jmgoyder

wings and things

A marriage proposal!

After a couple of days of intense sleepiness, Ants was wide awake and alert today due to a visit from some favourite family members. It was magic!

Later, when it was just Ants and me, he mumbled something resembling “marriageable” and this was our conversation:

Me: What do you mean by marriageable?

Anthony: Well you know….

Me: So do you want to get married?

Anthony: Yes.

Me: But we ARE married!

[At this point Ants gave me one of his half-smiles]

Anthony: Yes, I know that.

Me: So do you want get married again?

Anthony: Not sure about the hundreds.

Me: Hundreds of what?

Anthony: Cameras.

Me: What? [I show him the TV remote]

Anthony: Yes, that’s it … for the wedding … hundreds ….

Me: So let me get this right: you want another wedding?

Anthony: Well, I have thought of it from time to time.

[So anyway I cracked up laughing at this typically Anthonyesque punch-line which of course got him smiling too.]

Me: I am not going through all of that rigmarole again, Ants – I hate wearing a skirt!

Okay, so recently I have begun to get a bit lazy with my visits to the nursing home to see Ants and other residents who I have become fond of. But, even a single day’s reprieve takes its toll in terms of guilt. Yes, I can do my own thing and not go into town, and be fine with that. But, after two days, it’s a bit like a ‘cold turkey’ situation. I miss Ants too much; I ring up when I can’t come in, to make sure he is okay. Most of the carers know now to tell him I will be in later.

In the past, Ants and I never had a hand-holding, smoochie-whoochie relationship; we were always quite restrained. Now, he holds my hand tightly (and the other day when he was unwakeable, he gripped my mothers’ hand when he was asleep – yes, I am a teensy bit jealous haha!)

Of course I will marry him again but only in a let’s pretend way. Why do I visit this man of mine so often, despite his illnesses? Because I love the way he loves me and vice-versa; pretty simple really.

 

 

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Once upon at time 5

During the two years that the young girl worked for the dairy farmer’s mother, she learned how to cook, and salmon mornay was a favourite dish. Melting the butter, whisking in the flour with a fork, adding the milk, getting the bones out of the tinned salmon … it was all rather magical for the young girl.

Eventually, she became quite adventurous in the kitchen and one afternoon, while the dairy farmer’s mother was having her afternoon nap, she cooked fish cakes for their dinner. It was the first time she had cooked anything without the dairy farmer’s mother’s supervision and she was very excited as she followed the instructions of a recipe book found in a secret drawer in the kitchen table.

It was a disaster! The fish cakes were thin and charcoaly instead of being plump and crispy. The dairy farmer didn’t say anything as his mother rose from her chair and declared that the meal was “DIABOLICAL!”

The young girl fled to the back veranda bathroom to cry out her humiliation, the dairy farmer put his mother to bed, and that was that … until the young girl accidentally allowed the simmering grapefruit marmalade to boil over the pot and into the precious Aga. But that’s another story.

Note: Not everything is funny in retrospect, but a lot is! I haven’t lit the Aga for the four years since Ants has been in the nursing home, but it is, nevertheless, a constant reminder of the various mishappinesses of the beginning of our relationship. I reminded Ants today and he gave me his slow half-smile: gold!

 

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“Where is Mum?”

I think I’ve mentioned this before, but Anthony often asks about his mother. He either asks me where she is or how she is. It’s a difficult question to answer because Anthony’s mother died over 30 years ago. Sometimes I just say that she is fine; other times, especially when Ants wants to visit her, I have to gently tell him the truth.

Me: Ants, she died a long time ago … remember?

Anthony: Sorry, Jules, I got stuck.

Me: It’s okay, Ants – it’s just the Parkinson’s disease affecting your memory. Don’t worry about it.

Anthony: Parkinson’s disease, yes.

Me: Do you remember your mother’s salmon mornay?

Anthony: Yes – beautiful.

Me: And how I couldn’t make it as well as she did?

Anthony: Yes you could!

Me: She is definitely one of my heroes.

