorbike lessons, and it always gives me a bit of a jolt. I saw a photo of you and C. at the nursing home and it shocked me to know that was only months before you died. I keep wanting to see you; it’s horrible, like a yawn of yearning. I’m not trying to be poetic either – it feels like the middle of me is doing this yawwwwwwn thing all the time.

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Anthony: Am I boring you?

Me: Very funny, not. Not that kind of yawn – the kind where you need more oxygen. Isn’t that what a yawn is?

Anthony: [Silence]

Me: And then a gaspy thing happens and I can breathe again and then, finally, I can cry.

Anthony: Why do you want to cry?

Me: I don’t want to cry really but sometimes when I nearly cry and the tears don’t come I feel like forcing it.

Anthony: I’m listening.

Me: Other times one of your favourite songs comes on the car radio and crying just happens. It happened earlier today.

Anthony: I’m sorry I left you in the lurch, Jules.

Me: Sometimes I wish I hadn’t loved you so much. I let you mean too much, Ants – you had become my whole world. Maybe that wasn’t healthy, maybe that’s why I feel so lost now without you.

Anthony: Jules, do you realise what rubbish you are talking? Look at all of the things you are accomplishing now – the motorbike licence, the kayak lessons, the film script idea, helping Ming with his psychology diploma, the volunteering. You are not lost without me.

Me: I feel physically sick, like I am going to vomit, a lot of the time.

Anthony: But you’re free now, Jules. You should make the most of it.

Me: How? Anyway, I never wanted to be free of you!

Anthony: Never?

Me: Not once and I’m pretty sure I’m being honest here.

Anthony: I ended up needing you too much didn’t I.

Me: Sort of. Yeah, okay, I didn’t like that feeling of being so needed I guess.

Anthony: You just need to get your strength back, Jules. Do some aerobic exercise. It does wonders for the body and soul.

Me: WHAAT?

Anthony: Swimming, cycling – keep it up, Jules. Don’t give up – oh and the meditation is also useful.

Me: [Silence]

Anthony: I’ve shocked you, haven’t I.

Me: Yes! Are you being tongue-in-cheek or genuine? Meditation? I can’t believe that word actually came out of your cynical mouth.

Anthony: OM

Me: OM?

Anthony: Feeling better yet?

Me: Actually, yes.

Anthony: All right, so, whenever you don’t feel like talking to me, just OM me and I’ll OM you back.

Me: OM?

Anthony: OMMMMMMMMMM

Me: [Laughing]

 

 

 

 

 

 

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Imagined conversation 29

Anthony: Can’t you sleep?

Me: No, it’s the third time in a week. I mean it’s still only midnight but the last couple of times, it was almost 4am before I felt tired enough to go to bed.

Anthony: That’s no good, Jules.

Me: I don’t really mind. It’s not anxiety or anything. I guess I’ll just watch Netflix.

Anthony: You like your thrillers don’t you.

Me: Yep.

Anthony: Well don’t stay up too late or you’ll look haggard when you get up.

Me: Haggard? What do you mean by haggard!

Anthony: I overheard you talking to your mother about how you were worried about looking so haggard after my demise.

Me: Yeah, but I was telling her that my phase of worrying about looking haggard was over and now that I don’t worry about it, I don’t seem to look haggard anymore – weird. See, here is me with A. today. I don’t look so bad after all. I don’t even mind the wrinkles now.

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Anthony: Well, the kid’s cute. He suits you. Maybe you should have another baby.

Me: Droll.

Anthony: Do you ever wish we’d had another one?

Me: Every now and then but Ming is enough.

Anthony: My thoughts exactly.

Me: He is pretty wonderful. The other day he said to me, “Hey, Mum, let’s have another look at you,” as I was heading out. So I turned back and he said, “You look great!”

Anthony: Sounds like the kind of thing I would say.

Me: He says that kind of thing every single day.

Anthony: Are you sure all this vanity is good for you?

Me: Well it beats the hell out of running, panic-stricken, away from the bathroom mirror.

Anthony: I notice you haven’t replace the fluorescent light in there.

Me: Mmmm.

Anthony: Don’t forget all the complimentary things I said to you, will you.

Me: Like….?

Anthony: I recall calling you a gorgeous creature more than once.

Me: Not sure about the creature bit.

Anthony: You know what I mean.

Me: I sometimes miss the way you lit up when I arrived at the nursing home.

Anthony: Now you’re really flattering yourself.

Me: But you did! Even the nurses said so.

Anthony: I put a lot of effort into that.

Me: What rot. You were overjoyed every time and you’d always think that it was magic, and that you’d somehow conjured me up.

Anthony: Poor old fool.

Me: No, you were a beautiful old fool.

Anthony: Thanks.

Me: You know what I mean.

Anthony: One thing though….

Me: Yes?

