jmgoyder

wings and things

Calm before the storm?

Today Ming was charged with a crime (related to the car accident four weeks ago) and the case will be dealt with in court in the next month or so. After the police station, he and I went to the criminal lawyer recommended and we were given some very good advice. It has been a day full of expected shocks and unexpected shocks, like the possibility of jail, but Ming is okay with whatever punishment he receives for this stupid mistake in judgement. He is more concerned for the children who were injured in the accident and so am I.

It doesn’t bode well for Ming but neither of us care about that because it is nothing compared to the mix of relief and anxiety about all of the children’s recoveries and healing, especially my girl still in hospital, and my boy having to bend his leg for the first time tomorrow, and for the friend whose broken arm got infected, and to my two girls who are still in neck braces.

The fact that none of the families have laid blame on Ming has been a wonderful thing but that is irrelevant to the case and to our concern for the kids. I already loved those children but, until now, I didn’t know how much and it is up to the sky and beyond.

I hope that this temporary calm will make the inevitable storm more manageable for all of my family and us but obviously we will have to all wait and see in different ways.

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What’s more important – to love, or to be loved?

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Yesterday, after doing hours of paperwork and three related appointments, I finally got to Anthony’s lodge at 5pm and something in his face lit up. “My beautiful girl!” he said (now that I am 54, being called a girl always works a charm on me). We gave each other the usual hugs and kisses and then I sat down to tell him the latest about my nieces and nephews, my Centrelink adventure and other things, and poured him a small whisky. I knew I couldn’t stay long as I had to get groceries before the shops shut, so he got a bit upset when I had to go. I managed to jolly him out of that somehow and left reluctantly.

At the doorway to his room, I paused, as always, and said to him, “I love you so much, Ants” and he said, “When you go I won’t have anyone to love.” So then of course I ran back to him for one more hug and he was okay, knowing he would see me tomorrow (which is now today).

After getting groceries, I headed for home with his words resonating and I realized, for the millionth time, what an amazing person he is to want to give love more than to receive love.

Ming, at 19, doesn’t really understand why I go into the nursing lodge, take Ants out for cake and coffee, and/or on my errands, or home on weekends.

Me: Because he is my husband!
Ming: But how can you stand it, with Dad like he is? It’s no fun for you and the psychologist said you’re supposed to be having a bit of fun in your life.
Me: Because I love him and I can make it fun now I’ve stopped succumbing to the sadness so much. Anyway, I like going to cafes and so does Ants.
Ming (bewildered): Okay, whatever.

One day, when Ming is married to someone (who I hope will be amazing!) he will understand something about love that I didn’t really ‘get’ until now: that the gift of love is found inside every moment that you give it and not in how much you receive it. I certainly didn’t see it this way when I was his age so why should he?

So to both my beautiful boys: I love you.

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I found out today that Anthony and I are ‘illness separated’.

photo credit to Jane Terren

Ming and I were at Centrelink (Australia’s social security service) this morning to pursue job possibilities for him now that he is not supposed to do manual labour. He is still working for our neighbours as a dairyhand but only for three days a fortnight, and with no lifting allowed. As many of you know, this is because Ming tried to lift something really heavy in our shed a few months ago and actually fractured some of the titanium in his ‘new’ back. He will be scheduled for further surgery in the next couple of months, after which he will obviously have to quit milking the cows for good.

So we were at Centrelink with a the doctor’s certificates and other paperwork that might help Ming claim some sort of interim allowance before and after the next surgery, when (whilst waiting for her computer to reboot) the beautiful woman serving us chatted with me about this and that and she took an interest in my own circumstances. As I had previously received a carer’s allowance when Anthony still lived at home, I was on the system, but she could easily see that I have had no income of any sort for nearly 18 months and haven’t been able to claim any social security help due to living on a farm (asset). She asked me about Anthony and, when I told her he was now in a nursing home, she said, “Well that means you are separated.” I said, “No, no!” Then she said, “It’s okay, I just mean you fall into the Centrelink category of ‘illness separated’ and, as such, you could probably do with some financial assistance.”

