jmgoyder

wings and things

Peekaboo!

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Gutsy9 has now been living outside for 16 days. To begin with, he was sleeping in a big cage within a pen, but he has now graduated to sleeping outside the cage because he is tall enough to drink from the water container without the risk of drowning.

Zaruma and Tapper (married Muscovy ducks) have taken a liking to him so I put them in the same pen as G9 for the night, with the geese and turkeys in a separate pen.

When I go out to the pens in the morning to let them all out for the day, all the birds go crazy with delight but G9 literally jumps for joy to see me and sometimes twirls himself around in a little happy dance before following me across the lawn and into the back veranda of the house.

He followed me into the bathroom today, asking for a cuddle!

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What did I say that for?

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This morning I wrote a post about coincidences in which I said, I was 19 when my father died. Ming is 19 now and his father is dying.

I don’t know why I said something so morbid when I wasn’t feeling morbid. I was feeling a curious mixture of fatalism and resignatiom, I guess, but not morbid.

Now, however, I do feel morbid because of my own stupid sentences and I wish I had said, I was 19 when my father died. Ming is 19 now and his father is alive.

Some people philosophize that you begin to die as soon as you are conceived which is, of course, true, but not a particularly pleasant way of thinking about life.

When Anthony was diagnosed with advanced prostate cancer and given 1-3 years to live (several years ago!) we were utterly devastated. I remember tearfully telling a friend and he said, Well, we are all dying aren’t we and another friend said, well, he’s had a good life. Neither of these comments were helpful, but they were true.

Anthony has outlived his prostate cancer prognosis only to fall into the arms of Parkinson’s disease. But I no longer think of this as cruel and tragic and neither does Anthony. In fact I have never seen the tiniest sign of self-pity from him in all these many years of illness.

Yes, Anthony is dying, but he is also living. And that’s a coincidence.

Oh yes and all the geese are alive and well, especially Godfrey!

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Lucky in love

I arranged for Anthony to be wheel-chair taxied home today for the third time this week. We are doing this so often lately that it is becoming the new norm. Anthony arrives here at 2pm and is taxied back to the nursing lodge at 4.30pm.

There have been numerous logistical glitches with this arrangement, but it’s getting smoother.

When Ants arrives, it takes awhile to get him out of the taxi, but once he is on the front veranda, it’s like the good old days – just the two of us.

Today, Ants saw Ming before milking, then we visited his nephew’s family, then we came back home to have a drink before the taxi arrived and, for the first time, Ants accepted he had to go back to the nursing lodge.

We hugged and kissed goodbye but there were no tears from either of us – phew.

Anthony was/is my first and only love. He continues to make my heart beat faster. I am so lucky!

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Ageism 2

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I feel compelled to write a follow-up to yesterday’s post due to the interesting comments that were made. There was even a little debate on my blog which has never happened before!

The ageism that Ming has admitted to is not directed at just Anthony; it is more generalized. He is easily annoyed with all things old – not just people. For example we live in a very old house where things are beginning to break down and wear out – old carpets, broken furniture, warped flyscreens, holes through which mice enter, old plumbing, electrical wiring etc. Similarly, we have problems outside with old lawnmowers, trees, sheds, hoses, water tanks etc.

This is all perfectly normal for an old farm and none of it is insurmountable, but getting things fixed is expensive and time-consuming and, for young Ming, a source of constant frustration.

Add to this old Anthony’s deterioration in health and we have a young Ming with an aversion to both the concept and reality of the word öld”.

If I were to define compassion, I would say it is equal parts sympathy and empathy. Sympathy is feeling sad FOR somebody else, whereas empathy is feeling sad LIKE somebody else. In general, the latter does not come easily to young people when dealing with old people.

I think that if Ming weren’t compassionate, he would not be worried about his lack of empathy for Anthony. He wants to be empathetic but he can’t feel it and I can’t make him feel it, so we accept it. His love for Anthony runs deep, but his liking of Anthony is problematic because Ants is now so old, frail and incapacitated that Ming avoids seeing him. Strangely, I am the one most hurt by this as Ants is more philosophical and remembers feeling the same aversion to his own father after his father had a stroke.

Yesterday’s post was not intended as a moan or a cry for help; I was just telling it like it is, warts and all!

When people ask Ming, “So, what are you doing these days?” Ming always replies proudly, Ï’m following in Dad’s footsteps.” I used to think Ming was referring to the fact that he is milking cows but now I think his statement means much more.

Oh yeah, and a bad day doesn’t mean a bad life. We are lucky.

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Ageism

Before I entered university life, I worked for around ten years in nursing homes. I felt an enormous affection for elderly people and began to understand the communication value of stories told by people who were in various stages of dementia.

I wrote a PhD, then a book, then articles – all published – and Anthony was so proud of me. We used to talk about the elderly people I’d met, their stories, my theories, and the various drawbacks of life in a nursing home. This was around the same time we got married – 20 years ago.

