Thanks Ming (Menzies Goyder) for always reminding me of your dad, Anthony. You have the same larger-than-life presence, the same laugh, the same booming voice, the same gregariousness. The other day, when you sat in your car for ages before coming in, it reminded me of how Ants used to do the same thing and it used to drive me mad! Your love of loud music, dancing, your easy-going nature, and your love of me … the saddest thing for me is that you never really knew Anthony the way he was because he began to get so sick when you were just a baby – one disease after another. In a few hours it will be the second anniversary of his death. Thank you for being with me that night and thank you for your support ever since. I am choosing to spend today alone because the memory of that night, when Ants pushed my hand out of his and we went outside and then, five minutes later, he died, still haunts me. You have been my rock (well, mostly!) and not only do I love you for being you, but I also love you for being so much like Anthony. Best son anyone could wish for. And you gave him such joy!
A note to our son, Ming, on the second anniversary of Anthony’s death
by jmgoyderAlzheimer's Disease; Dementia Anthony death death and dying dementia Family father Grief Happiness Humour joy laughter lonely LOVE STORY Marriage Menzies Goyder/ 'Ming' Mother Parkinson's disease Parkinson's disease dementia PURPOSE Wings
Imagined conversation 76: the wording on your headstone
by jmgoyderMe: The red speckled granite for your headstone has arrived and now Ming and I just have to finalise the wording and….
Anthony: Just keep it simple, Jules, don’t exaggerate.
Me: So do you want me to get rid of the header – The most beautiful man in the world ?
Anthony: No, that’s pretty accurate – keep that in.
Me: Noted. Okay, so then I want the inscription to say, succinctly, what you meant/mean to Ming and me, so I am tossing up between words like beloved, cherished, adored.
Anthony: All very apt but….
Me: Yes, I know you would really like the word worshipped in there but that doesn’t sit comfortably with me because I think it was you who worshipped me first and not the other way around.
Anthony: I beg to differ. You worshipped me first, Jules.
Me: Shut up! I thought we agreed that it was mutual years ago and anyway I don’t like the idea of worship because it implies godliness and you are the most ungodly person I have ever met.
Anthony: You keep forgetting where I am, Jules, so please refrain from the ungodly references.
Me: Okay so this is what I have so far: The Most Beautiful Man in the World/ Anthony Barr Goyder 1936 – 2017/ Admired and Respected by all who knew him/ Adored husband of Julie/Beloved father of Menzies. All of these little phrases are on separate lines on the headstone of course. What do you think?
Anthony: You do me proud, Jules.
Me: I still want to have a sort of punchline, like Unforgotten or Unforgettable but the first one has horror movie connotations and the second implies comedy. Plus I have been advised to leave room on the headstone for a few words about me for when I die.
Anthony: Oh … yes, I didn’t think of that.
Me: Ants, we never, ever had any sort of conversations about death, dementia, funerals because you always, always thought you were getting better and I let you believe that.
Anthony: You are a great liar…
Me: I loved you too much to tell you the truth. And anyway, why didn’t you tell me you were about to die? You never gave me a hint; you were in one of your slumps.
Anthony: I didn’t know I was going to die either, Jules.
Me: I thought you would overcome the slump, do another Lazarus, return to our ever-evolving new normal….
Anthony: It was a shock to me too, Jules.
Me: I am so glad that I nearly have your headstone done and dusted because it has been sort of haunting me in an unfinished business sort of way.
Anthony: It doesn’t matter, Jules….
Me: Yes it does, Ants.
Anthony: I am gone, Jules.
Me: No, you are not gone, Ants – you are here.
Ants and Gutsy 2013?
Alzheimer's Disease; Dementia Anthony banter blogging death death and dying dementia depression dreams Embarrassing moments Family father Friendship Grief hallucinations Happiness Humour joy laughter lonely LOVE STORY Marriage memories Menzies Goyder/ 'Ming' nightmares nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE Wings
Imagined conversation 75
by jmgoyderMe: Picture this, Ants.
Anthony: Picture what?
Me: Well, it happened on the very day I had decided to dress nicely even if just home alone (a psychological trick I have been teaching myself lately to boost my sense of wellbeing).
Anthony: And?
Me: D and J dropped in unexpectedly and I was still in my pyjamas.
Anthony: So what?
Me: It was 2pm. Also, the grass was neck-high due to the fact that the lawnmowing family hadn’t been able to come for awhile, and there were two rabbit corpses at the front door.
Anthony: So what?
Me: I was embarrassed!
Anthony: What did Ming say?
Me: Ming said he was embarrassed by me being embarrassed and that I should stop saying sorry.
Anthony: Sorry for what?
Me: Exactly.
Anthony: Are you okay, Jules?