She then said she would do anything she could to assist us in our Centrelink pursuits. I was so grateful I nearly got teary and then suddenly she realized that Ming (whose Scottish name is spelled Menzies) used to play football with her own son and, even though she and I had never known each other back then, I not-so-instantly recognized her!

I am feeling a bit uncomfortable about lodging a claim for financial assistance but, on the other hand, Anthony and I have, like so many, paid a fortune in taxes over the decades, so why not? It’s difficult for me to get another job at the moment because I spend a lot of hours with Anthony every week – either here or at the nursing lodge; and it’s difficult for Ming to commit to another job until he knows about surgery (next appointment with surgeon in two weeks).

One of the things I am so grateful for is the fact that my beautiful, now incapacitated, ‘illness-separated’ husband, has had enough savings to sustain us so far. And that we are living on his/our beautiful farm.

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Nightmares

I had a dream last night that someone I knew (it wasn’t clear in the dream who exactly he was), took me to a holiday house somewhere near the sea. It was a really shabby old house and I felt a bit reluctant to go in but I did anyway because I didn’t want to hurt his feelings. Then, once I was inside, the door shut with a clang, and I knew immediately that I was doomed because a hanging rope was already in place for me and the someone-I-knew became a cackling stranger who was going to hurt me before killing me. The terror I felt within that dream woke me up, and I entered the day in a daze of perspiring relief that it was just a nightmare.

Have I read too many books, seen too many movies, thought too many thoughts, felt too many emotions? Yes, probably, but this was the most frightening nightmare I have ever had. Of course this nightmare is not hard to interpret at all I guess – a bunch of mixed emotions following trauma; ongoing anxiety for all those affected by trauma; shame, guilt and embarrassment over the stupid things I’ve said and done since the trauma; and a momentary wish that I would die.

The nightmare has made me see much better what it must be like for Anthony when he experiences the night terrors and and hallucinations of his PDD. If I can experience such a vivid nightmare whilst being physically healthy, and wake up with my face covered in the sweat of terror, then what is he going through?

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From heart to heart: The Dr. Says

I have made many friends in the blogosphere, one of whom is Sandra Callahan. She is wise and funny and positive and she and I share some very similar experiences. We have supported each other through many ups and downs and yesterday she made a comment on my post that compelled me to rethink yesterday’s doctor’s appointment with Anthony during which he described his dreadful terror the night before as ‘a bit of fun’. Sandra said, ‘He must have been embarrassed by his behavior. I cannot imagine how scary it must be when he doesn’t recognize people and they are trying to force him to do things he doesn’t understand.’

Sandra’s comment made me realize that Anthony’s bravado with the doctor was to cover his embarrassment and, even though I was aware of this at the time, it didn’t really hit me until I read Sandra’s wise words. Of course he was embarrassed – to be confused, to have been terrified of nurses, to have possibly made a fool of himself, and to have worried me so much. Anthony’s ‘bit of fun’ was his way of covering up his embarrassment and I understand that much better today than I did yesterday thanks to Sandra. She has once again helped to sharpen my sense of perception with her amazing empathy.

Our hearts have a lot in common except for one fundamental thing: mine is still beating loud and clear and Sandra’s is failing. She has congestive heart failure and is dying. But she is also living to the utmost, encouraging people like me and talking honestly about dying. Her book is now available and here is the link.

From my heart to your heart, Sandra.

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Parkinson’s disease dementia and night terrors

I have just gotten off the phone with Anthony for the third time in the last half hour. He is terrified and this is happening more and more often at around the same time of night. Tonight he thinks several people are trying to tie him up, that his house is being rummaged and wrecked, and that I am part of a conspiracy to hurt him. Ming and I have both talked to him and I have also rung the nurse in charge to tell her how distressed he is and that he is confused. She said they had tried to put him to bed (sometimes it takes two or three people) but he fought them all off. I told her he didn’t know what was going on and that we were seeing the doctor tomorrow to get emergency medication for this kind of hallucinatory agitation.

Our farm is a half hour drive away and I feel like I should sell up and buy a unit near the nursing lodge so I can be closer for these night terrors because for him to be this frightened is unbearable for all of us. I know/hope that in the short time it has taken to write this post, he will most probably be in bed and nearly asleep because in the end Ming and I managed to calm him down a bit – very hard to do over the phone.

