jmgoyder

wings and things

Gentle

The other day I felt the whiplash warning of a storm,

but it passed!

I had my armour on, I had my family protected; I was ready for the storm,

but it dissipated!

I sharpened my sentences with full-stops so that they wouldn’t ricochet back as semi-colons,

but nothing I wrote/said had the slightest effect on the storm-brewer.

I’ve become like a cartoon character of the lioness/mother bear who protects her family.

Overly sentimental posts about Anthony are simply an expression of ongoing grief, disbelief that he has lived so many years post prognoses. Ming has been absolutely amazing in every way.

Ming has a way of unravelling the bitter-and- twisted yarn into a coherent thought and, today, I thank him so much for reminding me to be gentle.

Gentle

 

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A new idea

Okay so my new idea is to visit Ants later in the day, like I did this afternoon. That way, I can get other stuff done (writing, picking tomatoes from my garden, having heart-to-heart conversations with Ming, researching PDD, feeding the peacocks, vacuuming the house, finding the iron etc.)

My mother visited and fed Ants his lunch today but, by the time I got there, he was in bed, propped up ready for tea and he thought my mother’s visit was yesterday. I threw myself onto the bed and hugged him, much to his amusement, and lay there beside him for a bit, kissing him ferociously on the lips quickly, until he grinned.

Maybe I should visit later in the day so that he has a good memory of seeing me before he goes to sleep. That might be a better way for me to venture forward – dunno! That way, I could deal with daily life stuff, go into town to feed Anthony his tea, then come home and chill.

Over the years, lots of people have advised me to look after me, but I don’t buy into that whole ‘me’ thing because it’s so weird; after all, a ‘me’ can’t be isolated from a ‘we’.

I think I have now resolved various issues to do with family politics and, having spoken to Anthony’s only remaining brother yesterday, we have a tenuous agreement that he will ring me before visiting. I stated the reasons, he rejected the reasons, but at least we had a dialogue. My feistiness sought refuge in a compassionate sinkhole. Futile, of course. Silly me.

But none of this matters any more – none of it. Anthony is the best person I have ever met in my life. He was my friend for over a decade before he became my husband; he was a middle-aged, bachelor dairy farmer, a workaholic, a person who liked to run in the paddocks just for the fun of running. He was loud and, like his mother, liked to party; he was crude and respectful at the same time; he was snobby and/or ‘common’ simultaneously; he was my absolute hero.

So, perhaps, when I feed him his tea tomorrow, I will remind him of these halcyon days!

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Moments

Today, as I fed Anthony his lunch, he took my hot hand into his cold hand, and kissed it over and over again until I laughed hysterically.

Anthony: Shhhhh! You are so loud!
Me: I was always softly spoken until I met you!
Anthony: Shhhhh!
Me: Are you ready for your next mouthful? OMG you are like a starving dog!
Anthony: I’m hungry.

Anyway, after I fed him his lunch (he seems to have forgotten how to use cutlery – normal in cases of PDD) I got my mother’s amazing Christmas cake out of the cupboard and he pretty much vacuumed it all up!

Lately I have become a bit haphazard with visiting Ants. For example, when he is in sleep-mode, I don’t stay very long; but if he is in wide-awake mode, I stay. It’s a kind of loose arrangement whereby I try to spend at least a few hours per day with him. I should probably turn this into a more regular, regulated routine, but, since I stopped working at the university (and that is a few years ago now), I have lost any sense of daily routine. I suppose I have just been kind of going with the unpredictable flow of Anthony’s PDD.

When I take a day off from seeing Ants, I simply summon Ming or Meg to do so.

Almost every time I enter Anthony’s room, he looks at me and says: “How did you find me?”

Almost every time I leave Anthony’s room, he asks: “You won’t forget where I am?”

This afternoon, he whispered something a bit more poignant: “Jules, don’t forget about me” and I reassured him, of course!

His verbal antics aren’t so acrobatic anymore; his sarcasm is subdued, but the way Anthony stares at photos of Ming and me and him – especially the ones in which Ants is still healthy, I am young, and Ming is a little child – are particularly moving.

Now that Ming has converted a couple of videos into dvds (of wedding and baby Ming), I can see clearly how this nearly 40-year-old relationship has impacted on all of us in various ways.

And this is probably the moment in which I begin to cry (unless I find a good movie).

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Bright eyes!

I feel compelled to record these updates on Anthony’s health, so that I will remember in the future. The unpredictability of his daily condition is just that – unpredictable. After days of silence and sleepiness, today his eyes were wide open (one of the many symptoms of PD is not blinking, so this makes his eyes very wide!)

Me: You look like an owl!
Anthony: I …
Me: Clear your throat – c’mon, cough!
Anthony: Coughing.
Me: So what did you want to say?
Anthony: Where is your mother?

Okay, so a little background information for those who don’t know. My mother is 81 and fighting fit despite numerous health challenges (cancer, broken hip, pelvis, wrist). She lives independently in a town not far from here and she is the epitome of maternal/grand-maternal etc.

The fact that she visits Ants so often – around twice each week and more if I need a break – is testament to her amazing love for me, her only daughter.

Today, she and I joked with Ants, and his eyes lit up several times, with mirth and affection and, of course, confusion.

Thanks, Mama!

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Bushfires

It’s a pretty bad and scary situation down here in the south west of Western Australia with one town destroyed by fire in around seven minutes yesterday.

