jmgoyder

wings and things

Photographs with Anthony

Yesterday, two of Anthony’s nieces visited us at the nursing home.

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It’s only lately that I have realised how important it is to take photos of Anthony with the various friends and relatives who visit. I’m astounded that I haven’t taken more photos of Ants with Ming, with my mother (who often visits him on my behalf), the regular visitors, occasional visitors, the wonderful carers!

My reluctance to take photos is partly to do with people’s privacy; partly to do with savouring the moments rather than trying to capture them on camera; but mostly because I don’t want to post photos of Anthony that are unflattering. After all, he was always rather vain about his appearance. When I showed him the photo I posted a couple of days ago (of him and me), he remarked, “Who is the old idiot?”

If it weren’t for the nieces yesterday, I would never have realised how important these photographs are. I will now coerce the staff to take heaps and heaps of photos of us! My camera is on charge.

Today, I stayed home for a break, and my amazing mother visited Ants and rang me from his room.

Meg: Here he is, darling.
Me: Ants?
Anthony: Hi Jules.
Me: What do you want for tea?
Anthony: Some hot, hot …
Me: Pies?
Anthony: Not ….
Me: What about crayfish or prawns?
Anthony: Save for tomorrow.
Meg: He is fine, darling. Are you?
Me: Yes and thank you, Mama!

Of course the above is a compressed version of a dialogue filled with pauses, and impossible to capture via photography.

But I have decided to ask the various staff members who have become my friends to take photos of Anthony and me.

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Elsewhere

The horrific carnage in Beirut and Paris is an indication of a very serious hatred, fuelled by a proliferation of small pockets of extremists. Regardless of religion, history shows that fundamentalism, in all its flavours, hurts us, hurts the whole wide world.

As I sit with Anthony in his nursing home room, tell him about recent events, and watch him sleep, I realise how insignificant our problems are in comparison to what is happening/has happened elsewhere.

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Anthony’s sense of humour

Yesterday my first-born nephew (I have six nephews on my side of the family), and his beautiful fiancĂ©, visited us in the nursing home. Jared has always had a soft spot for Anthony and vice versa. I didn’t tell Ants they were coming because I wanted it to be a surprise. It’s awhile since they’ve seen each other because Jared lives several hundred kilometres away, and Ants hadn’t met Carly yet. I was very excited, and a little bit nervous, about the visit.

When the young couple entered the room, I was in the middle of feeding Ants his tea; I jumped up and said, “Ants, Ants, it’s Jared; Jared’s here!”

Without the slightest hesitation, Anthony looked up at Jared and mumbled, “Well, I didn’t think it was Jesus Christ.” We all cracked up laughing, as I introduced Ants to Carly.

Anthony’s sense of humour, sometimes expressed in sentences that come out of a void of silence, always flabbergasts me. It can be a bit of a struggle for me to get Ants to talk, to smile, to even look at me. And yet, with a single remark he can have me laughing my head off!

Thanks, Jared and Carly; you two will now become a topic of conversation in the future. I will remind Anthony of his funny remark about Jared not being Jesus Christ, and, in my more contemplative moments, I will, perhaps, wonder if he was.

Anyway, back to Anthony’s sense of humour: I lightly kicked his shin as we were leaving and he said, with mock ferocity, “There’s no need for that!”

[Note to blogger friends: After my modem died and was replaced, my computer then died but has now been replaced, so I am very behind with reading other blogs and Fbook posts. In other words, I have fallen in love with the word ‘delete’ because there is too much to catch up on!]

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Sustenance

Anthony used to be a big eater. I remember one Christmas lunch at his brother’s house across the road where, as a bit of a joke, Anthony’s plate was piled impossibly high with food.

We all watched in awe as he consumed the lot. Afterwards, I had to take him back home to lie down and I remember being astonished at the size of his tummy; he looked like a pregnant woman. I also remember being a bit alarmed by his groans but unable to suppress my fits of laughter as I mopped his brow.

I don’t know if other members of his brother’s family remember this because it was probably about 30 years ago, but it is one of my funniest memories. Sometimes, now, when I am helping him with his lunch, I remind him and sometimes he remembers too.

Except for that day, Ants was never fat; robust and well-built, he was rather vain about his weight. He still is! Over the many years since being diagnosed with Parkinson’s disease and prostate cancer he has lost over 20 kilos and I am rather jealous of his flat tummy. When I admit this, he proudly pats his, and then prods mine in a way that can only be construed as critical.

