jmgoyder

wings and things

Bright eyes!

I feel compelled to record these updates on Anthony’s health, so that I will remember in the future. The unpredictability of his daily condition is just that – unpredictable. After days of silence and sleepiness, today his eyes were wide open (one of the many symptoms of PD is not blinking, so this makes his eyes very wide!)

Me: You look like an owl!
Anthony: I …
Me: Clear your throat – c’mon, cough!
Anthony: Coughing.
Me: So what did you want to say?
Anthony: Where is your mother?

Okay, so a little background information for those who don’t know. My mother is 81 and fighting fit despite numerous health challenges (cancer, broken hip, pelvis, wrist). She lives independently in a town not far from here and she is the epitome of maternal/grand-maternal etc.

The fact that she visits Ants so often – around twice each week and more if I need a break – is testament to her amazing love for me, her only daughter.

Today, she and I joked with Ants, and his eyes lit up several times, with mirth and affection and, of course, confusion.

Thanks, Mama!

22 Comments »

Auto/biographical risks

I was very fortunate to have once been a student of Elizabeth Jolley. She wrote fiction that was heavily laced with fact; she changed names to protect the guilty; she took risks.

The primary reason that I have hesitated over the years (decades actually!) to write what I think is a rather spectacular love story, is due to the yucky bits of the story – the betrayals, conflicts, mysteries and agonies in and amongst its success.

By writing increments of this “Once upon a time” story, I face the challenge of writing about how Anthony and I dealt with the disapproval of our relationship from both sides – from both families – and from well-meaning friends.

Over the last few weeks I have blogged outside the “Once upon a time” story, with tidbits of information about a recent event that traumatised me, and reminded me of some of the yucky stuff from the past. These posts, some now deleted, or edited, are, privately, an avenue into the complicated past of my relationship with Anthony.

When I say rather dramatic things like ‘spectacular love story’ I only mean that it was against all odds – a 41-year-old and an 18-year-old (the beginning), and now (the ending?), a nearly 57-year-old girl/woman sitting in a nursing home with her hands hugged by his nearly 80-year-old fingers.

My recent truthful tidbits have earned me the angst of one family member and, conversely, the support of many others.

I remember, years ago, Elizabeth Jolly speaking to me about one of my short stories:

EJ: This is far too painful, dear. Rewrite it.

38 Comments »

Dilemma delights

The other day, one of Anthony’s nephews and his wife visited us at the nursing home. We figured out that we probably hadn’t seen each other since Ants’ 75th. My mother also happened to be there, and Ming arrived soon after because he wanted to re-meet one of his many cousins.

As soon as this nephew entered the room, he sat right next to Anthony, shook his hand, made eye contact, and exclaimed, “Uncle Ants!” then reminisced about when they had been children. He talked directly TO Anthony and, even though Ants wasn’t very vocal, he was responsive and he easily recognised this lovely couple.

It was a wonderful hour or two and, as I was walking the nephew and his wife out to their car, she admitted to me that she’d been a bit nervous, had wanted to remember Anthony as he was, but now felt reassured about how he IS.

The next day, I reminded Anthony of this visit, and his three-syllable, whispered response was “DELIGHTFUL”.

Okay, so that should be the punchline, but it isn’t. What I have learned from this visit, and from the frequent visits of other relatives and friends, is that speaking TO Anthony, no matter how unresponsive he seems, is vital.

It is unavoidable, of course, that, in a situation like this, we will also speak ABOUT him in front of him and I always find this TO-versus-ABOUT very difficult. It feels a bit disloyal to me; that weird scenario between being with the person who is being spoken to versus the scenario in which the person is being spoken about.

30 Comments »

Once upon a time 3

At some point in time (I think she was 22) the young woman decided to put some geographical distance between the dairy farmer and herself.

Ironically, it was he who picked her up from her mother’s house, and drove her to the airport. She had dressed up and put make-up on; the photograph her mother took shows a very handsome couple with too-wide smiles.

