jmgoyder

wings and things

Gutsy 9 – my fantastic bird-in-hand

For those who don’t know, G9 is a peachick who, for some reason (maybe because she was half blue/half white) was abandoned by whoever hatched her. I caught her as she was scuttling, terrified, into the old dairy and pretty much raised her with the hands of Ants and Ming.

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Today, I decided that I would come home earlier than usual from the nursing home. I told Ants I had to go and feed the birds and dogs, and then said I would see him later.

Ants: You won’t come back.
Me: What do you mean? I always come back!
Ants: Not, yes, what car?
Me: Our car, silly!
Ants: How many calves? I need those people for the fireplace
Me: Only ten left to feed. Ming will do it. I know who you mean for the fireplace.
Ants: Are you sure?
Me: Yes, should we ring tomorrow?
Ants: You do it – something is wrong with me.

When I got home, I went straight out to find Gutsy and, as usual, she was waiting for me:

I’d like a word, Julie

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You’re always out and about and I feel ….

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Oh I think I’m going to cry – how embarrassing!

G9!

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Closure

Yes, I realize that the notion of closure is a tricky one but for me it happened when I wrote, published, then subsequently deleted, a post about the car accident, a few days ago. For the very last time.

The self-pitying self-indulgence of that post sickened and embarrassed me for a couple of reasons. Firstly, that I would mourn what-might-have-been (death, disability) when it soon became apparent that everyone would be okay. Secondly, that I know people now who have lost their children to death, so why the hell am I complaining?

Instead of rejoicing, I kept picking at the scabs of my confusion, family wrangles, guilt and blame, dead-end conversations with Ming.

It is now an incredible relief to be able to say that the accident is over and done with. Of course, I can only speak for myself, but, no matter how selfish this sounds, I am over it!

The best thing about closure is the anticipation of the next chapter….

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“Is that you?”

Today, when I arrived at the nursing home just before lunch, it was a bit like the five seconds of yesterday but this time Anthony said, “Is that you?” as if he couldn’t quite believe his eyes. I think we have now fallen into a new phase of Parkinson’s but then again Ants might just be having a bad week.

I am still surprised at how gleefully I go in every day and I’ve been trying to disentangle the complexities of why this is because it’s only a relatively recent phenomenon and I’m not quite sure what flicked the switch from the dutiful dread of a few months ago to the anticipation of now. The sense of purpose, routine, satisfaction and joy I feel now is wonderful but also a bit disconcerting!

The volunteering situation has been absolute magic. Today, Nat, Edna, Beatrice, Ants and I sat around the dining room tables after lunch was over and played Nat’s version of ‘Memory’. Edna is just in for respite – her first time – and she told us yesterday (during a similar game) that she had been extremely nervous but since meeting Nat, relaxed a bit and now they are like old friends!

So we played and here are some smatters of conversation during that hour and a half of laughter.

Nat: Tonyyyyyyy (speaking to Ants) Come on, darling, turn your cards over.
Edna: Don’t let her boss you around, Tony.
LAUGHTER
Me: Ants, turn two cards over and hope for a match.
Ants: Jules?
Me: Pick up two cards – here I’ll help you.
Nat: My turn.
Me: No it’s not, it’s my turn!
LAUGHTER
Nat: Cheeky bugger.
Me: I heard that, Nat!
LAUGHTER
Edna: Is she cheating again?
Me: Well, even though she is a really beautiful person, I did see her put a card on her lap.
Nat: I never did!
Me: (sneaking around the table to snatch the card) AHA!
HYSTERICAL LAUGHTER FROM NAT AND EDNA AND ME – ANTHONY BEMUSED
Nat: Tonyyyyyy, help me!

I can’t count how many times I’ve played Nat’s version of ‘Memory’ now, but it has become quite popular with other residents too. The best thing about it is Nat’s contagious laugh and her mischief; the best/worst part is Nat wanting Ants to join in, and the worst part is Ants unable to engage very well. Plus, Nat and Edna are nearly blind so this makes for a very sloooooow game and Nat alternates from saying “This is the most fun I’ve ever had in meee life!” to “This is the longest game I’ve ever played!”