Anthony: You do need lipstick.

Me: OMG, the feminists will be onto you.

Anthony: But it’s true.

Me: I’ll have to ponder that.

Anthony: Do that. Pondering is something I’ve become quite good at and I think you’d like it.

Me: That’s quite profound actually, Ants.

Anthony: I ponder to please.

Me: (Smiling)

 

 

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Imagined conversation 28

Me: You know that guy I was telling you about – the one in the nursing home who reminds me of you?

Anthony: You mean my nursing home?

Me: No, I can’t bring myself to go back there – yet. I’m talking about the nursing home where I volunteer.

Anthony: So who’s the guy?

Me: His name is K. and I thought he was around your age but one of the nurses told me he was 97!

Anthony: And he reminds you of me?

Me: Yes. It’s uncanny!

Anthony: Thanks a lot. Such a wonderful compliment – not.

Me: Well he doesn’t look a day over 81, Ants. Sorry. He’s got the same starey eyes and the same slow smile; he even seems to have a wittiness like yours. When I asked him how he was the other day, he said he was 150 years old. It was just like the kind of thing you used to say – so funny.

Anthony: Is he sexy like me?

Me: No, for God’s sake, Anthony. Don’t be so ridiculous!

Anthony: Well, I was just wondering.

Me: He’s crazy about Pip.

Anthony: That’s all right – as long as he isn’t crazy about you.

Me: I told him about you dying and he said his wife had died too and we had a bit of a sad moment.

Anthony: You do realise that I’m not 81 anymore, don’t you.

Me: How does that work?

Anthony: Not sure but I feel extraordinary well.

Me: That makes my heart get all warm and toasty. Remember how you used to say that?

Anthony: Plagiarism!

Me: The other day, P. said I should find another beau.

Anthony: What?

Me: Don’t worry, I told him that I’d had the best and there was no topping that.

Anthony: You can tell P. from me to bugger off.

Me: I’ll be more polite.

Anthony: You can quote me on that, Jules, with my blessing.

Me: Oh, so I say, “By the way, P., Anthony told me to tell you to bugger off with his blessing.”

Anthony: That sounds about right.

Me: He won’t believe that I was talking with you.

Anthony: That’s his problem. Anyway back to the old chap, K., if he’s 97 he must be pretty close to the end.

Me: Yeah, he doesn’t look so wonderful.

Anthony: Shake his hand for me.

Me: Why?

Anthony: It seems like a reasonable thing to do.

Me: Okay, I’ll do that. I think he’ll understand.

Anthony: He will. Tell him I’ll keep an eye out for him when the time comes.

Me: Wow, that’s nice of you.

Anthony: You seem to have forgotten what a splendidly marvellous person I am.

Me: I haven’t forgotten.

Anthony: That’s good then.

Me: G’night, Ants.

Anthony: G’night, Jules.

Me: I adore you.

Anthony: Perfectly understandable.

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Imagined conversation 27

Me: You know these conversations that we’re having?

Anthony: Yes, I do.

Me: They’re rather wonderful aren’t they.

Anthony: They certainly help to pass the time of day.

Me: Master of the understatement aren’t you.

Anthony: I try.

Me: What I like best is that you don’t have dementia anymore.

Anthony: What are you talking about? I never had dementia.

Me: Well, okay, you must have forgotten.

Anthony: You talk a lot of rubbish sometimes.

Me: That’s what I used to say to you – kindly.

Anthony: What’s your point?

Me: It almost feels like we are time travelling backwards and a bit forwards but mostly backwards. In a good way. I’m remembering all sorts of things – conversations and your wit.

Anthony: I like to have my wits turned on.

Me: You never really lost that did you.

Anthony: I never really lost anything actually.

Me: Sometimes, when you said really crazy things, I used to think maybe you were pulling my leg.

Anthony: I was.

Me: No you weren’t.

Anthony: Have it your way.

Me: No need to get huffy.

Anthony: I’m not but I don’t like you saying I had dementia. Horrible word.

Me: But you did have it. I just never told you.

Anthony: Well maybe a little bit.

Me: No, a lot.

Anthony: Bull.

Me: I thought heavenly creatures like you basked in the truth.

Anthony: I’d rather do a dare.

Me: Okay, I dare you to acknowledge that you had dementia.

Anthony: Entrapped. Okay, okay, you got me.

Me: I thought it was fantastic that you didn’t know.

Anthony: A blessing in disguise?

Me: Exactly.

Anthony: It must have been hard on you.

Me: I guess so, to begin with, but I got used to it. I got used to you with dementia. It didn’t scare me at all but it probably would have scared you if you knew.

Anthony: It was bloody beautiful of you not to tell me.

Me: Remember how you would get confused and I would reassure you that it was just the Parkinson’s disease?

Anthony: Yes.

Me: Well that was instead of telling you it was dementia.

