Anthony: I saw her in the corridor … earlier….
Me: Who?
Anthony: Julie – it was Julie.
Me: I AM Julie, Ants.
Anthony: Yes … it’s extraordinary.
Anthony: I saw her in the corridor … earlier….
Me: Who?
Anthony: Julie – it was Julie.
Me: I AM Julie, Ants.
Anthony: Yes … it’s extraordinary.
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Me: I’m a bit upset about these wrinkles on my cheeks that I’ve just noticed, Ants – see?
Anthony: Yes.
Me: What do you mean by ‘yes’? You’re supposed to say that you can’t see any wrinkles!
Anthony: But I can [and, OMG, he puts a finger into one of the many new little grooves of my left cheek!]
Me: I’m not happy about this, Ants, and, by the way, the only reason you don’t have wrinkles on your face is because the Parkinson’s Disease has made your face expressionless!
Anthony: That was not my intention.
Me: What? What!
Anthony: You look beautiful, Jules.
Me: Okay, but do I have wrinkles?
Anthony: Just the nice flavour.
I tried to laugh without further crinkling my face….
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Me: How come there’s water all over the floor? Did you tip your drink out again?
Anthony: Yes, because everybody is dead.
Me: What?
Anthony: This is a funeral home.
Me: No way! This is a nursing home – remember?
Anthony: All of the kids ….
Me: Are they still bothering you?
Anthony: I had to fight one last night.
Me: Did you win?
Anthony: Half and a quarter….
Me: Good on you, Ants! They won’t be bothering you again, I’m sure.
…………..
Anthony: Well come on, Jules – let’s go.
Me: Where?
Anthony: Around the block.
Me: Which block? The farm or the nursing home?
Anthony: The rose garden.
Me: What rose garden?
Anthony: Along the driveway!
Me: It’s too rainy and cold, Ants – sorry. Maybe tomorrow?
……………
The last several weeks have been a bit of a challenge for me because my anxious/depressive tendencies roared into my brain – WHAMMO! – when I mistakenly thought Ants was on the brink of death. I don’t want the knife edge of that grief again and am hoping that I am now better prepared.
Me: I saw an advertisement on TV the other day about cremation versus burial. What do you reckon? You know what I mean? For both of us of course.
Anthony: It’s far too early to think about that.
Me: Okay, Ants.
Anthony: There’s something ….
Me: Is it to do with my exquisite face?
Anthony: I wouldn’t go that far.
Me: What?
Anthony: But it’s quite nice, I suppose.
Me: Harrumph!
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Me: Why were you so horrible to me yesterday?
Anthony: Because you wouldn’t take me home to see Mum!
Me: I’m sorry, Ants – it’s just that ….
Anthony: And, by the way, Jules – Mum is not dead!
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Me: Ants, is it okay if I write your life story?
Anthony: No.
Me: Why?
Anthony: Because I don’t exist.
[This is an exact rendition of our conversation yesterday.]
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Me: I love you so much, Ants.
Anthony: I wonder sometimes.
Me: What do you mean?
Anthony: The way you treat me.
Me: What?
Anthony: Like a bag of old rags sometimes. Look at yourself in the mirror!
Me: I don’t understand, Ants!
Anthony: It’s all right – I forgive you.
Me: Forgive me for what? I am doing my best! Why are you being so horrible to me?
Anthony: I just want to go home and see Mum!
Me: But she’s fine, Ants!
Anthony: This has been boiling up for ages.
Me: I don’t understand.
Anthony: Yes you do, and you only barely put up with me!
The above was an uncharacteristically angry and semi-lucid conversation during which I got my notebook out to record things exactly as they were said.
A marital row, I guess – no big deal. Anthony’s sudden mistrust and cynicism about me yesterday carried itself into today but was less acute. I hope this angry thing won’t last long.
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Me: Daaaarling!
Anthony: Jules!
Me: Why do you look so surprised?
Anthony: Well, I was going up the passageway and I saw her. It was extraordinary.
Me: Who did you see?
Anthony: You.
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One of the best things about my relationship with Anthony is that we are usually on the same page when it comes to humour, AND we are both able to laugh at ourselves. Today, I was feeding him his lunch and this was our conversation.
Me: You like this chocolate mousse stuff don’t you?
Anthony: I didn’t always.
Me: Well you obviously do now – you’re like some sort of lizard with your tongue sticking out for every mouthful.
Anthony: Delicious.
Me: Okay well I have to go to work now (volunteer job) so is there anything you want?
Anthony: Your hair ….
Me: OMG yes, yes, yes, my hair is due for a trim – anything else?
Anthony: It’s a matter of urgency.
Me: Urgency! Are you kidding? My hair? How dare you!
Anthony: But your face is beautiful.
Me: Too late for that kind of rubbish, Ants – you’ve done your dash!
Laughter … the most wonderful, magical thing in the world.
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It’s now been a bit over a month since I thought Anthony was on the brink of death. In the space of a couple of days, he had suddenly become unable to chew and swallow food in the ordinary way, and, on two occasions, had been unconscious for several hours.
The fact that these two ‘end-stage’ things happened in a matter of days convinced me that Ants was definitely on the way out – soon. I was catapulted into action, messaging family members, making appointments with funeral directors, our lawyer, meeting with my best friend, the Anglican priest who blessed Anthony with the last rites, picking songs for the funeral, and asking nearly 20 people to be pallbearers ….
And then, as my new friend Moira described it, Anthony “did a Lazarus”. Okay, so that is all very well and I am glad, but the panicked anxiety and anticipatory grief I felt during that week has left a bitter taste in my brain. I feel as if I have been tricked, deceived; here I am all ready for Anthony’s death but the joke is on me because he is still beautifully alive, holding my hand and watching a movie with my mother and me… today.
Ming, our son, our one child, always gives good, sensible, pragmatic advice to me. He is an absolute rock of a person and has had to cope with Anthony not recognising him several times recently. Ming is philosophical about this because he already knows how dementia works.
No dress rehearsal prepares anybody for the death of a loved one.
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