jmgoyder

wings and things

The hand-shake

Yesterday, I was in Anthony’s room in the nursing lodge when a family member of his popped in to visit. To begin with, this family member and I were somewhat awkward with each other, which wasn’t helped by the fact that Anthony was having what Ming and I have always called ‘a wobbly’ where he can’t properly talk etc.

So I had to kind of ‘broker’ the conversation between the family member and Ants, which was so hard for me because, despite making myself willing to forgive several weeks ago, I still felt a residue of rage against this family member for having hurt Ants/us in the past.

But, as he went to leave, and shook Anthony’s hand, I suddenly, involuntarily, reached out my own hand to his and we exchanged a hand-shake. Clumsy words were exchanged but that doesn’t matter because that hand-shake meant that finally I have forgiven and can move forward now and, perhaps, the enmity might now be resolved.

Of course nothing is perfect but the fact that my hand-shake happened in front of Anthony is like a gift to both of us. Apart from Ming, this family member and I are probably Anthony’s favourite people historically – I don’t know. Many other family members and friends have made much more effort to visit or take Ants out etc. This particular guy is probably afraid, just as I am, that he is soon to lose someone he loves.

The hand-shake is a very useful gesture in situations of conflict, confusion, anxiety and despair – and happiness of course!

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Calm before the storm?

Today Ming was charged with a crime (related to the car accident four weeks ago) and the case will be dealt with in court in the next month or so. After the police station, he and I went to the criminal lawyer recommended and we were given some very good advice. It has been a day full of expected shocks and unexpected shocks, like the possibility of jail, but Ming is okay with whatever punishment he receives for this stupid mistake in judgement. He is more concerned for the children who were injured in the accident and so am I.

It doesn’t bode well for Ming but neither of us care about that because it is nothing compared to the mix of relief and anxiety about all of the children’s recoveries and healing, especially my girl still in hospital, and my boy having to bend his leg for the first time tomorrow, and for the friend whose broken arm got infected, and to my two girls who are still in neck braces.

The fact that none of the families have laid blame on Ming has been a wonderful thing but that is irrelevant to the case and to our concern for the kids. I already loved those children but, until now, I didn’t know how much and it is up to the sky and beyond.

I hope that this temporary calm will make the inevitable storm more manageable for all of my family and us but obviously we will have to all wait and see in different ways.

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What’s more important – to love, or to be loved?

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Yesterday, after doing hours of paperwork and three related appointments, I finally got to Anthony’s lodge at 5pm and something in his face lit up. “My beautiful girl!” he said (now that I am 54, being called a girl always works a charm on me). We gave each other the usual hugs and kisses and then I sat down to tell him the latest about my nieces and nephews, my Centrelink adventure and other things, and poured him a small whisky. I knew I couldn’t stay long as I had to get groceries before the shops shut, so he got a bit upset when I had to go. I managed to jolly him out of that somehow and left reluctantly.

At the doorway to his room, I paused, as always, and said to him, “I love you so much, Ants” and he said, “When you go I won’t have anyone to love.” So then of course I ran back to him for one more hug and he was okay, knowing he would see me tomorrow (which is now today).

After getting groceries, I headed for home with his words resonating and I realized, for the millionth time, what an amazing person he is to want to give love more than to receive love.

Ming, at 19, doesn’t really understand why I go into the nursing lodge, take Ants out for cake and coffee, and/or on my errands, or home on weekends.

Me: Because he is my husband!
Ming: But how can you stand it, with Dad like he is? It’s no fun for you and the psychologist said you’re supposed to be having a bit of fun in your life.
Me: Because I love him and I can make it fun now I’ve stopped succumbing to the sadness so much. Anyway, I like going to cafes and so does Ants.
Ming (bewildered): Okay, whatever.

One day, when Ming is married to someone (who I hope will be amazing!) he will understand something about love that I didn’t really ‘get’ until now: that the gift of love is found inside every moment that you give it and not in how much you receive it. I certainly didn’t see it this way when I was his age so why should he?

So to both my beautiful boys: I love you.

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I found out today that Anthony and I are ‘illness separated’.

photo credit to Jane Terren

Ming and I were at Centrelink (Australia’s social security service) this morning to pursue job possibilities for him now that he is not supposed to do manual labour. He is still working for our neighbours as a dairyhand but only for three days a fortnight, and with no lifting allowed. As many of you know, this is because Ming tried to lift something really heavy in our shed a few months ago and actually fractured some of the titanium in his ‘new’ back. He will be scheduled for further surgery in the next couple of months, after which he will obviously have to quit milking the cows for good.