Anthony: I heard you tell someone the other day that we made friends with dementia. Clever.

Me: That’s what it felt like. It was sort of whimsical and we even had fun with it.

Anthony: With what?

Me: With the dementia. In retrospect.

Anthony: If you say so.

Me: Come on. Admit it.

Anthony: Okay. Yes, you’re right. I’m so sorry, Jules. It must have been ghastly.

Me: No, it wasn’t. It was still you.

Anthony: It’s good what we have isn’t it.

Me: It’s the best thing on earth.

Anthony: And in heaven.

Me: Bloody hell! Okay, Amen.

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Anthony: Amen.

 

 

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Imagined conversation 24

Me: Tomorrow it’ll be exactly eight months since you died.

Anthony: I notice you haven’t been talking to me as much lately.

Me: I know. Sorry, I’ve been busy – really busy.

Anthony: That’s good, Jules and no need to apologise.

Me: I’m not over you or anything like that but the grief seems to have eased up a bit.

Anthony: Don’t forget me though.

Me: That would be absolutely impossible. I live in your house.

Anthony: Our house.

Me: Okay, our house but actually, technically, it’s still just your house because we never got around to the whole joint ownership thing. Your estate is still being sorted and then it’ll actually be my house – so weird.

Anthony: Yes.

Me: Everything here reminds me of you.

Anthony: That’s as it should be.

Me: Ha! That ghastly pink enamel teapot that doesn’t match the red Aga … little things like that remind me of you.

Anthony: You’re not going to sell up are you?

Me: No, of course not. It would break your heart wouldn’t it?

Anthony: I have a slightly different perspective on that now.

Me: I guess I do too. This place stopped meaning as much to me when you went into the nursing home.

Anthony: And now?

Me: Well, nothing really means as much to me now. I put on those boots you gave me today – you know the long ones with black rubber feet and brown leather up to the knees? I wanted to come straight into the nursing home to show them off to you with my new jeans and jacket and then I felt a bit sick when I remembered. That hasn’t happened for awhile.

Anthony: So what did you do?

Me: I got dressed up anyway.

Anthony: That’s my Julie.

Me: I don’t think I should sell up. Ming loves it here.

Anthony: You don’t have to decide yet do you?

Me: No.

Anthony: You sound low.

Me: Not really – just getting used to this gentle grief. I kind of miss the searing grief; it’s more solid.

Anthony: Can’t help you there, Jules.

Me: Do you miss me?

Anthony: Yes, it’s kind of boring here without you.

Me: Same here.

Anthony: I think you are absolutely marvellous, Jules.

Me: Where did that come from?

Anthony: Straight from the heart.

Me: It’s so strange to love someone so much when the person is dead.

Anthony: Who’s that then?

Me: You, you idiot!

Anthony: But I’m still here.

Me: I know that but I just wish I knew where here was.

Anthony: Here is here.

Me: Okay – so you are here, and here is here. Thanks, Ants.

Anthony: You’re welcome. Oh, and Jules?

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Me: Yes, Ants?

Anthony: You won’t get rid of that teapot will you?

Me: No way!

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Making friends with grief

I have learned so much about grief through my imagined conversations with “Anthony deceased” (as he is described in some legal documents I had to sign the other day) that I thought I’d share them here.

One of the things I’ve discovered is that if I wake up to what I know is going to be a day of acute grief, there is no point trying to evade it (one of the things I was trying to do). Now what I do is sort of greet it kindly, not exactly in a “Hi Grief” kind of way, more in an accepting way, almost as if it is a friend. After all, my grief about Anthony’s death, personified, has more empathy for me than anybody else possibly can.

In a way, the imagined conversations are a way of addressing Grief directly if that makes sense (if you are not sure what I mean then rest assured that I’m not really sure either!) Every time I write one of these conversations, even the ones that were a bit contrived and didn’t really flow) it helped somehow. I fought against doing it for awhile because I didn’t want people to think I was going nuts. I also didn’t want to become dependent on these conversations on a daily basis, to the preclusion of other more ‘normal’ daily activities. But I don’t care about either of those things now. Writing these conversations has often been fun and is sometimes quite enlightening.

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During a grief workshop I attended recently, Pat Kelly, a grief counsellor https://www.facebook.com/pat.kelly.18488169, pointed out that there is no one way of grieving. I found that very comforting in light of the imagined conversations I was/am writing because these have helped me more with my grief than any amount of kayaking, motor-scootering, cycling, swimming, socialising and volunteering (yes, I have been busy) have. All of these activities have helped enormously of course, but writing down conversations I imagine having with a now-well Anthony has been magical.