Anyway, he still loves his food. The main meal of the day at the nursing home is always wonderful; roasts feature regularly and Ants gobbles these up. The only trouble now is that he often needs help, which is why I try to be there by noon, or else get my mother to be there for me.

Dina (my decluttering friend) was there the other day and noticed that Anthony tended to poke at his meal, spilling some of it onto the tray. On another day, my mother told me that he didn’t touch the fish because it was white, the sauce was white, and the plate was white, so he just didn’t see it. On both occasions, he was helped of course.

As for me, I usually resort to feeding him. Yes, I get it about independence and all that but Anthony seems to have forgotten how to use cutlery and often doesn’t remember how to drink from a cup or glass, and the feeder cups seem to mystify him. Obviously, if none of us are there, staff will come to the rescue so that is very reassuring. His food is always cut up for him which is good but the fact that he seems to have forgotten how to negotiate fork-to-food-to-mouth is a bit alarming.

Our conversation the other day may, or may not, shed light on this newish problem. It was noon and a carer brought his lunch in and placed it on his tray.

Once I had unwrapped the meal from its foil and put the bib on Ants, I began to use a spoon to gather the first mouthful. As always, Ants asked me to eat some too; he wanted to share it. And then, looking at the plate of food, he began a rather bizarre conversation:

Anthony: Am I in there?
Me: Are you in where?
Anthony: In there [pointing to the meal]
Me: Do you want to be in there?
Anthony: Yes.
Me: Okay, let me check; yes, you are in there.
Anthony: Good.
Me: So are you okay to eat it now?
Anthony: Yes.
Me: So I am putting you back into you?
Anthony: Whatever you say.

It’s times like these that I remember the Anthony whose appetite for life enthralled me.

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A very special afternoon

Yesterday, Anthony’s best friend of over 50 years, Baz, and his beautiful wife, Julie, visited us at the nursing home. It had been awhile since the ‘boys’ had seen each other because I can no longer physically manage outings with Anthony due to his decreased mobility. But Ants has been mentioning Baz lately so I thought I’d just invite this lovely couple as a surprise for Ants.

I got to the nursing home at noon and helped Ants with his lunch. He was a bit blah and not very responsive but, bingo, when Baz and Julie entered the room, his face lit up!

Julie was the one who took yesterday’s photo of Ants and me. She also took this one which I am going to show Anthony today.

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Isn’t it a beauty! And here is the beautiful photographer herself.

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She and I caught up as Ants and Baz reminisced. At one point, completely out of context in terms of what Baz was saying, Ants looked at him and said, “I love you and you love me.”

Thank you, Baz and Julie!

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Today

I’ll write more about today tomorrow but, in the meantime, I am savouring today.

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Today.

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“The Gift of Alzheimer’s”

This is the title of a book I am reading, written by Maggie La Tourelle. Maggie tells the story of the journey she and her mother share in which her mother’s Alzheimer’s actually enhances their relationship.

What I really like about this book is the way it de-tragifies dementia; gives fantastic examples of dialogues between kin; and even explores the spiritual possibilities beyond death.

Maggie’s conversations with her mother remind me so much of my conversations with Anthony that it has made me quite emotional (especially at 3am!) Their story is unlike ours in many ways but there are some fascinating parallels.

http://maggielatourelle.com

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3am

Sometimes I get up in the early hours, usually around 3am, and I watch some television, or reminisce myself back into sleep mode.

It is impossible to express how much I miss Anthony being here, in this house, on this/his farm; ‘longing’ is the best way I can describe it.

Often, my heart is tugged awake by this longing and sometimes I feel absolutely desperate to see him.

But sometimes I just don’t bother; I press my face into the pillows and try to avoid the day; I swallow the guilt with a glass of milk; I tell myself that he is in good hands; I sob.

Longing is a weird emotion; its nostalgia cuts into the throat of love, slicing page after page into new, fresh coherent sentences.

It is 3am. I am 15 kms away and wide awake.

I love you, Anthony.

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Nonsense

Whenever Anthony says something during our afternoons together, I either hit ‘mute’ on the television, or ‘pause’ if it’s a dvd.

This is so that I can listen and respond to whatever he is saying, or trying to say. His voice has become very whispery and sometimes croaky lately and, even when he does get the words out, they sometimes
don’t
make
sense….