So we were at Centrelink with a the doctor’s certificates and other paperwork that might help Ming claim some sort of interim allowance before and after the next surgery, when (whilst waiting for her computer to reboot) the beautiful woman serving us chatted with me about this and that and she took an interest in my own circumstances. As I had previously received a carer’s allowance when Anthony still lived at home, I was on the system, but she could easily see that I have had no income of any sort for nearly 18 months and haven’t been able to claim any social security help due to living on a farm (asset). She asked me about Anthony and, when I told her he was now in a nursing home, she said, “Well that means you are separated.” I said, “No, no!” Then she said, “It’s okay, I just mean you fall into the Centrelink category of ‘illness separated’ and, as such, you could probably do with some financial assistance.”

She then said she would do anything she could to assist us in our Centrelink pursuits. I was so grateful I nearly got teary and then suddenly she realized that Ming (whose Scottish name is spelled Menzies) used to play football with her own son and, even though she and I had never known each other back then, I not-so-instantly recognized her!

I am feeling a bit uncomfortable about lodging a claim for financial assistance but, on the other hand, Anthony and I have, like so many, paid a fortune in taxes over the decades, so why not? It’s difficult for me to get another job at the moment because I spend a lot of hours with Anthony every week – either here or at the nursing lodge; and it’s difficult for Ming to commit to another job until he knows about surgery (next appointment with surgeon in two weeks).

One of the things I am so grateful for is the fact that my beautiful, now incapacitated, ‘illness-separated’ husband, has had enough savings to sustain us so far. And that we are living on his/our beautiful farm.

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Parkinson’s disease dementia and night terrors

I have just gotten off the phone with Anthony for the third time in the last half hour. He is terrified and this is happening more and more often at around the same time of night. Tonight he thinks several people are trying to tie him up, that his house is being rummaged and wrecked, and that I am part of a conspiracy to hurt him. Ming and I have both talked to him and I have also rung the nurse in charge to tell her how distressed he is and that he is confused. She said they had tried to put him to bed (sometimes it takes two or three people) but he fought them all off. I told her he didn’t know what was going on and that we were seeing the doctor tomorrow to get emergency medication for this kind of hallucinatory agitation.

Our farm is a half hour drive away and I feel like I should sell up and buy a unit near the nursing lodge so I can be closer for these night terrors because for him to be this frightened is unbearable for all of us. I know/hope that in the short time it has taken to write this post, he will most probably be in bed and nearly asleep because in the end Ming and I managed to calm him down a bit – very hard to do over the phone.

The prolonged emotional agony of this disease, for all three of us, is like treading water in a strange and unfamiliarly large pool of murky water, and can change within the space of an hour. Earlier, when I rang Ants, he was fine and lucid and gorgeous. His words don’t come out very well any more so I was shocked by tonight’s frantic eloquence and his absolute terror. My feelings of helplessness are like jagged jigsaw pieces accidentally placed in the wrong box – futilely useless.

I love him so much.

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Peacock poop

Peacock poop is a bit unsightly when it is found on the top of your newly washed car, your outside veranda, or underneath your innocent shoe(s), but, once it dries, it is easy to sweep away with the leaves. Gutsy9 can ruin the immaculate neatness of this farm and house (ha!) by coming into the kitchen, flying up onto the table and eating whatever is on the table while I hang up the washing outside. Yesterday, she came into the veranda and purred (yes purred!) to Anthony until he stroked her little head. And then she pooped.

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The dangers of driving on gravel

It is nearly two weeks since the night of the accident in which my son was driving with four of his cousins and one friend in the back tray of his ute/truck. My family has learned so much from this, including the extent to which we love and respect each other. Responsibility for allowing the kids to go for a little ride has been shared and discussed, hugs have been exchanged, forgiveness has been a constant source of comfort to all I hope, but self-forgiveness is not so easy – not for me.

Even though I was the only one inside the house and didn’t know that my son had taken off with the kids for a second little ride, I should have already had a rule in place that this was absolutely forbidden. After all, it is against the law to have unrestrained passengers in the back tray of a ute. If I had had this rule in place, this wouldn’t have happened. Why didn’t I have this rule? Because it never occurred to me that my son would do this; he is such a cautious driver and has the reputation of driving like a granny! When they all came back from the first little ride and I realized they had been off the farm, I said to my son, “don’t do that again will you” but I should have said, “YOU WILL NOT DO THAT AGAIN!” If I had said that, this would never had happened. We are all struggling with our own ifonlys, but these two are mine.

What matters here is that, despite all five children sustaining serious fractures, with one still in hospital for some time, the longterm prognosis for all is full recovery, physically. Psychologically and emotionally, I think their recovery may be more complicated but as the young are so resilent, I hope and I pray that they will all unremember the terror of that night. For those in my family, who drove crazily around the outskirts of this country town, after my son’s panicked phonecall, looking for all of them, when they were only 2 kms away, the memories of our fear and horror will take longer to fade.

