jmgoyder

wings and things

Not so heavy.

This afternoon, Ants and I sat out in the sun, on the beach side of the nursing lodge, then went for a short walk up the rather steep driveway so we could catch a glimpse of the ocean.

To give you an idea of how exhausting this was for Ants, the distance up to the crest is about 15 – 20 ordinary strides. Anthony uses a walker of course, but can barely lift his feet so, for him, the distance to the crest was well over 100 shuffled steps, then back down again. Once inside, I could barely get him back to the armchair in his room and thought I’d have to get the wheelchair, but we made it.

Getting him to turn around, let go of the walker and sit in the chair took ages, and I finally used all my strength to sort of hoist him around and plonk him down. This left us both gasping and I got the giggles.

I bet the nurses are much gentler with you, I said.
But with you, there are sexual overtones, he said with a hint of a smile.
For God’s sake, Ants, are you crazy? I yelped.
Then why are you blushing?

I can assure you, I was not blushing!

31 Comments »

Parkinsonism, body thermostats, and the bitch.

The other day, when Anthony was home for lunch and the afternoon, and Ming and I were trying to get the living room warm enough for him, I became a bit impatient. We had a roaring fire going, a heater on, and two blankets on his knees, but he was still shivering with cold in a room so hot that I was soaked with perspiration.

Your thermostat’s had the bomb, Ants! I accidentally sort of yelled this as I was wrapping the stupid blankets under and around his feet.

Mum, don’t be such a bitch! Yes, that came from Ming of course.

Ants, can you tell Ming not to ever again call me a bitch?

And then Anthony said very clearly, I think, that in this context, it’s acceptable.

Shared laughter immediately thrilled its way through that hot room!

31 Comments »

Free lunch

Anthony’s Parkinsonism symptoms include difficulty in swallowing but, so far, he is still able to half-manage normal, rather than mushed meals. However, his appetite is diminished and he has a dribbling problem.

Recently I have been going into the nursing lodge in the late mornings so that I can help him with his lunch. The lunch meal is always huge and often a roast, and is delicious. Ants only ever eats half of it, so I secretly gobble the rest with a separate spoon or fork.

– Use my fork, he says.
– I’m not particularly keen on your saliva, I say.
– One more mouthful, he says.
– So you want me to actually feed you?
– Erotic, he says without hesitation, and I crack up laughing.

I wonder what’s on the menu tomorrow.

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Gutsy9 update in the form of a haiku

Gutsy9

Atop my shoulder
This beautiful little friend
My teenage peacock

[Many thanks to Samantha for this photo of G9 yesterday].

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Parkinsonism

I am finding it very difficult to talk/write about this without crumbling into a teary mess of memories. Hopefully, it will be okay if I just post short glimpses of how Anthony’s Parkinsonism revealed itself. It’s not all tragic, of course, and we continue to have many comic moments.

My first memory of something being amiss with my macho-machine husband was when he couldn’t open the Vegemite jar for our morning toast. I even remember teasing Anthony which, in retrospect, seems cruel, but we had a buoyantly bantery relationship, a beautiful little son, and I was adept at opening jars of Vegemite for Ming.

Little did we know then that Parkinsonism had moved into the spare room.

37 Comments »

An eventful year (1995)

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In 1995, I got a part-time job at the local university lecturing in creative writing.

In 1995, Anthony was diagnosed with kidney cancer and had his left kidney removed

In 1995, Ming turned one, was baptised, went from crawling to running, learned how to clean his teeth, got into the vroom of things, slept peacefully, learned how to wash a car, yell HURRAY, climb mountains and open his own Christmas presents.

But, of the three of us, I am the only one who remembers any of this now because Ants is too old and Ming was too young.

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Grateful

When I got an email from doudou (my blog friend), I went to her blog and saw this! I’m a bit emotional at the moment so I cried and laughed at the same time.

Thank you so much, doudou, for upside-downing my frown into a great big grin.

http://doudoubirds.wordpress.com/2013/04/23/ode-to-tina/

37 Comments »

All alone – ahhhhhhh!

Pure bliss!

Ming has gone to Perth to watch a football game so there is nobody here to say:

What’s for dinner?
Why are you flooding the pens and wasting water on those stupid birds?
I thought we were watching a movie together 20 minutes ago!
I don’t particularly like this dinner – what is it?
What the hell are you crying for – what did I do wrong now?
Don’t touch any of my stuff!
But why do you want me to move out?
You ruined my life yesterday when you said to move out.
No, I don’t want to ring Dad again!

On the other hand….

Mum, you are like my mate.
Do you need a hug?
I’m sorry I didn’t like the dinner – I tried to!
Are you okay?
Can we have a talk about life tonight?
I wish I knew Dad when he was young.
I love you, Mum.

He is my best friend – this Ming – but it’s still rather pleasant to be Mingless for 24 hours – haha!

28 Comments »

Despair and toilet paper

pea 819

I got home from my mother’s place this afternoon thinking I should have stayed another night despite the care package. Then I found that Ming hadn’t eaten much and was down in the dumps. Then I tried to ring Anthony (and am still trying), to tell him I’ll see him tomorrow. Then I discovered that there was no toilet paper.

Now I don’t think the lack of toilet paper usually sends people over the edge, but I experienced 15 minutes of crushing despair until I spotted a quirky gift on my bookcase – Novelty toilet paper!

I cried half of it away but the rest will be used for usual purposes! Now I just wish I could remember who gave this TP to me.

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Let me in!

pea 756
pea 755

Gutsy9 (the 5-month-old peachick I raised inside the house because none of our peahens were interested) is thriving outside now. He sleeps in a pen with the ducks, Zaruma and Tapper, but every morning I find him in the adjacent pen with the turkeys, Bubble and Baby Turkey! Oh well at least he doesn’t venture into the geese pen because Godfrey hates him.

As soon as I open the three pens to let them all free-range for the day, I am met with a cacophony of excited noises and then G9 actually sprints after me to the house and follows me inside.

Until today. Today I decided to say no to him, and tried to explain that his peacock poop is the reason. He wasn’t happy!

Oh and G9 is definitely a boy because our friend, Mike, who raises peas told me so. I’m not as thrilled as Anthony was when Ming was born and he yelled IT’S A BOY!

Secretly I was hoping for a little peahen – ha!

21 Comments »