Me: Yes and no, Ants.
Anthony: Everything will be fine, Jules.
Me: The moonflower had to be cut down recently, Ants, because of the root problem; it was entangled with the un-killable camphor laurel, both of which were attacking the foundations of the house!
Anthony: Being in heaven has given me a new perspective so it is fine with me.
Me: I will never, ever forget the day you took my hand for the first time and rushed me outside to look at the moonflower blooming. At the time I didn’t care at all about the flower; I was too amazed by the shock of my hand in yours.
Anthony: I remember, Jules.
Me: One of my favourite memories, Ants, despite the various difficulties that followed….
Anthony: I miss you, Jules….
Me: And I miss you, Ants, plus I am trying to keep the farm looking good and myself groomed etc.
Anthony: If you do something with your hair, everything will be fine, Jules.
Me: Arghhh!
Alzheimer's Disease; Dementia Anthony banter blogging death Embarrassing moments Family father Grief Happiness Humour joy laughter lonely LOVE STORY Marriage memories Menzies Goyder/ 'Ming' Parkinson's disease dementia PURPOSE Uncategorized
Imagined conversation 74
by jmgoyderMe: I am losing track of the conversations a lot, Ants, now that they are diminishing in frequency.
Anthony: Oh how my soul is wounded, Jules – please don’t leave me!
Me: Very funny, Ants, but just a reminder – you are the one who left. Anyway, the weirdest thing has happened; sometimes I go several days without thinking of you at all.
Anthony: Good grief!
Me: Well actually it probably is, literally, a good kind of grief because I am smiling and laughing more easily again and sometimes I feel a little bit high!
Anthony: You are doing much better than I expected, Jules – good on you!
Me: A couple of people have even told me that I look better, and that I seem to have turned a corner since August when I just could not stop talking to you…. and crying.
Anthony: Those were brilliant conversations though, Jules.
Me: Yeah, but I went a bit blank during that ghastly anniversary-of-your-death month. Ming said my eyes went all dull or something like that.
Anthony: And then?
Me: The advent of Spring! The end of August! A sense of irrational relief!
Anthony: Relief about what?
Me: Not relief that you are gone, but relief that I am getting over the fact that you are gone.
Anthony: But I am not gone!
Me: Of course, Ants, but can we please not have a semantics argument? Ming has that kind of thing down pat.
Anthony: How is my boy?
Me: He is a man, Ants and he is so much like you it is uncanny.
Anthony: How so?
Me: Well he cleans his teeth as if he is doing some sort of contortionist display of how to get whiplash, and he stands outside the front door to urinate most mornings much to my chagrin.
Anthony: Is there anything else?
Me: Wow, Ants – how come you are still fishing for compliments when you are dead?
Anthony: Posterity, Jules, posterity! Also, the Heavenly performance assessment tool questionnaire is doing my head in.
Me: Oh! Okay, just add that you have always had a sense of fun and irony? Self confidence, healthy ego, gregarious – that sort of thing.
Anthony: Sex appeal?
Me: Is there a box to tick for that?
Anthony: No.
Me: Is there a space for description of your attributes?
Anthony: Yes.
Me: Okay you can probably wax lyrical about your sex appeal here but try to describe this more soulfully.
Anthony: What?
Me: Forget it. I am absolutely sure you will pass. Anthony?
Anthony: Yes, Jules?
Me: Every time I write these imagined conversations, I want to leap through the skin of this world and hug you.
Anthony: Your wish is my command, Jules.
Me: Okay, Ants – thank you. I forgot to say how kind Ming is and that reminds me of you too; he is your/our legacy.
Anthony: May I have the last word?
Me: Of course!
Anthony: That was it.
Alzheimer's Disease; Dementia Anthony banter death death and dying dementia depression dreams Embarrassing moments Family father Grief hallucinations Happiness Humour joy laughter lonely LOVE STORY Marriage memories Menzies Goyder/ 'Ming' nightmares nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE Wings
Lost for words….
by jmgoyderAnthony: JULES!
Me: I lost count of our imagined conversations awhile ago – sorry, Ants.
Anthony: I know.
Me: So much private stuff blogged for the world to see, Ants. I am a bit embarrassed actually, now that my grief has calmed down.
Anthony: NEVER, EVER be embarrassed, Jules! It is beautiful.
Me: What is beautiful?
Anthony: Your love for me.
Me: What about your love for me?
Anthony: Surely that is a given?
Me: I just miss you saying it to me, Ants; it took so many years for you to be confident enough to say it….
Anthony: I adore you, Jules.
Me: Nearly.
Anthony: I worship the ground you walk on, Jules.
Me: Overkill.
Anthony: I love you, Jules.
Me: I love you too, Ants.