My son did a slow U-turn on bitumen, and was heading home again when he hit gravel and accelerated a bit, turning the steering wheel from left to right, just slightly, to give the kids a little thrill, and that is when he lost control and the ute fishtailed (I think); he tried to control it by braking, and steering it back, but nothing worked even though he was going less than 40kms.

If he had been speeding, hooning, drinking or a reckless person, this could have been worse. If he had coerced the children and snuck away for a little joyride, against our wishes, this could have been worse. The fact that everyone survived, and will recover, is the thing I tell myself each morning when I wake up to the horror of that night on constant replay.

When driving on gravel, be aware that your tyres only have half the grip they would on bitumen.
When driving on gravel, do not accelerate suddenly, even a little bit.
When driving on gravel, do not brake suddenly, even a little bit.
When driving on gravel, always go very slowly.

Nobody in this family – my beautiful family – will ever hop into the back of a ute again. Nobody in this family – my beautiful family – will drive without caution on gravel roads from now on.

My heart leaps with joy that everyone will be okay longterm, but his post is primarily to warn people of the dangers of driving on gravel, especially in a ute, and to never, ever, let your children get into the tray, no matter how much they want to, no matter how short the ride.

I am so sorry.

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The way to a man’s heart?

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Ming’s Sunday breakfast: I spread half an avocado on two pieces of wholemeal toast, then cooked eight bacon rashers, two sausages, three eggs and one tomato. It took me around 10 minutes to prepare. It took Ming exactly four minutes to consume.

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I took Anthony out to the Dome this afternoon where he demolished an enormous piece of chocolate mousse cake with extra cream. I sipped my coffee and watched in amazement.

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After taking Ants back to the nursing lodge and settling him into his room, I came home to find Ming sitting in the living room hungry. I am not sure if he has forgotten where the kitchen is, or forgotten how to open the refrigerator which generally has food in it, but he appears to have some sort of mental block when it comes to feeding himself. So I gave him his requested snack of strawberries and cream with some reluctance. He ate it unreluctantly.

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The Australia puddle and other Spring things

The puddle in our driveway has held the shape of Australia for weeks and weeks and even had a Tasmania, but the latter evaporated a couple of days ago, before I remembered to take a photo. I wish I had, as it might have made me famous! I’ve decided not to get that Australia-shaped pot-hole filled with gravel now, in the hope that next Spring it will once again rain relentlessly and re-create the Australia puddle, with Tasmania, on our driveway. Then I will take lots of photos and have an exhibition and get rich. The reason I didn’t take the photos this time was because it was raining and I didn’t want to get drenched to photograph a puddle (I think that is more for the professionals.)

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A blue wren (very hard to photograph because they are so tiny and so fast!) After several attempts to get him in more natural surroundings, he landed on one of Anthony’s salvaged washing machine insides, that we use for an outside barbecue.
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A rare vision of Uluru looking calm. He is usually feisty, having to compete for the wheat with all the winged creatures.
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G9 in a tree. I have never seen him her do this before (even though I know that, at sundown, she flies up into the wattle trees for the night with all the other peafowl).
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Ming, with the dogs.
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Something wonderful happened today; I became a great-auntie for the first time. A beautiful baby was born and I mean this sincerely because, let’s face it, most babies are quite ugly for the first few days/hours – but not this one! She is exquisite! In respect of the new parents’ privacy, I will ask them before putting any photos of the kid on my blog.

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Underneath: a poem to Anthony

Underneath the black and white tiled linoleum in the kitchen are the original tiles.
We couldn’t rip them out because of the asbestos, so we just covered them over.
The ridiculously expensive lino almost immediately developed little holes
from my high heels, your bentwood chairs and, more recently, the stab of your walking stick.
Do you remember how I invited the manufacturer’s assistant out here to get a discount on that lino, how he told me to stop wearing heels, how I told him where to go? We got the discount on the basis of a faulty product and you were proud of me for fighting for this.

Underneath the canopy of your thick eyebrows (when did they get so thick?) your eyes only twinkle occasionally now and sometimes I can’t get even get your lips to move into a smile, no matter how hard I try with my jostling words, silly antics, tear-restrained hugs.

Underneath the muteness of your nursing home bed, I lie on a soft carpet of imagination in the hope that you will have a good night’s sleep in which you forget that I am not there with you. And, while I am on this soft carpet, I will try my hardest to erase your fear of losing me because that will never happen.

Underneath the ugliness of this disease, I see the beauty of who you are, and always have been – a big caterpillar, bypassing all of the butterflies, and becoming a vivid part of the sky.

ps. So glad our son, Ming, no longer reads my blog; he would vomit -ha! Actually, if I read this to Anthony, he probably would too, so I guess this is just for myself and the blog.

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