The following dialogue is an example of how weird and wonderful our conversations can be. I am learning how to be unafraid of nonsense, to enter its world in an Alice-in-Wonderland kind of way, to talk, listen, laugh and pause.

Anthony: How did you know where to find me?

Me: Instinct.

Anthony: You have good instincts.

Me: I know.

PAUSE

Anthony: Can you get this calf to get out of underneath the….

Me: What?

Anthony: This bbbb mmmm toothpaste.

Me: What? Try again.

Anthony: The cat toothpaste.

Me: The toothpaste is free, Ants, and there’s no cat here. Anyway I thought you hated cats.

Anthony: There are five.

Me: You’re hallucinating but I’ll shoo them away, anyway; is that better?

Anthony: Not much.

PAUSE

Me: So, do you think I look different today?

Anthony: No.

Me: Ants, I am wearing a dress for God’s sake. I never wear dresses!

Anthony: Oh.

Me: So what is different about me?

Anthony: Your legs are shorter.

Me: Oh.

Anthony: Is Mum okay?

Me: My mum or your mum?

Anthony: Ours.

Me: She’s fine.

Anthony: Where’s Ming?

Me: He’s at work but he’s coming to visit soon.

Anthony: Does he know I’m at the Rose Hotel?

Me: I’ll tell him.

Anthony: Where is your mother?

Me: Why do you always want to know where my mother is?

Anthony: Well she should be here and I’m worried about her eyes.

Me: Can we just watch the show, Ants?

Anthony: Haven’t we seen this, Jules?

Me: Well it’s a series, so yes and no. We are now up to the third season.

Anthony: Can you bumblebee the cardboard over there?

Me: What?

Anthony: Can you mmmbrrr oh my words don’t. What’s the thing wrong again, Jules?

Me: Ants, you have Parkinson’s, plus you are really quite old. And you have very strange ears.

Anthony: I have perfect ears!

PAUSE

Anthony: You have a sexy stomach.

Me: WHAT? Stop looking at my stomach – I ate too much lunch!

Anthony: Look at mine – I’m thin.

Me: Well there’s no need to rub it in.

PAUSE

Anthony: There’s that baby again.

Me: It’s not a baby; it’s my handbag! See!

Anthony: I think we should go to Golden Valley [his childhood home].

Me: Not today. It’s too cold.

PAUSE

Anthony: Jules?

Me: Yes?

Anthony: Bbbb mmmm – oh I can’t speak.

Me: Do you want the rug on your knees?

Anthony: That’s the elbow, good.

PAUSE

Me: You’re adorable and I love you.

Anthony: Mmm.

Me: You’re supposed to say it back.

Anthony: What?

Me: ‘I love you’.

Anthony: I know you do.

Me: No, I mean you’re supposed to say ‘I love you’ back to me!

Anthony: You already do.

PAUSE

Me: I’ll show you a picture of Ming dressed up as a nurse for Halloween, okay? You are going to be shocked.

Anthony: Nothing shocks me.

Me: Okay, check this out!

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Anthony: He is magnificent!

I rest my case: nonsense is a good thing!

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Another day with Anthony

After the fright of the other day when Ants was unconscious for so many hours (much longer than usual), I now realise that my being there every day is important. (Confession: I have been taking ‘days off’ here and there recently).

The first interesting thing about this is that, according to staff, relatives, and visitors, if I am not there, Anthony asks for me and is sometimes fretful.

The second interesting thing about this is the whole time warp thing: i.e. I rush in to see Ants on my way to getting the car serviced, seeing whether we have won lotto, buying chick starter etc. so it’s a very brief visit. And he always knows that I will be back soon, even when I don’t come back that day/night. Five minutes can equate to-and-fro with five hours – or vice versa.

The third interesting thing about this is Anthony’s daily mention of Ming. He never does this in a needy way; he is just always very curious and loves seeing photos of Ming, including Ming’s latest Halloween antics/costume at the restaurant where he works. These photos (as well as the photos of Ming on the walls of Anthony’s nursing home room) are always a buzz – “There he is!” Anthony will sometimes say.

When I told Ming about the frightening day, I cried because I was scared that we might lose Anthony suddenly (which, of course, we will). In telling Ming about my day with Anthony, I realised, and saw, how alike they are: generous, sensitive, gregarious, easy-going, beautiful.

Another day with Anthony…
… enhanced by the fact of Ming.

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