jmgoyder

wings and things

“Playing” dead (don’t worry – he’s fine!)

pea 205pea 238pea 288pea 307

Gutsy9 (baby peacock for those who don’t know) likes playing dead and I keep getting a fright! Of course he is not really playing dead, he is just playing.

When Anthony was still living at home, he used to do this (not intentionally of course), and I would find him slumped in his chair, apparently asleep but looking as if he were dead. Sometimes I couldn’t wake him up but he would still be breathing. This happened at least once a day over the year preceding his admission to the nursing lodge. Since then, I have had to get the ambulance three times when this has happened on a home visit.

The cause? Advanced Parkinson’s disease. The cure? None.

44 Comments »

Dementia is confusing

Anthony’s encroaching dementia confuses both of us and sometimes I am more confused than he is. That’s why I am so glad we have such an honest way of talking with each other.

When Ants was home yesterday, and I mentioned that he had dementia and he winked at me, I was surprised for two reasons. Firstly, his Parkinsons disease prevents him from blinking, let alone winking, so that wink was weirdly wonderful. Secondly, when he and I talked about the dementia of his PD, and I laughed about the taxi mishap, Ants was fine – not distressed and quite okay with the fact that he has dementia now.

I’m confused.

47 Comments »

Anthony’s acceptance

pea 181pea 188

One of the most difficult things about Anthony moving into the nursing lodge has been accepting this dramatic change.

Ming (now 19) was the first to accept this change willingly, whereas it took me nearly a year and mine was an unwilling acceptance laced with grief and guilt.

Anthony’s own acceptance has taken longer but yesterday it just happened and I am so relieved. This is how:

I booked the wheelchair taxi to pick Ants up from the nursing lodge at 2pm, then I rang his nephew who lives around the corner, and left a message that Ants would be home for a few hours.

Then, at 2.30pm, the nephew rang to say Ants was at their place! Apparently Anthony had convinced the taxi driver that our address was wrong and directed him to go to the nephew’s!

By the time the rather flustered taxi driver arrived here (around 2.45pm) I was in such fits of laughter that I could hardly speak as he got Ants out of the taxi. I hugged Ants, still spluttering with hilarity, so much so that Ming took over wheeling Ants to the front veranda while I paid the taxi driver who was now laughing too.

Okay, frivolity aside, the bemused taxi driver left, Ming went to milk the cows and Ants and I shared a beer and some snacks I had painstakingly prepared (chips). Here is our conversation:

Ants: It’s good to be home.
Me: So why did you go to the nephew’s?
Ants: I got mixed up.
Me: Yeah, you have a bit of dementia now.
Ants: I thought so. Am I staying the night?
Me: No!
Ants: Why?
Me: Because, Ants, you are too sick, I can’t lift you, and you need nursing care. How many times do we have to have this discussion? You have to accept it Ants – please!
Ants: You’re right.
Me: What?
Ants: You’re right.
Me: Okay, so the wheelchair taxi is coming to take you back in a few hours. Are you okay with that?
Ants: Yes, Jules (winking).

We then shared another beer, laughed again about the taxi mishap (well, I laughed and Ants looked at me as if I were crazy), then he began to droop badly and agreed to get the taxi earlier.

Acceptance.

PS. I’m off on my bike to tackle the road now!

54 Comments »

Nose aerobics

Every morning for the last week, I have been doing an average of two hours of nose aerobics. My nose is so keen, it wakes me up early sometimes.

The exercise routine never varies: 50 sneezes, half a box of tissues, a dose of antihistamines, 50 more sneezes, the remaining tissues, another dose of antihistamines until, eventually, my nose begins to relax.

As a result, my nose is now twice the size it was last week due to increased musculature.

Oh how I loathe summer hayfever!

67 Comments »

The shortlist

I have discovered something wonderful and I’m sure Oprah will be contacting me soon to make me rich and famous.

Okay, we are all familiar with the list thing – shopping lists, chore lists, goal lists etc. But you know what the trouble is with these lists? They are too long!

My extensive research, case studies and social experimentation over the last three days have produced extraordinary findings! Yes, indeed, I have found the cure for lethargy!

The two candidates for this study were a teenage son and his mother who were becoming more and more depressed and, yes, lethargic, due to the grief they were experiencing when the husband/father figure went into a nursing home.

Neither the wife or son had been able to adjust happily to the new home dynamic despite having a close relationship. This was compounded by the son having to have major surgery and the mother losing her job.

Even a year after the husband’s admission to the nursing home, the son’s surgery and the mother’s loss of employment, all three were still struggling to accept the new status quo. All three were grieving in different ways and this resulted in numerous arguments with emotions running high, particularly between the mother and son. Both became exhausted and fell into a state of lethargy.

Then, three days ago, a plan was devised. Each day, the mother and son would write down a 3-point shortlist for the following day. This was done in a special notebook, almost like a contract. There would be one task that required both (we called that ‘mutual’), one task for the son, and one task for the mother.

The beauty of the shortlist is that it is ‘doeable'(is that a word?)

Okay, tongue out of cheek now – this is working, so watch this space!

