jmgoyder

wings and things

One-liners

Anthony has always been really good at encapsulating what would take me paragraphs to describe. And, in between the worsening mumblingishness of his speech, he comes out with extraordinary witticisms.

This afternoon, for instance, we were drinking red wine and watching an appallingly good soap opera on TV when the guy in the next room (I’ll call him John for anonymity) accidentally walked in.

I see Anthony’s eyes, usually expressionless, harden. So I get up and gently steer John back into the hallway where a nurse takes his arm and tells him she has made a cup of tea. He looks back at me and says, Tomorrow we gistust this potatoes worry, okay?

Leaping back into Anthony’s room (before he drinks my wine!) I ask him about John.

What do you do when he comes into your room and disturbs you? I ask.

He looks at me really seriously and quietly says, PANIC!

I laugh so loud that a nurse comes in, worried that I am upset about the John incident. I tell her what Ants said and she guffaws too.

As I am leaving, I hug my husband and he whispers in my ear, I am making people laugh again, Jules!

So you’ve stopped the grumpy thing? I ask, hopefully (knowing that my gentle man has become uncharacteristically cantankerous lately).

But in just these few minutes of saying goodbye, he has gone somewhere and there is no point trying to follow him.

So I go to where my sobs won’t be heard – the disabled toilet near the exit from the nursing lodge – then I wash my face, put my lipstick back on, and go back to say seeya to Ants.

Panic.

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Style

I don’t think ‘style’ is quite the right word but it will do.

There are all sorts of styles….
– of breathing
– of living
– of dying
– of grieving
– of laughing
– of hoping
– of loving

Etcetera.

And each person’s style is unique, sometimes chosen, sometimes accidental, but always, always, very personal.

Let’s take grief, for example. My own for Anthony’s slow decline into the fog of Parkinson’s disease/Parkinsonism and dementia has taken a few U-turns. No, no – that’s not right – it is I who took the U-turns.

I know this is going to sound terrible, but I have gone through phases of not wanting to see him; getting him home only to find it impossible to lift him, and becoming angry; wanting the wheelchair taxi to come early. Can you imagine the guilt?

But of course these emotional transitions are not just mine; they are his too. In the 18 months since he entered the nursing lodge, Anthony has had to get used to hands other than mine undressing and showering him, meals that I didn’t cook, unfamiliar blankets, surroundings, people….

Etcetera.

This is my grief, my guilt, my love, my style, my Anthony, and, despite the private/public paradox of my blog, it has never been a cry for help.

My style:
– Do not try to rescue me
– Do not worry about me
– Do not try to get me out-and-about
– Respect my privacy.

I love Ants in a past/present way, that beautiful figure of male virility, running through the paddocks to get the cows in and yelling, ‘Jules, RUN!’

We were friends for years before our relationship became serious … and now we are friends in that original, platonic way (despite his occasional innuendos).

And I seem to have fallen in love all over again which is quite weird until I realize that Anthony is the only man I have ever loved in that falling-in-love way. It is the same for him.

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Parkinsonism, body thermostats, and the bitch.

The other day, when Anthony was home for lunch and the afternoon, and Ming and I were trying to get the living room warm enough for him, I became a bit impatient. We had a roaring fire going, a heater on, and two blankets on his knees, but he was still shivering with cold in a room so hot that I was soaked with perspiration.

Your thermostat’s had the bomb, Ants! I accidentally sort of yelled this as I was wrapping the stupid blankets under and around his feet.

Mum, don’t be such a bitch! Yes, that came from Ming of course.

Ants, can you tell Ming not to ever again call me a bitch?

And then Anthony said very clearly, I think, that in this context, it’s acceptable.

Shared laughter immediately thrilled its way through that hot room!

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Free lunch

Anthony’s Parkinsonism symptoms include difficulty in swallowing but, so far, he is still able to half-manage normal, rather than mushed meals. However, his appetite is diminished and he has a dribbling problem.