Alzheimer's Disease; Dementia Anthony Anxiety blogging death death and dying dementia depression dreams Embarrassing moments Family father Friendship Grief hallucinations Happiness Humour joy laughter lonely LOVE STORY Marriage memories nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE
Regaining equilibrium: Imagined conversation 71
by jmgoyderAnthony: Long time, Jules.
Me: I have been keeping our conversations more silent lately.
Anthony: I know, and even those will become less as time goes by.
Me: The strange thing about the pain of grief is that it feels a lot like excitement; it is almost exactly the same sensation, like a slight punch to the stomach that sort of fizzes up into the chest – a small explosion, short-lived.
Anthony: When does it happen?
Me: Well, yesterday I was having coffee with my mother at a chocolate shop and I had the fleeting, split-second thought that I would buy you a box of the new rose-coloured chocolates.
Anthony: Bittersweet?
Me: Yes, both the chocolate and then the inevitable moment that I remembered you were dead.
Anthony: You sound more at peace; that is what I have been praying for.
Me: Since when do you pray?
Anthony: Well it comes with the territory here, Jules.
Me: Oh. Well your prayers are working. I am much more hopeful now.
Anthony: Of what?
Me: Of nothing really – just hopeful.
Illustration courtesy of Colleen at https://bikecolleenbrown.wordpress.com/
(Colleen is the friend who is collaborating with me on the book about grief).
Anthony death death and dying dreams Family Grief Happiness Humour joy laughter lonely LOVE STORY Marriage Meg memories PURPOSE
You and me: Imagined conversation 69
by jmgoyderMe: Exciting news, Ants.
Anthony: Well, it is about time, Jules. The white noise of our conversations was beginning to bore me.
Me: Yeah, same, so anyway one of my blog friends and I are going to collaborate in a project that synchronises her illustrations with our conversations.
Anthony: Which conversations?
Me: Not sure yet but probably some of the funnier dementia dialogues and maybe a few of the imagined conversations … what do you think? Here is the link to her blog:
https://bikecolleenbrown.wordpress.com/2018/08/26/figuring-it-out/
Anthony: I approve.
Me: You know, sometimes I cannot quite figure you out, in the NOW, I mean.
Anthony: C has it down pat – I am your angel now.
Me: No way am I going to think of you as my angel, Ants!
Alzheimer's Disease; Dementia Anthony blogging death death and dying dementia depression Family Friendship laughter lonely LOVE STORY Marriage memories nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE Wings
Imagined conversation 68
by jmgoyderMe: I hope you realise that these conversations are not about me feeling sorry for myself.
Anthony: Of course I do, Jules.
Me: Mostly I feel really lucky. I don’t think I understood what a rare relationship we had until after you died.
Anthony: An against the odds love story.
Me: There is no need to steal my phrases!
Anthony: You are only two years older than I was when we got married.
Me: Now that is quite weird. Your point?
Anthony: I began a brand new life at 57. You can do that too, at 59.
Me: I hope you aren’t suggesting me getting a boyfriend! Two people have already suggested that. Bleah!
Anthony: JESUS, MARY AND JOSEPH, NO!
Me: Why are you speaking in an Irish accent?
Anthony: There are a lot of Irish nuns here.
Me: Oh, okay.
Anthony: You know your idea of working on a book about grief with C as illustrator?
Me: Yes.
Anthony: Genius.
Me: Thanks for the go-ahead. That means a hell of a lot.
Anthony: No need to mention hell; it is a bit of a dirty word here.
Me: Anyway, I just wanted you to know that I am not feeling sorry for myself, just sad, missing you, and kind of wanting go back in time and re-do some of our situations differently.
Anthony: Like you boiling the marmalade all over the Aga?
Me: No, more like you telling me off for being unavailable to look after your mother just after my dad died, when I wanted to comfort my own mother.
Anthony: It wasn’t a particularly good start was it.
Me: No, and it was so embarrassing (in retrospect) for me to be so transparently in love with a man twice my age. 60 Minutes recently did a story about this, so the shock/horror of a 23-year age difference is still newsworthy.
Anthony: I know that these conversations are imagined, Jules, but there is something real about them too.
Me: I feel compelled to keep talking to you like this, at least until August is over. Ming has been amazing, and keeps telling me to tell him if I am particularly depressed, always offering me hugs.
Anthony: My son.
Me: Yes. The dogs are comforting too!
Anthony: Good night, Jules.
Me: Good night, Ants.
Alzheimer's Disease; Dementia Animal Anthony Anxiety Australia banter Birds blogging death death and dying dementia depression dreams Embarrassing moments Family father Friendship Grief Happiness Humour joy laughter lonely LOVE STORY Marriage Meg memories Menzies Goyder/ 'Ming' Mother nightmares nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE Teenagers Western Australia Wings
Your death day, August 23rd: Imagined conversation 67
by jmgoyderAnthony: Hi, Jules.