69 Comments »

Apostrophes

pea 370pea 367

Anthony’s wife is Julie.
Anthony’s son is Ming.
Julie’s husband is Anthony.
Julie’s son is Ming.
Ming’s father is Anthony.
Ming’s mother is Julie.

We are each others’ apostrophes.

And Gutsy’s mine.

40 Comments »

When things go wrong

This morning, on our way to town, Ming and I had a ferocious argument, with him yelling and me shrieking and both of us swearing and me crying.

Our first stop was the chemist so I left Ming in the car, slammed the door, wiped my eyes and went in to get a few things with a big fake smile on my face. It took awhile for a couple of prescriptions to be filled so I went back to the car to find Ming with silent tears rolling down his cheeks. I got into the car and sobbed an apology which was reciprocated, then we just sat in silence for a few minutes, staring dully though the windscreen.

Then we began to talk:

Ming: There is something wrong with me. I’m ruining your life.
Me: There is nothing wrong with you and you are not ruining my life.
Ming: Then why does this keep happening?
Me: Because you keep losing your temper with me and I keep overreacting.
Ming: I just want to make things perfect and it never works.
Me: Yes, and that includes me?
Ming: Yes, well, no – I just want you to be happy.
Me: Well I just want you to be happy too. But you are a bully!
Ming: I think we should go back to counselling.
Me: I agree.
Ming: Sometimes when I wake up, I just want to go back to sleep.
Me: Same here.
Ming: I want to be a child again.
Me: So do I, sort of.
Ming: Am I really harder for you than Dad?
Me: Physically, no, mentally, yes – emotionally, about the same.
Ming: But I’m only trying to help.
Me: By nagging me, reprimanding me, trying to control me, yelling at me?
Ming: You said we’d leave today at 11am.
Me: So we left at 11.10am – was that a tragedy?
Ming: No, but you’re always letting me down – you never want to leave the house.
Me: I’m having a bad time with lethargy.
Ming: Same here.
Me: So we need a plan of attack. From now on we will make a daily plan for each day. We’ll do one chore together and one separately, schedule it into the day and allocate a definite time. Neither of us is allowed to renege or be late. We’ll write tomorrow’s plan tonight and sign it like a contract.
Ming: That’s what I’ve been saying for ages, Mum – teamwork!
Me: Okay, I don’t particularly like that word but yes, you are right.
Ming: Shake hands then?
Me: Okay.

We went on and did the rest of our town errands and got home smiling. I feel terrible about the horrible, cruelly sarcastic things I said to Ming, and for screaming at him like a psycho, and he feels terrible for his control-freaky temper, but maybe we had to have this crash in order to wake up.

I am hopeful.

71 Comments »

Hugging

Everything else about today pales into insignificance compared to the hugs. I hugged Anthony when he was standing up and he let go of the walker and hugged me back. Then I hugged him while we were tackling his lunch and he pushed the food away and hugged me back. Then, as I was about to leave, I knelt down on the floor in front of his chair to kiss him goodbye and he enfolded me in his arms and gave me a bearhug. He brought my face into the hollow of his shoulder, kissed my hair, held me ferociously and whispered, “Jules, I love you so much.”

Usually the wasted muscles in his arms make hugging difficult, but not today! I am home now and can still feel that goodbye hug and I am trying very hard not to cry.

52 Comments »

Farmboy 3

Don’t worry – this is not going to become a neverending series. It’s just that today’s incident was so funny.

An old friend of ours, who has a farm nearby, rang up the other day to see if Ming might be available for some odd jobs. Ming said yes so yesterday he had to drive a tractor (which he’s never done before but he learned fast) and today he was asked to come and help a cow who had just delivered a calf.

I think Ming might have anticipated patting the cow on the head or something but when he got back home after around two hours, he seemed a little shaken.

Apparently, the cow was unable to deliver the afterbirth, so Ming was told to reach inside and pull it out. So he did.

The cow is fine, the farmer is happy and Ming doesn’t want any lunch!

71 Comments »

Farmboy 1

It was about two years ago when our lives (Anthony’s, mine, and Ming’s) altered dramatically. Here is an abbreviated list of events, in no particular order:

1. Anthony’s Parkinson’s became so bad that he required hourly nursing care during the nights.
2. I eventually got exhausted and was hospitalized for a few days.
3. Ming’s scoliosis required surgery.
4. I had to take extended leave from my university job as a lecturer.
5. Ming completed his last year of school.
6. We found that the farming family, whose property adjoins ours, was willing to lease our 100 acres for the correct rent.
7. We withstood the continuing verbal abuse from our previous lessee who we had already kicked off for negligence etc.
8. With Anthony’s approval, I contacted our lawyer to prevent the previous lessee from coming onto the property.
8. We accepted that Ming would have to have surgery.
9. We accepted that Ants would have to go into a nursing lodge.
10. Ming began his Certificate in music and, simultaneously, began milking cows for the same people we are now leasing to.

Our farmboy’s journey began!

Ever since Anthony went into the nursing lodge, and Ming had his spinal surgery, life-as-we-knew-it has altered dramatically.

30 Comments »