jmgoyder

wings and things

One-liners

Anthony has always been really good at encapsulating what would take me paragraphs to describe. And, in between the worsening mumblingishness of his speech, he comes out with extraordinary witticisms.

This afternoon, for instance, we were drinking red wine and watching an appallingly good soap opera on TV when the guy in the next room (I’ll call him John for anonymity) accidentally walked in.

I see Anthony’s eyes, usually expressionless, harden. So I get up and gently steer John back into the hallway where a nurse takes his arm and tells him she has made a cup of tea. He looks back at me and says, Tomorrow we gistust this potatoes worry, okay?

Leaping back into Anthony’s room (before he drinks my wine!) I ask him about John.

What do you do when he comes into your room and disturbs you? I ask.

He looks at me really seriously and quietly says, PANIC!

I laugh so loud that a nurse comes in, worried that I am upset about the John incident. I tell her what Ants said and she guffaws too.

As I am leaving, I hug my husband and he whispers in my ear, I am making people laugh again, Jules!

So you’ve stopped the grumpy thing? I ask, hopefully (knowing that my gentle man has become uncharacteristically cantankerous lately).

But in just these few minutes of saying goodbye, he has gone somewhere and there is no point trying to follow him.

So I go to where my sobs won’t be heard – the disabled toilet near the exit from the nursing lodge – then I wash my face, put my lipstick back on, and go back to say seeya to Ants.

Panic.

53 Comments »

Style

I don’t think ‘style’ is quite the right word but it will do.

There are all sorts of styles….
– of breathing
– of living
– of dying
– of grieving
– of laughing
– of hoping
– of loving

Etcetera.

And each person’s style is unique, sometimes chosen, sometimes accidental, but always, always, very personal.

Let’s take grief, for example. My own for Anthony’s slow decline into the fog of Parkinson’s disease/Parkinsonism and dementia has taken a few U-turns. No, no – that’s not right – it is I who took the U-turns.

I know this is going to sound terrible, but I have gone through phases of not wanting to see him; getting him home only to find it impossible to lift him, and becoming angry; wanting the wheelchair taxi to come early. Can you imagine the guilt?

But of course these emotional transitions are not just mine; they are his too. In the 18 months since he entered the nursing lodge, Anthony has had to get used to hands other than mine undressing and showering him, meals that I didn’t cook, unfamiliar blankets, surroundings, people….

Etcetera.

This is my grief, my guilt, my love, my style, my Anthony, and, despite the private/public paradox of my blog, it has never been a cry for help.

My style:
– Do not try to rescue me
– Do not worry about me
– Do not try to get me out-and-about
– Respect my privacy.

I love Ants in a past/present way, that beautiful figure of male virility, running through the paddocks to get the cows in and yelling, ‘Jules, RUN!’

We were friends for years before our relationship became serious … and now we are friends in that original, platonic way (despite his occasional innuendos).

And I seem to have fallen in love all over again which is quite weird until I realize that Anthony is the only man I have ever loved in that falling-in-love way. It is the same for him.

35 Comments »

Silence

Silence is not always golden – it can be a lead, dead weight.

At the nursing lodge, I am learning, with restless determination, how to sit in silence with Ants who is beginning to forget how to talk, to form sentences/words.

So what do I do? I talk frenetically, I throw myself around his room, recharge his phone, make sure his airconditioner is onto heat, turn the TV onto ABC, put the new heatpads into his slippers, hug and kiss him. Sometimes I am there for a few hours, sometimes just a few minutes; if I can’t get into town, I eventually get him on the phone.

His silence on the phone, and in person, is sometimes deafening.

52 Comments »

Joy

It seems indecent to feel, or worse embrace, joy, when your loved one is disappearing.

But joy is clever; it sneaks into the mud of your sorrow and explodes it away in rainbowish sparkles.

It is nearly 35 years since I, rather transparently, fell in love with Anthony and he kept his reciprocal feelings secret (I was, after all, still a teenager and he was over 40).