The prolonged emotional agony of this disease, for all three of us, is like treading water in a strange and unfamiliarly large pool of murky water, and can change within the space of an hour. Earlier, when I rang Ants, he was fine and lucid and gorgeous. His words don’t come out very well any more so I was shocked by tonight’s frantic eloquence and his absolute terror. My feelings of helplessness are like jagged jigsaw pieces accidentally placed in the wrong box – futilely useless.

I love him so much.

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Kindness

I have just watched the 6th episode of Ricky Gervais’ Derek, and am struck mostly by the way it portrays a nursing home environment and the kindness of carers (rather idealized, nevertheless nearly real). It broke my heart to watch this because, as many of you know, my husband, Anthony, is now in a nursing home; but it also made me laugh because I can relate to many of the antics. I think this is a series that all who work in nursing homes should watch because it re-humanizes the people they are caring for. My gratitude to Wattle Hill Lodge staff for caring for my husband is something that leaps into my mind and heart every morning when I wake up without him here at home.

The kindness expressed, via gifts from friends to the children, facebook messages and blog support, to my family – my mother, brothers, sister-in-laws and to all of the children injured in the car accident two weeks ago, including my niece’s best friend (the niece still in hospital) – are so appreciated.

One of my brothers and his beautiful wife are all home now with their three injured-but-recovering children. K (11-yr-old nephew with the broken femur) is excited that his best friend has broken his arm in a trampoline mishap – well, not excited but you know what I mean. M (K’s twin) took her broken fingers and toe to a disco last night, still wearing her neckbrace! And T (also still in neckbrace) continues to stand tall and to support all of us with her amazing attitude and grace.

My other brother and his beautiful wife are in a more tenuous situation as they await their daughter, S’s spinal brace to be fitted so she can get out of that hospital bed. I know/pray she will make a full recovery long-term but at the moment it’s all very emotional and anxious for all of us.

The moments of absolute fury that this happened have been alleviated by the kindness expressed to all of us. Thanks to all. And thanks, Ricky Gervais, for a different perspective on the act of kindness.

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Opalescence

To my niece still in hospital:

Your name means wisdom.

As you wait, flat on your back, for healing, for the spinal brace to be fitted, for whatever comes next,
I have stopped eating garlic because I want to breathe out to you without stinking, even though we are 200 kilometres apart.

You have my freckles but you wear them like jewels. At your age, my freckles looked more like I forgot to wash my face after mud-wrestling. They’ve faded now but I hope yours never fade.

On your 14th birthday, the other day, when that grumpy woman wheeled your bed into the party room of the hospital, and told us off for lighting candles on your doughnut cake, I wanted to punch her in the face.

You told me to stop inboxing you so I did once I realised I had sent you 27 messages. Sorry about that, but I can’t seem to stop!

A celebrity kissed you on the cheek, your mother is a rock, your father is a mountaineer and you are, like your birthstone, a pure, shining opal.

Your nickname for me is AJ because I hate being called Auntie Julie. I love you for that.

I haven’t prayed for years but now I do – praying you will be okay, praying you will get the patience you need for the next months, praying for another private giggle, praying for every single tomorrow to be better than every single today.

Keep on opalescing, keep on being strong, keep on being you. You.

AJ

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The dangers of driving on gravel

It is nearly two weeks since the night of the accident in which my son was driving with four of his cousins and one friend in the back tray of his ute/truck. My family has learned so much from this, including the extent to which we love and respect each other. Responsibility for allowing the kids to go for a little ride has been shared and discussed, hugs have been exchanged, forgiveness has been a constant source of comfort to all I hope, but self-forgiveness is not so easy – not for me.

Even though I was the only one inside the house and didn’t know that my son had taken off with the kids for a second little ride, I should have already had a rule in place that this was absolutely forbidden. After all, it is against the law to have unrestrained passengers in the back tray of a ute. If I had had this rule in place, this wouldn’t have happened. Why didn’t I have this rule? Because it never occurred to me that my son would do this; he is such a cautious driver and has the reputation of driving like a granny! When they all came back from the first little ride and I realized they had been off the farm, I said to my son, “don’t do that again will you” but I should have said, “YOU WILL NOT DO THAT AGAIN!” If I had said that, this would never had happened. We are all struggling with our own ifonlys, but these two are mine.