When a son, who is nearly 80, remembers his mother with such incredible affection and concern, it makes me pause, look up at the sky …

and wonder

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Home away from home

Yesterday, Ants mentioned going home to ‘Bythorne’ (the name of our farm). He hasn’t done this for ages so I was a bit disconcerted. This happened just after the ordeal of getting him from the dining room back to his room (I got him up but then he couldn’t walk, even with the walker); some ablutionary care via two wonderful carers; and the finale – gently settling Ants into his armchair.

Five minutes later, this was our conversation:

Anthony: Come on, let’s go to Bythorne!

Me: What?

Anthony: I want to go home.

Me: This IS home now, Ants.

Anthony: But why? I’m fit.

Me: You have Parkinson’s disease and I can’t lift you anymore.

Anthony: But you just did.

Me: Yes, but I ended up needing the help of two carers! You’re heavy, you silly! What do you want to do – break my back? 

Anthony: Why do you keep running off?

Me: Well, I have boyfriends everywhere, Ants!

Anthony: Not funny, Jules.

INTERMISSION

Me: Anthony, I have now been holding your hand for nearly three hours.

Anthony: It’s a good little hand.

Me: I have to go now and do the grocery shopping. What do you feel like tonight – chicken or steak?

Anthony: Steak.

When I leave the nursing home to come back home, I know that Anthony will (hopefully) only wait a little while for me to bring the steak back, and then he will forget. In fact, by the time I get home – minus steak – he will probably be very nearly asleep.

In many ways, this home, emptied of Anthony’s presence, has become a bit, well, empty! Without the happy/zappy presence of Ming (who is Anthony’s clone in so many ways), it would be very tempting to leave this Anthonyless place and begin again. But Ming and I love this place, love this farm, love this home.

 

 

 

 

 

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Anthony’s hilarious sarcasm!

Yesterday, when my mother visited us at the nursing home, she asked me how one of her friends was; her friend is in the dementia cottage where I worked for awhile last year. So I said, “Let’s go and visit her!” So we did. I love going there to see the wonderful women (residents and staff).

I told Ants we’d be back soon as the dementia cottage is just around the corner from where he is – in the high care section.

ME: Ants, we’re just going to visit some of the neighbours.
ANTHONY: What about me?
ME: I’ll be back really soon, okay. You stay here.
ANTHONY: I suppose I’ll see you in two or three weeks then.

He has a gift for sarcasm – always has!

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Bright eyes!

I feel compelled to record these updates on Anthony’s health, so that I will remember in the future. The unpredictability of his daily condition is just that – unpredictable. After days of silence and sleepiness, today his eyes were wide open (one of the many symptoms of PD is not blinking, so this makes his eyes very wide!)

Me: You look like an owl!
Anthony: I …
Me: Clear your throat – c’mon, cough!
Anthony: Coughing.
Me: So what did you want to say?
Anthony: Where is your mother?

Okay, so a little background information for those who don’t know. My mother is 81 and fighting fit despite numerous health challenges (cancer, broken hip, pelvis, wrist). She lives independently in a town not far from here and she is the epitome of maternal/grand-maternal etc.

The fact that she visits Ants so often – around twice each week and more if I need a break – is testament to her amazing love for me, her only daughter.

Today, she and I joked with Ants, and his eyes lit up several times, with mirth and affection and, of course, confusion.

Thanks, Mama!

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Auto/biographical risks

I was very fortunate to have once been a student of Elizabeth Jolley. She wrote fiction that was heavily laced with fact; she changed names to protect the guilty; she took risks.

The primary reason that I have hesitated over the years (decades actually!) to write what I think is a rather spectacular love story, is due to the yucky bits of the story – the betrayals, conflicts, mysteries and agonies in and amongst its success.

By writing increments of this “Once upon a time” story, I face the challenge of writing about how Anthony and I dealt with the disapproval of our relationship from both sides – from both families – and from well-meaning friends.

Over the last few weeks I have blogged outside the “Once upon a time” story, with tidbits of information about a recent event that traumatised me, and reminded me of some of the yucky stuff from the past. These posts, some now deleted, or edited, are, privately, an avenue into the complicated past of my relationship with Anthony.

