jmgoyder

wings and things

The email worked!

The email I sent myself included the following suggestions. Here are my ‘answers’!

Get your act together.

I am not an actor.

You are doing fine.

No, I’m not.

Make a great meal.

I made chicken noodle soup from scratch last night – will that do?

Go for a walk.

I walked around the house and around the yard twice.

Forget about your NanoWriMo failed attempt – get back to your half-written novella.

I think I may have trashed that novella.

Make a list of things you need to do and put it on the frig.

The list needs several frigs.

Recharge your camera and start taking photos again!

I am still searching for the recharging thingy.

Get the paper work sorted into categories and do NOT panic.

I have found all of the paperwork and placed it neatly into a box.

Try to conjure something to look forward to.

Fame and fortune.

Stop being so hard on yourself.

I’m not!

Stop sulking.

Okay.

Practise smiling in front of the mirror.

This was a very good idea but I think I need one of my teeth capped.

Keep going.

I am, you idiot!

…………………………………

Is talking to yourself the first sign of madness?

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The email

I received an email this morning that contained some harsh words and some kind words:

Get your act together.

You are doing fine.

Make a great meal.

Go for a walk.

Forget about your NanoWriMo failed attempt – get back to your half-written novella.

Make a list of things you need to do and put it on the frig.

Recharge your camera and start taking photos again!

Get the paper work sorted into categories and do NOT panic.

Try to conjure something to look forward to.

Stop being so hard on yourself.

Stop sulking.

Practise smiling in front of the mirror.

Keep going.

There was much more to this email but those were the main points. The sender’s voice was strong but loving because the sender was me.

Have you ever sent yourself an email?

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Love story 117 – Without

During this strange and difficult year (Anthony going into the nursing lodge, Ming’s spinal operation, and my loss of employment), Ming and I have somehow emerged from the quicksand of my grief and his rage and we are beginning to cope better. This evening we began a list of things we have to do, and buy, to keep this place ticking along properly. It is still a shock to me that Anthony is no longer at home and in charge of these things but, as Ming rightly pointed out tonight, this hasn’t been the case for some time.

Ming’s catchcry is always ‘teamwork’ and my response is always reluctant because he is so bossy. We have, however, dealt with our tussle with a truce handshake so tomorrow he will do the lawns and I will do the bills and other paperwork, and we will not argue. We will begin to transform our disorder into order, bit by bit by bit, without Anthony.

It is this withoutAnthonyness that seems to have suffocated my energy. I don’t feel quite present and I keep losing all of my todays. But Ming is okay and much stronger at the moment and tonight he asked me to lean on him more so I agreed. But I won’t really do this of course because I have to pull myself together so that I don’t cripple him under the weight of a temporary bout of despair. Without tomorrow, today would sob itself to sleep.

There is (I think, but I’m not sure) always, always, always, hope.

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Love story 116 – Good guess!

The relief of my conversation with Ants last night on the phone, and this afternoon in the nursing lodge, was like a silk scarf that you wrap around your neck with its beginning and end hems floating in the breeze. (Yeah, dreadfully twee but whatever!)

I asked him why he had finally stopped accusing me of having an affair and he said, “I just guessed it.”

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Sundown syndrome

The other day a friend mentioned this so I googled it and am stunned because it explains what has begun to happen to Anthony every evening! Other terms used are ‘sundowning’, ‘sundowner’s syndrome’ and ‘sundowners syndrome’. Here is a link to one ‘take’ on this very real problem.

http://www.caring.com/articles/sundown-syndrome

Sundown syndrome is an offshoot of dementia and usually happens as the sun goes down and light turns to dark, but it can also happen at sunrise. Some theories suggest that it has something to do with the 24 hour ‘brain clock’ that responds to changes in light. Other than this it seems to be a bit of a mystery. A person with dementia may be calm during the day but become agitated in the evening, sometimes quite dramatically.

Symptoms can include things like agitation, restlessness, aggressiveness, increased confusion, hallucinations, paranoia and a whole gamut of ‘out-of-character’ behaviours. This is the best explanation I have found yet to explain the last few weeks of Anthony’s increasing bewilderment and misery in the evenings.

Sunset, for Anthony and many others, is not beautiful.

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Are you asleep yet?

Are you asleep yet, my beautiful husband?

Midnight approaches me with dark, unfamiliar claws, so I go outside to find some moonlight but it is pitch black out there and, when I can’t find the moon, I race back inside frightened.

The dogs are barking at a moonless sky but they will soon settle.

Are you asleep yet, my beautiful husband?

You said the other day that you just wanted to sleep wth me but you have forgotten that we have not slept in the same bed since the evening when you could no longer reach the height of the bed and I wasn’t strong enough to lift you into it, and we had to put you into the smaller, lower bed in what we always called the spare room.

I know.

I know you have forgotten those years of tortured, sleepless nights for both of us -, me in the big bedroom, you in the spare room but calling me, calling me, knocking on the wall with your walking stick until, finally I began to sleep in the other small, low bed in the spare room, so that I could help you during those moonful and moonless nights – to pee, to turn over, to be warmer, to be cooler, to get your knees inside the covers, to sleep….