What matters here is that, despite all five children sustaining serious fractures, with one still in hospital for some time, the longterm prognosis for all is full recovery, physically. Psychologically and emotionally, I think their recovery may be more complicated but as the young are so resilent, I hope and I pray that they will all unremember the terror of that night. For those in my family, who drove crazily around the outskirts of this country town, after my son’s panicked phonecall, looking for all of them, when they were only 2 kms away, the memories of our fear and horror will take longer to fade.

My son did a slow U-turn on bitumen, and was heading home again when he hit gravel and accelerated a bit, turning the steering wheel from left to right, just slightly, to give the kids a little thrill, and that is when he lost control and the ute fishtailed (I think); he tried to control it by braking, and steering it back, but nothing worked even though he was going less than 40kms.

If he had been speeding, hooning, drinking or a reckless person, this could have been worse. If he had coerced the children and snuck away for a little joyride, against our wishes, this could have been worse. The fact that everyone survived, and will recover, is the thing I tell myself each morning when I wake up to the horror of that night on constant replay.

When driving on gravel, be aware that your tyres only have half the grip they would on bitumen.
When driving on gravel, do not accelerate suddenly, even a little bit.
When driving on gravel, do not brake suddenly, even a little bit.
When driving on gravel, always go very slowly.

Nobody in this family – my beautiful family – will ever hop into the back of a ute again. Nobody in this family – my beautiful family – will drive without caution on gravel roads from now on.

My heart leaps with joy that everyone will be okay longterm, but his post is primarily to warn people of the dangers of driving on gravel, especially in a ute, and to never, ever, let your children get into the tray, no matter how much they want to, no matter how short the ride.

I am so sorry.

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Never take anyone for a ride in the back of a ute/truck – please.

If only….

Last week we were having a bit of a family reunion. My brother and two of his children had come over from Honiara to celebrate the birth of his first grandchild. My other brother, wife, and three children were going to stay with us overnight on their way to Perth the following day for their children’s basketball commitments – all three are high-level athletes. My mother was glowing with the pleasure of our family together because we all live at various geographical distances.

It was a lovely evening and we were all sitting out on the front veranda eating and drinking and enjoying being together. Ming took the kids for a little joyride on the back of his ute (truck) and all came back exhilarated and wanting more. When I realized he had taken them off the farm, I said not to do this again and all was well. I heard him being asked to go again and I heard him say no.

When I received Ming’s frantic phonecall a bit later I was confused because I thought he was in his shed at the back of our farm, entertaining his cousins and a friend. I had been inside the house doing some foody stuff when he took off again for another joyride with the kids in the back; I didn’t even know he’d gone again. He had lost control on gravel 2 kms away and smashed into a tree.

Before continuing with this difficult post, all of the children are now out of hospital except one niece who needs to be fitted with a skull to hip brace. Her best friend is out with a broken arm and my brother’s three basketballers are also out of hospital with healing fractures. All children will be okay longterm, with my niece, who has to have the brace for 3 months, most affected/injured and my heart aches for her.

But they are all alive, they are all alive, they are all alive. I am trying to counter my dread that night with this mantra that they are all alive and will recover and my futile thoughts of if only, if only, if only… and whatiftheyhadbeenkilled? are useless thoughts.

They are alive and will all recover. I think this is the most beautiful sentence I have ever written.

I have the most wonderful family with both brothers and families (even the magnificent children who were injured) sharing the responsibility of okaying Ming to take kids for that second joyride. We are all forgiving each other, and all blaming ourselves instead of each other. The next step will be to forgive ourselves. Ming has been hugged and reassured and forgiven by all family but he will be charged and go to court and he wants very much to be punished because he loves those kids so much.

A very hard lesson for all of us and a horrifying week, but we will recover in time and our closeness as a family is intact. Please, if you are a prayer, send prayers to all of the children but especially my niece still in hospital.

I won’t be posting again, or reading blogs, for some time. My main message here is in the title.

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