Today, we were all exhausted, especially Anthony who often chooses not to join in or else is so peacefully asleep in his armchair that I don’t rouse him. I just leave my stuff (scarf, handbag, book) next to him so that when he wakes up he’ll know I’m still around and not gone.

I help Ants with his tea now because this is a busy time for the staff and why not? He is pretty exhausted and PDish by then so I say my ‘seeyalater’ and am usually home by 6pm.

Tonight, as I left, I kissed Anthony on the forehead and he tried to speak but even the single syllable he uttered was impossible to interpret. He could no more say “I love you” than “Is that you?”

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Resilience

I used to miss the Anthony of the past terribly – the robust, energetic, boisterous, fun-loving Anthony with the loud laugh – and I still do of course. But lately, I’ve begun to realize that I also miss (and much more-so) the Anthony of now, the Anthony who still IS. In our mutual acceptance of the way things are now – his Parkinson’s disease, the nursing home, our forced “illness separation”, and even the increasing confusion and hallucinations that accompany his dementia, I now find myself anticipating my daily visits to the nursing home with what would, months ago, have seemed an impossible excitement.

The strange thing is that the feeling of obligation to visit Anthony for his sake, has been subsumed under a desire to visit him for my sake. The contentment of these long afternoons together, punctuated here and there by volunteer work, is something I never expected to happen. Okay, so boredom, apathy and fatigue are definitely risk factors here but I’m learning how to counteract the former two by coming up with new ideas whenever something begins to become tedious (like watching episodes of Neighbours!) The latter – fatigue – has been solved by this sudden flu which means I’ve been lolling on my bed for three days reading novels and resting, not allowed to go to the nursing home in case I’m contagious. So Ming and my mother have been visiting Anthony – wonderful creatures they are!

But I miss him so much! I have become so accustomed to these afternoons, this routine – the joy of his smile at the sight of freshly picked camellias (and me), playing the card game “Memory” with him and other residents, eating olives and blue cheese with him, or giving him a piece of my latest cake, helping him with his lunch and sometimes dinner too, watching television or a dvd, combing his hair with the metal comb he always loved that I only just found (and he is thrilled!) And so on. Tiny morsels of pleasure, once overlooked, now savored, now treasured. I have never looked at a camellia the way I do now – never! I have never noticed so acutely the beauty of a white peacock feather nestled in the arms of an avocado tree’s blossoms, a tree that is still providing us with plenty of fruit!

I don’t want to sound soppy and sentimental and goopy, but I do think Anthony and I have been extraordinarily fortunate to have found such a mighty love and I sometimes wonder whether this is why we are both now coping so well with what IS. Actually no, it’s not coping, accepting, persevering, or any other stolid adjective. Instead, a wonderfully weird happiness.

Resilience: Anthony has always had this and now it is as if he has gifted it to me.

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When three is a crowd

Okay, that whole three is a crowd thing is not always the case, but, when it comes to Ming, Ants and me together now,
it
just
doesn’t
work!

There are lots of reasons for this, of course, where generational differences are made stark and raw and plain:

Ming: Mum, stop answering for Dad; let him talk!
Me: Why do you have to be so angry with me all the time!
Anthony: Stop it, you two.
Ming: He’s dribbling.
Me: (whispering) Shut up, Ming and stop embarrassing him!
Ming:(shouting) Dad, stick your tongue back in your mouth!
Anthony: (sarcastically sticking his tongue out then into his mouth) That better?

Now, the misery of this kind of three-pronged visit has been alleviated by the fact that Ming now has his own wheels again and can visit Anthony without me (as he did today and will do tomorrow because I have a cold). It is a relief to know that my absence for a couple of days is probably forgotten in the wake of Ming’s enormity of presence in Anthony’s life, mostly hallucinated or remembered but now, once again, real.

