jmgoyder

wings and things

Dementia is confusing

Anthony’s encroaching dementia confuses both of us and sometimes I am more confused than he is. That’s why I am so glad we have such an honest way of talking with each other.

When Ants was home yesterday, and I mentioned that he had dementia and he winked at me, I was surprised for two reasons. Firstly, his Parkinsons disease prevents him from blinking, let alone winking, so that wink was weirdly wonderful. Secondly, when he and I talked about the dementia of his PD, and I laughed about the taxi mishap, Ants was fine – not distressed and quite okay with the fact that he has dementia now.

I’m confused.

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Anthony’s acceptance

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One of the most difficult things about Anthony moving into the nursing lodge has been accepting this dramatic change.

Ming (now 19) was the first to accept this change willingly, whereas it took me nearly a year and mine was an unwilling acceptance laced with grief and guilt.

Anthony’s own acceptance has taken longer but yesterday it just happened and I am so relieved. This is how:

I booked the wheelchair taxi to pick Ants up from the nursing lodge at 2pm, then I rang his nephew who lives around the corner, and left a message that Ants would be home for a few hours.

Then, at 2.30pm, the nephew rang to say Ants was at their place! Apparently Anthony had convinced the taxi driver that our address was wrong and directed him to go to the nephew’s!

By the time the rather flustered taxi driver arrived here (around 2.45pm) I was in such fits of laughter that I could hardly speak as he got Ants out of the taxi. I hugged Ants, still spluttering with hilarity, so much so that Ming took over wheeling Ants to the front veranda while I paid the taxi driver who was now laughing too.

Okay, frivolity aside, the bemused taxi driver left, Ming went to milk the cows and Ants and I shared a beer and some snacks I had painstakingly prepared (chips). Here is our conversation:

Ants: It’s good to be home.
Me: So why did you go to the nephew’s?
Ants: I got mixed up.
Me: Yeah, you have a bit of dementia now.
Ants: I thought so. Am I staying the night?
Me: No!
Ants: Why?
Me: Because, Ants, you are too sick, I can’t lift you, and you need nursing care. How many times do we have to have this discussion? You have to accept it Ants – please!
Ants: You’re right.
Me: What?
Ants: You’re right.
Me: Okay, so the wheelchair taxi is coming to take you back in a few hours. Are you okay with that?
Ants: Yes, Jules (winking).

We then shared another beer, laughed again about the taxi mishap (well, I laughed and Ants looked at me as if I were crazy), then he began to droop badly and agreed to get the taxi earlier.

Acceptance.

PS. I’m off on my bike to tackle the road now!

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Cycling confessions

EasyCity Specifcations

I haven’t cycled as much as I’d hoped to over the last few days and I have lots of excuses, but my main excuse is that my new bicycle scares the hell out of me!

Okay, for those of you who may not have realized, this bicycle has a little motor. If you turn the settings to 0, it is an ordinary bike, but if you switch to 1, the motor kicks in and assists you; if you turn it up to 6, the bike takes off like a rocket ship, pedalling becomes almost unnecessary, and you may find yourself catapulted into a handy hedge.

I just love it, but I am still learning how to manage the settings and gears on our driveway. I plan to venture out of the driveway onto the road on Sunday.

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The shortlist

I have discovered something wonderful and I’m sure Oprah will be contacting me soon to make me rich and famous.

Okay, we are all familiar with the list thing – shopping lists, chore lists, goal lists etc. But you know what the trouble is with these lists? They are too long!

My extensive research, case studies and social experimentation over the last three days have produced extraordinary findings! Yes, indeed, I have found the cure for lethargy!

The two candidates for this study were a teenage son and his mother who were becoming more and more depressed and, yes, lethargic, due to the grief they were experiencing when the husband/father figure went into a nursing home.

Neither the wife or son had been able to adjust happily to the new home dynamic despite having a close relationship. This was compounded by the son having to have major surgery and the mother losing her job.

Even a year after the husband’s admission to the nursing home, the son’s surgery and the mother’s loss of employment, all three were still struggling to accept the new status quo. All three were grieving in different ways and this resulted in numerous arguments with emotions running high, particularly between the mother and son. Both became exhausted and fell into a state of lethargy.

Then, three days ago, a plan was devised. Each day, the mother and son would write down a 3-point shortlist for the following day. This was done in a special notebook, almost like a contract. There would be one task that required both (we called that ‘mutual’), one task for the son, and one task for the mother.

The beauty of the shortlist is that it is ‘doeable'(is that a word?)

Okay, tongue out of cheek now – this is working, so watch this space!

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A bird in the bush is worth two in the hand

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Have you ever had a tug of war with your child over a piece of plastic?
Have you ever stopped your child from munching the remnants of a Morteined cockroach?
Has your child ever bitten you hard on the finger in a fit of temper?
Has your child ever smashed your nose with his when you try to put him to bed?
Have you ever had a child who likes to bite his toenails?
Have you ever had a child who refuses the food you lovingly prepare?
Have you ever had a child that prefers rolling around in the dirt to anything else?