I think of what we had, what we endured, what we celebrated, and what we have now, as a big kind of love – huge, inviolable, but feather-light, a joy.

I have never felt so sad.
I have never felt so happy.

Joy.
Anthony.

23 Comments »

Parkinsonism

I am finding it very difficult to talk/write about this without crumbling into a teary mess of memories. Hopefully, it will be okay if I just post short glimpses of how Anthony’s Parkinsonism revealed itself. It’s not all tragic, of course, and we continue to have many comic moments.

My first memory of something being amiss with my macho-machine husband was when he couldn’t open the Vegemite jar for our morning toast. I even remember teasing Anthony which, in retrospect, seems cruel, but we had a buoyantly bantery relationship, a beautiful little son, and I was adept at opening jars of Vegemite for Ming.

Little did we know then that Parkinsonism had moved into the spare room.

37 Comments »

The Parkinson’s disease that nobody seems to know about

Okay, of course the medical professionals know a bit about the type of Parkinson’s disease that Anthony has lived with for nearly a decade, but his official diagnosis is Parkinsonism. Anthony doesn’t have the Michael J Fox variety of Parkinson’s disease; for example, he has no tremors. If he’d had the characteristic tremors, we may have found out earlier.

Anthony’s Parkinsonism is best described as a list of losses in movement. If I look back in time, my first memory of a change in Anthony was his face. It was a big, huge face with a receding hairline and a deeply grooved forehead, twinkling blue eyes, large, but refined nose, sunburned cheeks, large, laughing mouth with good, straight teeth, and a strong jaw.

To be be continued….

26 Comments »

June 1st

Well I had my month off blogging, and only kept up with other people’s blogs haphazardly, and I have to say it was a refreshingly silent month. It has given me the time needed to reassess a few things, turn some corners, contemplate the future, and come to terms better with Anthony’s deterioration.

Gutsy 9, the not-so-baby peacock, is thriving and now sleeps in the wattle trees at night with the other peacocks, and is quick enough to get away from our two dogs now. He still does madly joyful pirouettes whenever he hears my voice and loves to fly up onto my shoulder for a kiss. (I don’t have a new picture of this so have included one from when he was little. He is now twice this size, so rather heavy).

Ming is still happily milking for our dairy farmer neighbours, and creating music in the evenings. He gave me 4 nights at a luxury resort for Mothers’Day – not a bad gift!

I still battle bouts of volcanic grief about what is happening to Anthony, but have learned a few more ways of bringing joy back into our little family.

It’s good to back and thanks for the many comments. This is a lovely community.

pea 148

48 Comments »

Thanks!

Just checking in halfway through my blogbreak. Thanks to all for comments on last few posts – I really appreciate it and had intended to reply, sorry!

I’ve temporarily unsubscribed from most blogs to give myself a break, but will get back eventually I hope.

It’s just that I am so sad at the moment, about Anthony, because of how fast the dementia is happening now.

Ming, Gutsy9 and I are all fine which somehow seems wrong. I miss Anthony so much.

85 Comments »

An eventful year (1995)

1995 004

1995 012

1995 019

1995 029

1995 037

1995 049

1995 052

1995 058

1995 060

1995 062

1995 063

1995 067

In 1995, I got a part-time job at the local university lecturing in creative writing.

In 1995, Anthony was diagnosed with kidney cancer and had his left kidney removed

In 1995, Ming turned one, was baptised, went from crawling to running, learned how to clean his teeth, got into the vroom of things, slept peacefully, learned how to wash a car, yell HURRAY, climb mountains and open his own Christmas presents.

But, of the three of us, I am the only one who remembers any of this now because Ants is too old and Ming was too young.

45 Comments »

Nostalgia (1994)

IMAG0013IMAG0018IMAG0035IMAG0039

I finally figured out how to use my little scanner, so now I can get a photobook made for Ants. Here are a few of my favourites.

28 Comments »