There are so many reasons why a now-20-year-old son, adored always by his mother and father, might get a little tired of the adoration at some stage and then, when the father began to get disease after disease, miss the adoration, and maybe feel a bit lost in the mayhem of his parents’ anxiety, his mother’s exhaustion, his father’s demise from workaholic dairy farmer (when Ming was born) to Parkinson’s disease patient in nursing home.

Ming starts his full-time job at the restaurant and said he will visit Ants after he knocks off tomorrow, so I can have a second day in bed, reading my book and getting over my cold.

I guess Ming and Ants have a relationship that works better if I am absent. Amen.

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Early to bed, early to rise!

Obviously it is much easier to get up early in the spring than it is in the winter so today I was able to get a lot more jobs done (just the usual domestic duties of washing and folding and tidying and cleaning that overwhelmed me a bit a couple of months ago) before going into the nursing home.

Today I arrived at 11am and found Anthony sitting outside in the sun. I managed to get him into a wheelchair and we went for a walk down to the beach. I tried this the other day but it was too windy and he feels the cold terribly, so we turned back prematurely. Today we went a bit further so, halfway back (which is uphill), I had to stop and take a rest.

Ants: Do you want me to take over?
Me: And how, exactly, will that work?
Ants: I can help you push me.

Yeah, right – grrr!

Sometimes Anthony sort of disembodies himself and will kiss his own hand, thinking it’s mine, or else turn to the left to speak to me, when I am sitting on the right. His room has a view of a lovely lawn and garden and he will often point out, proudly, that Ming is doing a great job with the calves.

I find it fascinating, and admirable of course, that Anthony keeps wanting to climb out of his illness, and incapacity, in order to help. Once we’d returned to his room from our walk today – him shivering with cold and me drenched in perspiration – one of the nurses came in to give Anthony a pill and had a bit of a rant about the staff she was working with.

Nurse: They’re so useless!
Anthony: We can help you (trying to get up).

Now that I am a volunteer, I have a bit more insight into ‘how it is’ for both residents and staff. Anthony is in the ‘high care’ section for people with mobility problems. In the ‘dementia’ section, where I help out with various activities on the weekends, most of the ten female residents are extremely mobile (we go for walks around the grounds!) but terribly confused. I have taken a liking to all of the women but especially Beatrice who is, at nearly 90, physically fit, beautifully groomed and who carries her handbag with her always. Before I volunteered, I would exchange greetings with these women and the carers and Beatrice seemed the happiest. But now that I know her better, I realize that her bright smile is due to the fact that soon her husband will be picking her up and she is always ready and, unfortunately, always extremely anxious. Her husband must have died years ago.

I am, of course, drawn, emotionally, to this nursing home where Anthony is, but I have also become involved in other residents’ lives, so much so that we have become friends. Even with dementia, where you have to introduce yourself over and over again, the friendship-feeling is solid and ongoing.

I’m extremely grateful to be able to do this volunteering at Anthony’s nursing home because it allows me to come and go from his room as if I were just going to hang out the washing, or cook tea, or make coffee – again, a simulation of sorts.

It is now six weeks since I began volunteering and a further six weeks (I think – will have to check) since bring Ants home. If, indeed, it has been this long since I brought Anthony home, then hopefully he will no longer pine for home and beg to come home – a situation that forces me to become stern and admit to him that I can no longer lift/manage him at home. His response is usually dignified but occasionally he accuses me of being unfair.

For the last couple of days I have been feeling a bit exhausted (not because of Anthony!) and I hate this feeling so maybe getting up earlier is the answer to that – yes! I have to tomorrow anyway so I can meet Dr Nathalie Collins (see previous post) for breakfast!

All of those years that Anthony got up before 5am to milk the cows, like so many dairy farmers still do – my hat is off to them – heroes in so many ways!

As for me, 6am is okay – zzzzzzzzzzzzzzz!

31 Comments »

Simulating home

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As you can see we are still experiencing a wintry spring after its false start last week. The weather alerts for Western Australia are a bit alarming with winds of up to 100 kph so I came home a bit early from the nursing home yesterday.

I have begun to arrive at the nursing home by 11am most days now because, with the volunteering, I need plenty of time to wear both ‘hats’. It is working out so well but more about that in another post.