In the plane, on the way to London, the young woman tried over and over and over again to drop her burden of love into the various oceans, islands, and even into the black of night. But it was such a massive bubble, this wonderful love, that it lost its footing during a particularly difficult gravity experiment.

It (the love thing) floated easily up into the sky-clouds and had a bit of a rest.

The dairy farmer drove back from the airport to the farm.
The young woman began her ‘nanny’ job in London.

19 Comments »

Vacuuming

On the eve of Ming’s 22nd birthday I asked him to vacuum the house.

I had already given him a pre-birthday present of some money, but told him that he would only get the rest if he vacuumed the house.

He grinned, pointed out that the vacuum cleaner needed a new bag, asked me if I remembered how to change the bag, then tested my memory of how to change the bag. I have no idea why I have a reluctance to change the bag; Ants always did that, then Ming. But, in my defence, I am the one who does most of the vacuuming.

Well, having passed the ‘change-the-vacuum-bag’ examination, Ming dismissed me to my newly air-conditioned writing room/office, still grinning (him, not me) and I waited with bated breath for the sound of the vacuum.

I didn’t expect the sound to be so loud. Anthony was always a quiet, careful, gentle vacuumer; he didn’t want to upset the skirting boards. Ming, on the other hand, is a rather violent vacuumer. The BANG AND CRASH sounds were a little alarming so I decided to stay put in the hope that he would forget about this room where I was hiding under my desk.

Finally the sounds of mad vacuuming ceased. The silence was so abrupt that I wondered if the vacuum cleaner was all right. After a little bit more silence I realised that I should have been wondering about Ming.

I emerged from underneath my desk just as Ming entered my writing room. A great big grinning presence.

Ming: Well, I’ve cleaned your house!
Me: OMG that is exactly what Ants said after vacuuming! Every time he did anything domestic, he would make it known that he had done if for me, and I would argue that it was also his house.

I can’t wait to tell this story to Ants tomorrow. I know he will remember his obsession with vacuuming and Electrolux. And I know he will smile at Ming’s vacuuming efforts.

34 Comments »

Editing out the anger

I went back to yesterday’s post and edited out the anger by admitting to it. It doesn’t even feel like anger anymore; it feels more like terror. The power of suggestion I guess, phone-calls from various family members worried that Ants was near death; the idea insinuating itself into my psyche, drippling in – rusty tears from a leaking tap.

“He is fine!” said over and over and over again until my own voice has become the echo of Anthony’s whisper.

As I was leaving the nursing home the other afternoon, I had a brief conversation with a nurse:

Me: He’s really out of it today!
Nurse: Yes, he’s been sleeping a lot.
Me: Do you think … is he going to die soon?
Nurse: No, he’s just getting older.
Me: I get a bit scared sometimes.

Editing out the anger, facing the terror of losing him, then getting back to the normality of sitting next to him, my hand on his shoulder, watching television, waiting for him to wake up and smile at me.

31 Comments »

Whispers

Anthony’s voice has become so soft, he is hardly audible now. How did this happen so fast? One minute I am jotting down his brilliantly cryptic phrases, and the next he is unable to utter a single word.

Parkinson’s disease (in all its variations) has such a conglomeration of symptoms, the tremor symptom being just one, that it took years to figure out what the hell was wrong with Anthony. Understandably, perhaps, I just thought he was getting old really fast.

As Ming grew from baby to child to teenager, Anthony’s usually loud voice gradually lost its point, its force, its boom.

So, from now on, I will be listening to his whispers more intently than usual. He will have to check with me re the placement of every single comma!

The recent rumour that Ants was near death absolutely infuriated me!

Whispers….

33 Comments »

Anthony

In the last few moments of the year just gone, I broke my holstered, hesitant silence about your illnesses
and blog-blurted little retrospective bits of the puzzle
that has become you.

I wish that I had spoken up earlier
I wish that I had defended you better
I wish that I hadn’t succumbed to your gag order, your insistence on peace at all costs.

Now that you are so incapacitated, I want to be the LOUD of your frail voice; I want to be the SHRIEK of your silent tears; I want to be the STORY of all of your histories.