When I say rather dramatic things like ‘spectacular love story’ I only mean that it was against all odds – a 41-year-old and an 18-year-old (the beginning), and now (the ending?), a nearly 57-year-old girl/woman sitting in a nursing home with her hands hugged by his nearly 80-year-old fingers.

My recent truthful tidbits have earned me the angst of one family member and, conversely, the support of many others.

I remember, years ago, Elizabeth Jolly speaking to me about one of my short stories:

EJ: This is far too painful, dear. Rewrite it.

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Dilemma delights

The other day, one of Anthony’s nephews and his wife visited us at the nursing home. We figured out that we probably hadn’t seen each other since Ants’ 75th. My mother also happened to be there, and Ming arrived soon after because he wanted to re-meet one of his many cousins.

As soon as this nephew entered the room, he sat right next to Anthony, shook his hand, made eye contact, and exclaimed, “Uncle Ants!” then reminisced about when they had been children. He talked directly TO Anthony and, even though Ants wasn’t very vocal, he was responsive and he easily recognised this lovely couple.

It was a wonderful hour or two and, as I was walking the nephew and his wife out to their car, she admitted to me that she’d been a bit nervous, had wanted to remember Anthony as he was, but now felt reassured about how he IS.

The next day, I reminded Anthony of this visit, and his three-syllable, whispered response was “DELIGHTFUL”.

Okay, so that should be the punchline, but it isn’t. What I have learned from this visit, and from the frequent visits of other relatives and friends, is that speaking TO Anthony, no matter how unresponsive he seems, is vital.

It is unavoidable, of course, that, in a situation like this, we will also speak ABOUT him in front of him and I always find this TO-versus-ABOUT very difficult. It feels a bit disloyal to me; that weird scenario between being with the person who is being spoken to versus the scenario in which the person is being spoken about.

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Once upon a time 3

At some point in time (I think she was 22) the young woman decided to put some geographical distance between the dairy farmer and herself.

Ironically, it was he who picked her up from her mother’s house, and drove her to the airport. She had dressed up and put make-up on; the photograph her mother took shows a very handsome couple with too-wide smiles.

In the plane, on the way to London, the young woman tried over and over and over again to drop her burden of love into the various oceans, islands, and even into the black of night. But it was such a massive bubble, this wonderful love, that it lost its footing during a particularly difficult gravity experiment.

It (the love thing) floated easily up into the sky-clouds and had a bit of a rest.

The dairy farmer drove back from the airport to the farm.
The young woman began her ‘nanny’ job in London.

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Vacuuming

On the eve of Ming’s 22nd birthday I asked him to vacuum the house.

I had already given him a pre-birthday present of some money, but told him that he would only get the rest if he vacuumed the house.

He grinned, pointed out that the vacuum cleaner needed a new bag, asked me if I remembered how to change the bag, then tested my memory of how to change the bag. I have no idea why I have a reluctance to change the bag; Ants always did that, then Ming. But, in my defence, I am the one who does most of the vacuuming.

Well, having passed the ‘change-the-vacuum-bag’ examination, Ming dismissed me to my newly air-conditioned writing room/office, still grinning (him, not me) and I waited with bated breath for the sound of the vacuum.

I didn’t expect the sound to be so loud. Anthony was always a quiet, careful, gentle vacuumer; he didn’t want to upset the skirting boards. Ming, on the other hand, is a rather violent vacuumer. The BANG AND CRASH sounds were a little alarming so I decided to stay put in the hope that he would forget about this room where I was hiding under my desk.

Finally the sounds of mad vacuuming ceased. The silence was so abrupt that I wondered if the vacuum cleaner was all right. After a little bit more silence I realised that I should have been wondering about Ming.

I emerged from underneath my desk just as Ming entered my writing room. A great big grinning presence.

Ming: Well, I’ve cleaned your house!
Me: OMG that is exactly what Ants said after vacuuming! Every time he did anything domestic, he would make it known that he had done if for me, and I would argue that it was also his house.

I can’t wait to tell this story to Ants tomorrow. I know he will remember his obsession with vacuuming and Electrolux. And I know he will smile at Ming’s vacuuming efforts.

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