Over the two and a half years since Anthony entered the nursing home, his room has become as close as I can get it to our real home: freshly picked flowers (although I never did this when Anthony lived at home – he did!); daily food treats on plates and a cutting board I keep there; familiar shows on television via the DVD; a well-stocked bar and our own glassware and so on.

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And (my latest idea!) Ming’s 2.5 kg weights. I didn’t expect Anthony to be quite so enthusiastic about this but I was wrong – he did around 20 for each arm with me cheering him on and cracking up laughing at the same time!

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Despite my intention to take Jack, our Irish terrier, in to see Ants, I couldn’t find either his leash or collar that day so I will probably take Blaze instead for the time being.

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Even I am beginning to feel more at home at the nursing home than I am at home, which is really weird! Well, at the moment, it is a lot warmer there.

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Blogging update

I’m gradually (and unguiltily!) getting back to reading, and commenting on, other people’s blogs, and re-subscribing to those I have lost touch with. Like many other bloggers, I feel such gratitude for the community of friends I’ve connected with over the last three years. The fact that I can’t consistently keep up with everyone’s posts no longer bothers me and it is quite a relief to dip in and read when I can, comment if I want to, and not read any blogs if the day is too busy. Having said that, I am very appreciative of those friends who continue to give me their support and friendship. It has been an extremely difficult year for my family, but things are finally returning to normal, whatever that is.

Perhaps my blog-reading will, from now on, resemble the unpredictability of Ming hanging out the washing!

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The expression on Ming’s face here is exactly the same as when he sees his name in one of my blog posts – ha!

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Always check the weather forecast before waxing lyrical about the sunrise!

This morning I was awoken at 5 by my alarm and the sound of pouring rain and ferocious wind. I peeked out the window into the misty grey but couldn’t see any sign of the sunrise. So I went back to bed!

Today is Father’s Day so Ming and I went into the nursing home before lunch with our presents. Mine was a dozen oysters (which I picked up from the markets on the way in) and the DVD cooking series, Two Fat Ladies, which Anthony, Ming and I used to love watching. Ming’s gift was the English series, Doc Martin, and a bottle of champagne.

The oysters were a great hit:

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Anthony finished the whole lot in about two minutes!

My mother came in after church and helped us snack on crackers and some special cheeses I’d bought, with olives, cherry tomatoes and baby cucumber, then Ming arrived and gave Anthony the presents which were also a hit. A bit later, we played some of the DVDs and cracked the champagne but Ants only had a couple of sips before falling asleep in his chair. My mother had gone home by then and eventually Ming left.

After that, I tidied and washed up the various plates and cutlery I keep in one of Anthony’s cupboards, then sat down to watch another episode of Two Fat Ladies with him, but he continued to sleep and, all of a sudden, I felt terribly flat and just wanted to come home to Ming, so I did. But Ming has now retired to his shed for the night and I am coming to terms with the fact that I am somewhat redundant in his life – perfectly normal of course but still hard.

When Anthony wakes up will he wonder where I am after the frivolity of this morning? I told his favourite nurse, Denise, that this is the first time I have left without saying goodbye but I didn’t want to wake him as he looked so peaceful, so she said she would tell him.

All of a sudden, even though he has been on my mind all day, I am consumed by the remembered agony of losing my father suddenly to a heart attack when I was nineteen and my younger brothers were seventeen and fifteen. Those brothers have become the most amazing dads to their children (five each!) I bet they think, with my mother, of our Dad today. He was a generous, beautiful gentleman.

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Anyway, back to the sunrise fiasco – I am just going to check the weather forecast for tomorrow ….

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Reunion

I have decided that it is way too long since I have met up with someone who I used to be closer to, but have lost touch with. This is entirely my fault, as she is always there, no matter what.

Tomorrow, my plan is to surprise her; my alarm is set for 5am so that I can catch a few moments with her before she goes on her daily journey. I hope she will remember me and the good times we used to have. I hope she will say yes to me when I ask if we can be friends again.

Her name is sunrise.

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