Me: Hi, Ants.
Anthony: Happy anniversary.
Me: Not funny.
Anthony: So how did my first deathday go?
Me: Unexpectedly undramatic actually. I mean the sky didn’t fall in and it was a sunny day. Ming and I went to your grave and placed camellia branches just in front of the cross with your name on it that the funeral people provided. Then I used a red ribbon to tie a little wooden sign, with your name on it, onto the wrought iron bench I had provided months ago but that other bereaved people keep moving.
Anthony: And Ming?
Me: It was his idea to come with me to the cemetery with camellias. That was our plan, then we were going to come home and watch a comedy.
Anthony: I saw what you did next, Jules.
Me: Well Ming suddenly suggested going out for lunch at the Boyanup pub so we did and it was lovely! And he paid, of course, as he always does; he is such a gentleman, like you.
Anthony: But you always called me a tight-arse!
Me: Sorry, I got you mixed up with my dad. He was generous and you were stingy. Anyway, none of that matters now, Ants. Over lunch, Ming and I were reminiscing about funny incidents and we both still crack up about watching an episode of Midsummer Murders with you in which you said something like What an extraordinarily short woman!
The woman/character you were referring to was actually sitting down (which is why she seemed short to you). This was one of many first signs that we had Dementia in our midst.
Anthony: I didn’t know.
Me: I never told you. I didn’t want to embarrass you, Ants. You knew you had Parkinsons disease but you didn’t know about the dementia aspect.
Anthony: I know what I would have done.
Me: Oh great, heavenly hindsight – how kind of you!
Anthony: I would have done exactly what you did.
Me: Okay, okay, and sorry for being a tad argumentative on your deathday, but couldn’t you have given me a bit more of a warning?
Anthony: I did! Over and over again.
Me: I know! You had these TIAs and I kept thinking your death was going to happen any minute but you kept surviving, year after year, and that is why I was not at all ready for the actuality of your death; it wasn’t on my radar, Ants.
Anthony: I pushed your hand away on purpose, Jules.
Me: Why?
Anthony: I didn’t want you and Ming to see me die.
Alzheimer's Disease; Dementia Anthony Anxiety Australia banter bullying death and dying dementia depression dreams Embarrassing moments Family father food Friendship Gossip Grief hallucinations Happiness Humour joy laughter LOVE STORY Marriage nightmares nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE
Imagined conversation 60
by jmgoyderAnthony: I thought we weren’t going to have these talks any more.
Me: You sound hurt.
Anthony: Not hurt exactly, more nonplussed.
Me: It is all the details of death that prevent any finality and, yeah, that dreadful word, closure.
Anthony: Like what?
Me: Like the stupid Probate thing – registering – via our lawyer, your Will to the Supreme Court – to prove that I am your beneficiary, executor, wife etc.
Anthony: So how are your inherited paddocks?
Me: Oh, swimmingly, Ants – the rain has been relentless! Anyway, I need some photo ID of you for this probate process and all I can find is a very scary portrait of you on an out-dated passport.
Anthony: Why is it scary?
Me: You look like a thug!
Anthony: So what happens next?
Me: Apparently, once we get past this probate thing, I will become officially entitled to everything – the house, land, your shares, your holiday house in Bermuda – everything!
Anthony: I thought you thought sarcasm was the lowest form of wit, Jules.
Me: And I thought death was simple, Ants. How could I have possibly anticipated the amount of red tape that would surround your death, or the length of time if would take for this probate thing?
Anthony: I am so sorry, Jules!
Me: Why? Not your fault but I tell you what, Ants, I am getting things clearly written and legal-easy for Ming in case I die sooner rather than later. You never know.
Anthony: You never know what is around the corner.
Me: You used to say that to me all the time in a funny way!
Anthony: Jules?
Me: Yes, oh wise one?
Anthony: Tell Ming that it is all going to be splendid.
Me: Okay. I will. And if it is all right with you, I would like to continue these conversations every now and then, for awhile.
Anthony: Good idea and I am relieved..
Me: Me too, Ants. I love you so much!
Anthony: And the whole of Heaven heaves for you too, Jules.
Me: Bleah!
Photo taken before Ants got really sick – maybe 2007?
Alzheimer's Disease; Dementia Anthony Anxiety banter blogging dementia depression Family Friendship Grief Humour joy laughter lonely LOVE STORY Marriage Meg memories Menzies Goyder/ 'Ming' Mother nursing homes Parkinson's disease Parkinson's disease dementia PURPOSE Western Australia