If so, you probably have a baby peacock on your hands!

Note: Gutsy9 is a typical adolescent, which is great because he is getting his independence.

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Galloping Gutsy9!

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Gutsy9 is now over 3 months old (photos are from beginning to now). When we go outside he literally gallops after me, despite his crooked leg. This morning I left him inside while I filled the outside ponds because he could easily drown at this age. When I turned the hose off I heard this unearthly howl from the house – quite guttural – and it was him! His voice must have broken because usually, when he can’t see me, he just cheeps forlornly.

What an interesting experience!

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Apostrophes

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Anthony’s wife is Julie.
Anthony’s son is Ming.
Julie’s husband is Anthony.
Julie’s son is Ming.
Ming’s father is Anthony.
Ming’s mother is Julie.

We are each others’ apostrophes.

And Gutsy’s mine.

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When things go wrong

This morning, on our way to town, Ming and I had a ferocious argument, with him yelling and me shrieking and both of us swearing and me crying.

Our first stop was the chemist so I left Ming in the car, slammed the door, wiped my eyes and went in to get a few things with a big fake smile on my face. It took awhile for a couple of prescriptions to be filled so I went back to the car to find Ming with silent tears rolling down his cheeks. I got into the car and sobbed an apology which was reciprocated, then we just sat in silence for a few minutes, staring dully though the windscreen.

Then we began to talk:

Ming: There is something wrong with me. I’m ruining your life.
Me: There is nothing wrong with you and you are not ruining my life.
Ming: Then why does this keep happening?
Me: Because you keep losing your temper with me and I keep overreacting.
Ming: I just want to make things perfect and it never works.
Me: Yes, and that includes me?
Ming: Yes, well, no – I just want you to be happy.
Me: Well I just want you to be happy too. But you are a bully!
Ming: I think we should go back to counselling.
Me: I agree.
Ming: Sometimes when I wake up, I just want to go back to sleep.
Me: Same here.
Ming: I want to be a child again.
Me: So do I, sort of.
Ming: Am I really harder for you than Dad?
Me: Physically, no, mentally, yes – emotionally, about the same.
Ming: But I’m only trying to help.
Me: By nagging me, reprimanding me, trying to control me, yelling at me?
Ming: You said we’d leave today at 11am.
Me: So we left at 11.10am – was that a tragedy?
Ming: No, but you’re always letting me down – you never want to leave the house.
Me: I’m having a bad time with lethargy.
Ming: Same here.
Me: So we need a plan of attack. From now on we will make a daily plan for each day. We’ll do one chore together and one separately, schedule it into the day and allocate a definite time. Neither of us is allowed to renege or be late. We’ll write tomorrow’s plan tonight and sign it like a contract.
Ming: That’s what I’ve been saying for ages, Mum – teamwork!
Me: Okay, I don’t particularly like that word but yes, you are right.
Ming: Shake hands then?
Me: Okay.

We went on and did the rest of our town errands and got home smiling. I feel terrible about the horrible, cruelly sarcastic things I said to Ming, and for screaming at him like a psycho, and he feels terrible for his control-freaky temper, but maybe we had to have this crash in order to wake up.

I am hopeful.

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Oh the joy of cycling!

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Now don’t get too excited. I haven’t jumped onto the bike yet but I am dressed in my bike riding clothes (an old tracksuit I found which seems strangely snug but it will do.)

Okay, so the plan was to get up at 4.30am and follow Ming to the dairy (around 3kms away) but two things prevented this. Firstly, I didn’t wake up and, secondly, even if I had woken up, it was too dark.

I forgave myself and decided to ride around the block (around 7kms) later in the morning but Ming reminded me that I still didn’t have a helmet. And then I got a terrible attack of hayfever and I didn’t want to contaminate my new bike with nose drippings.

So now that it’s nearly noon, I will probably leave the ride until later when the wind dies down (yes, we are experiencing those awful easterlies that make cycling so difficult.)

In the meantime, here is a picture of Gutsy9 first thing in the morning, just before I get him out of his cot/cage and take him outside to play.

Tomorrow, I will go into town and buy a helmet and a basket to put Gutsy9 in on the bike. This afternoon I will do a few laps of the driveway again. I promise!

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Hugging

Everything else about today pales into insignificance compared to the hugs. I hugged Anthony when he was standing up and he let go of the walker and hugged me back. Then I hugged him while we were tackling his lunch and he pushed the food away and hugged me back. Then, as I was about to leave, I knelt down on the floor in front of his chair to kiss him goodbye and he enfolded me in his arms and gave me a bearhug. He brought my face into the hollow of his shoulder, kissed my hair, held me ferociously and whispered, “Jules, I love you so much.”

Usually the wasted muscles in his arms make hugging difficult, but not today! I am home now and can still feel that goodbye hug and I am trying very hard not to cry.

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