You won’t approve, of course. You won’t want anybody to know that your heart was so broken that it took the arrival of Ming to heal you. That amazing moment when you became a father and I became a mother ….

Happy new year Ants.

20 Comments »

The truth

Recently, I wrote a post outlining some factual information about events following my marriage to Anthony. Almost immediately, I received a flurry of support from other family members, but this one stands out:

Dear Julie and Ming
I have been extremely interested by your comments about the past. You are on the right track, I believe. It is very important to remember incidences that have had a profound effect on you and your family. It is more important to recall the actual facts that have not been changed by glossing over the truth or to suit particular individuals. What you have recalled regarding J’s behaviour is fact. I can remember Anthony telling us.
I have discovered many interesting things about the Goyders and the Stewarts thanks to your box. Much of the information is quite contrary to what J. believed.
I am hoping to have it all together (within the next year) so that Ming, being the youngest of the generation will know some more about his family. It will all be factual too.
You continue to do what is best for Anthony and your patience with others who think they know better is amazing.

But then I received this:

What are you hoping to gain from ranting about … ??? You’ve only alienated yourself even more from our Family!!! I feel sorry for you Julie it obviously consumes you and makes you behave badly !!!

Of course this niece of Anthony’s is upset; and of course she doesn’t want to acknowledge that her father may have bullied Anthony into such a state of stress that he was gobbled up by one disease after another.

What should have been an idyllic first few years of marriage, with the ever-cute Ming, was tainted terribly by the extraordinary and (for me) unexpected malevolence of these relatives.

I had the most beautiful afternoon with Ants today. As I arrived, my wonderful mother left (she and I are his almost daily visitors). He was wide awake, bright-eyed, defying all odds, my hero. I told him about everything that had happened lately and I cried into his wonderful shoulder.

Me: Do you remember the ‘party’ the other day, Ants?
Ants: My birthday?
Me: No, it had a kind of death theme actually, but I didn’t realise it at the time.
Ants: Who is dying?
Me: You, apparently.
Ants: What rubbish. Look at this!

With that, he pointed proudly (as he often does) to his very flat stomach. Years ago he was a bit more rotund!

This is the thing, you see: Ants is on the other ‘side,’ so to speak, of the dementia of PDD. He has totally forgotten the ‘party’ of course; he often forgets his age, or where he is, or what is wrong with him. But he remembers the familiar very well and the constancy of my almost-daily presence, Ming’s, his nephews’ visits, my mother’s frequent knitting visits; the letters from his god-daughter (also niece); visits from my friends who love me almost as much as they love him; the carers and other staff at the nursing home.

This is the truth.

33 Comments »

Death-defying

Anthony has lived, breathed and survived so many diseases now that it is gobsmacking that he is still alive and (almost) pain-free. He is like some sort of super-hero in the ‘high care’ section of the nursing home, and very popular with the staff because, after nearly four years there, he still has a twinkle in his eye.

Of course, sometimes he seems semi-comatose; other times, he is alert. It’s the same with verbal cognition: sometimes he is unable even to say a single word; other times he is vociferous. I haven’t seen him walk for awhile, but maybe he does that in the morning and I usually get there at lunch-time or in the afternoon.

Most of Anthony’s regular visitors – me, my fantastic mother, Ming, friends, family, and volunteers – actually speak to him, reminisce with him and this is wonderful. And the staff are fantastically interactive with him to the point of flirtatiousness. Be careful, girls – he is mine!

The rumour, spread by a family member, that Ants was near death, was disturbing to say the least, but, once I rang him, he admitted his mistake. It didn’t seem to occur to him that his rumour might have upset Ming and me.

This morning, I received a phone-call from a neighbour who hadn’t seen Ants for awhile and he was shocked at Anthony’s confusion and appearance. I reassured him that Ants was always a bit dishevelled in the morning. Later on today, my mother rang me to say she was with Ants and she gave me her phone so I could speak to him.

Anthony: Where are you?
Me: Ming and I are fixing a fence.
Anthony: At Bythorne?
Me: Yes.

Please don’t die, Ants. Not yet.

37 Comments »