jmgoyder

wings and things

Update on Ming’s scoliosis

For those who don’t know, our son, Ming, had surgery 18 months ago to correct a severe (75% curve) scoliosis. This morning we had what was supposed to be the last post-op. appointment with his surgeon. The X-ray showed a fracture to the titanium rod, just below his shoulder blades. Ming wasn’t as shocked as I was because a couple of months ago he lifted some really heavy junk in one of our sheds (he’s not supposed to lift anything over 20 kilos), and rushed into the house in pain, terrified he had damaged something. We rang the surgeon who was reassuring on the phone, but Ming still needed a week off from farm work and he was in a lot of pain and panic with his spine clicking and clacking strangely.

At the time, partly because the surgeon didn’t feel it necessary to fast-track today’s appointment, I just kept reassuring Ming that he would be fine and I remember saying things like, “You can’t break titanium, Ming; I’m sure you’ve just pulled a muscle” etc. Well, I was wrong, obviously, and the surgeon now wants to see him again in 4 months, with a slight possibility of further surgery to fix the fracture. The fact that Ming is no longer in pain is a good sign, but the fracture has pulled the curve (which had been reduced to 28%) back to 35%, and Ming is upset with himself for being stupid, and upset with me for being so overly, and naively, reassuring.

But the good thing is that Ming is okay with things and is staying with one of his best friends tonight, where he will have fun and hopefully forget today’s news for a little while. And tomorrow he and I will undoubtedly discuss the situation and look at the bloody bright side and carry on. Tonight I will let myself shed a few anxious tears in order not to do so in front of Ming.

The picture is before surgery. He is much straighter now, and taller!

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Ming’s adventure 2

Well he finally got home just as it was getting dark. He hardly texted me at all, but at midnight I received:

All’s fine as wine summer shine!

Then today he wasn’t answering his phone so, in order to avoid another bout of worry, I went into town to see Ants. Just as I was about to come home again, the brat finally rang to say he was halfway home himself.

As I was about to turn into our driveway I noticed that a young steer was on the road (had gotten out of one our neighbours’ paddocks), so I quickly texted Ming with:

Steer on road.

I was ridiculously happy and relieved to see him again until he said grumpily, “Do you think I don’t know how to steer?”

We have both agreed to improve our texting skills – ha!

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Ming’s adventure 1

Ming is a big, loud extrovert of a son, but with a soft heart and a philosophical nature. I am so proud of the way he has coped with Anthony’s admission to the nursing lodge, simultaneous back surgery, and my subsequent bout of depression. These have presented him with some very difficult hurdles, like having to quit football, having to wait a year for his back to heal before going for his driver’s licence, having to wrestle with his feelings about Anthony’s deterioration, having to comfort me, and having to put up with the peacocks pooping at the door of his shed because they are so attracted to their own window reflections.

Late this afternoon, after milking, he is driving himself up to Perth (Western Australia’s capital city – 2 hours north of our farm) to see a band called karnivool perform. Even though he is staying overnight at his friend’s place, he is insisting on going to the performance by himself. I wanted so much to go with him (not to the concert, but for the drive – you know, to help him navigate the city) – but he gets furious at the suggestion. “I’m 19, Mum! I can look after myself!”

I feel like I felt, ten years ago, when he went on his first school excursion (a whole week!) I remember that Anthony and I took him up to the local primary school, saw him onto the bus, and I sobbed all the way home. I anticipate that I will want to sob like that when I wave him off in a couple of hours, so I will bite my lip. He has already told me to stop worrying or it will ruin his adventure so I will have to put on a mask of vicarious excitement for him and, as he says, “Stop being such a mother!” He is buzzing with excitement with just a slight hint of nerves. He will be okay. I will swallow my anxiety and give him my biggest grin and hug of confidence. Yes!

I just can’t wait for tomorrow afternoon when he will be safe at home again – our beautiful son! (Some of these photos have been posted before – sorry but I’m a bit sentimental today).

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Son 18 (2)

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So much rain!