Your dreams were terrifying and you would yell out in your sleepless sleep and I would lie in my bed next to yours hoping it would stop.

Is that what is happening now? Are you still hallucinating about the girl with the bleeding eye, the mob who are chainsawing all of your palm trees to death, the calves on top of the television, the phantoms in the dairy?

The peacocks are crying, crying, crying and their sound is a haunting lullaby.

Are you asleep yet, my beautiful husband?

Please say yes. All you have to do is whisper it and I will hear you, I will hear you.

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Love story 115 – Sedation

Before I became a lecturer in literature and writing, I worked as a nurse in nursing homes and I used to be disturbed by the amount of sedation given to people with dementia. Now I understand much more clearly why.

This evening the nursing lodge staff rang me so that I could speak to Anthony and he was, once again, agitated, confused and mumbling conspiracy theories about what ‘they’ were doing to him. Again, he didn’t know where he was so I tried to reassure him, spoke to the evening nurse (I now call her ’24/7′) who was by his side, then to him again, then got off the phone stunned at the rapidity of his descent into dementia.

Earlier in the day I had rung the morning nurse to discuss the evening confusion problem and she said they were going to get a urine sample because Anthony might have a urinary tract infection. I had wondered this myself as I already knew that these kinds of infections can send someone who already has a brain disease into crazyland.

But tonight, after the jumbled conversation with Ants, I waited until I had calmed down a bit, then  I rang ’24/7′ back to have a private chat and she told me the urine test came back clear.

This means that Anthony does not have a urinary tract infection.

This means that we are now facing what I already knew was coming (but Anthony didn’t), the dementia of Stage 5 Parkinson’s Disease. It has been lurking there for some time but now its jaws are wide, its fangs are sharp and it is out to get him.

’24/7′ told me he had refused his dinner, had become belligerent and was difficult to calm down.

We need sedation.

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What next!

Two phonecalls tonight with Anthony.

I rang him at 7.30pm to say goodnight then he got a nurse to ring me at 8.30pm. During both conversations, Ants was convinced that I was having an affair and that everyone was telling him that. I thought he was joking to begin with, then realized he was serious. He said, “Jules, I have the shakes.” I kept saying not to be so ridiculous and, luckily, the nurse was there in the background of the second phonecall to reassure him.

This evening confusion thing is escalating and now we have a brand new ingredient: jealousy.

Anthony: It’s that man they told me about.

Me: What man? Who told you? What are you talking about?

Anthony: He kissed you.

Me: Nobody kissed me, Ants, please Ants, are you kidding around?

Anthony: Okay, Jules, sorry, I was just pulling your leg.

Me: Well, it’s not funny – don’t joke with me Ants like that – please!

Anthony: So where are you now? Is he there?

Me: Who? Ming?

Anthony: No, that guy we were just … that guy, that man … Jules I love you.

And it went on like this for awhile until the nurse intervened, reassured me on the phone and gave it back to me to say goodnight to Ants.

It is going to be okay. I know all about dementia so I am prepared but this jealousy is so new it flabbergasts me.

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Love story 113 – When a phonecall brings you to your knees

It is happening more and more often now – this evening phonecall from Anthony to tell me he is lost and asking me when I am coming to find him and bring him home.

Obviously it isn’t Ants who rings me because he has forgotten how so I usually speak to him and then to the nurse looking after him and then to him again.

It always ends up okay for him because I manage to reassure him and then the nurse reassures me too.

Usually I am okay because I know now that Ants’ evening confusion is pretty regular, and the staff are wonderful to ring me on his behalf.

But tonight, after reassuring Ants that I would see him tomorrow and him saying, “Okay, my beautiful girl”, I hung the phone up and my knees buckled.

I got up and went outside to feed the birds and  they surrounded me while I threw bread, distributed wheat, and sobbed for my lost husband.

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Why didn’t I think of this before?

Every Thursday morning the nursing lodge has a bus excursion and Anthony usually goes. Last Thursday I arrived at the nursing lodge at around noon to be told that Anthony was still out and that the excursion was to Dardanup (our town!) They’d gone up to the hills just past our farm. So, when the bus returned and Ants was being helped back to his room by the nurse in charge of the excursion, I asked if it would be possible for the bus to come to our place and she said yes!

So tomorrow, they are coming here and I am so excited. The nurse said they might make it a semi-regular thing and I wanted to kiss her feet! This would be a stress-free way of getting Anthony home for a few hours and I am sure the other residents will enjoy it too. They always bring their own morning tea and there are enough staff for any toilet emergencies, so I am definitely in yeeha mode! Anthony seems to think it is a great idea too.

I have told the birds that they will have an audience tomorrow between 9.30 and 11.30am, so they are all practising for Godfrey’s contortionist competition.

Another contortionist

A competing peahen

Woodroffe thinks he will win the competition

Pearl will be performing in the pond

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