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Once upon a time 4

The young woman was employed as a ‘nanny’ to two angelic-looking monsters, aged 2 and 3. She had thought her London job would be somehow exotic but, instead, she found herself dealing with a young, professional couple of parents who, despite having produced two children, didn’t have a clue what to do with them. The mother’s passionate advice to the nanny was “Don’t ever use the word ‘no’. I don’t want them to know about ‘no'”. The father, on coming home from work to find his two boys climbing the ceilings with an abundance of no ‘no’ energy, would weep freely into the reluctant shoulder of the nanny.

You would think, wouldn’t you, that this situation would distract the young woman from her love for the dairy farmer. Instead, it had the opposite affect and she became intensely homesick for Australia, for her mother and brothers, for the dairy farmer (of course!) and for the dairy farmer’s brother’s family.

That Christmas, the dairy farmer’s tall, shy sister-in-law decided to leave a cassette tape recorder on so that the young woman/nanny could share, in retrospect, the buzz of that day. When the young woman/nanny received this tape recording she was in the midst of preventing and/or throwing the angelic looking monsters out of her attic window. But when she pressed ‘play’ it all changed, as she and her two charges listened intently to the voices of gleeful children opening presents, messages from each of the white-haired children, the kindness in the tall, shy woman’s voice, the gruff affection in her husband’s. And then there was his voice – just four words: “Hi Jules, happy Christmas!”

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Auto/biographical risks

I was very fortunate to have once been a student of Elizabeth Jolley. She wrote fiction that was heavily laced with fact; she changed names to protect the guilty; she took risks.

The primary reason that I have hesitated over the years (decades actually!) to write what I think is a rather spectacular love story, is due to the yucky bits of the story – the betrayals, conflicts, mysteries and agonies in and amongst its success.

By writing increments of this “Once upon a time” story, I face the challenge of writing about how Anthony and I dealt with the disapproval of our relationship from both sides – from both families – and from well-meaning friends.

Over the last few weeks I have blogged outside the “Once upon a time” story, with tidbits of information about a recent event that traumatised me, and reminded me of some of the yucky stuff from the past. These posts, some now deleted, or edited, are, privately, an avenue into the complicated past of my relationship with Anthony.

When I say rather dramatic things like ‘spectacular love story’ I only mean that it was against all odds – a 41-year-old and an 18-year-old (the beginning), and now (the ending?), a nearly 57-year-old girl/woman sitting in a nursing home with her hands hugged by his nearly 80-year-old fingers.

My recent truthful tidbits have earned me the angst of one family member and, conversely, the support of many others.

I remember, years ago, Elizabeth Jolly speaking to me about one of my short stories:

EJ: This is far too painful, dear. Rewrite it.

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Dilemma delights

The other day, one of Anthony’s nephews and his wife visited us at the nursing home. We figured out that we probably hadn’t seen each other since Ants’ 75th. My mother also happened to be there, and Ming arrived soon after because he wanted to re-meet one of his many cousins.

As soon as this nephew entered the room, he sat right next to Anthony, shook his hand, made eye contact, and exclaimed, “Uncle Ants!” then reminisced about when they had been children. He talked directly TO Anthony and, even though Ants wasn’t very vocal, he was responsive and he easily recognised this lovely couple.

It was a wonderful hour or two and, as I was walking the nephew and his wife out to their car, she admitted to me that she’d been a bit nervous, had wanted to remember Anthony as he was, but now felt reassured about how he IS.

The next day, I reminded Anthony of this visit, and his three-syllable, whispered response was “DELIGHTFUL”.

Okay, so that should be the punchline, but it isn’t. What I have learned from this visit, and from the frequent visits of other relatives and friends, is that speaking TO Anthony, no matter how unresponsive he seems, is vital.

It is unavoidable, of course, that, in a situation like this, we will also speak ABOUT him in front of him and I always find this TO-versus-ABOUT very difficult. It feels a bit disloyal to me; that weird scenario between being with the person who is being spoken to versus the scenario in which the person is being spoken about.

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Once upon a time 3

At some point in time (I think she was 22) the young woman decided to put some geographical distance between the dairy farmer and herself.

Ironically, it was he who picked her up from her mother’s house, and drove her to the airport. She had dressed up and put make-up on; the photograph her mother took shows a very handsome couple with too-wide smiles.

In the plane, on the way to London, the young woman tried over and over and over again to drop her burden of love into the various oceans, islands, and even into the black of night. But it was such a massive bubble, this wonderful love, that it lost its footing during a particularly difficult gravity experiment.

It (the love thing) floated easily up into the sky-clouds and had a bit of a rest.

The dairy farmer drove back from the airport to the farm.
The young woman began her ‘nanny’ job in London.

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Editing out the anger

I went back to yesterday’s post and edited out the anger by admitting to it. It doesn’t even feel like anger anymore; it feels more like terror. The power of suggestion I guess, phone-calls from various family members worried that Ants was near death; the idea insinuating itself into my psyche, drippling in – rusty tears from a leaking tap.

“He is fine!” said over and over and over again until my own voice has become the echo of Anthony’s whisper.

As I was leaving the nursing home the other afternoon, I had a brief conversation with a nurse:

Me: He’s really out of it today!
Nurse: Yes, he’s been sleeping a lot.
Me: Do you think … is he going to die soon?
Nurse: No, he’s just getting older.
Me: I get a bit scared sometimes.

Editing out the anger, facing the terror of losing him, then getting back to the normality of sitting next to him, my hand on his shoulder, watching television, waiting for him to wake up and smile at me.

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