It has been raining solidly for over 48 hours, and so wet here on the farm that Ming got the old ute (truck) bogged just outside his shed this afternoon, after milking!

Today I went into town and picked up Ants to take him to my mother’s place for afternoon tea (chocolate pudding that I had made the day before). Several weeks ago, I stopped using the wheelchair taxi for outings like this because I experienced a strange new surge in energy and willingness to take him out. My mother showed us more photos of Scotland, including one of her with the bride and groom.

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Then she showed us some of Mr Tootlepedal (my blogging friend) and his wife. I felt a vicarious sense of pleasure to meet them through my mother. They have a B&B and my mother stayed with them just before my niece’s wedding. She told me that the Tootlepedals, and their house and garden, were just as charming as I had imagined.

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This is the link to the Tootlepedal blog-post that mentioned my ma.

The Wizard of Oz

Anthony said my chocolate pudding was dry (you see, this where Ming gets his tact haha!) But his little highness polished off the rest tonight whilst watching a very serious episode of Home and Away.

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And I am now cooking some soup!

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Happy

I think feeling happy is a bit different to being happy. Maybe this is because when you simply are happy (because your bank account, love-life, health, job, family and friends etc. are all okay) you don’t notice the happiness; you don’t appreciate it. But when you feel happy, you are noticing the fragile edges, blossoms, and sunsets of whatever happiness is and you are learning how to create it day by day by day.

Today, my happiness was hugging my baby peacock, having lunch at an Indian restaurant with my friend/niece, Jane, buying baking utensils for my new cooking phase, watching TV with Anthony in the nursing lodge whilst giving him the last of the sticky date pudding with lots of thickened cream, knowing my ma will be home soon from Scotland, riding my bike, watching ‘Undercover Boss’ with Ming, and looking forward to tomorrow’s unfolding.

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Ming has moved out!

Around three, maybe four, years ago, on one of Anthony’s good days, he and I shifted a heap of junk out of a back shed because Ants had an idea that we could make this shed into a place for Ming.

Over time, we have gradually had it renovated and Ming slept there last night for the first time. He’s still allowed to come for dinner but if he misbehaves I can just tell him to go home – haha!

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Parkinsonism, body thermostats, and the bitch.

The other day, when Anthony was home for lunch and the afternoon, and Ming and I were trying to get the living room warm enough for him, I became a bit impatient. We had a roaring fire going, a heater on, and two blankets on his knees, but he was still shivering with cold in a room so hot that I was soaked with perspiration.

Your thermostat’s had the bomb, Ants! I accidentally sort of yelled this as I was wrapping the stupid blankets under and around his feet.

Mum, don’t be such a bitch! Yes, that came from Ming of course.

Ants, can you tell Ming not to ever again call me a bitch?

And then Anthony said very clearly, I think, that in this context, it’s acceptable.

Shared laughter immediately thrilled its way through that hot room!

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Gutsy9 update in the form of a haiku

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Atop my shoulder
This beautiful little friend
My teenage peacock

[Many thanks to Samantha for this photo of G9 yesterday].

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Thanks!

Just checking in halfway through my blogbreak. Thanks to all for comments on last few posts – I really appreciate it and had intended to reply, sorry!

I’ve temporarily unsubscribed from most blogs to give myself a break, but will get back eventually I hope.

It’s just that I am so sad at the moment, about Anthony, because of how fast the dementia is happening now.

Ming, Gutsy9 and I are all fine which somehow seems wrong. I miss Anthony so much.

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An eventful year (1995)

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In 1995, I got a part-time job at the local university lecturing in creative writing.

In 1995, Anthony was diagnosed with kidney cancer and had his left kidney removed

In 1995, Ming turned one, was baptised, went from crawling to running, learned how to clean his teeth, got into the vroom of things, slept peacefully, learned how to wash a car, yell HURRAY, climb mountains and open his own Christmas presents.

But, of the three of us, I am the only one who remembers any of this now because Ants is too old and Ming was too young.

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