Little did I know then what would happen to us now, that Anthony would be in a nursing home, that Anthony would get Parkinon’s disease dementia (PDD), that Ming, our son, would become ageist.

Like many young people, Ming has an aversion to old age, but he never used to! He used to be compassionate and kind; now he is either horrified or indifferent.

We had a discussion about this last night and Ming actually admitted to ageism.
“It’s Dad’s fault,” he said.

I went outside and wept.

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Anthony and Gutsy9 today

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“Playing” dead (don’t worry – he’s fine!)

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Gutsy9 (baby peacock for those who don’t know) likes playing dead and I keep getting a fright! Of course he is not really playing dead, he is just playing.

When Anthony was still living at home, he used to do this (not intentionally of course), and I would find him slumped in his chair, apparently asleep but looking as if he were dead. Sometimes I couldn’t wake him up but he would still be breathing. This happened at least once a day over the year preceding his admission to the nursing lodge. Since then, I have had to get the ambulance three times when this has happened on a home visit.

The cause? Advanced Parkinson’s disease. The cure? None.

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Dementia is confusing

Anthony’s encroaching dementia confuses both of us and sometimes I am more confused than he is. That’s why I am so glad we have such an honest way of talking with each other.

When Ants was home yesterday, and I mentioned that he had dementia and he winked at me, I was surprised for two reasons. Firstly, his Parkinsons disease prevents him from blinking, let alone winking, so that wink was weirdly wonderful. Secondly, when he and I talked about the dementia of his PD, and I laughed about the taxi mishap, Ants was fine – not distressed and quite okay with the fact that he has dementia now.

I’m confused.

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Anthony’s acceptance

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One of the most difficult things about Anthony moving into the nursing lodge has been accepting this dramatic change.

Ming (now 19) was the first to accept this change willingly, whereas it took me nearly a year and mine was an unwilling acceptance laced with grief and guilt.

Anthony’s own acceptance has taken longer but yesterday it just happened and I am so relieved. This is how:

I booked the wheelchair taxi to pick Ants up from the nursing lodge at 2pm, then I rang his nephew who lives around the corner, and left a message that Ants would be home for a few hours.

Then, at 2.30pm, the nephew rang to say Ants was at their place! Apparently Anthony had convinced the taxi driver that our address was wrong and directed him to go to the nephew’s!

By the time the rather flustered taxi driver arrived here (around 2.45pm) I was in such fits of laughter that I could hardly speak as he got Ants out of the taxi. I hugged Ants, still spluttering with hilarity, so much so that Ming took over wheeling Ants to the front veranda while I paid the taxi driver who was now laughing too.

Okay, frivolity aside, the bemused taxi driver left, Ming went to milk the cows and Ants and I shared a beer and some snacks I had painstakingly prepared (chips). Here is our conversation:

Ants: It’s good to be home.
Me: So why did you go to the nephew’s?
Ants: I got mixed up.
Me: Yeah, you have a bit of dementia now.
Ants: I thought so. Am I staying the night?
Me: No!
Ants: Why?
Me: Because, Ants, you are too sick, I can’t lift you, and you need nursing care. How many times do we have to have this discussion? You have to accept it Ants – please!
Ants: You’re right.
Me: What?
Ants: You’re right.
Me: Okay, so the wheelchair taxi is coming to take you back in a few hours. Are you okay with that?
Ants: Yes, Jules (winking).

We then shared another beer, laughed again about the taxi mishap (well, I laughed and Ants looked at me as if I were crazy), then he began to droop badly and agreed to get the taxi earlier.

Acceptance.

PS. I’m off on my bike to tackle the road now!

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The shortlist

I have discovered something wonderful and I’m sure Oprah will be contacting me soon to make me rich and famous.

Okay, we are all familiar with the list thing – shopping lists, chore lists, goal lists etc. But you know what the trouble is with these lists? They are too long!

My extensive research, case studies and social experimentation over the last three days have produced extraordinary findings! Yes, indeed, I have found the cure for lethargy!

The two candidates for this study were a teenage son and his mother who were becoming more and more depressed and, yes, lethargic, due to the grief they were experiencing when the husband/father figure went into a nursing home.

Neither the wife or son had been able to adjust happily to the new home dynamic despite having a close relationship. This was compounded by the son having to have major surgery and the mother losing her job.

Even a year after the husband’s admission to the nursing home, the son’s surgery and the mother’s loss of employment, all three were still struggling to accept the new status quo. All three were grieving in different ways and this resulted in numerous arguments with emotions running high, particularly between the mother and son. Both became exhausted and fell into a state of lethargy.

Then, three days ago, a plan was devised. Each day, the mother and son would write down a 3-point shortlist for the following day. This was done in a special notebook, almost like a contract. There would be one task that required both (we called that ‘mutual’), one task for the son, and one task for the mother.

The beauty of the shortlist is that it is ‘doeable'(is that a word?)

Okay, tongue out of cheek now – this is working, so watch this space!

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