Recently I have been going into the nursing lodge in the late mornings so that I can help him with his lunch. The lunch meal is always huge and often a roast, and is delicious. Ants only ever eats half of it, so I secretly gobble the rest with a separate spoon or fork.

– Use my fork, he says.
– I’m not particularly keen on your saliva, I say.
– One more mouthful, he says.
– So you want me to actually feed you?
– Erotic, he says without hesitation, and I crack up laughing.

I wonder what’s on the menu tomorrow.

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Gutsy9 update in the form of a haiku

Gutsy9

Atop my shoulder
This beautiful little friend
My teenage peacock

[Many thanks to Samantha for this photo of G9 yesterday].

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Parkinsonism

I am finding it very difficult to talk/write about this without crumbling into a teary mess of memories. Hopefully, it will be okay if I just post short glimpses of how Anthony’s Parkinsonism revealed itself. It’s not all tragic, of course, and we continue to have many comic moments.

My first memory of something being amiss with my macho-machine husband was when he couldn’t open the Vegemite jar for our morning toast. I even remember teasing Anthony which, in retrospect, seems cruel, but we had a buoyantly bantery relationship, a beautiful little son, and I was adept at opening jars of Vegemite for Ming.

Little did we know then that Parkinsonism had moved into the spare room.

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The Parkinson’s disease that nobody seems to know about

Okay, of course the medical professionals know a bit about the type of Parkinson’s disease that Anthony has lived with for nearly a decade, but his official diagnosis is Parkinsonism. Anthony doesn’t have the Michael J Fox variety of Parkinson’s disease; for example, he has no tremors. If he’d had the characteristic tremors, we may have found out earlier.

Anthony’s Parkinsonism is best described as a list of losses in movement. If I look back in time, my first memory of a change in Anthony was his face. It was a big, huge face with a receding hairline and a deeply grooved forehead, twinkling blue eyes, large, but refined nose, sunburned cheeks, large, laughing mouth with good, straight teeth, and a strong jaw.

To be be continued….

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June 1st

Well I had my month off blogging, and only kept up with other people’s blogs haphazardly, and I have to say it was a refreshingly silent month. It has given me the time needed to reassess a few things, turn some corners, contemplate the future, and come to terms better with Anthony’s deterioration.

Gutsy 9, the not-so-baby peacock, is thriving and now sleeps in the wattle trees at night with the other peacocks, and is quick enough to get away from our two dogs now. He still does madly joyful pirouettes whenever he hears my voice and loves to fly up onto my shoulder for a kiss. (I don’t have a new picture of this so have included one from when he was little. He is now twice this size, so rather heavy).

Ming is still happily milking for our dairy farmer neighbours, and creating music in the evenings. He gave me 4 nights at a luxury resort for Mothers’Day – not a bad gift!

I still battle bouts of volcanic grief about what is happening to Anthony, but have learned a few more ways of bringing joy back into our little family.

It’s good to back and thanks for the many comments. This is a lovely community.

pea 148

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Thanks!

Just checking in halfway through my blogbreak. Thanks to all for comments on last few posts – I really appreciate it and had intended to reply, sorry!

I’ve temporarily unsubscribed from most blogs to give myself a break, but will get back eventually I hope.

It’s just that I am so sad at the moment, about Anthony, because of how fast the dementia is happening now.

Ming, Gutsy9 and I are all fine which somehow seems wrong. I miss Anthony so much.

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An eventful year (1995)

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In 1995, I got a part-time job at the local university lecturing in creative writing.

In 1995, Anthony was diagnosed with kidney cancer and had his left kidney removed

In 1995, Ming turned one, was baptised, went from crawling to running, learned how to clean his teeth, got into the vroom of things, slept peacefully, learned how to wash a car, yell HURRAY, climb mountains and open his own Christmas presents.

But, of the three of us, I am the only one who remembers any of this now because Ants is too old and Ming was too young.

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