In re-conjuring Anthony’s voice as a younger, fitter man I have remembered all sorts of wonderful things that I’d forgotten – our holidays down south when Ming was young, our debates about whether animals went to heaven, our private jokes, our delight in the moonflowers blooming, his passion for motorbikes and classic cars, the parties, and so on. I’ve remembered poignant moments and sad times as well but mostly ‘talking’ with him has been a joy. I used to tell him everything even when he became less able to converse so, during the nursing home years, I sort of forgot about the way we used to talk and talk and talk. Remembering these conversations has been like a gift.

Making friends with Grief in this manner reminds me of how I ended up making friends with Dementia. In doing so, a lot of the associated fear diminished and a feeling of wellbeing returned.

I suppose since it’s my grief, after all, I am kind of making friends with myself again too. I’ve been working on that anyway with my wonderful psychologist, Daniella Princi https://www.facebook.com/yourintrinsiclife/ whose program has provided me with all sorts of interesting tools for living my life the way I want to live it.

One thing I know for sure is that Anthony would be proud of the way I am coping with his death and he would be chuffed to think I am pretending to converse him still. He was always very accepting of my idiosyncrasies, as I was of his.

Me: I’ve sort of made friends with the grief now, Ants.

Anthony: Good on you, Jules.

22 Comments »

Imagined conversation 21

Anthony: Didn’t you already write this … twice?

Me: Yeah, I know, but Ming doesn’t want to be part of these conversations, Ants, so that was a bit unwise on my part.

Anthony: Why?

Me: Well, it’s difficult enough recapturing your pre-dementia voice without also trying to invent Ming’s might-be voice when he isn’t the slightest bit interested.

Anthony: That’s my boy.

Me: Exactly. You see what I mean, then. These imagined conversations become really contrived if I include him and he….

Anthony: So, Ming has moved on?

Me: Well, I think you know the answer to that, Ants; Ming moved on a few years ago, before you even went into the nursing home. He did try.

Anthony: Why would you think that I would want my teenage son to hug me when I couldn’t hug him back?

Me: I just wanted you to know how much he loved you, Ants.

Anthony: By forcing him?

Me: Okay, I get it and I’m sorry. I get it now.

Anthony: Jules, there is absolutely nothing to worry about. Ming knows me and I know Ming.

Me: So should I just leave you guys alone? Is that what you mean?

Anthony: Just leave him alone, Jules, and let these conversations be just between you and me. It’s easier that way.

Me: I feel a bit stupid now to have contrived those last two dialogues, with a pretend-Ming. Plus he gets so angry when I try to do that.

Anthony: So why do you do it?

Me: Because I want it all back, Ants! Can’t you understand that? I want the three of us back together ten years ago before you got so bloody sick!

Anthony: Jules?

Me: What now?

Anthony: You can’t have it back – it’s gone. Ming understands this and it’s time you did too.

Me: And now you sound like all of those people I want to smash who say “isn’t it about time you moved on?”

Anthony: But isn’t it?

Me: Sometimes I really HATE you for dying. I absolutely HATE you!

Anthony: I know, but….

Me: Yes, of course you know, don’t you, you smug, supercilious, heavenly bastard – I am so angry I can hardly function, Ants; I want to kill the world.

Anthony: You don’t mean that.

Me: That has been your pat answer for anything remotely dramatic I have ever said. Stop always trying to shut me up!

Anthony: Jules?

Me: Now what?

Anthony: These conversations are coming to an end.

Me: Why? What did I say wrong? I’m so sorry, Ants – I didn’t mean any of it and of course I don’t hate you….

Anthony: Ming has already done it.

Me: Done what? What, Ants?

Anthony: Ended it.

Me: But….

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Imagined conversation 20

Anthony: Who are all of these men you keep thinking about?

Me: Will you please STOP reading my mind like that; it’s so disconcerting!

Anthony: Well, who are they?

Me: If you can read my mind, surely you know who they are.

Anthony: But I want to hear it from you, Jules.

Me: Okay, they are just a bunch of CEOs, film executives, producers and….

Anthony: I don’t like it.

Me: What? I thought you’d be proud of me!

Anthony: [potent silence]

Me: Oh. My. God. Are you actually jealous? I can’t believe it. Yes, you are jealous, aren’t you!

Anthony: Well I am a bit, actually. I don’t want you to want them to like you; it doesn’t feel right.

Me: Ants, there is absolutely nothing romantic going on, I can assure you. It’s you I want them to like, not me!

Anthony: That’s good then.

Me: So are we clear now?

Anthony: Sorry, Jules. I just don’t want to lose you.

Me: You couldn’t lose me even if you wanted to, Ants.

Anthony: So what do all of those guys think of me?

Me: They think you are wonderful, Ants – absolutely wonderful! Star material!

Anthony: You are so full of BS Jules.

Me: I’m meeting one of them tonight for cocktails because….

Anthony: For God’s sake, Jules – don’t do anything stupid.

Me: Gotcha!

 

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